EA/EOU

PRIVACY CONFIDENTIALITY ANONYMITY

WHAT IS THE DIFFERENCE BETWEEN PRIVACY, CONFIDENTIALITY AND ANONYMITY?

Anonymity is protected when the researcher refrains from collecting any personal identi�ers, direct or indirect, that would link responses to a speci�c individual. o Data is not collected in person. o No key codes exist, and names and other identi�ers are not collected.

Protecting research participants includes considerations for protecting their privacy, keeping information con�dential, and/or allowing the participant to remain anonymous

Privacy in research refers to protecting the individual’s right to control access to their participation in a study (i.e., extent, timing, circumstances). o Carefully consider the appropriate circumstances and setting for participant recruitment, enrollment, and data collection.o Limit the information collected to what is essential for research purposes.

Con�dentiality pertains to protecting the participant’s personally identi�able data.o Ensure that the participant’s identity, personal information, responses, etc. will not be disclosed to anyone outside of the research team unless otherwise agreed upono Notify participants: •how their information will be stored during and after the study. •that breach of con�dentiality is a potential risk of participating. •the steps researchers will take to secure and protect their records.

Each of these practices must be articulated in an IRB protocol application

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Questions? Contact irb@purdue.edu or 765-494-5942