April, 2014
PAN FoundationOffering Help and Hope for a Healthy Tomorrow
Agenda
PAN Foundation Overview
Program Assistance
2012 Patient & Provider Survey
Contact Information
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Who We Are
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Mission
The Patient Access Network Foundation (PAN) offers help and hope to people with chronic or life-threatening illnesses for whom cost limits access to breakthrough medical treatments
Background
Established in 2004, PAN is an independent, national 501 (c) 3 organization
Founded to help reduce the financial burden of underinsured critically and chronically ill patients and provide hope for leading productive and healthy lives again
Governed by an 11-member Board of Directors with expertise in medicine, healthcare administration, non-profit management, finance and public policy
What We Do
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PAN provides financial assistance to individuals who have insurance but lack the means to pay for out-of-pocket costs associated with life-saving specialty medications
Who Qualifies
Individuals with Medicare, Medicaid or private health insurance who meet disease-specific eligibility criteria
Amount of Assistance
Depending on the illness, between $500 - $15,000 in copayment assistance for a 12-month period
Disease Funds
Nearly 60 disease-specific programs covering a wide range of patient needs
Oncology
‒ Advanced Basal Cell Carcinoma
‒ Anaplastic Large Cell Lymphoma
‒ Bone Metastases
‒ Chemotherapy Induced Neutropenia
‒ Chronic Lymphocytic Leukemia
‒ Colorectal Cancer
‒ Cutaneous T-cell Lymphoma
‒ Gastrointestinal Stromal Tumors
‒ Immunotherapy for Genitourinary Cancers
‒ Hodgkin’s Lymphoma
‒ Lung Cancer (Non-Small Cell)
‒ Mantel Cell Lymphoma
‒ Metastatic Breast Cancer
‒ Metastatic Castrate Resistant Prostate Cancer
‒ Metastatic Melanoma
‒ Multiple Myeloma
‒ Myelodysplastic Syndrome
‒ Myeloproliferative Neoplasms
‒ Non-Hodgkin’s Lymphoma
‒ Progressive Neuroendocrine Tumors of Pancreatic Origin
‒ Philadelphia Chromosome Positive Acute Lymphoblastic Leukemia
‒ Renal Cell Carcinoma
‒ Well-Differentiated Thyroid Cancer
Rare Disease
‒ Acromegaly
‒ Cushing’s Disease
‒ Gaucher Disease
‒ Homozygous Familial Hypercholesterolemia
‒ Methicillin-resistant Staphylococcus Aureus (MRSA)
‒ Short Bowel Syndrome
‒ Tuberous Sclerosis Complex
‒ Uveitis
‒ Wilson Disease
Chronic Disease
‒ Age Related Macular Degeneration
‒ Ankylosing Spondylitis
‒ Asthma
‒ Chronic Iron Overload‒ Cytomegalovirus
‒ Diabetic Foot Ulcers
‒ Diabetic Macular Edema
‒ Growth Hormone Deficiency ‒ Hepatitis B
‒ Hepatitis C
‒ HIV/AIDS‒ Idiopathic Thrombocytopenic
Purpura
‒ Inflammatory Bowel Disease
‒ Kidney Transplant Immunosuppressants
‒ Multiple Sclerosis
‒ Plaque Psoriasis‒ Postmenopausal Osteoporosis
‒ Psoriatic Arthritis
‒ Retinal Vein Occlusion
‒ Respiratory Syncytial Virus ‒ Rheumatoid Arthritis
‒ Secondary Hyperparathyroidism
‒ Solid Organ Transplant Immunosuppressants
‒ Venous Leg Ulcers
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PAN Financial Assistance Programs
Travel Assistance
‒ Metastatic Castrate Resistant Prostate Cancer
Premium Assistance
‒ Homozygous Familial Hypercholesterolemia
‒ Short Bowel Syndrome
By The Numbers
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Since 2004
PAN has helped more than 200,000 patients
Provided nearly $400,000,000 million in patient assistance
In 2013
PAN received more than 330,000 calls
Approved nearly 91,000 applications
Processed applications in less than 1 minute
98% approval rate
Partnered with more than 21,000 providers and 81 specialty pharmacies at 158 locations to help their patients obtain assistance from PAN
Application
Approval Letter
SP/Provider
Patient
Patient eligibility criteria:- Myelofibrosis (MF)- Polycythemia Vera (PV)- Essential Thrombocythemia (ET)
• Patient has insurance coverage and is prescribed a high cost specialty therapy
• Patient's income must be at or below 500% of the Federal Poverty Level
• Patient must reside and receive treatment(s) in the US and its territories
$7,500 per year with the ability to receive additional funding, if available
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Relationship Flow:
Program Assistance
PANFoundation
Approval Letter
Application
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Application & Claims: A Rapid Response
• PAN offers a variety of ways for patients, providers, and advocates to submit applications for financial assistance for high-cost specialty medications
Website/Portals
Staff approve patients
according to PAN eligibility
criteria
PAN pays claims to
pharmacies, physicians or
patients
By PhonePatients orAdvocates
seek assistance
Patients receive
treatment
‒ Ability to “virtually “sign the application across all points of entry
Offers access to our national network of pharmacies
Can be used by pharmacies or physicians to submit electronic or manual claims
Helps patients avoid making out-of-pocket payments for their medications
Name: John Jones
ID #: PF100200
Group #: R2005
Rx Bin # 539355
Convenience
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Patients are issued an electronic benefit card to ensure seamless electronic submissions
2012 Impact & Satisfaction Survey
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Objectives
Assess patient and provider satisfaction with PAN services
Understand effect of copay assistance on adoption of therapy and continuity of care
Key Findings
High out-of-pocket expenses associated with medications are #1 reason why patients fail to begin or continue treatment
Assistance from PAN helps patients comply with their medical regimen
Assistance from PAN allows patients to pay other bills, relieves stress, and positively impacts their overall health
538 Patient surveys completed; 430 Provider surveys completed
Copay Expense: #1 Barrier to Treatment
11Q. 1 Which factors, if any, affected your ability to begin the treatment recommended by your doctor? Q2. Which factors, if any, have affected your ability to continue (comply) with your treatment recommended by your doctor? (Check all that apply.) 2011 N=~500, 2012 N= 512
PAN’s AssistanceValuable
12Q3. Using a scale from 1 - 5 where 1 is Not at All Valuable and 5 is Extremely Valuable, please rate how PAN’s assistance has affected your ability to stay on track with your treatment? N=528
Patient ComplianceIncreased
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Complied39%
Unable to comply
61%97%
Complied
3% Unable to Comply
After PAN's AssistanceBefore PAN's Assistance
Q.4 Prior to receiving assistance from PAN, were you able to take your medication as prescribed by your doctor? N=504 Q.5 Now that you are receiving co-payment assistance from PAN, are you able to take your medications as prescribed by your doctor? N=520
Percentage of patients able to take their medications as prescribed increased from 39% to 97%
Proud To Say…
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98% of patients are satisfied with PAN’s services
97% of providers select PAN as their first choice for financial assistance even when same assistance exists elsewhere
Summary
Efficient and High Touch Service
High Patient and Provider Satisfaction
Strong Network of Physicians and Pharmacies
Data-Based Decision Making
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1-866-316-7263
www.PANfoundation.org
Contact Information
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