Download - Ms. Sara Riggare, Karolinska Institute, Sweden presentation from the European Health Management Association in Birmingham, UK, 25 June 2014

Patient involvement

– the good, the bad and the ugly

Sara Riggare, MSc,

PhD candidate, Karolinska Institutet

Chief Patient Officer, Nerve

Sara Riggare

Time with neurologist

Sara Riggare

Time with neurologist 2012, n=135

0 mins/year

5-60 mins/year

61-120 mins/year

121-180 mins/year

>181 mins/year

Time with neurologist

Sufficient

Insufficient

(Riggare, 2014, unpublished)

Sara Riggare

44% of the population has one or more chronic

conditions

25% have 2 or more chronic conditions

80% of total healthcare costs

Sara Riggare

Chronic disease in Sweden

Ref: Vårdanalys, 2014. ”VIP i vården? – Om utmaningar i vården av

personer med kronisk sjukdom” (in Swedish)

Sara Riggare

Increasing cost?

Sara Riggare

Knowledge

Sara Riggare

Self-reported knowledge

Insufficientn=52

Sufficientn=79


Knowledge

Sara Riggare

Insufficient knowledgen=52

Expecting informationfrom healthcare

Expecting to acquireknowledge oneself

Sufficient knowledgen=79

Knowledge acquired viahealthcare

Self-acquiredknowledge


Sara Riggare

P=0.963 (Mann-Whitney U) P<0.05 (Mann-Whitney U)

0

5

10

15

20

<1 year 1-3 years 4-6 years 7-10 years >10 years

Time since diagnosis

Insufficient knowledgeExpecting to acquireknowledge oneself, n=5

Expecting information fromhealthcare, n=47

0

5

10

15

20

25

<1 year 1-3 years 4-6 years 7-10 years >10 years

Time since diagnosis

Sufficent knowledgeSelf-acquiredknowledge, n=59

Knowledge acquired viahealthcare, n=20


”The holy grail of medicine”?

Sara Riggare

Take home message

Sara Riggare

Sara Riggare

Thank you for listening!

[email protected]

www.riggare.se

Sara Riggare