Living Well, Dying Well: Active Decision Making for
Family Caregivers
Lorrianne Topf, RN, MSN, CHPCN(c) Learning and Effectiveness Leader North Okanagan Hospice Society Vernon, BC March 3, 2017
Disclosure slide
We do not have an affiliation (financial or otherwise) with a
commercial organization.
Acknowledgements
Funding and assistance for this project were received from the Hospice innovation Fund-Seed Grant Program, a joint initiative between the BC Centre for Palliative Care and BC Hospice Palliative Care Association, which was funded by a grant from the BC Ministry of Health
Community Foundations North Okanagan (funding)
North Okanagan Hospice Society
Interior Health (partner)
Lumby Health Society (partner)
UBC Okanagan (partner)
Contents
Who we are
The Problem
Goal and Objectives
What we did
Inputs, Outputs and Outcomes
Evaluation
Lessons learned
Who we are
UBC Okanagan
Facilitator
Dr. Carole Robinson
Interior Health
Co-Facilitators
Jennifer Fisher
Brenda Pickering
Beth Lipsett
Clara Dyck
North Okanagan Hospice
Society
Co-Facilitator
Lorrianne Topf
Admin Support
Tanya Stilborn
Volunteer Support
The Problem
Rising demand for a palliative approach to care • People live longer • More complex healthcare needs
Our community identified
• Need for community education • Awareness for individuals living with a life-limiting
illness and their Family Caregiver’s (FCGs) FCGs struggle with
• Being unprepared and inadequately supported • Caregiving decision making
Goal and Objectives
Goal: Inform and educate residents of the North Okanagan (early in their illness journey) about a Palliative Approach to care.
Objectives: To support people affected by life-limiting illness to be active in their own care and caregiving.
What we did
Created a workshop utilizing a Family Decision Making Guide and combined this with local resources
Dr. Carole Robinson from UBC Okanagan facilitated
Interior Health staff and North Okanagan Hospice Society staff and volunteers assisted
Held 3 separate workshops in the North Okanagan
Vernon (Urban) and Armstrong (Rural) and Lumby (Rural)
Evaluated the process
Created a Logic Model to guide the process
Inputs Outputs Outcomes
What We Invest
Information/data
Staff
Money
Partners
Experts
Written Resources
Activities
Planning
confirmation of
partners and
co-facilitators
Develop
information
packets
Marketing
Conduct
workshops
What the Results Are:
Learning
Appreciation of a palliative
approach to care
Awareness of caregiving issues
and options
Awareness of resources
Change in:
Capacity, Preparedness, Support
Participation
(Who we will
reach)
Persons with
life-limiting
illness
Family
Caregivers
Objectives:
To support
people
affected by
life-limiting
illness to be
active in
their own
care and
caregiving.
Evaluation: Number of individuals living with a life-limiting illness and their FCGs affected by the problem.
Number of staff, co-Facilitators, and partners recruited and expertise provided.
Accountability for all resources used.
Evaluation: A series of workshops developed, implemented, and evaluated:
Number of participants who are new to NOHS provided workshops.
Identified gap between desired and actual resources.
Reports, papers, presentations to disseminate information re: process and results.
Identified gap between desired and actual resources.
Workshops A:
% of participants who reported after
the workshop:
Enhanced appreciation of a Palliative Approach to care and caregiving.
Enhanced awareness of caregiving issues and options.
Enhanced awareness of local resources; enhanced awareness of desired resources.
The Problem: There is a rising demand for a palliative approach to care as people live longer and have more complex healthcare needs. There is an identified need for community education and awareness for individuals living with a life-limiting illness and their FCGs. FCGs struggle with being unprepared and inadequately supported. They have difficulty identifying the caregiving decisions they must make or how to go about making those decisions.
Goal:
Inform and
educate
residents of
the North
Okanagan
(early in
their illness
journey)
about a
Palliative
Approach to
care.
Evaluation Measures
Logic Model
Inputs
What We Invest
Information/data
Staff
Money
Partners
Experts
Written Resources
Outputs
Activities
Planning
Confirmation of partners
and co-facilitators
Develop information
packets
Marketing
Conduct workshops
Participation
(Who we will reach)
Persons with life-limiting
illness
Family Caregivers
Resources
Outcomes
What the Results Are:
Enhanced Appreciation of a Palliative Approach to Care
Enhanced Awareness of caregiving issues and options
Enhanced Awareness of resources
Change in:
Capacity, Preparedness, Support
Evaluation
Percentage of participants after the workshop who indicated they felt better prepared for providing care for someone living with a life limiting illness
Vernon: 80%
Armstrong: 80%
Lumby: 90%
Evaluation
Percentage of participants after the workshop who indicated there was a difference between what local resources presented could offer and what they needed
Vernon: 40%
Armstrong: 0%
Lumby: 10%
Evaluation
Percentage of participants after the workshop who indicated they had a better understanding of available local resources
Vernon: 92%
Armstrong: 90%
Lumby: 90%
Evaluation
Percentage of participants who felt it was likely that they would use the information presented in the workshop
Vernon: 76%
Armstrong: 90%
Lumby: 80%
Comments
What information from this workshop was most helpful to you?
Preparing for caregiving in advance
The contact # for home and community care
Resources, overview and guide
Validation of how in depth caregiving is
Recognizing the importance and value of the caregiver
Realizing that ‘you are not alone’
Comments
Helpfulness of the Decision Making Guide
Preparing in advance will be the key
The step by step approach to care
Each section highlights important issues
Reminders to reevaluate the situation/health
Lessons Learned
Family caregivers proved to be elusive and difficult to find
Differences between the expectations of urban and rural participants
Partnerships and volunteer support proved essential for the success of this project
Questions/Discussion
Ideas for finding family caregivers for these events
Thoughts on the differences when caring in rural or urban environments
Contact Information
Lorrianne Topf, RN, MSN, CHPCN(c)
Learning and Effectiveness Leader North Okanagan Hospice Society Vernon, BC T: 250-503-1800 ext. 104 E: [email protected]
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