1 Annual Report 2018
Annual report FAB 2018 Fundashon Alzheimer Bonaire
2 Annual Report 2018
Table of Contents
Preface
The FAB Board
ADI-Focus 2018
Introduction Dementia Plan
Targets achieved in 2018
Activities 2018
Annual accounts 2018
Notes to annual accounts 2018
Closing remarks
Preface
Our Board is very proud of a successful year 2018, especially of what
we achieved in our efforts to provide as much information as possible
to the community of Bonaire to raise awareness of the various aspects
of Alzheimer’s disease.
We are very grateful to our volunteers, donors and experts, both local
and from abroad, for their role and contribution in the realization of
our annual program of the past year.
Our report gives you an overview of our activities during the year
2018.
Unfortunately, we had to end the year 2018 without being able to
start drafting the National Dementia Plan for Bonaire as we had
planned. We do hope that, in the first quarter of 2019, the
Government will give the necessary approval for the budget intended
for writing this policy plan.
Our affiliation with the umbrella organization Alzheimer’s Disease
International (ADI) will most probably be confirmed by May/June 2019
during the Council Meeting. All the preparations to comply with the
required criteria point in that direction. We will be particularly
pleased if this is confirmed.
We have also strengthened the ties with our new contacts with
Alzheimer Netherlands for the year 2019 in order to come to a joint
venture agreement. The intention is, with their support, to work on a
number of projects; we hope to receive some good news on this in the
first quarter of 2019.
We are very optimistic that realizing the National Dementia Plan for
Bonaire, further strengthening our ties by joining the umbrella
organization ADI as well as cooperating with Alzheimer Netherlands
will enable our Foundation to better continue the fight against
dementia in order to guarantee the quality of life of our loved ones.
We will not be able to achieve this on our own, but trust that our
volunteers, donors and the Bonairean community will give us the
necessary support, as we have been used to for years. We are ready
to accept together the challenges in the year 2019.
Evert L. Piar, Chairman
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The Board of FAB
Mr. Evert L. Piar, Chairman
Mrs. Henna Winklaar, Vice Chairman
Mrs. Anna Maira Vaseur, Secretary
Mrs. Senaida Hart, Treasurer
Mrs. Stephanita Felida, Vice-Secretary
Mrs. Marie Frans-Schermer, Member
Dr. Giovanni Castro de Castro, Member
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ADI is the umbrella federation of Alzheimer ’s associations/foundations worldwide, which support people with dementia and their families and also work towards exerting influence on the policy in their countries. ADI, with the central office in London, UK, and registered as a non-profit organization in the U.S.A., was founded in 1984 and has an official relationship with the World Health Organization (WHO) since 1996. ADI currently counts 94 affiliated members (with a rising number), spread worldwide, all of which are non-profit organizations. This year, 2018, was marked by the World Alzheimer Report “The State of the Art Dementia Research: New Frontiers”, which was launched in the World Alzheimer’s month. The report discusses the main issues related to dementia research, the expectations and frustrations, the possibilities and the groundbreaking research that needs to be done. World Alzheimer’s Month of September is an annual international campaign to raise awareness and to challenge the stigma around dementia. As the World Alzheimer’s Month campaign was launched in 2012, September 2018 was the 7th anniversary of World Alzheimer’s Month. World Alzheimer’s Day was declared in 1994 on September 21 on the occasion of the 10th anniversary of ADI. Two in three people worldwide believe that, in their countries, there is little or no knowledge or understanding of dementia. The influence of World Alzheimer’s Month grows steadily but stigmatization and misinformation about dementia remain a global problem which requires a global approach.
ALZHEIMER’S DISEASE INTERNATIONAL ( ADI )
In the year 2018 there were again some changes in the Board of FAB; Mrs. Anna Maira
Vaseur joined the Board to fill the vacancy after Mrs. Paulina Rodriguez’s resignation, who
would like to act as a FAB volunteer in the future. Meetings were held monthly, on
Tuesdays, in the meeting room of Kas di Kwido in Mariadal. The Board consists of
volunteers.
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INTRODUCTION
National Dementia Plan of Bonaire
In Bonaire, the care for people with dementia gets a lot of attention, which is absolutely right. Due to the increasing ageing of society in the coming decades, the number of people with dementia will certainly rise. It is expected that, in the future, 1 in 5 people will get a form of dementia of which Alzheimer’s disease is the most common. Not only the Government and health insurers, but also the health and care organizations face a number of complex issues. The list below is by no means complete.
• How do we organize the care for the increasing number of people with dementia who live at home?
• How do we make the society dementia-friendly? • What can we, at home, in neighborhoods and districts as well as in organizations do to
improve the quality of life of people with dementia? • How can we support family caregivers of people with dementia so that admission in a
healthcare facility can be postponed as long as possible?
“Fundashon Alzheimer Bonaire” was founded in the year 2011. The purpose of this foundation is to provide information to the people of Bonaire in general, and in particular, to the families who have family members with this form of dementia, Alzheimer’s disease. At the conference in September 2017 in London, UK, organized by ADI, the umbrella organization for Alzheimer’s disease, the representatives of Fundashon Alzheimer Bonaire committed themselves to working on a National Dementia Plan for Bonaire. The purpose is that the local Government, our Foundation and all Stakeholders join forces in order to find solutions for today’s as well as tomorrow’s care seekers. Our aim is that the National Plan is a widely supported action plan against the socio-economic problem of the 21st century, namely dementia. In addition to this National Plan, two other projects were also part of the commitment, namely the introduction and launching of our Website, which took place on March 22, 2018, and the introduction and consolidation of our Support-Group, which was installed in January 2018 and has been operational since then. As initiators, we were looking for healthcare professionals, policy makers, managers and directors to form a committee of five experts to support the Board and to serve as an advisory body to reach policy goals. The Committee has been installed and is formed by experts in various areas, such as a medical doctor, a healthcare manager, a teacher of welfare and care, an organization sociologist and a financial expert. The Foundation considers it important that the Committee consists of a diverse group of people with different backgrounds and qualities, who can complement each other.
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GOALS ACCOMPLISHED IN THE YEAR 2018:
Together with the local Government, represented by the Head of Public Health and her advisors, we have formulated our vision and mission, which will be the guide for the writer of the policy plan. The aim is that the National Plan meets international requirements and is supported by our local Government. Together we will help to formulate the plan for which the local Government will make money available to pay the writer. The Executive Council of the local Government will set the writer a timetable and deadline to write a National Plan. He/she will also get a letter signed by a member of the Executive Council and possibly the Chairman of the Foundation saying that he/she is authorized and competent to approach bodies and organisations to collect information that he/she may need in order to carry out his/her task.
- Our Support Group for family members was installed and became operational in January 2018 according to the standards of Alzheimer’s disease International.
- The launching of our new Website in March 2018 in accordance with the standards of Alzheimer’s disease International.
- National Dementia plan for Bonaire. All preparations, vision and mission, Terms of Reference (TOR), presentation of an Advisory Committee and the submission of two quotations for writing the Policy Plan to the Public Entity Bonaire in June 2018.
- Participation in the 33rd International Alzheimer’s Disease Conference held in Chicago, IL in July 2018 by our Chairman Mr. Evert L. Piar, which was also one of the requirements for membership of Alzheimer’s Disease International.
- A full and successful program for the month of September, Alzheimer’s month, including celebration of Alzheimer’s day on September 21, highlighted by a visit to the Deputy of the Ministry of Public Health to offer the report “World Alzheimer Report 2018: The State of the Art of Dementia Research: New Frontiers”
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ACTIVITIES 2018 FUNDASHON ALZHEIMER BONAIRE
JANUARY 2018
Friday January 19, an information evening was held at Captain
Don’s Habitat in Bonaire and the topic was “Kon
komunikakuun persona ku ta bibakudemensia” (How do you
communicate with a person with dementia?). The speaker was
Mrs. Ankie Fransen, speech therapist. This was the first activity
of the year and was well attended.
Saturday January 27, as it has become a tradition at the beginning of each year, the Board put a
number of volunteers in the limelight during the Masha Danki Party (Thank you party); this time
it was at El Mundo restaurant. The volunteers who shone last year were Mr. Mario Francees,
Mrs. Anisela Thode and Mrs. Epifania Britt. They received the usual certificates and a gift from
the Board. It was a cozy get-together of the Board with most of the volunteers.
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FEBRUARY 2018
During the weekend of Friday February 16 to Sunday February 18, attention was paid to music
therapy which is an innovation in the care. On Friday, a music therapy workshop was held at
Mariadal Academy for health care providers, policy makers, managers in the care, and
caregivers. On Saturday, a presentation was given of the movie “Alive Inside”, also at Mariadal
Academy, for health care providers, caregivers and people who were interested, while on
Sunday there was an evaluation meeting between the Board of FAB and the Music & Memory
presenters Marjon Roos, Karen Wouter and Jet Thoonen. All came over from Curaçao
especially for the weekend. This event, which was very successful, was made possible thanks to
our sponsors.
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MARCH 2018
On Saturday March 24, an
information evening was held
at Captain Don’s Habitat
Bonaire. The topic was “Kon
pa diagnostika demensia”
(How to diagnose dementia?).
The speaker was Drs Stephen
Ebisilio, neuro-psychologist.
This information evening was
also well attended.
On Thursday March 22, a press conference was held at Captain Don’s Habitat in Bonaire for
the launch of the new Website of Fundashon Alzheimer Bonaire with members of the local
press and representatives of the sponsor Sunbelt Realty and the Board. This project can be
referred to as one of the three projects which FAB has committed itself to in order to be
affiliated with Alzheimer Disease International (ADI).
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APRIL 2018
On Saturday April 28, a mini-symposium was held on
the theme “Op weg naar een complementaire zorg
voor mensen met dementie” (“Towards a
complementary care for people with dementia”) in
the Peter Hughes conference room at Divi Flamingo
Beach Resort & Casino. Guest speakers were Dr
Nienke Gomzales Diaz and Mrs. Lissette Does from
Aruba, Dr Simon Binck, social geriatrician from the
Netherlands and from Bonaire Mrs. Alcira Janga-
Jansen, Head Public Health Care, Mr. Danny Royer,
Care Manager Fundashon Mariadal and Mr. F.G.(Boy)
Clarinda, Director Pasadia Cocari. Those invited were
health care providers, policy makers, care managers
and caregivers. The mini-symposium was well
attended. Fundashon Alzheimer Bonaire is very
grateful to their sponsors who made it possible to
organize such a symposium.
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MAY 2018
JUNE 2018
On Friday June 15 at 19.00, an information
evening was held in the conference room at
Captain Don’s Habitat Bonaire. The topic
was “Rekonose forma, señal di abusu”
(Recognize the type and sign of abuse).
Speaker was Mrs. RocioChavez Meza, a
volunteer and a care provider. It was again
well attended.
On Thursday May 3 at 19.00 in Capture 2 Room at Divi Flamingo Beach Resort
& Casino, there was an introduction meeting of the Advisory Committee for
the benefit of the Dementia Plan Bonaire to the Fundashon Alzheimer
Bonaire. Arrangements were made for a fruitful cooperation.
On Saturday June 16, FAB organized its fundraising activity, a
BonKune at SOHO (Clubhouse Chinese) under the professional
leadership, coordination and organization of Mrs. Adrienne de
Jongh.The attendance was beyond expectations, which resulted in a
successful activity so that the Foundation can realize its annual
program. Afterwards, Chairman Mr. Evert I. Piar offered Mrs.
Adrienne de Jongh, on behalf of the Board, an Alzheimer International
pin as token of appreciation for her commitment and dedication. The
Foundation publicly thanked all companies, individuals, volunteers
and participants for their collaboration with the Bon Kuné.
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JULY 2018
Wednesday July 11, the presentation of the polo shirts to the FAB Board and volunteers
took place at the office of Alfa & Omega Uniform & Laundry N.V. Mr. Elvis Margarita,
Director of the named enterprise, did the ceremony. It was a beautiful gesture of this
enterprise to contribute with these shirts to our Foundation. We will make good use of
these shirts during our activities. Our Chairman Mr. Evert L. Piar and Mrs. Epifania Britt
represented respectively our Foundation and our volunteers. Our Board is extremely
grateful for this gesture of Mr. Margarita and his company.
From July 26 up to and including July 29, 2018, the 33rd International Conference of
Alzheimer’s Disease International was held in Chicago, IL at Mc Cormick Place, which was
attended by our Chairman Mr. Evert L. Piar as a representative of Fundashon Alzheimer
Bonaire. Attending an ADI- congress/conference was also one of the requirements for
affiliation with ADI. This is to exchange experiences and to learn from each other’s
activities. Moreover, it is an ideal opportunity to network.
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Argentina
Ireland Qatar
For participation in the Congress, the expenses were partly covered from own resources
and with a private financial contribution. This way the Foundation was able to delegate its
Chairman; otherwise, it would not have been possible given the high costs for participation.
More than 750 delegates from 65 countries participated including people with dementia,
family members, caregivers, health care providers, scientists, medical specialists, staff and
volunteers of Alzheimer’s Association, speakers and representatives of various
organizations such as Global Coalition on Aging, Women’s Brain Project, NCD Alliance,
Alzheimer Europe and many more.
Onze stichting is heel trots en dankbaar dat onze voorzitter heeft deelgenomen en wij
profiteren vandaag nog van wat hij heeft meegenomen aan informatie en ervaringen, naast
het netwerken.
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AUGUST 2018
SEPTEMBER 2018
August was dominated by the completion and the dispatch of our annual
report for the year 2017 and the preparations for the activities for September
2018 which is the Alzheimer’s month.
The Board of the Foundation prepared an exuberant
program for the month of September. Although, with the
exception of the Chairman and a Board member who are
retired, the Board members as well as volunteers had a big
job to realize this, they were able, to everyone’s
satisfaction, to make this a successful program with a lot
of publicity. September 2018 started as follows: Saturday
September 1, Alzheimer’s month started with the display
of the theme for 2018 “Every 3 seconds someone in the
world develops a form of dementia” on the digital boards
of Hitess Bonaire at various locations in the trend of
awareness. Sunday September 9, in the Roman Catholic
Church La Birgen of Coromoto in Antriol at 9.00, a holy
mass was dedicated to the people with Alzheimer’s
disease, their families, the Board and volunteers of the
Foundation in the presence of pastors Santiago Malagon
Pedraza, Ivan Dario Perez and Ranolfo Goneda. During
mass, family member and volunteer Mr. Harold Vaseur
shared his experiences with those present. Two Board
members, some clients and volunteers brought the
“ofrenda” (offer) to the front for the pastors in honor of
Alzheimer’s month.
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On Thursday September 13, a course for carers and family members of people with
Alzheimer’s started at Thuiszorg Rincon; the course took four weeks and the participants
appreciated to being allowed to take part in what will benefit the quality of care.
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On Friday September 14, an information evening was held at Pasadia Cocari in Rincon.
The speaker was Drs Stephen Ebisilio, neuro-psychologist and the topic was “Kon pa
diagnostiká demensia?” (How to diagnose dementia?); this event was well attended.
In the week of September 17 up to and including September 21, Board members and
volunteers visited all radio stations in Bonaire as well as TV/Energia to give interviews
with the aim to promote awareness.
Friday September 21 at 10.00 a.m., the Foundation organized a walking tour for the
visitors of the Kresh in Bonaire which started at Kresh Yiwiri and to finish, the participants
were expected at NosTV. The aim of all this was to promote awareness among children as
well.
On Friday September 21, the day of Alzheimer’s
disease worldwide, at 14.00, a delegation of the
Board with two volunteers of the Foundation visited
the Deputy of Public Health Mr. Edsel Cecilia and his
advisors Mrs. Alcira Janga-Jansen, Head Public
Health, and policy advisor Mrs. Alicia Krijgsman. The
aim of this visit was to present the World Alzheimer
Report 2018 “The state of art of dementia research:
New frontiers” and the 2017 annual report of
Fundashon Alzheimer Bonaire. The Chairman made
use of the opportunity to inform the Deputy about
the activities organized by the Foundation for the
month.
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Tuesday September 25 started at 10.00 a.m. with games for people with dementia with
the goal to share their capacities, talents and their experiences with each other. This was
held at Pasadia Cocari in Rincon. The participants really enjoyed themselves.
On Wednesday September 26 at 19.00,
an information evening was held for
religious communities at Bonaire
Christian Fellowship. The presentation,
a review of the activities by Fundashon
Alzheimer Bonaire, was given by Vice-
Chairman Mrs. Henna Winklaar as part
of Alzheimer’s month.
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OCTOBER 2018
On Saturday September 29, to end Alzheimer’s month program, a ‘hofi’ Alzheimer was
organized in the form of High Tea at El Encanto in Belnem for female guests. This activity
proved to be a successful event as well.
Wednesday October 3 at 10.00, Chairman Mr. Evert Piar had an interview at Radio
BonFM to give an account of the activities of last Alzheimer’s month which was a very
successful program with much publicity that contributed to the awareness of the
community in Bonaire.
Wednesday October 17, the Board of Fundashon Alzheimer Bonaire in collaboration with
the department of Civil Affairs of Society and Social Care analyzed the population of
Bonaire on the basis of figures per September 30, 2018 and drew up an overview
concerning gender and age. It was found that 19.2 % or 3,825 persons were 60 years old
or older at the end of September 2018. Attached a copy of the overview; this means that
the number of people with dementia could increase considerably, with all possible
consequences for our island Bonaire.
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FIGURES POPULATION BONAIRE PER 30 SEPTEMBER 2018
Age:
Male: Female: Total: %:
0 -59
8,350 7,756 16,106 80.8%
60-69 1,183 1,065 2,248 11.3%
70-79 582 543 1,125 5.6%
80-89 170 207 377 1.9%
90-99 28 44 72 0.4%
100-105 1 2 3 --
Sub-total (60-105) 1,964 1,861 3,825 19.2%
Grand-total 10,314 9,617 19,931 100%
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NOVEMBER 2018
Friday November 9, Vice Chairman Mrs. Henna Winklaar had a meeting with Mrs. Hella
van der Schoot, communications advisor of Alzheimer Netherlands who was visiting
Chairman Mr. Evert Piar, to inform her about the ambitious developments of FAB. The
annual report of 2017 was also presented to her as well as our plans with the local
Government to create a National Dementia Plan for Bonaire. Mrs. van der Schoot was
asked to hand over the annual report to the new Director Mrs. Gerojke Wilnink and the
Deputy Director Mr. Marco Blom of Alzheimer Netherlands, and to introduce the plans for
a possible collaboration and support. Our Foundation would like to strengthen ties with
Alzheimer Netherlands to work together and/or receive support.
Tuesday November 13 at 18.00, a lecture entitled “Hòfi di kuido pa personanan ku ta biba
ku demensia” (Care centre for people with dementia) was given at Biblitioteka Públiko in
Antriol. The speaker was Mr. Henk van Dort from the Netherlands, who was actually in
Bonaire for the Children’s Book week. He talked about a concept that we will be able to
apply in Bonaire. The lecture was well attended including two specialists on elderly
medicine working at Fundashon Mariadal.
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Don’t feel alone, we’re there for you!!
Finances
Monday November 19, there was a meeting between our Chairman Mr. Evert Piar, our
Vice Chairman Mrs. Henna Winklaar and the specialists in elderly medicine Mrs. Tessa
Nooij and Mrs. Stephanie Requerme of Fundashon Mariadal. This consultation was to
see whether it is possible to make a new Resident (physician in training to become a
specialist in elderly medicine) available to study the number of people with dementia in
Bonaire; this ahead of the Dementia Plan. These ladies will discuss this request with the
Head of the Elderly Medicine Training in the Netherlands. Our Foundation will be
notified in due course.
Fundashon Alzheimer Bonaire as a foundation depends on gifts, donations and grants for
the realization of its goals.
The Foundation may not receive government grant and must raise funds to meet its
obligations by, among other things, gifts and donations from individuals and companies.
Below you will find the annual financial accounts of 2018.
Hieronder treft u de jaarrekening over 2018 aan.
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Annual financial accounts of 2018
BALANCE SHEET
Assets ($) Dollars Liabilities ($)Dollars
Inventory 4,224.00 Capital 445.05
Liquid assets 9,326.46 General surplus 13,105.42
Total 13,550.46 13,550.46
STATEMENT OF INCOME AND EXPENDITURE
INCOME ($)Dollars EXPENDITURE ($)Dollars
Proceeds book sale 200.00 Expenses activities 2,159.88
Donations & gifts 823.40 Interest and bank charges 100.37
Contribution Chamber of
Commerce Bonaire
131.00
Proceeds fundraising
activities
6,965.73 Translation charges 639.44
Travelling and hotel
expenses conference
1,490.00
Other expenses 153.82
Net result 3,314.62
Total Income 7,989.13 Total Expenses 7,989.13
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Notes to the Balance sheet and Statement of Income and Expenditure:
CLOSING REMARKS
Throughout the current year, the Foundation organized a big fundraising
activity, a very successful “Bon Kuné” to finance a part of its annual program,
besides that companies as well as individuals were responsible for the
realization of various projects.
For the Chairman to attend the 33rd International Alzheimer’s Disease
Conference in Chicago , IL his travel and accommodation expenses as well as
registration/ conference costs were partly paid from own resources with a
financial contribution from a private individual specifically for this purpose.
The item ‘inventory’ on the balance sheet represents the books “Welo ta
lubidá” which are still in stock; the intention is to promote the sale more in
2019.
Our vision is focused on prevention, timely diagnosis, care and integration for today, and to
find a remedy for tomorrow.
Our mission is to create awareness regarding dementia, to reduce taboo, to make dementia
a matter of all of us and to encourage our Government to make dementia a priority of health
care; likewise, we want people with dementia and their care partners to get more
empowerment and decisiveness.
Our goal is and will remain to, by all means, improve the quality of life of the care seekers in
Bonaire, and to ensure that qualitative care is given by caretakers, family members and all
involved. More attention for the care providers, particularly the family and the immediate
vicinity is also a must.
This year we will commit ourselves again to aim at a dementia-friendly community; and we
can only achieve that by cooperating with each other unconditionally.
Evert L.Piar, Chairman
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