Engaging Patients with Chronic
Diseases Using ICT:A Multicultural Approach in B.C. Canada
Kendall Ho, MD FRCPC
Director, eHealth Strategy Office
Faculty of Medicine, University of British Columbia
World of Health IT Conference, Barcelona
March 17, 2010
If you build it, will they come?
Dyersville, Iowa (filming of “Field of Dreams”)
Engaging
Public in
ICT Use in
CDM?
3
Engaging Public: Chronic Diseases
• Accurate & quality health information
• Enable self-care & health partnerships
• Impact on chronic disease management
• Health consumers & health professionals
• Between generations & care givers
• Peer to peer
British Columbia,
Canada
Home Language:English 51%
Chinese 21.6%
Punjabi 8.2%
Korean 2.7%
Filipino (Tagalog) 2%
Persian (Farsi) 1.7%
Vietnamese 1.3%
Spanish 1.2%
Serving multicultural public?•Language marginalization
•Computer skills
•Hunger for health knowledge
6
iCON: Goals
1. Provide access to culturally relevant health
information in Chinese language
2. Use multi-channel engagement to reach a
variety of community members’ needs/
preferences
3. Gather and incorporate data to ensure
community-driven content and format
7
Health Forum, Vancouver
8
Live Forum Component
• Chinese and South Asian doctors, nurses, dietician, pharmacists…
• Diabetes: September 2007 (~700 attendees)
• Healthy Heart: April 2008 (~1000 attendees)
• Dementia: October 2008 (~700 attendees)
• Dementia: March 2009 (~750 attendees)
• Liver Disease: November 2009 (~1,450 attendees)
• Medical & university students
• Surveys, focus groups, interviews
Web component
• Culturally appropriate and language translated:
• Traditional and simplified Chinese characters
• Punjabi
• Chronic disease management content:
• Symptoms
• Self-management
• Diet
• Local resources
• Interactive feedback
• Online survey…
Culturally relevant and
translated health resources
www.iconproject.org
Public Engagement - Highlights
• Over 95% of the surveys turned in first language
• Female 65% Male 35%
• Average 65 years (mid-30s to late 90s)
• 1/3 Patients
• 1/3 Interested in prevention
• 1/3 Caregivers
Findings: What does self care mean?
• Trying to make healthy choices but need culturally relevant resources
available in own language
• Becoming better informed so they will have to “use the system less”
• Having sufficient knowledge to be conversant with health professionals
• Helping family members care for themselves
“The problem with doctors is that
we only go for a check-up once,
but our condition may change
before or after, even if we are well
at our appointment…and he says
“ok” – we don’t know for sure….”
Necessary Ingredient:
Culturally relevant
resources available
in own language
Health info Sources:
•Doctors, HPs
•Newspapers, books
•Internet (41%)
DO YOU THINK IT IS A
GOOD IDEA TO KEEP A
RECORD OF YOUR OWN
HEALTH WITH YOU?
Good idea to keep own record? (Q#10)
10.6%
86.3%
3.1%
Maybe
Yes
No
Findings: Personal Health Record
Findings: Personal Health Record
• 75% see an advantage in electronic PHR
• 80% would like to learn electronic PHR
• 88% would like a template
Themes:
When a patient keeps his or her own record it
facilitates knowledge and self-management.
When both patient and physician keep a record it
facilitates comparison and validation of information.
Insights: Public Engagement Evaluation
• Common Desire: engaged, empowered, contribute
• Evaluation builds trust and partnerships
• Evaluation promotes authenticity, mutual understanding
• Through engagement, evaluation can build capacity
iCON…What’s next?
Digital Access through Web 2.0 Network (DAWN)
Public Health Agency of Canada funded
Reaching population in non-urban B.C.
Videoconferencing, web/pod casting
Blogs
Youtube
Wiki
Smart phones
…
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“Dizzy Gillespie”: lessons
• They're not particular about whether you're
playing a flatted fifth or a ruptured 129th as long
as they can dance to it.
• How do you know they like your music? If I got
their toes tapping, then I know I’ve got them
Essence of
Engagement
Multicultural Engagement in ICT
• Build content to invite
• Build community to engage
• Build evaluation to understand
• Build personal tools to transform
Contact Information
eHealth Strategy Office
Faculty of Medicine, UBC, Vancouver, Canada
MISSION: IT to enable education, service,
research and knowledge translation
Kendall Ho: Director & Associate Professor, Emergency Medicine
www.eHealth.med.ubc.ca
Facebook: Kendall Ho
Thank-you to….
• Michael Smith Foundation for Health Research
• Technology Enabled Knowledge Translation Investigative Centre
• BC Ministry of Health
• Vancouver Coastal Health Authority
• Fraser Health Authority
• Public Health Agency of Canada
• Safeway Canada
• SUCCESS, Progressive Intercultural Community Services Society
• The many health professionals, students and community members
• Francis Ho
• Kendall Ho
• Jennifer Cordeiro
• Noreen Kamal
• Shinie Tan
• Janice Tian
• Elizabeth Stacy
• Helen Novak Lauscher
Project Team
• Francisco Grajales III
• Jasmin Abizadeh
• Nelson Shen
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