Title page using same image and text as document cover page
CENTRE FOR
DISABILITY
RESEARCH AND
POLICY
Monitoring Manual and Menu (MM&M)
for CBR and other community-based disability
inclusive development programs
MM&MRos Madden
WHO-FIC October 2014
Poster C535
Rationale
• CBR is a valued community development approach but there is a lack of
evidence of its efficacy (World Report on Disability 2011, Global Disability
Action Plan 2014).
• To build evidence about CBR, consistent with the philosophy of CBR,
monitoring should be the starting point: locally controlled and empowering
stakeholders with information.
The development of a monitoring toolkit to assist CBR program managers
and stakeholders to record locally meaningful information and data,
based where possible on international standards.
Aim
1. Literature review and analysis (36 M&E articles and reports)
Confirmed need for more rigorous and compatible monitoring and
evaluation practices to be developed.
Identified 2,495 information items used or sought in literature on
monitoring and evaluation of CBR, and coded 788 items (32%) to
ICF domains and categories.
Demonstrated ICF is a relevant and potentially useful classification
for CBR monitoring.
Madden RH, Dune T, Lukersmith S, Hartley S, Kuipers P, Gargett A, Llewellyn G. The relevance of the International Classification of Functioning, Disability and Health (ICF) in monitoring and evaluating Community-based Rehabilitation (CBR). Disabil Rehabil 2013 Early Online: 1–12.Lukersmith S, Hartley S, Kuipers P, Madden RH, Llewellyn G, Dune T. Community-based rehabilitation (CBR) monitoring and evaluation methods and tools: a literature review. Disabil Rehabil 2013 Early Online: 1–13.
Method
4
8%
1%
49%
42%
Body Functions
Body Structures
Activities &Participation
Environmental Factors
Most common ICF components
5
4% 1%
11%
9%
10%
7%
10%
24%
24%
Learning & applying knowledge
General tasks & demands
Communication
Mobility
Self-care
Domestic life
Interpersonal interactions and relationships
Major life areas
Community, social & civic life
Activities & Participation
Most common
ICF domains
6
10%4%
20%
43%
23%
Products & technology
Natural environment and humanmade changes to environment
Support & relationships
Attitudes
Services, systems & policies
Environmental Factors
Most common
ICF domains
2. Workshops with CBR stakeholders
2011: Workshops with CBR stakeholders from Vietnam, Lao PDR and the Philippines.
Participants’ information needs, then first draft of organised lists of information items.
2013: CBR stakeholders from PNG, Timor Leste, Solomon Islands and Fiji in 2013,
Similar process, resulting in first draft Manual and Menu.
3. Synthesis, consultation and review
Synthesised information items from previous stages via thematic analysis.
Mapped to relevant frameworks (e.g. CBR Matrix) and data standards (including ICF).
Refined the logic, structure and wording of the Menu (including via an online survey).
Collaborators provided case studies to highlight the purpose and value of information
that can be gleaned from monitoring, for inclusion in the Manual.
Further consultation with collaborators to refine the Manual and Menu.
Advisory Group from June 2013.
External reviewers on several iterations of the draft Manual and Menu.
Method
Photos
2013
The results
Steps explained in the ManualBefore you begin1 Prepare for collaboration2 Design information
Exercise 1: Why is information needed? How will it be used?Exercise 2: What items of information are needed?Exercise 3: How will we collect and record the information?Exercise 4: When and where will information be collected, who will collect it, and how will it be stored?Exercise 5: Who will use the information and how?
3 Develop the monitoring plan4 Undertake monitoring activities5 Analyse and use information6 Review monitoring activities & the monitoring plan
Menu of information items: Headings
P1 Person—Personal profile & history P2 Person—Functioning and disability
P2.1 Body functions P2.2 Activities and Participation
P3 Person – Environmental factors P4 Person – OutcomesO1 Organisation – Purpose, structure, strategyO2 Organisation – Resources O3 Organisation – Environment O4 Organisation – OutcomesA1 Activities – What is done A2 Activities – Outcomes W1 Workforce – Personal profile of staffW2 Workforce – Knowledge and skills W3 Workforce – Responsibilities and tasksW4 Workforce – Training undertaken W5 Workforce – Quality of performance
• Freely available guidance for CBR and other disability inclusive
development programs to plan locally controlled monitoring activities which
empower stakeholders with information
• Deeper understanding of the diverse information needs and priorities of
CBR stakeholders from Asia and the Pacific region, and of data standards
that are relevant and useful for CBR monitoring
• A strong and vibrant network of CBR stakeholders in the Asia Pacific
region, underpinned by shared commitment to CRPD, CBR guidelines and
matrix, and the ICF.
• A desire among collaborators and CBR network to test and improve the
Manual and Menu…
Outcomes of the project (so far)
Thank youfrom the collaborators
University of Sydney team
Centre for Disability Research and Policy
Ros Madden
Sue Lukersmith
Sally Hartley
Michael Millington
Charlotte Scarf
Nicola Fortune
Alexandra Gargett
Gwynnyth Llewellyn
sydney.edu.au/health-sciences/cdrp/cbr-monitoring
Grateful acknowledgment of resources from: Australian Aid, CBM International,
The University of Sydney
Sainimili Tawake
Mariaia Matakibau
Bounlanh Phayboun
Sengthong Soukhathammavong
Khamko Chomlath
Bounpheng Phetsouvanh
Ben Theodore
Peter Sindu
Susan Goikavi
Goretti Pala
Casper Fa'asala
Elsie Ningalo Taloafiri
Penafrancia Ching
Joaquim Soares
Francisco de Deus Soares
Phuong Anh Tran Thi
Phuong Tran Thi
Nhan Ha Chan
Cam Tu Huynh Thi
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