Integrated resources for everyone with cancer
Patient Navigation Services™ in Illinois Annual Report 2010
77Patient centers
statewide
31,200Patients and caregivers
served in 2010
20%Average yearly growth
in number of people served since 2004
C
onsiderthecourageittakes
justtoshowupforanotherround
ofchemotherapy–tobearup
withdignitythroughthefearsand
physicalchallengesofatreatment
regimen–everymorning,everynight.
Isthereanythinginlifemoreinspiring
thanonewhoiswillingtofightsohard
forit?Ormoreworthyofourtotal
support?
122,000patients and caregivers
have been assisted since 2004.
Nearly
2/3of uninsured and Medicaid
patients with cancer in Illinois received free resources
through our program in 2010.
Thanks to your partnership,no one facing cancer in Illinois
has to fight alone.
S even years ago we envisioned a “circle of care” that would embrace every individual touched by cancer in our state, delivering crucial
resources for patients, caregivers and families.
Katherine L. Griem, MD, FACRPresident
Mary E. Pierce, SPHR
Chair of the Board
Steven M. Derks Chief Executive Officer
With the steadfast support of medical partners and leading donors like you, we have worked to transform this vision into reality. Today our Patient Navigation ServicesTM network offers caring, effective services for anyone touched by cancer in Illinois.
In 2010, we continued to deliver integrated, hands-on services for tens of thousands, with special emphasis on the uninsured and medically underserved. Strong partnerships with hospitals, cancer clinics and media partners statewide helped us reach a greater share of newly diagnosed patients with timely, personalized services.
We are gratified to witness all we have achieved since our program’s founding – yet we know there is much more to be done.
In the past 12 months alone, an estimated 65,200 people living in Illinois have heard the devastating words, “You have cancer.” Please join us as we recommit ourselves to the vital work of offering them the best possible chance to get well.
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Timeliness Working closely with medical caregivers, we seek to reach patients immediately after diagnosis in order to give them the best possible chance to get well.
Patient focus We begin by listening and identifying the unique needs of each patient and caregiver. We then respond with carefully chosen resources to reduce stress and remove barriers to quality treatment.
Partnership We foster close relationships with medical professionals to deliver effective services. Society staff members work as a team to ensure access to resources for all patients, regardless of where they live.
Ease of access In addition to our Web site and our 24/7 cancer information call center, we have resource centers conveniently located inside the hospitals and clinics where Illinois patients receive their medical care. This comprehensive approach ensures that patients and caregivers can find help anytime, day or night.
Reliable cancer information
•Clear,accurateanswersfor questionsaboutcancer
•Helpfulexplanationsthat overcomelanguageand literacybarriers
•Clinicaltrialsmatchingservice
Day-to-day help
•Transportationtoandfrom treatmentappointments
•Lodgingassistanceforthose needingtreatmentfarfrom home
•Linkstofinancialresourcesfor patientsinneed
•Prescriptionprogramtoprovide painandnauseamedicationsfor thosewhocannotaffordthem
•Freewigs,hatsandtemporary prostheses
Emotional support
•Outreachprogramspairing patientswithsurvivorsofthe samediagnosis
•Classeshelpingpatientsrestore appearanceandself-confidence followingtreatment
•Casemanagementandpsychosocial counselingforpatientsand caregivers
Comprehensive resources for those with cancer
Our patient service programfollows these principles:
What we provide:
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0
72,000Total number of requests
for information and resources
3,000Patients who received
free wigs, hats, scarves and temporary prostheses
2,600 Patients who attended free classes to help restore their appearance and self-esteem following cancer treatment
6,000Patients who received in-depth
case management services
through Society social workers
61,000Rides to and from treatment
provided for patients in need
$800,000Direct assistance to patients
to reduce barriers to effective treatment
Service highlights for 2010
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Helping us reach every new patient, every day
Roger CrawfordDirector, Radiation Oncology, OSF St. Francis Hospital, Peoria
“Cancer patients don’t do well when they face extra burdens. I’ve seen the difference a free ride or a caring, personal conversation can make. So we refer 100% of our new patients to the American Cancer Society on the first day they come in. We value the Society’s role in helping our patients feel confident and engaged in their own healing.”
A new resource center opens in Chicago
Stephanie LoganCancer Survivor and Volunteer, Chicago
“I was honored to speak at the opening of the new patient center at the University of Illinois Cancer Center. When I first heard the words ‘you have breast cancer’ in 2009, I had no idea how I could fight my disease and still provide for myself and my son. Diane, my Society navigator, made me feel she would move heaven and earth to find the resources I needed. Now I am cancer-free … and I am thankful to the Christopher Family Foundation for the generous gift that has helped this invaluable program grow at UIC.”
Survivor-caregiver team eases the journey for others
Paul and Shirley KillingerPatient Support Volunteers, Peoria
“We work as support volunteers at St. Francis Hospital and Methodist Hospital,” Paul explains. “We introduce ourselves to patients, who are often there with their caregivers, and ask them to share their stories with us.” Compassionate listening, a warm hug and the encouragement of those who have walked the same road can make a real difference, Shirley says. “We find ways to offer Society services that we know will be helpful. We hope other survivor-caregiver couples will consider volunteering … Paul and I find it a rewarding way to share what we’ve learned with others.”
Difference makers 2010
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Expanding our program’s effectiveness
K. Thomas Robbins, MDDirector, Simmons Cancer Center at Southern Illinois University, Springfield
“As clinicians, we focus on delivering the best possible treatment for our patients, yet we know they have needs that go beyond medical care. This is where our Society navigator makes a critical difference. She works closely with our 13 oncology teams to deliver services in a seamless, coordinated way. We are so convinced of the value of Patient Navigation Services that we have made a significant grant to support the program’s expansion at SIU.”
State-of-the-art software boosts call center efficiency
Kim HammondsChief Information Officer, The Boeing Company, Chicago
“Boeing is an enthusiastic partner in the American Cancer Society’spatient support efforts. Our information technology team has provided software programs to enhance operations at the Society’s patient call center in Chicago. It is our hope that the program will help navigators track hundreds of service requests and dispatch resources in the mostefficient way for the benefit of patients.”
Meet some of the medical partners, volunteers and supporters
who strengthened our program statewide.
Creative partnership links patients with our services
Luke EimermanManager, Secure Start Program, Hollister, Inc., Libertyville “As a manufacturer of ostomy products, we provide call-in support for our customers. When we learn that a customer has undergone cancer surgery, we actively share information about Patient Navigation Services. This is just one of the ways we’re spreading the word about your valuable services among our customers and employees.”
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New home, new hope
Cancer had uprooted the life of a Rockford area woman who came to the Society in search of support. While battling her illness, she had lost her job and was living with her daughter while struggling to care for her own aging mother.
A Society navigator made a timely referral that helped her find a new apartment. The navigator also fitted her with an attractive new wig andenrolled her in a Look Good…Feel Better® session. Volunteers provided free rides to treatment, reducing the pressures felt by her daughter, who served as her sole caregiver. “Thank you for providing so many helpful services for me and my family,” the patient said.
“IwassogladtolearnIcouldcalltheSociety’s‘800’numberanytime.Theyaretheretohelpwithanyproblemrelatingtomydad’scancer,orjustwhenIneedsomeonetotalkto.”– Caregiver, central Illinois
Finding financial solutions
A central Illinois man came to the Society carrying a sheaf of medical bills and insurance statements, which he was struggling to organize. Five-day-a-week cancer treatments had made it impossible for him to work. His employer had recently changed hands, and as a result, thedisability benefits he had counted on were no longer available.
A Society navigator helped him sort through the papers and identify ways to manage his expenses. She helped him apply for grants that would provide income during treatment. “You have no idea how much you’ve helped me … not only with my bills but in coping with my diagnosis. I am forever grateful,” the patient said.
“Myvolunteerdriverwaswonderful.Iconsiderhimafriendforlife.”– Patient, southwestern Illinois
Through the eyesof patients and caregivers
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From patients to volunteers: survivors pay it forward
A central Illinois man fighting Stage 4 cancer felt called to help others. He joined our Road to Recovery® program as an active volunteer, recruiting other drivers and promoting Patient Navigation Services in conversations with local media, church and retiree groups.
Though cancer eventually claimed his life, his good work continues through the many new volunteers he brought to the Society, who provide rides for patients and, as their friend did, seek to engage even more patient volunteers to keep the momentum going.
Easing a survivor’s pain
Following surgery and chemotherapy for Stage 4 breast cancer, a Chicago area woman continued to suffer chronic pain. Doctors prescribed a drug that gave her substantial relief. In 2010 she learned her Medicaid benefits would no longer cover her prescription.
A Society navigator arranged a special grant to pay for the needed medication and arranged for an immediate refill through a pharmacy near her home.
“Thankyouforlisteningtomecry.SomanypeopletoldmeIwouldbeOK,butwithcancer,noonereallyknowsforsure.YougavemetheemotionalspaceIneededatadifficulttime.”– Patient, northern Illinois
Embracing life
A DuPage County man had just finished treatment for esophageal cancer. Doctors had declared him cancer-free, but he continued to worry about his health. He called his Society navigator for perspective. She sent him her favorite book on survivorship and offered support groups – but mostly, she says, “what he needed was someone to listen. By the end of our conversation he told me, ‘I feel better already.’ ”
“Eventhoughithurtssomuchtorealizemycancerhasspread,IamgladIfoundsomeoneIcouldreallytalkto.IamdeterminedtofightandIbelieveIcanwin.”– Patient, Chicago
Every day, we receive heartfelt notes, calls and e-mails from people touched by our program.
Here are the words and stories of some we helped in 2010.
200+Illinois volunteers work every day with Society staff to help patients
and caregivers.
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Right where patients and caregiversneed us most
The distribution of Patient Navigation Services in Illinoisfollows population patterns and the incidence of cancercases across the state.
Our Comprehensive Navigation Centers are located atmajor medical centers and are staffed full-time by licensed social workers or registered nurses.
Our Patient Resource Centers are located at hospitals and cancer clinics and staffed part-time by Society-trained patient service specialists and volunteers.
Our American Cancer Society Regional Officesserve as resource centers and wig banks to meet patient and caregiver needs in Illinois communities.
Chicago
Peoria
Springfield
Rockford
Champaign
Rock Island -Moline
Marion
Maryville
A statewide resource for everyone with cancer
77 convenient locations in Illinois
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Comprehensive Navigation Centers
Illinois CancerCare, Peoria John H. Stroger, Jr. Hospital of Cook County, ChicagoLoyola University Medical Center, MaywoodNorthwestern Memorial Hospital, ChicagoRush University Cancer Institute, ChicagoSimmons Cancer Institute at Southern Illinois University, SpringfieldUniversity of Chicago Medical Center, ChicagoUniversity of Illinois Medical Center at Chicago, Chicago
Patient Resource Centers
Adventist Hinsdale Hospital, Hinsdale*Adventist La Grange Memorial Hospital, La Grange Advocate Christ Medical Center, Oak Lawn Advocate Condell Medical Center, Libertyville Advocate Good Samaritan Hospital, Downers Grove Advocate Illinois Masonic Medical Center, ChicagoAdvocate Lutheran General Hospital, Park Ridge*Alexian Brothers Medical Center, Elk Grove Village* Alton Memorial Hospital, AltonAnderson Hospital, Maryville Blessing Cancer Center, Quincy Cancer Care & Hematology Specialists of Chicagoland, Arlington Heights*Cancer Care & Hematology Specialists of Chicagoland, Winfield CDH Delnor Hospital, Geneva*Center for Comprehensive Cancer Care, Mount VernonDuPage Medical Group, Naperville*Edgar County Health Department, ParisEdward Cancer Center, Naperville Edward Hines, Jr. VA Hospital, Hines*Edward Hospital, Naperville*Elmhurst Memorial Center for Health, Elmhurst Evanston Hospital, Evanston Glenbrook Hospital, Glenview Gottlieb Memorial Hospital, Melrose Park Hematology-Oncology Associates of Illinois, Berwyn Hematology-Oncology Care Center of the Quad Cities, MolineHighland Park Hospital, Highland Park*Illinois CancerCare, Macomb
Illinois CancerCare, Pekin Iroquois Memorial Hospital, Watseka Kishwaukee Community Hospital, DeKalb*Lake Forest Hospital, Lake Forest Little Company of Mary Hospital, Evergreen Park Medical & Surgical Specialists, GalesburgMedical Arts Associates, Ltd., MolineMemorial Medical Center, Springfield Mercy Hospital & Medical Center, ChicagoMethodist Medical Center of Illinois, Peoria*Mid Illinois Hematology & Oncology Associates, Pontiac OSF Saint Anthony Medical Center, RockfordOSF Saint Francis Medical Center, PeoriaOSF Saint Joseph Medical Center, Bloomington-Normal Perry Memorial Hospital, Princeton*Provena Saint Joseph Hospital, Elgin*Resurrection Center for Cancer Care, River Forest Rockford Memorial Hospital, Rockford*Rush-Copley Medical Center, Aurora*Saint Alexius Medical Center, Hoffman EstatesSwedishAmerican Medical Group, RockfordSwedish Covenant Hospital, Chicago Trinity Cancer Center, MolineVista Medical Center, Waukegan Weiss Memorial Hospital, ChicagoWest Suburban Medical Center, Oak Park
American Cancer Society Regional Offices
Chicago Regional OfficeDuPage Regional Office, Oak Brook TerraceEastern Regional Office, ChampaignFox Valley Regional Office, BataviaLake County Regional Office, LincolnshireMetro East Regional Office, MaryvilleNorth Shore Regional Office, EvanstonNorthern Regional Office, RockfordNorthwest Regional Office, Rock IslandNorthwest Suburban Regional Office, Arlington HeightsPrairie Land Regional Office, Tinley ParkSouthern Regional Office, MarionWest Central Regional Office, PeoriaWest Cook Regional Office, RiversideWestern Regional Office, Springfield
*New in 2010
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L aunched in 2006 with a visionary matching grant from The Duchossois Family Foundation,
the Campaign of Hope sought to gather critical support for Patient Navigation Services.
The campaign gained even greater momentum when the Coleman Foundation pledged matching funds for all gifts received in rural areas of
Illinois, encouraging support for a wider network of care in all communities.
These matching gifts meant that campaign supporters could double and even triple the value of their donations, moving us closer to our goal. In December 2009, a generous gift from the John and Editha Kapoor Charitable Foundation carried the campaign to its successful conclusion.
The American Cancer Society extends its sincere gratitude to the many leadership donors whose gifts have helped build the strongest cancer support network of its kind in the nation.
Coleman Foundation
The Duchossois Family Foundation
Campaign of Hope fuels program growth
John Kapoor, PhD
With the continued support of our donors throughout the state, we will reach an even greater share of those who urgently need our help.
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Noble Laureate ($1,000,000+)
The Duchossois Family Foundation
Leadership Laureate($500,000 - $999,999)
AstraZeneca Pharmaceutical Company
Anonymous (1)
Distinguished Laureate ($100,000 - $249,999)
Advocate Lutheran General Hospital
Coleman Foundation
Community Memorial Foundation
John and Editha Kapoor Charitable Foundation
Judith and Robert Sack
Grand Laureate ($50,000 - $99,999)
A.G. Cox Charity Trust
Austin E. Stoll Foundation
Annette Bacola and Robert Cummings
Mary Jo and John Boler
Bowman C. Lingle Trust
Crown Family Philanthropies
Laura and Steven Derks
Natel and Nick Gouletas
Grant Healthcare Foundation
Healthcare Foundation of Northern Lake County
Stuart Townsend
Washington Square Health Foundation
Honorable Laureate ($25,000 - $49,999)A.E. Staley Foundation
Alfred Bersted Foundation
Barnes Foundation
Maureen Beal
Anna and Greg Brown
Debra and Ira Cohen
Andrew Dick
Barry Eccleston
Richard Fitzgerrell
Hospira Inc.
Irene L. Eagleston Foundation
James McWethy Foundation
Murray Johnson
Max Goldenberg Foundation
Sue McWilliams
National Van Lines Inc.
Edward Schreck
Phyllis Trostrud
United Airlines Corporate Giving Program
Wendy Larks Foundation
Westlake Health Foundation
Anonymous (1)
Laureate ($10,000 - $24,999)
Richard Almeida
Anne and Mead Montgomery Family Foundation
Susan and Ermilo Barrera
Andrew Berlin
Nathan Brown
Cardinal Health Inc.
Central DuPage Hospital
Robert Clarke
Deloitte & Touche LLP
Demetrick Coleman
E. Thomas Collins
Concord Asset Management
Byron Deneberg
Mark Faber
Zachary Fortsch
Frederica Herriman Pederson Trust
Cecile Gagan
Gary Garrabrant
Mark MacDonald
H&M Machining Inc.
John Hauser
Health Care Service Corporation
Hussey Foundation
Lavin Family Foundation
Ronald Limbrick
Lorelei Foundation
Luster Products Black Heritage Foundation
Dora McDonald
Peter McDonald
Richard Owens
Paine Family Foundation
Linda Pavel
Peggy Klein Trust
Pfizer Inc.
Rags for Riches Foundation
Red Lodge Foundation
Katherine Sawyer
Scheck Family
John Seffrin
Frank Shisler
Sanford Shkolnick
Seattle Sutton
John Tague
Takeda Pharmaceuticals North America Inc.
The Hartford
The Illini 4000 for Cancer
Jacqueline and Glenn Tilton
Uline Inc.
Uplift Inc.
Anonymous (1)
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Sustaining Donors
($5,000 - $9,999)
Amateur Bowlers Tour
Keith Bank
Howard Bernick
Kevin Buggy
Circle of Hope Bracelets
Citigroup
Thomas Cole
Community Foundation of Central Illinois
Heidi Dalenberg
Dellora A. and Lester J. Norris Foundation
Delta Tau Delta
Jennifer Downey
Dayle Duchossois-Fortino
Evelyn C. Carter Foundation
Rita and Brian Forden
Gerhard and Patricia Weiler Family Foundation
Dennis Greenspan
William Hartsell
Kazma Family Foundation
Thomas Liebman
Gerry Lopez
Barbara Luce-Turner
Thomas Marano
Don Morrissey
Nexstar Broadcasting Inc.
Gregory Pacelli
Ronald Paul
Pomeroy IT Solutions
Punch Grafix Americas Inc.
Suzannah Ragen
Roman Cultural Society of Central Illinois
Jasper Sanfilippo
Schneider Electric
Smith Barney
Bob Stanojev
UPS Foundation Inc. Matching Grant
Jeff Vilker
Karen Virnoche-Brown
David Vitale
Greg Ward
Lisa Weier
Wohlers Family Foundations
Donors
($2,500 - $4,999)Ashley Furniture
Anjan Asthana
Aurora Employee Club
Cheryl Beebe
Terry Belian
Lori Bonelli
James Borders
Manny Brown
Donald Byus
Charles Foundation
James Claxton
Greg Cook
Carl Demasi
Mike Flannery
June and Fred Gold
Greater Springfield Chamber of Commerce
Heart of Experian Foundation
Phoebe Helm
James Hofmockel
Hometown Huddle
John W. and Barbara A. Dant Charitable Fund Inc.
Timothy Keating
John Klacking
Knights of Columbus No. 11091
Doug Kreuzkamp
Lancaster Family Foundation
Steven Lanzer
Glenn Lefkowitz
Edward Liddy
Edward Lorgeree
Ruth Lucera
Jean Maddrell
Alan McNally
Brian Meister
Miners Charity
Heidi and Jim Mitchell
Mary Molo
Morgan Stanley Smith Barney Global Impact Fund
Linda and Dennis Myers
Susan Noyes
Martin Ozinga
David Peterschmidt
Prior Family Trust
Stuart Reed
Allegra Rich
Rockford Health System
Timothy Romenesko
Ronald McDonald House Charities
Rotary Club of Carol Stream
Linda Saulnier
Schwab Fund for Charitable Giving
Maria and Bill Smithburg
Barry Stoughton
TAP Pharmaceutical Products Inc.
Jeff Taylor
The Pampered Chef
Richard Townzen
Weiler Family Foundation
Ellen and Boniface Wittenbrink
John Yanney
An additional 1,974 donors have each invested up to $2,499 toward
our patient services program.
Actively growing in2011 and beyond
A s we move toward 2015, we want to be the first resource people reach for
after they hear the words, “You have cancer.”
Our goal in the year ahead is to serve 33,000 new patients and caregivers, including a larger share of those fighting cancer without insurance or sufficient financial resources.
n We will work to expand enrollment in clinical trials by providing information and hands-on support for patients considering this form of cancer care.
n We will work closely with medical caregivers to create a uniform method for assessing the non-medical needs of newly diagnosed patients as recommended by the American College of Surgeons.
For free patient or caregiver resources anytime:1.800.227.2345IllinoisCancerHelp.org
For health professionals seeking more information:Cathy GalliganDirector, Health InitiativesIllinois Division, Inc.1.312.279.7364
To make a gift:Fred GreenbergDirector, Major GiftsIllinois Division, Inc.1.312.279.7203
Patient Navigation Services™ Having cancer is hard. Finding help isn’t.
n We will make continuous improvements to our program by gathering critical data and measuring the effectiveness of our outreach efforts.
n We will address the needs of cancer survivors by linking them with resources to help them stay well and enjoy the best possible quality of life.
cancer.org IllinoisCancerHelp.org 1.800.227.2345
Illinois Division, Inc.@2011 American Cancer Society, Inc.