2008 Executive Leadership Conference
2008 Executive Leadership Conference“Challenge, Performance, and Accountability”
Program TrackWelcome and Introductions
Gigi PolitoskiSenior VP for Programs
2008 Executive Leadership Conference
About the NKF Program Department
Five Business AreasGigi Politoski
Senior Vice President for Programs
Holly DeVan Managing Director Kidney Learning System
Tracy Fortson Managing
Director Constituent
Services
Dawn Townsend Program Director
US Transplant Games
Anthony Gucciardo Vice
President for Corporate Relations
Monica GannonEarly Intervention Programs
Director
2008 Executive Leadership Conference
• Over 40 program staff in New York City
• Program staff in Kansas City, Philadelphia, St. Louis, Minneapolis, Greater New York, and Upstate New York
• Nurses, dietitians, social workers, science writers, adult educators, public relations and marketing
About the NKF Program Department
2008 Executive Leadership Conference
• Establishing People Like US (PLU)• Transforming our patient
constituency into and active force within NKF and throughout the country
• Putting a patient face on the organization and everything it does
NKF’s Strategic PlanGoals that Focus on Program:
1. To Empower Patients and Their Families
2008 Executive Leadership Conference
NKF’s Strategic PlanGoals that Focus on
Program:
• Building on the impact of KDOQI and KEEP• Addressing Risk Factors like diabetes and
hypertension• Pursuing the knowledge that CKD is a
multiplier of risk, cost and poor outcomes• Utilizing new strategies, targeting new
audiences, and interacting on a higher level with public health and treatment communities
2. To Increase Identification of, and Improve Treatment for Those With or at Risk of Kidney Disease
2008 Executive Leadership Conference
NKF’s Strategic PlanGoals that Focus on
Program:
• Focus on the late or “no” referral of our patients to transplantation
• Increase living donation and concepts like Paired Exchange
• Focus more on the “transition” of our patients from Stages 3 to 4 and then from Stages 4 to 5
• Ensure that transplant recipients keep the transplant they have
3. To Improve Patient Care Through Early Transplantation
2008 Executive Leadership Conference
Program Track Agenda
• Cardio Kidney Diabetes or the “New CKD”• Empowering Patients and Their Families
*Session with CEOs and a Train the Trainer session for program staff
• Listening to our Constituents*Highlights of NKF needs
assessment and market research• Hot topics in transplantation including
the upcoming U.S. Transplant Games• Program Round Tables featuring some
“best practices”
2008 Executive Leadership Conference
Cardio Kidney Diabetes The Triple Threat: Working
with New Opportunities
Gigi Politoski, SVP for ProgramsHolly DeVan, Managing Director, KLS
Ellen Yoshiuchi, Program Director, Greater New York
Anthony Gucciardo, VP Corporate Relations
2008 Executive Leadership Conference
Expanding NKF’s Programs: Scope and Reach
The Challenges:• 26 million people have CKD, another
20 million are at risk• Not aware, not identified, not
treated• Not seen by a nephrologist• Patients and their physicians have
no real connection with NKF
2008 Executive Leadership Conference
Expanding NKF’s Programs: Scope and Reach
The Opportunities: • Finds and attracts new patient and
professional constituents• Allows NKF to move into a new space, a
bigger space, and across other disease states
• Expands NKF’s message and builds more brand equity for NKF
• Serves as a catalyst for new programs based on new constituent needs
• Attracts new corporate partners
Saves Lives
2008 Executive Leadership Conference
Distribution of Medicare Patients & Costs
CKD represents 6% of Medicare enrollees and they account for 18% of the expenditures
2008 Executive Leadership Conference
Distribution of EGHP Patients & Costs:
CKD represents 1% of the population age 50-64 and account for 9% of the expenditures in EGHPs
2008 Executive Leadership Conference
CKD is a Risk and Cost Multiplier
CKD subpopulation is very expensive and has high event rates, making it a major public health issue
2008 Executive Leadership Conference
Cardiovascular – Kidney – Diabetes
Core Messages• Cardiovascular disease is the number one
killer of people with CKD
• Chronic Kidney Disease multiplies CVD risk
• For every CVD risk factor (Diabetes, Hypertension, Dyslipidemia, Anemia), clinicians must test for CKD
2008 Executive Leadership Conference
Cardiovascular – Kidney – Diabetes
Core Messages• CKD is the disease multiplier:
1. The patients are sicker 2. Risk factor levels are higher3. Control is worse and treatment is more
complex4. Outcomes are worse5. Costs are higher
• MDs don’t need to find new patients • With CKD, patient management is different• Treatments are available and effective today
2008 Executive Leadership Conference
NKF’s Message in Stage 4 CKD
Stage 4 CKD is an asymptomatic clinical event!
It’s a “Kidney Attack”• We can slow progression in Stage 4• We can reduce the incidence of bad events that
occur in Stage 4• We can reduce the severity of Stage 4 co-
morbidities• We can improve the coordination of care in Stage 4 • We can prevent:
– Cardiovascular events– Death
2008 Executive Leadership Conference
Launching The New CKD Paradigm
• NKF, the authoritative voice on CKD pulls disease states together
• Global KDOQI conference October, 2007– George Bakris, MD (Nephrology)– Mark Molitch, MD (Diabetes)– Richard Nesto, MD (Cardiology)
• 80 key opinion leaders including primary care and family practice MDs
• 2 ½ days
2008 Executive Leadership Conference
Goals• Investigate and understand the
relationship between CVD, diabetes and CKD
• Explore the impact of CKD as a disease multiplier
• Discuss barriers to optimal care (early identification, diagnosis of co-morbid conditions, specialist care/primary care)
• Evaluate available treatment options • Provide recommendations on what you
do with what we know
2008 Executive Leadership Conference
Cardio Kidney Diabetes (CKD) Conference
• Chairs: George Bakris, Mark Molitch, Richard Nesto• By invitation-only: Nephrology, Cardiology,
Endocrinology, Epidemiology, Primary Care community leaders
• Goal: to identify practical approaches to early identification and management of risk factors in:* Cardiovascular disease* Chronic kidney disease, and/or * Diabetes
• Need for collaboration between specialties to improve care of patients with overlapping disease processes.
October 2007 in Chicago
2008 Executive Leadership Conference
Cardio Kidney Diabetes (CKD) Conference
• Recommendations about:* Influence of Blood Pressure Targets on Vascular
Injury in Chronic Kidney Disease* Impact of Dyslipidemia Management on
Atherosclerosis* Progression in Chronic Kidney Disease
* Impact of Glycemic Control on Vascular Injury in Chronic Kidney Disease
* Clinical Implications for Interactions of Chronic Kidney Disease on Vascular Injury
• Recommendations are being developed for multiple publications
• Cross-disciplinary to reach audiences from all 3 disease states and family practice
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge Growth for KLS
and for YouMeeting the Challenge Through Educational Programs and Resources!
2008 Executive Leadership Conference
What is the Kidney Learning System?
•Team of 18 Medical, Education, Marketing Specialists in NY•Research, Develop, Deliver and Publish, Promote Educational Tools and Resources•Traditional Formats and new technology-based delivery of learning such as interactive online tools, web casts, software and Palm/Pocket PCs•Collaborations with multi-media education distributors such as Medscape and Epocrates•Every project is funded through an educational grant
2008 Executive Leadership Conference
• Patient and Public Education • KDOQI Guideline Implementation:
Caddies/Tools• Formal “CME/CE” Professional
Activities– Over 12,000 Learners in 2007
• Clinician Education, Resources and Tools
Try to have a patient component in all professional activities
Areas of Focus
2008 Executive Leadership Conference
Program Development
Pilot Testing
and Evaluation
Concept
KDOQI KDIGO
Guidelines and Latest
Science
Patients, Physicians, Clinicians
Delivery in variety of formats
Needs Assessment
Outcomes
Recruitment of content experts
Programs
Rigorous KLS Development Process
2008 Executive Leadership Conference
KLS Programs in Diverse Formats and Media
• CME/CE – Live meetings– Teleconferences– Printed monographs– Online monographs– CD-ROMs – E-Learning and Web
Offerings• Books/Primers• Wall Charts• Pocket Tools• VHS Videos/DVDs• CD-ROMs
• Audio/Video/Internet Conferences
• Online Interactive Software
• PDA Software • Pocket PC Software• Co-Sponsored
Meetings & Symposia• Teaching
Brochures/Manuals• NKF-Hosted Courses• Train-the-Trainer
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge Growth for KLS
and for YouNew Target Audiences for Educational
Opportunities
PCP, IM, Family Practitioners, ER Women’s Health
Specialists: Cardiologists, Endocrinologists, Surgeons HIV and Infectious Disease
Doctors of OsteopathyPhysician Assistants
PharmacistsNurse PractitionersDiabetes Educators
Community Employers: Benefits and Wellness ExecutivesState and Local Healthcare Executives
2008 Executive Leadership Conference
These are YOUR Patients, You are Treating Them Already!!
WHO: Diabetes, High Blood Pressure, Cardiovascular DiseaseWHAT: Find the CKDHOW: 3 Simple Tests
(Protein in Urine, Blood Pressure, GFR)CONTENT: Co Morbidities and Complications Progression
Multi-disciplinary approach to Treatment
Cardio-Kidney-Diabetes ChallengeNew Messages and Content
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge Growth for KLS and
for YouHow to Tackle the CKD Challenge for your Professional Audiences
Build Your Network Through Team Teaching• Your Nephrologists and PCP• Your Nurses/Dietitians and Diabetes Educators
and NPs
Leverage Your KEEP Opportunities and KEEP Physicians
Expand Your Topics: KLS and KDOQI Resources– New KDOQI Diabetes Guidelines– KDOQI Hypertension and Lipids Guidelines– CKD Conference Articles– The Kidney Disease Story– FREE KLS CME/CE Programs!
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge
Growth for KLS and for YouLeverage KLS
Resources • CME/CE Programs on
CKD Risk Reduction and CoMorbidities to Distribute to your volunteers, board members, community clinicians
• Online at KLS Website
• Tahan Engram x 299• Crystal Tucker x 175
for bulk orders
2008 Executive Leadership Conference
A Program for CKD Risk Identification and Reduction – Affiliate Central
2008 Executive Leadership Conference
The Kidney Disease Story
• A fully scripted learning activity for live presentations in the community
• Developed to help NKF Affiliate outreach and visibility to:– People at increased risk for CKD – People recently diagnosed with CKD– Lay public/Community groups/Senior organizations– Health educators– General audiences
2008 Executive Leadership Conference
The Kidney Disease Story
• Includes:– A 45 to 60-minute scripted slide presentation– Down-loadable:
• Pre & post self-assessment to help measure participant learning and benefit
• “Are You at Risk?” participant checklist handout • Program evaluation to gauge participant
satisfaction• Speaker notes
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge
Growth for KLS and for You Building Professional
Programs• Partner with Local Hospitals for “Grand Rounds” Programs on CKD
• Reach out to State and Local Agencies for Funding, i.e. Diabetes Coalitions
• Use Technology to Deliver Your Programs– Roundtable: Using Teleconferencing to Reach
Remote and Rural Locations• Expand your Annual Meeting and
Specialty Programs • Partner with KLS to deliver CME/CE
Programs locally, i.e. PCP – KEEP Risk Reduction
2008 Executive Leadership Conference
Cardio-Kidney-Diabetes Challenge
Growth for KLS and for You Building Professional
Programs• Continuing Education Programs
(CME/CE)• Rigorous ACCME Regulations• Accountable to Nurses, NP,
Pharmacists associations• Continue using your Local Provider • Divisions Contact: Bina George, x
115 KLS
2008 Executive Leadership Conference
Broadening the Fundraising Net
Anthony GucciardoVice President, Corporate
Relations
2008 Executive Leadership Conference
26 Million U.S. Adults CKD stage N
Stage 5 350,000
Stage 4 700,000
Stage 3 15.5 million
Stage 2 6.5 million
Stage 1 3.6 Million
2008 Executive Leadership Conference
CKD + Major Risk Factors
CKD (All Stages)
Diabetes
Cardiovascular Disease
2008 Executive Leadership Conference
122236
Pharmaceutical Companies with CKD Specific Therapeutics including Transplant
Pharmaceutical Companies with CKD Specific Therapeutics including Transplant and Diabetes
Pharmaceutical Companies with CKD Specific Therapeutics including Transplant and Diabetesand Cardiovascular Disease
• Abbott• American
Regent• Amgen• Fresenius • Genzyme• Ortho • Shire• Watson
• Astellas• Novarti
s• Roche• Wyeth
Total =
• Amylin• Bayer• BMS• GlaxoSmithKlin
e• Merck• NovoNordisk• Novartis• Pfizer• Sanofi-Aventis• Takeda
• Abbott• Astrazeneca• BI• BMS• CV Therappeutics• Daiichi Sankyo• Forest Laboratories• GlaxoSmithKline• King• Merck• Novartis• Pfizer• Reliant
Pharmaceuticals• Sanofi-Aventis
Pharmaceutical Companies with CKD Specific Therapeutics
8
2008 Executive Leadership Conference
Successful Pharma fund-raising is not magic,
and nothing is a given...
It’s very hard work!
• It is planning, executing, and assessing.
• It is knowing your organization and what it needs.
• It is knowing your potential funders.
• Results Accountability!
2008 Executive Leadership Conference
"So it would be better to approach you about your
annual donation in the spring?“THE CHRONICLE OF PHILANTHROPY J.P. RINI
2008 Executive Leadership Conference
Challenges Raising Pharma $ in 2008
• Hard times for many pharmaceutical companies... less sales = less $
• Competition... More people going after less $
• No more local budgets
2008 Executive Leadership Conference
Challenges Raising Pharma $ in 2008
• Online grant submissions = less personal interaction
• All online grant applications are different = time consuming and confusing
• Each company’s regulations are different = time consuming and confusing
2008 Executive Leadership Conference
Challenges Raising Pharma $ in 2008
• Be careful to avoid red flags... Watch your terminology (words like referral)
• Be sure to include Measurable Outcomes
• Program Sustainability• Consider Multi-sponsorship
2008 Executive Leadership Conference
Potential Funding Sources
• Trustees Of The Organization (Board Members)
• Individuals • Corporations (Pharma and Non-Pharma)• Private Foundations • Community Foundations • Government• Internet
All of the Above!!!
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