YVONNE NEWBOLD - AsIAm.ie
Transcript of YVONNE NEWBOLD - AsIAm.ie
©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 1 YVONNE NEWBOLDMother
Author of The Special Parent’s Handbook
Speaker; Trainer; WHIS Ambassador, Autism,
Learning Disabilities & Families
Advisor, NHS England Learning Disabilities &
Autism
NHS Assembly Member
National Learning Disabilities & Autism
Awards – Lifetime Achievement Award 2018
School for Change Agents Graduate 2017
PENNA Outstanding Contribution to Patient
Experience Award 2016
LDT Learning Disability Champion Award
2015
HSJ Top 50 Inspirational Women in Healthcare
Award 2014
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Slide 2 SEND VCB = SPECIAL EDUCATIONAL NEEDS
AND DISABILITIES, VIOLENT & CHALLENGING BEHAVIOUR
I N C H I L D R E N & A D U LT S W I T H A N E U R O D E V E LO P M E N TA L C O N D I T I O N S U C H A S
AUTISM, INCL PDAADHD
OR AN INTELLECTUAL DISABILITY
Presented by Yvonne Newbold
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Slide 3
FRANCESCA, TOBY AND ADAM -THEN
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 4
TOBY
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Slide 5 TOBY – THE
BIRTHDAY KING
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Slide 6 My Bucket List = Making things better for families like ours
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 7 THE SPECIAL
PARENT’S HANDBOOK
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Slide 8 IT ALL STARTED ON WOMAN’S HOUR…..
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Slide 9
HUNDREDS OF SOCIAL MEDIA MESSAGES AND EMAILS LATER…..
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 10
THE FIRST EVER VCB
CONFERENCE
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Slide 11 Four Different
SEND VCB
Workshops
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Slide 12 Take….. One Secret Facebook Group
+ 15 In-depth Questions
+ 115 Parents
+ six weeks during April and May 2018
= Masses of very powerful data
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 13 We asked parents about
SEND VCB and…..
Your worst ever
day?
What do other
people think?
What professional
help have you had?
Have you ever felt
judged or blamed?
What’s worked? What makes your
family happy?
Has it affected
your
relationship?
How does it
make you feel?
What’s it like
after an episode?
How does it
affect siblings?
What makes a
“good”
professional?
Has there been a
financial impact?
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Slide 14 What’s Next?
This Photo by Unknown Author is licensed under CC BY-
NC-ND
Writing a book
on SEND VCBOnline version
of each
Workshops
Live Online
Training
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Slide 15 Aggressive Behaviour Prevalence
In adults/children with additional needs
In adults with a Learning Disability prevalence of
Verbal Aggression 62%
Aggression towards Property 49%
Aggression towards others 51%
G. Crotty, O. Doody, R. Lyons, (2014)
"Identifying the prevalence of aggressive
behaviour reported by Registered Intellectual
Disability Nurses in residential intellectual
disability services: an Irish perspective
In children with an ASD Diagnosis
Aggression towards others 56%
Physical aggression in children and
adolescents with autism spectrum
disorders. Micah O Mazurek, Stephen
M Kanne, Ericka L Wodka. (2014)
Thompson Centre, University of
Missouri
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 16 THIS IS NOT MY FAULT
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Slide 17 THIS IS NOT MY CHILD’S FAULT
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Slide 18 Nobody’s coming to rescue us
Instead, we have to
skill-up so that we can
rescue our children
ourselves
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 19
DIAGNOSTIC OVERSHADOWING
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Slide 20 Our child’s behaviour is only the tip of the iceberg, the outward expression of
their emotions. We can’t start to change that behaviour unless we begin to
understand what’s going on beneath the surface – until we can understand
how our child is feeling deep down and why
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Slide 21
CAUSES OF SEND VCB
Severe Anxiety + Distress
= Fear
= Feeling Threatened
= Fight or flight response
SEND VCB is NOT deliberate
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 22
This Photo by Unknown Author is licensed under CC BY-SA
All Behaviour is a Form of Communication
The hard bit is understanding what they are trying to tell us
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Slide 23
This Photo by Unknown Author is licensed under CC BY-NC-ND
What does Anxiety look like?
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NEEDING TO CONTROL IS ALL ABOUT NEEDING TO FEEL SAFE AND SECURE
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 25
FEAR MAKES PEOPLE WANT TO CONTROL THEIR ENVIRONMENT
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Slide 26 Frightened children who find the world confusing and scary
often try to control their environment and everyone around
them.
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Slide 27
PDA – NEEDING CONTROL ++++
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 28
SOME CAUSES OF EXTREME ANXIETY
Sensory Processing
Difficulties
Change
Transitions
Routines
Communication
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Slide 29 THE FIVE SENSES WE ALL KNOW ABOUT
Plus three more –
• Proprioception
• Interoception
• Vestibular System
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Slide 30 Routines, Transitions and Change
• Any transition, routine or change needs careful
management
• Consider using timers, countdowns or verbal
reminders
• Visual timetables can help
• Other visual prompts can be very useful too
• Allow child time to process change, transitions
or new routines
• Be aware of how a child may rely on routine to
help with their emotional regulation
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 31 Transitions – work out how to take away the iPad!
• Some of our children use them to self-regulate
• Always give plenty of warnings that it’s time to
stop
• Let the child help to decide when to finish
• Move onto another enjoyable activity
• Always let the child know when they can have
it back
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Slide 32 Communication
• Expressive and receptive speech – a child may be excellent at one and not the
other
• Written and visual prompts can help to augment understanding
• Children with additional needs often need much longer to process instructions or
information
• 8 Second Rule
• Soft voice – singing or whispering
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Slide 33
THEORY OF MIND
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 34
MASKING
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Slide 36
THE BRAIN IN THE PALM OF YOUR HAND –DR DAN SIEGAL
© Yvonne Newbold 2019
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 37
THEIR DISTRESS IS AS REAL AS ANY OTHER CHILDHOOD UPSET
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Slide 38 SHAME
“ I define shame as the intensely
painful feeling or experience of
believing that we are flawed and
therefore unworthy of love and
belonging – something we've
experienced, done, or failed to do
makes us unworthy of
connection.”
Brene Brown 2013
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Slide 39 BECOME YOUR CHILD’S MELTDOWN PARTNER
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 40
This Photo by Unknown Author is licensed under CC BY-NC-SA
Become your child’s Behaviour Detective
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Slide 41
SAFETY IS PARAMOUNT
PLAN SAFETY STRATEGIES
MAKE SURE EVERYONE KNOWS THEM
REMEMBER – YOU MIGHT BE IN FIGHT OR FLIGHT MODE TOO!
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Slide 42
You are likely to be in
Fight or Flight Mode too
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 43 You can’t “Fix” behaviour
Instead you can change the way you
• Think
• Communicate
• Respond
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Slide 44 How to be a
Behaviour
Detective
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Slide 45
STAY QUIET AND CALM
ONLY ONE VOICE IN THE ROOM
SHORT SENTENCES 5-8 WORDS
8 SECOND RULE
THEN REPEAT SAME SENTENCE
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 46 Try to catch the meltdown before it happens
Plan strategies with the following in mind -
• Sensory issues
• Communication
• Clear unambiguous language
• Use visuals
• Plan transitions
• Minimise change
• Provide calm-down space
• Ask your child what might help
• Help you child build a toolbox of
calming strategies they can use
• Distraction
• Change of face
• Humour
• Plan screen-time endings
• Lots of compassion
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Slide 47 Put your own Oxygen Mask on First
Always be aware of how
this is affecting you and
making you feel too.
Children who have
extreme behaviour can
trigger difficult memories
or emotions in us.
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Slide 48 “Behaviour” can be a negative word….
Don’t think “How can I make a child
behave?”
Instead think “How can I make a child
feel safe, secure and happy?”
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 49
HOW DID TOBY TURN THINGS AROUND?
Slowly and
Patiently
Watching
and
learning
from Toby
Making fun
and Toby’s
happiness
central to
everything
Counting
to give
Toby time
to process
Rigid
routines to
help him
feel safe
Timers
to help
with
change
Visuals to help
with
communication
Lots of
hitting
brick walls
and going
backwards
Now Next Later
boards to
reduce
surprises
Never giving up
and always
believing in
Toby
Giving Toby control over
as many of his own
decisions as he manage
Plus dozens upon
dozens of other
strategies
A complete
shift in
approach, with
Toby at the
heart of it
With Lots of Love
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Slide 50 FRANCESCA,
ADAM AND TOBY - NOW
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Slide 51 TOBY – ON HOLIDAY IN CUMBRIA LAST YEAR
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©Yvonne Newbold 2019
Yvonne Newbold [email protected] April 2019
Slide 52
TOBY WITH THE DEER IN RICHMOND PARK
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Slide 53 TOBY ON HOLIDAY AT BUTLINS SEPT
2017
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Slide 54 Breaking the Silence on SEND
VCB
A closed Facebook Support Group
with over 3,200 families
SEND VCB A public Facebook Page, open to everyone,
sharing information and help for families of
children who have violent and challenging
behaviour
The SEND Parent’s Handbook
PageA public Facebook page with over 20,000
followers, sharing everything to make life
easier for families of children with disabilities
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