By,

SIMSREE (Abhijeet, Ashwaghosh, Harshit, Princely and Siddhesh)

Yakeen - A Thought to Uproot Thalassemia's root cause

INTRODUCTION

Thalassemia is not a Disease but a Genetic Disorder

There are approximately 60-80 million people in the world detected as beta thalassemia major

4%(approx.) of Indians carry the Beta Thalassemia trait (minor)

There are 1,20,000 known Indians diagnosed with Beta Thalassemia major, projected increase in Beta Thalassemia major in the next 5 years is 84,500

Alpha, Beta, Deltabeta, Gammadeltabeta and Hereditary persistence of fetal hemoglobin (HPFH) are the types of Thalassemia

(Source: www.thalassemicsindia.org)

THE PROBABILITY OF A THALASSEMIA MAJOR KID

25%

Are you ready to take this 25% chance which has your child’s future at stake???

THALASSEMIA MAJOR PROBABILITY IN A GROUP EXAMPLE

Considering a Batch of 2500 People at random

4% of 2500 = 100 Thalassemia Minors

100 spouses of these 100 Minors

4% of 100 = 4 spouses4 Thalassemia Minor Couples having 2 kids

each

25% probability in 8 kids to be a Thalassemia

major= 2 kids

Probability= (2/(2500+100+8))*100 0.076%

(Source: www.thalassemicsindia.org)

TYPES OF THALASSEMIC PATIENTS

MINOR

• These are carriers of Thalassemia• They don’t show any symptoms• At times show mild anemia

INTERMEDIATE

• Some HB chains are not formed• They may not require transfusion• They may suffer from moderate anemia

TYPES OF THALASSEMIC PATIENTS

MAJOR

• No HB chains are formed

• Since 2 years show symptoms of severe anemia

• Require regular blood transfusion

TARGETED AUDIENCE FOR AWARENESS

College students in Graduation or Post Graduation Courses

Corporate Professionals

Couples getting engaged or are in talks of getting married

Couples planning an offspring and are unaware about themselves being thalassemia carrier

The rural and underdeveloped parts of India

CURE FOR THALASSEMIA MAJOR

Periphery Blood Stem Cell transplant

It’s very difficult to find someone who has a similar genetic structure as yours

Even after finding the matching person, people at times refuse to come ahead and donate out of fear which is because of lack of awareness

This is also a cure for Leukemia patient which is their last resort

The rising trend amongst India’s population and especially the youngsters is the use of Facebook and Whatsapp (approx. 62 Million users of Facebook in India)

Facebook can help in creating wide spread awareness, create chain networks and find new members to help our the cause

An examples of such an initiative is - Our own Facebook page - ‘Yakeen - A Thought to Uproot Thalassemia's root cause’

SPREADING AWARENESS – SOCIAL MEDIA

In India print media has farthest reach. We can use newspapers, magazines, pamphlets to make people aware about it

In India 69 million urban and 79 million rural households owns television, televion ads can be used to create awareness asibout this disorder

Radio and Films can also be used to spread the message across the nation

SPREADING AWARENESS – MASS MEDIA

Organizing free seminars in colleges, corporatesand social gathering

Organizing large scale blood donation camps and clubbing the Thalassemia test with it

Flash mobs and Street plays at railway stations

Tying a black knot and observing a day of tribute to the Thalassemia patients

SPREADING AWARENESS – GENERAL

WHEN WILL THIS PICTURE DISAPPEAR?

THANK YOU !!!

We have a thought and to make it a success –”WE NEED YOU WITH US”