Www.managingpain.org.uk Pilot study of a chronic fatigue programme Owen Hughes Head of Pain...

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Pilot study of a chronic fatigue programme

Owen HughesHead of Pain Management

Service


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Background

• 8 Patients with chronic fatigue syndrome through normal pain management programme

• Positive outcomes• Evidence Based Healthcare

Bulletin


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Method

• Psychometric questionnaires at 6 points:– wl, Pre, Post, 6wks, 6mths, 1yr

• All participants completed the same programme

• All had diagnosis of CFS/ME or Fibromyalgia


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Participant Group

• Youngest = 25 Oldest = 61• 100% Benefits• Diagnosis 1-11years


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Gender of ParticipantsSexMale

Female


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Tuesday Wednesday Thursday Friday

9.00-945Introduction (Erwood)

8.30-10.00Stretch (Erwood)

8.30-9.30Stretch (Erwood)

8.30-9.30Stretch(Erwood)

9.45-10-30What is Chronic Fatigue Syndrome?(Erwood)

9.30 -10.30Goals (Erwood)

9.30-10.30Sleep(Erwood)

10.30-11.00Coffee

10.00 - 10.30Coffee

10.30-11.00Coffee

10.30-11.00Coffee

11.00-12.00Intro. to exercise programme(Erwood)

10.30 – 11.00Watch Videos(Erwood)

11.00 – 12.00Setting Baselines (Erwood)

11.00-12.00Setting Baselines (Erwood)

11.00 – 12.00Introduction to Psychology (Erwood)

12.00-1.00LUNCH

12.00-1.00LUNCH

12.00-1.00LUNCH

12.00-1.00LUNCH

1.00-1.45Relaxation(Erwood)


1.00-1.45Relaxation (Erwood)


1.45-4.00Videos/Medication/Assessment(Erwood)

1.45-2.45Theories of Pain and Fatigue(Erwood)

1.45-2.45Medication (Erwood)

1.45-2.45Review of the Week Weekend Planning(Erwood)

4.00-4.15Tea

2.45-3.00Tea

2.45-3.00Tea

2.45-3.00Tea

3.00-5.00Keyworker

3.00-4.00Principles of Pacing(Erwood)

3.00-4.00Keyworker

4.00-5.00Keyworker

Tidy Up


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Results

• Statistically significant changes on most measures

• Clinically significant changes• Participants with a greater

quality of life and a sense of a future


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Beck Depression Inventory

BDI (wl) BDI pre BDI post

0

5

10

15

20

25

30

Mea

n


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Energy

Energy wl Energy pre Energy post

0

10

20

30

40

50

Me

an


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Physical Health

Physical health aggregate wl

Physical health aggregate pre

Physical health aggregate post

0

10

20

30

40

Mea

n


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Mental Health Aggregate

Mental health aggregate wl Mental health aggregate pre

Mental health aggregate post

0

10

20

30

40

50M

ean


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Catastrophising

Catastrophising wl Catastrophising pre Catastrophising post

0

5

10

15

20

25

Mea

n


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Self Efficacy

Self efficacy wl Self efficacy pre Self efficacy post

0

10

20

30

40

50

Mea

n


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Medications

Total medications (wl) Total medications pre Total medications post

0

0.5

1

1.5

2

Me

an


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Distance Walked in 2 minutes

Walking pre Walking post

0

50

100

150

Mea

n


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Sit to Stand

Standing pre Standing post

0

2

4

6

8

10

12

14

Me

an


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Steps

Steps pre Steps post

0

10

20

30

40

50

60

Mea

n


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Conclusions

• Successful pilot• Worth

developing• Pain

management principles transferable


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The future

• Developing a business plan• Conference

presentations/posters• Continuing to receive referrals

Www.managingpain.org.uk Pilot study of a chronic fatigue programme Owen Hughes Head of Pain...

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