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Transcript of Working with vulnerable families: a health visiting perspective
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foumal of Advanc ed Nursing 1996,23,912-918
Working with vulnerab le fam ilies a hea lth
visiting perspective
Jan e V A pp le to n BA{Hons) MSc RGN
RHV
PGCEA
Senior
Lecturer
m Nursing Division of Adult N ursing and Health Sciences Hillside
House The University of
Hertfordshire
Hatfield Campus
College
Lane Hatfield
Hertfordshire LIO
9AB England
Accepted for publication
1
June 1995
APPLETON J V (1996) Journal of Advanced Nursing 1 9 9 6 , 2 3 , 9 1 2 - 9 1 8
Working with vulnerable families a health visiting perspective
The aim of this p aper is to describe p art of the findings of a research stud y
wh ich explored th e health visitor's role in identifying and w orking with
vuln erable families in relation to child protection One objective of the stu dy
was to describe and analyse the work whic h health visitors und ertake w ith
vulnerable families aimed at preventing crisis, lU-health and child abuse Thi
paper outlines this aspect of the research and looks specifically at health
visitors' perceptions of their work and intervention s with vu lnerable families
and child ren Health visitors working m an inner city area and a suburban are
were sampled an d pilot work was undertaken in a third subu rban area Stage
one involved a postal survey of 102 health visitors, in w hich a response rate o
58 (57 ) was obtained Stage two involved 12 ln-dep th interviews with healt
visitors One major finding of this stud y highlighte d the fact that the health
visitor's role when w orking with v ulnerable families appears to be one of
diversity and conflict In the light of the cu rrent Nation al Health Service refor
it seems of paramou nt im portance that health visitors illustrate to others, both
managers and other health/social service professionals alike, the im portant
function of their work with these vulnerable groups This is essential to ensu r
that health visitors' work with v ulnerable families in relation to cbild p rotecti
IS
unde rstood and valued and that the needs of vulnerable families con tinue
be identified This pape r contributes to the knowledge base of health visiting
and raises some important issues for professional health visiting practice
TM TP nn TT PT Tri M visitor child protection specialists and/or health visi
manage rs (Health Visitors' Asso ciation 1994a, Cassidy
Recent comm entary reveals m any co ncern s about th e Day 1994, Laurent 1994) A ll these issues clearly ra
future of health v isitmg practice an d the general und er- major conce rns about the provisio n of services for vuln
funding of community nursing services m the United able groups and questions ultimately ans e about wheth
Kingdom (Sadler 1994) Press repor ts have highlighte d the the um versally available health visitmg service is imd
drop m num bers of students seconded to comm imity nurse threat
education courses as trusts implement funding cu ts, and For the purposes of this research paper vulnerable fam
the resulting problem s wh ich ensue from this (Cole 1994) les are identified as those families 'wh ere there are sev
A recent national survey of health visitors has drawn problems in the family giving cause for concern, but whe
attention to problems of health visitors working unde r sig- there is not enough evidence of actual or potential ha
nificant levels of stress, often with large caseloads and to the chil d/ch ildre n for social services to becom e direc
invariably with little access to clinical sup port from health invo lved' (Taylor James 1987) Sm ce hea lth visitors
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Working with vulnerable families
one of the main professional groups who regularly have
contact with the preschool child and his/her parents, they
have a potentially ma]or role to play m lden tifyu^ vulner-
able families and preventing child abuse (Barker Percy
1991) In term s of child p rotectio n, the role of the h ealth
visitor IS to 'ob serve, as sess, record and refer' (Health
Visitors' As sociation 1994b) In terms of prev ention , health
visitors are well placed to identify vulnerable families so
that mcreased support cam be offered to these families and
preventive work conducted
However, this tj^e of preventive work can often go
unrecognized and be undervalued and practitioners have
long recognized the difficulties inherent in measuring pre-
ventive aspects of the health visiting service because of
the long-term natu re of much of the work (Campbell et al
1995,
Hall 1996) This pap er will describe one aspect of
the findings of a study which was undertaken to explore
health visitors' work with vulnerable families in relation
to child protection It will concentrate on health visitors'
perceptions of their role with vulnerable families and
illustrates the diversity and confhct which the role
encompasses
RESEARCH DESIGN
This broadly qualitative study was undertaken in two
stages Health visitors working in an inn er city area and a
suburban area were targeted and pilot work was under-
taken in a third subu rban area Stage one involved a postal
survey of 102 health visitors, m which a response rate of
58 (57 ) was obtamed Stage two mvolved 12 ln-depth
interviews with h ealth visitors Stage one of the study
enabled the researcher to gain an understandmg of health
visitors' work with vulnerable families at field level, by
surveymg a number of health visitors working m con-
trastmg areas It was plan ned tha t data gained from the
postal survey would inform the mterview schedule used
in stage two and provide an mterview sample
Methodological issues relating to this study have been
documented in greater detail m an earlier paper
(Appleton 1994)
FINDINGS AND ANALYSIS
A marked feature of the analysis of this study is that the
health visito r's role is one of diversity an d conflict Thes e
two separate concepts link together and present a picture
of health visitors trying to function withm the constraints
of large caseloads, limited tune and dwindlmg resources
In their work with families with young children the key
aim of the health visitor is to identify those children m
need (Children Act 1989) and to work with families to
reduce stress and enable families to cop>e What is clear
from the findings of this research study is the fact that
health visitors are spendu^ a lot of their worktime
Time Resoufx;e
Being realistic
Figure
The health visitor's role with vulnerab le families role
diversity and conflict
working with vulnerable groups to prevent deterioration
m health and family crises from occumng, however, a lot
of this work is going unrecognized by managers and other
professionals
The analysis of this research study indicates that health
visitors have four key yet diverse roles to play with vulner-
able families (see Figure 1) These are
1 identification of vulnerability,
2 support agent,
3 referral agent, and
4 reluctant monitor
Quite possibly role diversity may well be a direct
response to the comp lexity of the concept of vulnerability
(Appleton 1994) Evidently whichever role the health visi-
tor IS pursuing, she/he must be realistic m the pursuit of
goals These roles and the confiicts whic h health visitors
seem to be facing will be discussed m this paper m con-
junction with the principles of health visiting (Council for
the Education and Training of Health Visitors 1977)
Assessm entAdentification of vulnerab le families
and chi ldren
The assessment of vulnerable families was discussed m
detail in an earlier pape r (Appleton 1995) However, the
findmgs suggest that the assessment of vuhierabihty is
a complex and multifactonal process and has to take
acco unt of the fact that the co ncep t itself is ambiguous and
transient
It's so multifactonal, there's so many things you have to base it
all on
(HV54)
In the three areas utilized m this stud y different official
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/
V Appleton
cntena/guidehnes were available to health visitors to
assist them m the identification of vulnerable famihes
Furthermore, despite the presence of official health
authority/trust guidelines, a large proportion of the h ealth
visitors admitted to using their own professional judge-
ments m the assessment of vulnerable families This cer-
tainly contrasts with muc h of the previous literature wh ere
the majority of research has focused on health visitors' use
of checklists/screening tools m making a ssessments of vul-
nerable families as opposed to an examination of the
health visitor's own assessment process (Woods 1981, Fort
1986, Hills et al 1990, Taylor 1 991 , Walker & Crapper
1995) (This IS des pite the fact that man y chec klists an d
screening tools are highly dubious in their validity )
In using their own clinical judgements to assess vulner-
ability, the analysis of the data m the study mdicated the
presence of six key interrelating factors w hich hea lth visi-
tors use in the assessment process in identifying vulner-
able families The se are (a) know ledge of families/the
community, (b) reflection-on-action (Schon 1987), (c) situ-
ations/famihes which cause the health visitor increased
anxiety/concern, (d) the health visitor's own knowledge
base and expenence, (e) the past history of a family, and
(f) gut feelings /instinct (reflection-in-action (Schon 1983))
Health visitors have a very important role to play in case-
finding and this role was discussed by virtually all ques-
tionnaire respon den ts and interviewees Dmgw all et
al
(1983) and Taylor Tilley (1990) have discussed m depth
the health visitor's role m case-findmg and the pro-
fessional rivalnes which can exist between health visitors
and social workers However, vnth m this research study a
number of health visitors were obviously very concerned
about the ethical dilemmas associated with the identifi-
cation of vulnerable families and the lack of resources to
offer these families
I also think it's quite frustrating because having identified a vul-
nerable child or children or famihes in need of support — when
there's very httle you can offer them it's raising people's
expectations and I think that's very unfair
(HV39)
In order to fulfil the activity 'searching for health needs'
health visitors must have the opportunity to search for,
identify and assess vulnerable groups (Dmgwall &
Robinson 1993) It wou ld app ear that with over half of the
interviewees commenting on the effects of a reduction m
the home visiting service, it was therefore seen as likely
that some vulnerable families/children w ould not be ident-
ified Indee d Buttigieg (1995, cited in
HVA Association
News
1995) has recently stressed that targeting health visit-
mg services only at famihes with identified needs could
put vulnerable children in danger
The recent re-exammation of the principles of health
visiting has highlighted the need to stimulate awareness
of health n eeds , not only at the client level but also at the
level of health service managers and at a national le
amongst policy-makers (Tw inn & Cowley 1992) In
latter cases the pnnciple is being applied so that tho
who are responsible for providing services are aware
unmet needs in their areas Evidently this aspect of
pn nc iple is very important to this research which revea
that health visitors were finding unmet needs when th
highlighted the identification of 'other' vulnerable fam
ies In fact, eight (67 ) of the mterv iew ees talked ab
identifying 'other' vulnerable families, that is, those fam
ies which th e health v isitors identify as being vulnerab
but who do not fall into the health auth on ty/tru st's crite
of vulnerability This is clearly further evidence whi
indicates the lack of validity of the checklists/guidelm
yet It may also represent the non-legitimation of
concept of vulnerability
For many health visitors confiicts exist around t
differences between professional judgements and offic
guidelines Control by managers is an appa rent issue
that it IS likely that field health visitors and health auth
les/trusts have different agendas for identifying vuln
ability The appa rent non-legitimation of the concept
vulnerability seems to refiect its ambiguity and 'invi
bility ' Cowley (1991) has previo usly identified the k
issues for establishing legitimacy of a con cept Evide n
an ambiguous c oncep t such as vulnerabilify is unlikely
have much legitimacy m the current National Hea
Service (NHS) business climate where recent legislati
does not allow hidden needs to be readily identified a
does not easily accommodate ambiguous health nee
(Twmn & Cowley 1992) Cynically, it appears easier
Ignore these ambiguous needs within the purchaser/pr
vider ideology
In fact It IS extremely significant that health visitors
identifying these 'other' vulnerable families an d m anage
have to be aware of the professional conflicts that this c
cause health visitors This research supports Tw inn
Cowley (1992) who state that 'm many areas there is
clear route for health visitors to pass on information abo
the health needs they become aware o f The research
argues that health visitors must impress on managers t
identification of unmet needs and the importance
climcal judgements in the assessment process
Support agent
Offering vulnerable families support was an area discusse
by 40 (69 ) of the questionn aire respond ents and 1
(83 ) of the interviewees and is obviously viewed b
health visitors as a very important part of their work an
clearly takes up a large prop ortion of their time In th
study support included such actions as offenng an acces
ible health visiting service, boosting parenting skills an
parents' esteem, encouragement, advocacy, providin
advice for clients and working m partne rship w ith client
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Working with vulnerable fam ilies
I feel that the health visitor should make every effort to support
these families through the difficult penod as much as is possible
and through continuous assessment, helping them to meet the
needs as they arise and aiming at getting these famihes to look at
their situation and become self sufficient m dealing with it, and
this S how I base my work with vulnerable families
(HV6)
Working openly w ith families and being very clear about
the health visitor's role is very important if the support
which the health visitor can offer is gomg to be effective
Empowerment and enabling families to make mformed
decisions was an area discussed by over half the health
visitors, yet health visitors seemed realistic in their views
that this was sometimes hard to achieve Interesbngly over
half the sample stated that the only home visiting they
completed was for new births, developmental checks and
extra inp ut for vuln erable families All other contacts w ith
children and families were made in clinics
The amount and quality of support which a health visi-
tor can offer a vulnerable family is likely to decrease as
caseloads increase in size There was a consensu s of opi-
nion that undoubtedly many vulnerable children/families
were being missed, m that they w ere not being identified
in the first place an d clearly if the am oun t of hom e visiting
S
cut back further th en the problem wou ld be exacerbated
Home visitmg was viewed by the health visitors as an
important factor m identifying vulnerab ility Man y hea lth
visitors felt dissatisfied with the service they were able to
offer £ind the researcher noted that 11 (92%) of the inter-
view sample appeared demoralized
I feel very dissatisfied with the service I give because I feel that
well over a third of my time is spen t on clencal, it's a very vulner-
able area, for an awful lot of my families I now do a new birth
visit and then see people m clinic so I feel there's no way that
I give anything like the service to the families you know, I've said
that about supporting but it's very limited
(HV42)
This health visitor felt that in most cases all she was
able to do was to identify the fact that families are vu lner-
able and
sometimes dole out leaflets and things about what's normal devel-
opment but lots of these families need lots and lots of inpu t and
you feel quite helpless
(HV42)
Interestingly only nine (16%) of the questionnaire
respondents talked about having a health promotion or
educative role with vulnerable famihes, this may reflect
the lack of time or the fact that it is impossible to discuss
health issues w hen feunilies have mu ltiple social problems
which nee d to be addressed Realistically health visitors
find It inappro priate to address h ealth enh ancing activities
when vulnerable famihes are often facing multiple social
and other problems
It seems of paramount importance to find ways of meas-
uring and evaluating health visitors' work with v ulnerable
families, yet interviewees' views about the feasibility of
this were mixed
eferral agent
In pursuit of the fourth principle of health visiting, 'the
facilitation of health enhancing activities' (Council for the
Education and Training of Health Visitors 1977), health
visitors have traditionally acted as a resource for clients,
offering accurate and relevant information about health
issues, as well as providing a major supportive service,
empowermg parents and boosting their self-esteem and
confidence levels Tw mn & Cowley (1992) highlight the
many circumstances which inhibit health enhancing
beha viour and they state there is 'a clear need for facili-
tatio n to focus on changing the circum stances or situation
m which people live, rather than concentrating solely on
individual behaviour and knowledge' A key assumption
has been that adequate resources will be available for
hea lth visitors to refer clients on to However a striking
feature of this stud y is that althou gh 40 (80%) of the ques-
tionnaire respondents and 10 (83%) of the interviewees
saw their role as being a referral agent and facilitator/mobi-
lizer of other services and resources, in reality resources
for vulnerable families/children are just not available
I mean the problem is that the resources are not really there
(HVIOJ
Health visitors continually described situations of
unm et needs Where resources are available, many he alth
visitors were extremely concerned that m future GP fund-
holding purchasers may not be willing to make referrals
and buy services for vulnerable clients because of the
expense involved This is obviously a very worrying situ-
ation and likely to be exacerbated because of the neb ulous
nature of vulnerability, as well as its non-legitimation m
the present NHS Several health visitors discussed the
importance of documentmg ineffective referreds and
reporting to managers the existence of unm et n eeds
Lack of resources c ontinu es to result m the hea lth visitor
being the sole support agent for the majority of vulnerable
families Table 1 illustrates health v isitors' perception s of
the resou rces available for vulne rable families Althoug h
it IS possible that the que sbon naire respo ndents did n ot
identify all resources available to vulnerable families m
their area, it is likely that health visitors mentioned those
resources most frequently available With the exce ption of
family centres all other resources appear to be available
on a limited basis Differences m he alth visitors ' perce p-
tions of what services are available even in one area are
evident and are likely to anse from the fact that health
© 1996 Blackwell Science Ltd,
Journal of Advanced Nursing
23, 912-918
9 1 5
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/ V Appleton
Xflhle Rftfiourcfis av ail ab le
for vulnerable families as
reported by 58 health visitors
Family centres
Community psychiatnc nurse
Local authority playgroups/day
nursenes
Portage
Family aid workers/home help
Counsellors
Special needs team/services for
handicapped children
Homestart
Child guidance/child and family
centre
Local authority sponsored
childmmder/playgroup place
Health visitor child protection
specialist
Speech therapist
Voluntary agencies
Interpreters/link workers
Miscellaneous
Resources
available
(n = 58)
30
5
19
9
14
12
1 1
18
18
6
2
4
9
1
2 1
Available
( )
51 72
8 62
32 76
15 52
24 14
20 69
18 97
31 03
31 03
10 34
3 45
6 9
15 52
1 72
36 21
Resources
not
mentioned
(n = 58)
28
53
39
4 9
4 4
4 6
4 7
4 0
4 0
52
56
54
4 9
57
37
N ot
menU
( )
48 28
9 1 3 8
67 24
84 48
75 86
79 31
8 1 0 3
68 97
68 97
89 66
96 55
93 1
84 48
98 28
63 79
authorities/tmsts cover large geographical areas,
and
a
resource which is available at one end of the borough, may
not be available to families living in a different part
Many health visitors talked about the need to docum ent
ineffective referrals, firstly m order to identify to manage-
ment that unmet needs are still there and secondly to do
'the protecting y our back bit' (HV 56) Nettleton (1991)
identified health visitors 'covering their backs' in his study
and remarked that it was 'acknowledged as a reality with
some regret as a retrogressive defence agamst the stresses
of pressu re of wo rk' (Nettleton 1991) Worrymgly, at the
other end of the scale one health visitor did not bother
making referrals to social services m the majonty of cases
because of the likelihood of them not taking any action
and the time involved m m aking referrals To a certain
extent th e hea lth visitor ap{>ears to be slip ping into danger-
ous practice and realizes this
and things that I would have rung social services about and
wanted help and intervention w ith maybe 6 or 7 years ago now I
might not necessanly even inform social services because I think
wha t are they going to do about i f But in a sense then I wo nder
IS that dangerous practice''
(HV42)
The referral agency which health visitors continually
complamed about was social services and this supports
earlier resea rch findmgs (Taylor & TiUey 1989, Gilardi
1991, Nettleton 1991) Health visitors were clearly very
concerned about the lack of social work input with so
vulnerable families
and sometimes you can get stuck — you can't get any h
People don't recognize what you see Because social services
being pressured all the time, they can't cope So they don 't w
to see the needs that we're finding out in other families
(HV
Quite clearly social workers are only involved m mi
mal preventative w ork and will generally only get involv
with v ulnerable families once a crisis/abuse ha s occurr
This supports the findmgs of Taylor James (1987) w
found there was a failure on the part of social services
pick up cases that should have been their responsibili
Thus a very common feature is that the health visi
appears to be the sole professional supporting vulnera
families Many health visitors appe ar angry and frustra
over the lack of social services inp ut w ith families, parti
larly in those areas of 'high concern' often described
'grey areas' All interviewees w ith the exception of o
complained of low morale and the fact that other p
fessionals give hea lth visitors little creden ce T
researcher found the health visitors generedly stressed a
frustrated This was clearly a group of professionals w
were struggling to even begm to facilitate the pnnciples
health visitmg due to the effects of very hmited resourc
As health visitors are often the sole profession
mvolved with vulnerable femuhes many seemed to be
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orking with vulnerable families
confhct with their own roles as health promoters, several
even appeared to he taking on a social work role, albeit
reluctantly They are evidently trymg to bndg e the gap of
lack of resou rces, as Potryku s (1990), Nettleton (1991) and
De La Cuesta (1992) have previously identified, and this
creates enormous role conflicts and reuses many impli-
cations for the man agement and practice of health visitmg
Many social services departments are overstretched and
under great stresses following the changes of the
Commumty Care Act (Department of Health 1990) and
increasing demands of The Children Act (Department of
Health 1989) Thu s health visitors find they cannot con-
centrate on health issue s with vulne rable families because
of the multiple social problems that many families are
faced with Wh en the health visitor is the sole professional
offering input to vulnerable families, inevitably bound-
aries will merge
I mean I think anything you do to give a family extra resources,
copmg mechanisms or whatever you're working towards child
protection And tha t's why you know i t's very difficult to say to
make a dividing line as to when health visiting stops and when
social work should continue, because I think at the moment I
thmk health visitors go over into social work and prevention of
child abuse hugely
(HVIO)
This appears to substantiate the findings of
De
La Cuesta
(1992) who descnbes health visitors taking on 'fange
activities' (De La Cuesta 1992) She desc ribes finnge work
as 'when health visitors are confronted with gaps in
resources or services they attempt to respond to them by
filling or bridging them and this is the essence of fringe
work' (De La Cuesta 1992) The evide nce m this s tudy
describes health visitors trying to bridge the gap of lack of
resources by doing others' work Interestmgly this also
supports the findings of Potrykus (1990) who found that
health visitors are often called to 'step mto the breach left
by social worke rs simp ly not the re' N ettleton (1991)
terms it 'assuming responsibilities for others' and also
descnbes health visitors being forced mto a social work
role wh ich he terms 'social work by proxy' Clearly if
health visitors are bndging the gap between health visitmg
and social work it creates enormous role conflicts, as
Taylor Tilley (1989) have previously identified
In this stud y ma ny of the he alth visitors believed strongly
that without the health visiting profession the numbers on
the Child Protection Register would mcrease dramatically
A number of health visitors also believed that families con-
tmue to prefer mput from health visitors rather than social
workers, this hmts at the professional nvalry identified by
Dmgwall et al (1983) and Taylor Tilley (1990)
A lot of famihes are apprehensive about making contact with
social services but will contact health visitors for advice
(HV9)
All
Some of them
None of them
Not sure
Not applicable
1
35
20
1
1
Table Social worker allocation to vulnerable family
No of health visitors Health visitors
1 72
60 34
34 49
1 72
1 72
The interview data indicated that for all the health visi-
tors the majonfy of their wo rktime is spen t with vu lnerab le
families For this group of hea lth visitors, social workers
had m inimal inpu t with vulnerable families Table 2 illus-
trates social worker allocation to questionnaire respon-
dents' vulnerable famihes/children as reported by the
health visitors participating in the study
Reluctant monitoring role
The diversity of the health visitor's role and the ensuing
conflicts are again illustrated m the health visitor's reluc-
tant momtonng role, which has previously been high-
lighted in the hterature (Mayall Foster 1989) Of the 50
questionnaire respondents who commented on the health
visitor's role with vu lnerab le famihes, 22 (44 ) talked
about havmg a momtonng role of families m conjunction
with the ir suppo rtive role Clearly for the majority of
health visitors they played a 'reluctant momtonng role'
This may be because health visitors are being forced to fill
the gap in service which quite clearly social workers are
not providing
C O N C L U S I O N S
This research hats taken a step forward in illustrating the
important role which health visitors play in working with
vulnerable families in relation to child protection
Unfortunately the importance of health visitors' preven-
tive work m this area is often unacknow ledged and is cer-
tainly overshadowed hy an emphasis on routine child
health surveillance and other quantifiable asjjects of the
service There wo uld ap pear to be a false sissumption tha t
much of the work which indeed health visitors are under-
taking with v ulnerable families is bemg a ttnbuted to social
service departments This is an issue wh ich rapidly need s
to be recogmzed and addressed by the government and by
health/social service departments
This paper has bnefly descnbed the development of a
'health visiting assessment process', which illustrates the
key steps m health visitors' decision making Professional
judgements have been shown to be extremely important
m assessing vulnerability, despite the emphasis still
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/ V ppleton
placed on checklists/guidelines, and this is clearly an area
of health visitmg which needs further investigation The
study suggests that health visitors have four key inter-
related yet quite diverse roles to play with vulnerable fam-
ilies identification of vulnerability, support agent, referral
agent, and a reluctant monitoring role The analysis illus-
trates that the health visitor's role m dealing with vulner-
ability
IS
one of diversity and conflict It has been suggested
that role diversity may be a direct response to tbe com-
plexity of vulnerability Role conflict appears to result
from the lack of other resources for vulnerable groups
Finally the research has stressed that health visiting is
currently facing considerable role conflict and control It
IS essential that if health visitors are to maintain pro-
fessional goals and credibility, they must not fall into the
trap of being viewed as a 'Jack of all trades' Health visitors
must not be lured mto providing others' services simply
because they do not exist This has tremendous impli-
cations for practice and is an issue which needs to be
addressed by both health and social services
Acknowledgements
Many thanks to my supervisor Dr Sarah Cowley,
Department of Nursing Studies, King's College, University
of London, for her guidance with this study, and to the
health visitors who participated m the study Thank you
also to the Smith and Nephew Foundation for their finan-
cial support dunng this research
References
Appleton
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