WHATEVER IT TAKES to Beat Parkinson's

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WHATEVER IT TAKES to Beat Parkinson’s ®

Transcript of WHATEVER IT TAKES to Beat Parkinson's

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WHATEVER IT TAKESto Beat Parkinson’s®

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ABOUT THE FOUNDATION

Founded in 1957, the National Parkinson

Foundation (NPF) is a leading, national

organization with an extensive network of

chapters, support groups, and our global

Centers of Excellence. Unique among the

national Parkinson’s organizations, NPF

is the only organization with a singular

focus on improving the quality of care

in Parkinson’s disease. NPF has funded

more than $180 million in research,

education and support services.

NPF programs touch more

than one million people a

year through our network

of United States chapters,

support groups, patient

conferences, and

our online resource,

Parkinson.org.

NPF’s Centers of Excellence

are leading medical centers

around the globe that excel in

research, care and community outreach,

delivering care to more than 50,000

Parkinson’s patients.

ANNUAL REPORT | 2013

The mission of the

National Parkinson

Foundation (NPF) is

to improve the quality of

Parkinson’s care through

research, education

and outreach.

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CEO’S MESSAGE

This past year has been marked

by the launch of even more NPF

programs for people living with

Parkinson’s and their families. We

truly believe that all people deserve

access to expert Parkinson’s care

and information no matter who

they are, where they live or how

much money they have.

It is a lifelong commitment to the

underserved that has been a strong

tenet of our retiring Chairman of

the Board, Dr. Bernard Fogel. For

six years, Dr. Fogel led the Board as a strong advocate of our mission to focus on improving the lives

of patients today. As a former medical school dean, Dr. Fogel worked tirelessly and with a big heart

to open doors in his extensive network. He has cared deeply, and no task was too big or too small to

engage his prodigious energy. His passion to help—and help mightily—stemmed from seeing his own

father struggle with the disease for decades.

Now he passes the Chairman’s baton to John Kozyak. Both of John’s parents have Parkinson’s and

he has seen firsthand the difference that education and support can make in the ability to live a better

life now and he is strongly committed to the cause. A prominent attorney with a national profile, John

too has a history of interest in the underserved, and single-handedly runs a highly-regarded minority

mentoring foundation in South Florida.

As president and CEO, it has been my honor to work side-by-side with wonderful leaders such as

Dr. Bernard Fogel and John Kozyak. Together, on behalf of the million Americans with Parkinson’s

and their families, we are committed to doing whatever it takes to beat Parkinson’s.

Warm Regards,

Joyce Oberdorf

President and CEO

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John Kozyak, Joyce Oberdorf and Dr. Bernard Fogel

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Over our history of six decades, NPF has maintained

a steady commitment to eliminating Parkinson’s-

related disparities in health care. In partnership with

NPF’s Chapters and Centers of Excellence across the United

States, NPF has developed materials and resources to respond to

the diverse needs of all people who are affected by Parkinson’s disease.

In 2013, NPF brought the lifesaving messages of the successful Aware in Care campaign

to underserved communities by providing thousands of free hospitalization kits in low health

literacy English and Spanish versions. Since the inception of the campaign, 31,500 kits have

been distributed to help people get better care in a hospital.

NPF is working with five Centers of

Excel lence to expand outreach to ethnic

communities: Johns Hopkins University

in Baltimore, Baylor College of Medicine

in Houston, University of Pennsylvania in

Philadelphia, Barrow Neurological Institute

in Phoenix and Georgetown University

Hospital in Washington, D.C.

The Aware in Care campaign to the

underserved was made possible by the

generous support of Medtronic Philanthropy.

The overall Aware in Care program is also

supported by the generous contributions

of its lead sponsor, the Edmond J. Safra

Philanthropic Foundation, and The Eleanor

M. and Herbert D. Katz Family Foundation.

Learn more about the campaign at www.awareincare.org.

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WHATEVER IT TAKES to Beat Parkinson’s®

ANNUAL REPORT | 2013

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“ The unfortunate reality in our country

is that many people remain isolated and

unable to access services in the healthcare

system at large. NPF is working to ensure

that everyone—regardless of who they are,

where they live, what language they

speak or how much money

they have – receives much-

needed Parkinson’s

resources. ”

OUTREACH TO THE UNDERSERVED

Becky Dunlop, RN

— Nurse Coordinator for the Johns Hopkins Parkinson’s

Disease and Movement Disorders Center,

an NPF Center of Excellence

{

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“ We’re changing the way that

Parkinson’s disease is managed

by bringing care directly to the

patients, and we wouldn’t be able to

do this without the support of NPF. ”

NARROWING THE GAP IN CARE }

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Ray Dorsey, MD — University of

Rochester, an NPF Center

of Excellence

ANNUAL REPORT | 2013

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H alf the people in the world with Parkinson’s

disease are suffering needlessly because they

aren’t receiving care from a neurologist.

Dr. Ray Dorsey has found that usually the problem isn’t that

patients won’t see a specialist; it’s that they can’t. Rather than

asking older individuals with a disabling condition to drive across

their state to an urban medical center, he is working with NPF to prove that

great care can be delivered to patients in their homes.

New technology is making this possible through telemedicine—using computers to connect

doctors and patients. It’s not just distance that separates patients from specialists: caregivers

need time off from work for appointments, increasing disability makes travel harder – and

travel can be expensive. A video call with

your doctor from your home can make

accessing great care so much easier.

For the current study, Dorsey partnered

with NPF to lead a team of investigators

from across the NPF Center of Excellence

network to show that his expert care model

can scale to nationwide delivery. Patient

recruitment for the program from NPF

Centers began in early 2014.

This pilot program will compare specialist

telemedicine to the care people receive in

their own communities. The goal is to prove

that people with Parkinson’s can get expert

care via “virtual house calls,” making it easier for people all over the world to receive quality

Parkinson’s care. Focused on engaging and empowering patients, this program won a multi-

year $1.7 million research award from the Patient-Centered Outcomes Research Institute (PCORI).

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For more information, visit www.parkinson.org/telemedicine.

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NPF is dedicated to developing new concepts and

technologies that engage people in their own care.

In 2013, NPF launched a first-of-its-kind app,

Parkinson’s Central, for people with Parkinson’s and their

loved ones. Now, anyone with a smartphone can directly access

the Parkinson’s-related information they need, where and when they need it.

Parkinson’s Central was developed as part of NPF’s overall vision to meet an ever-increasing

demand for online health information and to help people with Parkinson’s now. The tool is

yet another way in which NPF is using technology and innovation—on top of multiple social

media tools—to help people diagnosed with Parkinson’s regain control of their life.

Parkinson’s Central is

the second free app that

NPF has released; the

Parkinson’s Toolkit,

which launched in 2011,

is an app designed for

health care professionals.

Parkinson’s Central was

made possible by the

generous support of

donors like you as well as

Teva CNS and AbbVie.

For more information on the app, visit www.parkinson.org/parkinsonscentral.

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“ Easy to use and easy to read,

Parkinson’s Central is a veritable

encyclopedia of Parkinson’s issues,

not only regarding the treatment

of the disease, but as a guidebook

for positive and high-quality

living with Parkinson’s. ”

EDUCATION AT YOUR FINGERTIPS{

James Morgan

— member of NPF’s South Florida Advisory

Council, who was diagnosed with Parkinson’s disease

five years ago

ANNUAL REPORT | 2013

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WHATEVER IT TAKES to Beat Parkinson’s®

NPF : 2013 THE YEAR IN NUMBERS

S U P P O R T E D O U R M I S S I O N T O I M P R O V E T H E Q U A L I T Y O F C A R E F O R P E O P L E L I V I N G W I T H P A R K I N S O N ’ S

56,000 DONORS

7,500PATIENTS

ENROLLED IN NPF’S PARKINSON’S

OUTCOMES PROJECT, THE LARGEST

CLINICAL STUDY OF PARKINSON’S,

AT 20 NPF CENTERS OF EXCELLENCE

TRAINED SPECIALISTS AT

OUR TOLL-FREE HELPLINE,

13,000 CALLERS

11,100 FREE, LIFE-SAVING

AWARE IN CARE KITS WERE DISTRIBUTED T O H E L P P E O P L E G E T B E T T E R C A R E I N A H O S P I T A L

1-800-4PD-INFO,

PROVIDED VITAL

COUNSELING TO

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ANNUAL REPORT | 2013

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P A R K I N S O N . O R G — T H E G O - T O

R E S O U R C E O N T H E W E B — H A D

UNIQUE VISITS FROM MORE THAN

1 million PEOPLE

N P F ’ S V I B R A N T ONLINE COMMUNITY E N G A G E D W I T H F A N S M O R E T H A N

50 MILLION TIMES

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P A R T I C I P A T E D I N N P F ’ S M O V I N G

D A Y ® I N 1 9 L O C A T I O N S A C R O S S

THE USA, RAISING CRITICAL

AWARENESS OF THE DISEASE

I N L O C A L C O M M U N I T I E S

20,000 WALKERS

FROM AROUND THE WORLD TUNED

I N T O E I G H T F R E E W E B I N A R S

HOSTED BY PARKINSON’S EXPERTS

8,500 PEOPLE

O F O U R F R E E E D U C A T I O N A L M A N U A L S

O N 1 0 D I F F E R E N T T O P I C S A N D N P F ’ S

N E W S L E T T E R ( T H E P A R K I N S O N R E P O R T )

M A I L E D T O H O M E S A C R O S S A M E R I C A

210,000 COPIES

SERVED THROUGH THE

NPF CHAPTER NETWORK

100,000 PEOPLE

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GIFTS OF $250,000 AND ABOVEEstate of Donald L. Allred

Estate of Jack Roth

Edmond J. Safra Philanthropic Foundation

Harcourt M. and Virginia W. Sylvester Foundation

Jerome A. Yavitz Charitable Foundation, Inc.

GIFTS OF $100,000 TO $249,999Trust of Arlene M. Bevilacqua

Estate of Viola B. Cayea

Trust of Edna Cottun

The Hansen Trust

Estate of Dianne Kuhrt

Jerry M. Lindzon

Medtronic Foundation

NPF South Palm Beach County

Parkinson’s Unity Walk

Estate of John R. Peters

Estate of Carol C. Price

UCB, Inc.

GIFTS OF $50,000 TO $99,999

Jacob C. Arant, Sr.

Estate of Liesel Brown

Trust of Rex A. and Josephine S. Collins

Rollin M. Gerstacker Foundation

Estate of Dorothy M. Holeton

The Don A. Hunziker Memorial Foundation

The Eleanor M. and Herbert D. Katz Family Foundation, Inc.

Trust of Robert E. Neill

Parkinson Foundation of the National Capital Area

Right at Home, Inc.

Solomon Family Foundation

Teva Neuroscience, Inc.

US WorldMeds

Estate of Rose Vosbigian

GIFTS OF $20,000 TO $49,999

Andrew B. and Mona Albert

The Applebaum Foundation

AbbVie Neurosciences

Leo M. Amoroso

Terry and Regina Armstrong Family Charitable Foundation

The Jane H. Berktold Parkinson Fund

Bloomfield Family Foundation

Trust of Ricki Fountain

Community Health Charities

Medtronic, Inc.

NPF Central & Southeast Ohio

NPF Georgia

NPF Orange County California

NPF Western New York

NPF Western Pennsylvania

The Oreffice Foundation

The Parkinson Council

Trust of Harold J. and Phyllis A. Schwend

Estate of Ruby Stevens

Estate of Edward C. Stevenson

The Diller-Von Furstenberg Family Foundation

The National Parkinson Foundation gratefully acknowledges

all of the people who made a donation of $1,000 or

more between July 1, 2012 and June 30, 2013. It is the

thoughtfulness of these supporters that allows us to educate and assist people in communities across the country

about Parkinson’s disease. We thank them for their dedicated support.

THANK YOU !

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GIFTS OF $10,000 TO $19,999

Anonymous

Karl Albert

Trust of Rita Alexander

Bruce H. Bryant

Paul and Pearl Caslow Foundation

Chelsea Therapeutics

Dr. and Mrs. Lynn and Kate Christianson

W. G. Christianson Foundation

Robert and Joanne Crown Income Charitable Fund

Mr. and Mrs. Charles M. Eldridge

Ross S. Evans

Five Millers Family Foundation, Inc.

Estate of Kathleen Greenler

Estate of Theodore R. Grimes

Beulah Mae Jones-Mitchell

Katten, Muchin, Zavis, Rosenman Foundation, Inc.

Marian S. and Frederic T. McAuslan Endowment Fund

The McCamish Family Charitable Fund

NPF Greater Rochester

NPF Heartland

NPF Central Savannah River Area

Peachtree House Foundation

Beth Kobliner Shaw and David E. Shaw

Estate of Rosario Simon

Alan M. Slewett

Dr. and Mrs. Enrique J. Sosa

Degna Spoldi Private Family Foundation

Estate of the Reverend Donald Van Dreser

Estate of Shirley M. Welchko

Otto C. Winzen Memorial Advised Fund of the Catholic Community Foundation

Mary Ellen and Bruce Wisnicki

GIFTS OF $1,000 TO $9,999

Anonymous (18)

Abbott Laboratories Employee Giving Campaign

Ellen and David A. Abramson

Kathleen S. and Jeffrey J. Abrash

Erwin Aderhold

Emily and Richard Alexander

Malik Ali

Victor M. Almeida

Ame Foundation, Inc.

American Parkinson Disease Association

Paul E. Andrews, Jr.

Ashland Foundation

Associated Electrics, Inc.

Isabel L. Bader

Dexter F. Baker

Ed Baker

James J. Baker

Dorothy M. Ball

Marcia V. and R. Franklin Balotti

Francine Barbe

John E. and Nellie J. Bastien Memorial Foundation

Ben Bauer

Claire Beekman

Patricia and Gardner Bemis Fund of The Minneapolis Foundation

Lisa D. Bertani

Blank Charitable Foundation, Inc.

Estate of Ada Bloom

Blue Cross and Blue Shield of Illinois

BMO Harris Bank

Estate of Elaine D. Bohanon

James Bosshart

Colonel Conrad Boterweg

Roxanne Brandt

Charles Bray

Jeffrey W. Breeser

Elizabeth and William F. Broll

Lewis D. Brounell Charitable Trust

David Browdy

William E. Brown

Linda G. Brown

Donald Burns

Miss Harryette Campbell

Mr. and Mrs. Michael Cannizzo

Gary O. Caris

Jeff Carson

Rolando Castellanos

CBS Radio

Tammi and Craig E. Chalfie

The Chalfont Foundation

Jill Chalsty

Ellen M. Chen

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ANNUAL REPORT | 2013

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Chernega Family Fund

Chicago Park District

Chinowth Charitable Lead Trust

Michael Chipman

Douglas R. Clovis

John P. Clulow Fund

Stephen Cohen

Judith E. Cohen

Toby Cohn

Community Health Charities of Florida

Community Health Charities Minnesota

Community Health Charities Of NY, Inc.

Gordon Crawford

Crawford Group Sotheby’s International Realty

Mary J. and Neil Crosby

Candace Cummings

Daluge Family Fund

Rodger L. and Gloria F. Daniels Charitable Foundation

The Daus Family Foundation

Davit Charitable Fund

Deer Lodge Centre

DeFreitas Family Charitable Gift Fund

Delouri Farms, Inc.

Charles H. Denny, III Charitable Trust

Joe Derosa

Designs by Pegasus, Inc.

Willa Ruth Deveny

Estate of Thelma L. De Vorss

Kathryn and Ernest Dibenedetto

Harriet Ford Dickenson Foundation

DLC Empire, LLC

Jeanette and Ron Doggett

Donate For A Cause, Inc.

Mark Duffy

Baxter and Deon Dunaway Trust

Sue Dupuis

Lois W. Dyk

Eagan Family Foundation, Inc.

Brian D. Eckhart

Linda Ellis

Dr. and Mrs. Robert and Janet Ettleman

Eveready Battery Company, Inc.

Helen and Charles Fedalen, Jr.

The Felterman Foundation

Estate of Robert Ferguson

Jane Feldman Fields

The Fisher Family Foundation

James A. Fletcher

Meg Fletcher

Dr. and Mrs. Bernard J. and Judith Fogel

Kathleen Fones

Rudolph and Hilda U. Forchheimer Foundation, Inc.

Margaret and David A. Fort

Anne Fortney Riddell

Estate of Evelyn Foust

Judy Freeman

Sarah Friar

Friends and Colleagues at Naval Reactors

Madelon and Roger R. Fross

Cynthia E. Fruchtman

Karen and Todd Fruen

Edward G. and Catherine M. Galante

Robert Gathman

GE Foundation

GE Healthcare

Cheryl and Richard K. Gelber

Margaret and John Gergich

Charles B. Gilbert Foundation, Inc.

Judith S. Gillies

James Gillis

The Gerald and Deanne Gitner Charitable Fund

Carol Glickenhaus

The GMK Family Fund

Richard A. Goldstein

Dr. Moses and Beatrice Goodman Fund

Nancy Gordon

Gary J. Gorton

May Gossett

Peter M. Gotsch

Elizabeth and Douglas T. Granat

Nancy and Kenneth Granat

Sulu and Gary Grant

Carole Gray

Garland and Agnes Taylor Gray Foundation

Lisa Griffin

Emily and Peter Gross

The Robert and Lynne Grossman Family Foundation

Vincent Gubin Giving Account

Joyce C. Gumm

Jack Guthrie

Violet Haelterman

Hahn Loeser and Parks LLP

Estate of Ruth F. Hall

Mr. and Mrs. Jack Harter

John A. Hash, Jr.

Hawaii Community Foundation

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Health Care Service Corporation

Melissa Hefner

Johannes H. Heister

Herbert Kay Parkinson Chapter

Estate of Robert P. Herzog

Marilyn and Donald Hibbert

John J. Hoffee

H. Randolph Holder

Roy L. Holt

Donald W. Homan

Estate of Jacqueline Hood

Nancy Hopkins Reilly

Vicki S. Horning

Paul Huston

IAP Worldwide Services

Interpublic Group

Denise and Barry R. Jackson

Robert F. Jeppesen

Fern I. Jewell

Holly and Dare Johnson

Burton and Rose Kahn Family Foundation

Sue Kamp

Kaplan Family Charitable Fund

Phyllis and Eli Katz

Keen, Inc.

Patricia Keenan

The Kerler Family Gift Fund

The Kinetics Foundation

Arnold S. Kling

James T. Knowles

Michael A. Kolodny

Savas Konstantinides

Estate of Roman Kowalski

John W. Kozyak and Barbara Silverman

Jackie Kropman

Kazuko and Ken-Ichi Kubota

Alfred P. Kuehlewind

John C. Kupetz

Esther Lam

Betty and Robert L. Lambert

Edgar R. Larsen

Margaret H. Larsen

Estate of Dessie L. Latham

Lawrence Livermore National Laboratory

Helen and Yum Cheung Lee

Rita A. Lehnert

William R. Leighton, Jr., MD

Leon Lemon

Francis and Gertrude Levett Foundation

Joyce and Sidney Levine

Juliana Li

Elizabeth Liacos

Life Care Centers of America, Inc.

The William and Nancy Lifland Fund

Trust of Marilyn L. Lindsay

John T. Loftus

James L. Long

Jane P. Long Fund

Darlene D. Lowe

Mr. and Mrs. Hugh Lowenstein

Lower Shore Parkinson’s Support Group

Jack MacAllister

Magnakron Corporation

Kristin Maguire

Allan Maier

Bernard Malberg, MD

John Jay Mann Foundation

Janet L. and David Mannheim

John F. Manning, Jr.

James A. Marino and Deborah Wright

Dana and Timothy E. Martorella

Thomas F. Masat

Mrs. Flora E. Mason

Asha P. and Pankah V. Master

Brooke Mastrorio

Joan S. Mathews

Nina Matis

Max Gruber Foundation

Lorie Mayer

Frances P. McCarey

Paul McCaul

Marsha and Robert E. McCleary

McClelland Family Foundation

Estate of Brooks McClure

Charles H. McCrea

James and Marie McCurdy Family Charitable Trust

The McCutcheon Foundation

Keri McGinness

Gustaf Westfeldt McIlhenny Family Foundation

Tim McKay

Angela and Paul McPhail

Charles H. McPherson, Sr.

Kay and George Meadors

Mr. and Mrs. John T. Mendel

Mid Cities Jewish Community Center

Wayne F. Miller

Miller Realty Family Philanthropic Fund

William D. Minaghan

Alan B. Mirken

Samuel Mohabir

Robert A. Moore

Judith M. Moss

Sherri Mowery

Timothy Murphy

Joan M. Naughton

Neuroscience Consultants, LLC

Pamela and Andrew Newton

Nickels and Dimes Incorporated

Estate of Lloyd O. Nielson

Robert Nolan

Ann-Mari Nordgren

Jean F. Norfleet

Noritake Co. Inc.

Noven Pharmaceuticals, Inc.

NPF Kingdor Bahamas

NPF North Florida

NPF South Dakota

Betty C. O’Connell

Michael G. O’Hare

OnMessage, Inc.

Lisa Orberg

Claire E. Orner

Estate of Sheila K. Orr

Marianne and Edward P. Petrosky

Leslie Peverall

Dr. Lincoln N. Pinsky

Robert J. Pilska

Larry Plocheck

John D. Pope

Fayga and Elliot Press Advised Fund

Lawrence Puckett

Rocco V. Pugliese

Quad Partners LLC

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ANNUAL REPORT | 2013

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Rand-Hager Family Charitable Fund

RCL Fund of The Greater Cincinnati Foundation

Sharron G. Reiss and Mike Miller

Mardell L. and Paul Remick

Cheryl Remmert

Richard Family Foundation, Inc.

Kirk B. Richardson

William F. Ringier

River Terminal Development Company

Roasters Deli Enterprises, Inc.

Teresa K. Rogers

Gerry and Robert R. Rosenberg

Ellen R. Rosenthal

The Rosie’s Charitable Fund

Maureen F. and Paul H. Roskoph Philanthropic Fund

Regina M. Rubenstein

Arthur Rubin

The Helena Rubinstein Philanthropic Fund

M. Jacki and Jim Rupert

David H. Rutchik

Thomas A. Ryan

Sackets Harbor Parkinson’s Action Committee

Hellyn L. Sarek

W. S. Scharff Family Foundation

Liz Schaub

Dr. and Mrs. Martin Schechter

Mr. and Mrs. Don Schneider

Schoenstadt Family Foundation

Blair W. Schultz

Gloria M. Scott

Elizabeth Scrivner

Hermina and Ronald Seiden

Honorable Patricia A. Seitz and Mr. Alan G. Greer

Heidi Shafranek

The Shanken Family Foundation

Ronald Sherman

Barbara and Michael Sherman

Anne N. Sherr

SHURE, Inc.

Virginia C. Simmons

Warren Single

Carl Singmaster

Paul G. Smith

Edward W. Smith, Jr. Foundation

Martin H. Snitzer

Carol and Nelson Soggs

The Solana At Cinco Ranch

Diane and Eric F. Sombers

Jim Soong

Paul Spandikow

Peggy and John H. Speaker

SPX Foundation

Sylvia M. Stafford

Simon Stanaway

Jerry N. Steinbaum

The Diane F. Stephens 2004 Charitable Trust

Jennifer Stettner

Audrey and John Stratman

Nancy Sully

Jeff Sultan

Estate of Vera Sunday

Franklin Surnamer

Svoboda, Collins Management LLC

James Syltie

Mark A. Tancil

Tate Enterprises

Troy W. Tegeler

Templeton Family Fund

Michael Thiel

The James and Patricia Tolley Charitable Gift Fund

Trukenbrod Family Foundation

Trustmark National Bank

Tubular Textile Machinery, Inc.

Betty and John W. Turner

Richard H. Tyler

United Way Of Central Maryland

University of Toledo

Marcello Vaccaro

Whitney and Russell Van Nuis

Trust of Patience A. Van Peenan

Thomas A. Verrill

Milton and Miriam Waldbaum Family Foundation

Yuchun Wang

Ira D. Warner

Steven D. Watts

The Weeden Foundation

Edward L. and Sheila Rabb Weidenfeld

Edward M. Weil

Estate of Norman Wexler

Dr. Jessica White and Mr. Christopher White

Michael Wilderman

John I. Williams, Jr.

Elizabeth R. Williams Trust

Robert F. Williams Trust

Anthony L. Wilner

Sherryl A. Woods

Phyllis I. Wormwood Fund

Polly P. Wright

Marilyn and Richard Wurzburger

Donald G. Wylin

Steve Yonker

Tim Zeller

Zissu Family Foundation

Lynn and Donald Zucker

Matthew Zucker

Eleanor and Leo Zucker Family Foundation

Zynga.org

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ANNUAL REPORT | 2013

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Legacy society members are a select group of donors who have recognized the National Parkinson Foundation in their wills, trusts, estates and other planned gifts. Their generosity and forethought will help thousands

of Parkinson’s patients live better lives in the years to come. We would like to recognize the following Legacy Society members:

E. Richard and Meme Alhadeff

Leo M. Amoroso

Helen C. Avchin

Eugene M. Bane Charitable Trust

Wendy and A. Jeffrey Barash

Virginia C. Barrett

Ben Berkowitz

Leonard Bielski

Connie Bierlein

Deborah L. Boyer

Jean Bressler

Maida Burka

Tom Campbell

Lewis F. and Mildred E. Collier

Richard and Susan Comeau

Robert A. M. Coppenrath

Deloris T. Crews

Thomas Curtis

Burke and Rena Dambly

Esther Danielson

Mary Dexter

Mary Jean Elioff

James A. Enloe, Sr.

Alvin Gardner

Dr. Moses and Beatrice Goodman Fund

Genie B. Hollen

Ida Hutzler Charitable Trust

Edward Jervey

Rachel K. Johnson

Yetta Kaemmer

Barry Kaye

Heinrich E. Kolbel

Marjorie R. Korach

Hanes Lassiter

Dorothy Marienau

Erna Mayer

James & Marie McCurdy Family Charitable Trust

John McConeghy

Karen A. Moschetto

Anna Nalbandian

Kimrey and Beverly Newlin

Ruth Orfield

Margaret Paul

Anne Romanello

Kim and Susan Schrotenboer

Centre Unversaw

Miguel Vargas

Dorothy Vaughn

Michael L. & Antoinette H. Wilkerson

Allen Home Care

Megan Bateman

Bay Area Golf for Parkinson’s

Body In Balance Physical Therapy LLC

Madison Brown

Kevin Burkart

Amy Cantu

Suzanne Castor

Catch The Cure

Church Pension Group Services Corp.

Linda Cibula

Danielle Classey

Aaron Cohn

Kimberly Curtis-Scheer

Dixie Exterminating Company, Inc.

Berry Dunn

Seth Dunn

Flat Creek Baptist Church

Fountain City Wesleyan Church

Foutty & Foutty, LLP

Garden of Life LLC

Brice Holland

Norman Hunneyman

Allison Kallevig

Eric Kaplan

Keenan Antiques

John D. Kelly III Memorial Logan House 5K

Kids Play For Good LLC

Michelle Kravat

P.D. Love

Elliot Lowenthal

Lubeck Community Baptist Church

Kristen Maguire

Debbie and Alexandra Marsek

McKeen & Associates, P.C.

Mer Rouge Community Chest

Katie Meyers

Jim Morris

Sarah Nedde

Network For Good

New Haven Elementary School

Michael Pearson

Donna Peterson

Melissa Phillips

Premier Beverage

Pura Vida Bracelets

Heidi Rosenberg

Saint Matthew Catholic Church

Sarah Schramm

Donna Smith

John Swartz

Tiana Tallant

The Johnson Chamber of Commerce

Thurmont Middle School

Chris and Megan Tidmore

Upson-Lee High School

Vanderbilt University Medical Center

Virginia Farm Bureau Mutual Insurance

Washington Lake Combined Charities

White & Case, LLP

Willard Public Library

Matthew Wukovitz

Every year, our Team Hope members take the lead in creating unique ways to build awareness of Parkinson’s disease and raise funds for the National Parkinson Foundation.

The list below acknowledges the community fundraisers that took place between July 1, 2012 and June 30, 2013. We would like to extend our sincerest gratitude for their creativity, energy and commitment.

NATIONAL PARKINSON FOUNDATION

LEGACY SOCIETY

NATIONAL PARKINSON FOUNDATION

TEAM HOPE FUNDRAISERS

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Interest Income

Special Events

Legacies and bequests

Private and Corporate

Legacies & Bequests

33% | $ 3,256,678

Private &Corporate

59% | $ 5,925,502

Special Events 1% | $ 103,520 Interest Income

& Realized Gains 7% | $ 665,129

CHAAPTER SERVICES

PUBLIC EDUCATION

RESEARCH

PATIENT CARE SERVICES

Patient Care Services

39% | $ 3,063,313

Research15% | $ 1,217,968

Public Education29% | $ 2,261,109

Chapter Services17% | $ 1,308,362

Interest income & Realized Gain

REVENUES BY CATEGORY | 2012-2013

Total Year-End Assets $ 17,106,602

Total Operating Expenses 100.0% | $ 10,691,552

Subtotal Mission-Related73.5% | $ 7,850,752

Fundraising 18.0% | $ 1,929,693

General & Administration8.5% | $ 911,107

Total Revenue$ 9,950,829

EXPENSES BY CATEGORY | 2012-2013

As illustrated below, the National Parkinson Foundation directed 74% of its 2012–2013 spending on mission-related activities and 26% on fundraising and management combined.

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FINANCIAL HIGHLIGHTS

WHATEVER IT TAKES to Beat Parkinson’s®

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An Independent Member of Baker Tilly International

MIAMI 1001 Brickell Bay Drive, 9th Floor, Miami FL 33131 | T 305 373 5500 F 305 373 0056 | www.mbafcpa.comFORT LAUDERDALE 301 East Las Olas Boulevard, 4th Floor, Fort Lauderdale, FL 33301 | T 954 760 9000 F 954 760 4465

INDEPENDENT AUDITOR’S REPORT

To the Board of Directors National Parkinson Foundation, Inc.

We have audited the accompanying financial statements of National Parkinson Foundation, Inc. (the “Foundation”), which comprise the statements of financial position as of June 30, 2013 and 2012, and the related statements of activities, functional expenses and cash flows for the years then ended, and the related notes to the financial statements.

Management’s Responsibility for the Financial Statements Management is responsible for the preparation and fair presentation of these financial statements in accordance with accounting principles generally accepted in the United States of America; this includes the design, implementation, and maintenance of internal control relevant to the preparation and fair presentation of financial statements that are free from material misstatement, whether due to fraud or error.

Auditor’s Responsibility Our responsibility is to express an opinion on these financial statements based on our audits. We conducted our audits in accordance with auditing standards generally accepted in the United States of America. Those standards require that we plan and perform the audit to obtain reasonable assurance about whether the financial statements are free from material misstatement.

An audit involves performing procedures to obtain audit evidence about the amounts and disclosures in the financial statements. The procedures selected depend on the auditor’s judgment, including the assessment of the risks of material misstatement of the financial statements, whether due to fraud or error. In making those risk assessments, the auditor considers internal control relevant to the entity’s preparation and fair presentation of the financial statements in order to design audit procedures that are appropriate in the circumstances, but not for the purpose of expressing an opinion on the effectiveness of the entity’s internal control. Accordingly, we express no such opinion. An audit also includes evaluating the appropriateness of accounting policies used and the reasonableness of significant accounting estimates made by management, as well as evaluating the overall presentation of the financial statements.

We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our audit opinion.

OpinionIn our opinion, the financial statements referred to above present fairly, in all material respects, the financial position of the Foundation as of June 30, 2013 and 2012, and the changes in its net assets and its cash flows for the years then ended in accordance with accounting principles generally accepted in the United States of America.

Ft. Lauderdale, Florida September 10, 2013

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ANNUAL REPORT | 2013

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OFFICERS

John W. Kozyak, Esq.* Chairman of the Board

Bernard J. Fogel, MD* Past Chairman

Paul F. Oreffice* Chairman Emeritus

Andrew B. Albert* Vice Chairman

E. Richard Alhadeff, Esq.* Vice Chairman, Secretary

Martin L. Solomon* Treasurer

MEMBERS

Daniel Arty, CPA*

A. Jeffrey Barash, Esq.

J. Gordon Beckham, Jr.

Marshall R. Burack, Esq.

Carmen Y. Cartaya, Esq.*

Patricia de Stacy Harrison

Alessandro Di Rocco, MD

Harold P. Kravitz, Esq.*President Emeritus

Honorable Shelley J. Kravitz

Timothy Martorella

Gail Milhous

Roberto Palenzuela

Katharine F. Roberts

Alan M. Slewett

Enrique J. Sosa, PhD*

Senator Paul B. Steinberg, Esq.

Bruce Wisnicki*

EMERITUS BOARD

Edythe Kay-Marsa

Harold P. Kravitz, Esq.*President Emeritus

Jo Ann Pepper Oreffice

Robert H. Traurig, Esq.

* Member of the Executive Committee

19

NPF BOARD OF DIRECTORS

The National Parkinson Foundation is privleged to have an outstanding and dedicated group of

volunteers who generously donate their time and talents by serving on the NPF Board of Directors.

Without their selfless efforts, the work of the foundation would not be possible.

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Joyce A. OberdorfPresident and Chief Executive Officer

Michael S. Okun, MD National Medical Director

Ariel Y. Deutch, PhD Chair, Clinical & Scientific Advisory Board

Jill DavidsonVice President, Finance & Administration

Amy GrayVice President, Chapter Relations and Community Partnerships

Leilani PearlVice President, Marketing and Communications

Peter Schmidt, PhDVice President, Research and Professional Programs, Chief Information Officer

Darcy TaylorVice President, Constituent Relations

Jorge Zamudio, MDSenior Director, Patient Services

Robert G. ShawSenior Director, National Signature Events

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SENIOR PROFESSIONALS

WHATEVER IT TAKES to Beat Parkinson’s®

ANNUAL REPORT | 2013

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21 WHATEVER IT TAKES to Beat Parkinson’s®

ANNUAL REPORT | 2013

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PEOPLE WHO MOVE CHANGE THE WORLD.

Taking place in cities across the United States,

Moving Day® is your chance

to speak up about Parkinson’s disease and move others to take

action. It is a movement for change — towards more awareness,

more funding, and more understanding of a disease that affects

so many of our family and friends. Every move you make and

every penny you raise brings us closer to beating Parkinson’s!

Find a Moving Day® walk near you at www.npfmovingday.org.

JOIN MOVING DAY®, A WALK FOR PARKINSON’S!

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The Whatever It Takes to Beat Parkinson’s campaign is a national symbol

for living well with Parkinson’s; it highlights the many ways that you can

fight the disease. Show your support for NPF and learn how to beat

Parkinson’s at the same time with our new line of custom merchandise.

Learn more about the campaign at www.parkinson.org/whateverittakes.

SHOP ONLINE AT WWW.PARKINSON.ORG/STORE

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ENGAGE with the Parkinson’s community and the National Parkinson Foundation on social media.

200 S.E. First Street, Suite 800, Miami, FL 33131

800.4PD.INFO (473-4636)

www.parkinson.org