What says the dodo bird? - The Kennedy Forum...

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Patrick Corrigan Illinois Institute of Technology What says the dodo bird?

Transcript of What says the dodo bird? - The Kennedy Forum...

Page 1: What says the dodo bird? - The Kennedy Forum Illinoisthekennedyforumillinois.org/wp-content/uploads/2015/01/KFI_Jan8... · Patrick Corrigan Illinois Institute of Technology What says

Patrick Corrigan

Illinois Institute of Technology

What says the dodo bird?

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STOP

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Stigma is Bad◦Public stigma

◦Self-stigma

Not all ways to address stigma work!

◦Unintended consequences

Direction for change5

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Funded by the U.S. NIMH since 2001

Collection of more than 20 research and consumer groups from across US

WWW.NCSE1.ORG

[email protected]

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UNINTENDED

CONSEQUENCES

Everybody

has won and

all must have

prizes!

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PsychoanalysisCognitive Therapy

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BEAT RACISM

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DON’T ASK

DON’T TELL

BEAT HOMOPHOBIA

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“THE POOR!”

“THE WEAK!”

“THE LEAST IMPORTANT!”

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“THE POOR!”

“THE WEAK!”

“THE LEAST IMPORTANT!”

“Whatsoever you do to the least of my brethren,

that you do unto me!”

John

BESTOW

EMPOWER

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1515

N=213

Stigmatizing Attitudes and

Behavioral Intentions

Education:

Responsibility

Contact:

DangerousnessEducation:

Dangerousness

Contact:

Responsibility

Control

Attitudes and Intentions @ post and 1 wk f-up

-2.5

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control ed:danger ed:respon ct:danger ct:respon

pre

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Pos Neg

Control

Education

Protest

Contact

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control ed:danger ed:respon ct:danger ct:respon

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In the movies

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In the newspapers

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In advertising

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Trenton State Hospital

has fire.

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Roasted Nuts

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DANGER

Phelan, Link et al

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0%

20%

40%

60%

80%

100%

1956 1996

danger

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DANGER

Phelan, Link et al

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0%

5%

10%

15%

20%

25%

30%

35%

40%

1956 1996

danger

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DANGER

Phelan, Link et al

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0%

5%

10%

15%

20%

25%

30%

35%

40%

1956 1996

danger

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DANGER

Phelan, Link et al

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0%

5%

10%

15%

20%

25%

30%

35%

40%

1956 1996 2006

danger

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Public

stigma

Self-

stigma

Label

avoidance

Structural

stigmastereotype

prejudice

discrimination

Structures

-----------types-----------

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STEREOTYPES◦ All Irish Americans are drunks and beat their wives.

PREJUDICE

◦ That’s right. They’re drunks and I loathe them.

DISCRIMINATION

◦ So, don’t: hire, rent, or befriend them

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STEREOTYPES◦ People with MI are: weak, dangerous….

PREJUDICE◦ They are bad because: scary, shameful.

DISCRIMINATION◦ So, don’t: hire, serve, or rent to them

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Public

stigma

Self-

stigma

Label

avoidance

Structural

stigmastereotype

prejudice

discrimination

Structures

-----------types-----------

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Lost employment

Subpar housing

Worse health care

Worse educational opportunities

Diminished legislative support

Alienated faith communities

Coercive treatment

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PTCA: percutaneous transluminal

coronary angioplastyDruss et al., 2000

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Public

stigma

Self-

stigma

Label

avoidance

Structural

stigmastereotype

prejudice

discrimination

Structures

-----------types-----------

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Decreased self-esteem◦ I am not worthy

Decreased self-efficacy◦ I am not able

Why try?!◦ I am not worthy of a good job

◦ I am not able to live alone

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Public

stigma

Self-

stigma

Label

avoidance

Structural

stigmastereotype

prejudice

discrimination

Structures

-----------types-----------

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seekers

non-seekers

45%

Label Avoidance

Epidemiological Catchment Area, National Co-morbidity Survey, NCSII

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users

non-users

22%

Corrigan, P.W. (2004). How stigma interferes with mental health care.

American Psychologist, 59, 614-625

Canadian

Community

Health

Survey

Label Avoidance

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No treatment◦Do not seek care

◦Do not stay in treatment ◦Do not fully participate

50

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Protest Education Contact

Media-

based

In vivo

vehicle

-------processes--------

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EDUCATION: ◦ contrasting myths (people are to blame)

◦ with facts (serious mental illness biological)

CONTACT◦ Meeting people and their stories of recovery

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EASY STUFF:Just change the words!

Just cure the disease!

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Leprosy to Hansen’s Disease

Dementia to Alzheimer’s

Mental Retardation to Intellectual Disability

Mania to Bipolar Illness

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Japan: Seishin-Bunretsu-Byo to togo shitco sho

Korea: Jeongshin-bunyeol to Johyun-byung

Hong Kong: Jing Shen Fen Lie to Si Jue Shi Tiao

Singapore, China

“mind split disease” “integration disorder”

“attunement disorder”“mind splitted disorder”

“dysfunction of thought

and perception”“splitting of the mind”

Sartorius et al., 2014

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The Data◦ Japan: mixed findings (Takashi et al., 2009, 2011)

◦ Relationship between name recognition and recovery (Sato in preparation, 2014)

◦ Hansen’s Disease (Oliveria et al., 2003; Van Brakel et al., in press)

Perpetuates the difference

Prejudice and discrimination more than words.◦ MODERN RACISM

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It Looks easy:

NIMH and other funders decrease support

Advocacy groups: No longer a problem

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KNOWLEDGE IS GOLD:

Educate stigma away!

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75% US school districts

43 countries

RESEARCH

Uncertain effects No effects

RTI (1994) Cal Dept Ed (1995)

U Maryland (1998)

Worse effects APA (1999)

Indiana U (1992)

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Protest Education Contact

Media-

based

In vivo

vehicle

-------processes--------

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Protest Education Contact

Media-

based

In vivo

vehicle

-------processes--------

EDUCATION

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RECOVERY

HIRE THEM?

RENT TO THEM?

EQUAL HEALTH CARE?

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Sixteen representative samples of nation-defined populations

230 to 6000 Ss

Response rates: 65-85%

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

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0

10

20

30

40

50

60

70

1990 1994 1998 2002 2006

Sz

Dep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Inherited/Genetic

META-ANALYSIS FINDINGS: CAUSE

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0

10

20

30

40

50

60

70

80

1990 1994 1998 2002 2006

Sz

Dep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Brain Disease

META-ANALYSIS FINDINGS: CAUSE

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0

10

20

30

40

50

60

1990 1994 1998 2002 2006

Sz

Dep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Co-worker

META-ANALYSIS FINDINGS: ACCEPTANCE

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0

10

20

30

40

50

60

1990 1994 1998 2002 2006

Sz

Dep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Neighbor

META-ANALYSIS FINDINGS: ACCEPTANCE

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Protest Education Contact

Media-

based

In vivo

vehicle

-------processes--------

PROTEST

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PROTEST:The Pros and CONs!

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Protest◦Review stigmatizing images

◦Shame on you for thinking that way

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Beware the rebound effect

the white bear

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NAMI - stigmabusters

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The

JASONUTThe CRAZY

FACE

The SUICIDE

SQUEEZE

Located in Campbell and San Jose

California

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Join the national on-line food fight.

Help turn lemon donuts into lemonade.

Join the national on-line food fight.

Help turn lemon donuts into

lemonade.

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I'm an advocate of equal rights and a more tolerant world toward all people of different races, religion, gender, and sexual orientation; but that is it. Any thing else is just moronic.

Stan Rezaee, Aug, 2009

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FRANCHISEOPPORTUNITIES

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Protest Education Contact

Media-

based

In vivo

vehicle

-------processes--------

CONTACT

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CONTACT vs EDUCATIONThe Pros and CONs!

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We are focused on encouraging EVERYONE TO

SPEAK OUT and share their story of being

affected by mental illness. The more everyone

shares, the more we can learn from each other

and find solutions to overcome our common

challenges.

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Contact

“Meet Bob Lundin”

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Bob’s story◦ My name is ______ and I have a severe mental

illness called schizo-affective disorder

◦ My childhood was not unusual…

◦ Unfortunately, my mental illness was

traumatic. It did not go away quickly…

◦ Despite these problems, I have achieved several accomplishments.

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0

0.1

0.2

0.3

0.4

0.5

0.6

0.7

overall attitudes behavior

education

contact

p<.05 p<.05p<.05

CORRIGAN ET AL., 2012

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WHAT’S THE GOALMore service seeking!

Less discrimination!

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30 to 66% do NOT seek treatment

People with all disorders

All treatments

People don’t go to treatment to avoid STIGMA.

Decrease stigma: increase care seeking

PARITY!

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Stigma undermines employment, housing, health goals

Decrease stigma: decrease care seeking –increase opportunities – promote recovery

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Does the push for care seeking make discrimination worse?

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PENETRATION:

>60% of Australians recognize

IMPACT:

increase mental health literacy

care seeking ???

since 2000

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UNINTENDED CONSEQUENCES

• Brain Disease

• Difference

• Broken

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6

6.5

7

7.5

8

8.5

9

9.5

10

10.5

11

beyondblue recovery

pre

post

SIMILARITY

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TargetedLocalCredibleContinuousContact

94

Corrigan, 2011

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Landlords

Health care professionals

Teachers

Legislators

Employers

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x

CHICAGO:

the heart and

brains of Illinois

ILLINOIS

Does it

play in

PEORIA?

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CityOfficeChurch, synagogue, mosque

School

100

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101

Good stigma change

credible

continuous

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Contact with whom?

Example◦Military (PTSD)◦Other enlisted membersMarines from marinesSailors from sailors

102

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Once is not enough

And cannot be carbon copies

103

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TargetedLocalCredibleContinuousContact

104

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The GRAND PLAN

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Come out everyone

Come out everywhere

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Come out Mad

Come out Proud

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Rod SteigerMike Wallace

Margot Kidder

Patty Duke

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Three Lessons

◦Consider the pros and cons of disclosing

◦ There are different ways to disclose

◦ Telling your story

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National Center on

Stigma and

Empowerment

www.ncse1.org

[email protected]

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