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What is the Washington Traumatic Brain Injury
Resource Center?
Jessica GiordanoOperations Manager
Washington TBI Resource Center May 4, 2012
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This Presentation
* BIAWA
* Education
* Assistance *TBI Resource Line
*Adult Resource Management
*Pediatric Resource Management
*Clinical Case Management
*Support Groups
*Support Activities
* Advocacy
* Tying it All Together 2
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The Brain Injury Association of Washington (BIAWA)
1982 families and caregivers of individuals with brain injuries saw a need for support
Mostly volunteer based
Support Groups and a Resource Line
2007 Resource Line Contract
2011 1st Pediatric Resource Manager
2011 Resource Center Contract
2012 Pediatric Services Statewide
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Current TeamBrittney Neidhardt-Gruhl – Puget Sound Resource Manager
Carla-Jo Whitson – Southwest Resource Manager –CDM Services
Deborah Crawley – Executive Director
Denise Hansen – Information and Referral Specialist
Janet Jones – Central Resource Manager
Janet Mott – Clinical Case Manager
Jennifer Peloquin – Information and Referral Specialist
Jessica Giordano – Resource Line Operations Manager
Julie Dawning – Pediatric Resource Manager
Mary Hughes – Northwest Resource Manager
Nancy Huseman - Western Resource Manager – Cascade Park
Pauline deHoog– Administrative Assistant
Phil Mikkelson – Database and Web Manager
Wendy Lomax – Eastern Resource Manager
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BIAWA Vision StatementOur vision is a world where brain injury is prevented, and every person already affected by its impact benefits from resources that maximize his/her quality of life.
BIAWA Mission StatementOur mission is to increase public awareness, support, and hope for those affected by brain injury through education, assistance, and advocacy.
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Education
Increase public awareness of and knowledge about brain injury through:
• Participation in Conferences and other Community Events;
• Trainings to the public;• Website, Facebook,
Billboards.
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Expanding Outreach Activities
Already more than 98 days of conference and event participation in the 2011/2012 Fiscal year.
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Training
Cover the basics of brain injury and are then modified to meet the needs of the audience such as:- Medical Providers at Overlake Hospital - Catholic Community Services- Domestic Violence Advocates
Providing others with the tools needed to ensure the best services possible to those affected by brain injury. 8
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• BIAWA shares information about:• Upcoming events such as our Annual Holiday Party • Opportunities such as our Academic Scholarship• New and Exciting Research
• Others in the community to spread the word about their events
Heather Rooney’s Rainbow Courage
9www.facebook.com/braininjurywa
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“The brain injury community is my hope amidst my heartache. It keeps me connected with others who live and understand my struggles. It educates the public, including my family and friends, on what brain injuries actually are, how to prevent them, and the trials that people with a TBI suffer through. I am a 15 year survivor and could not have
made it this far on my own.”
- Jane
BIAWA asked our Facebook friends and fans, “What does brain injury community mean to you?” The responses were both powerful and inspiring.
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Assistance
• The Washington Traumatic Brain Injury Resource Center
• Support Groups
• Support Activities
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The Tommy Manning Act 2007$2 Traffic Tickets
Approx. $1.6M
Annually
Governor Appointed TBI Council
DSHS Fiduciary Agency
TBI Resource Center
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Support Groups
TBI Conference
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The Washington Traumatic Brain Injury Resource Center Grant
2011
Continuation of:
• Washington TBI Resource Line
• Clinical Case Management
Addition of:
• In-Person Resource Management (RM)
• Pediatric Services
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Washington TBI Resource Line
• Statewide Toll Free Line 877-824-1766• 9am-5pm M-F
– 115 Calls Per Week– 6,000 Calls Per Year
Offering Support, Information & Referrals to:• Individuals throughout the state of
Washington whose lives are affected by brain injury or who are interested in learning more about brain injury.
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Why Call?
Knowing Where to Turn
Finding Resources• Neuropsychologists, Attorneys,
Placement Facilities, Benefits
Support Activities
Referrals to RM• Adults and Pediatrics
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Resource Database• Online database • More than 1,100 Resources • Attorneys, Neuropsychologists, Physiatrists, Home
Health Care, and more.
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Adult Resource Management
In-person support for survivors, families, and caregivers to assess their current resources and needs and to provide support in accessing additional resources.
Resource Management is:• Goal Driven• Client Centered
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Supports school-aged pediatric brain injury patients, their families, and caregivers with reintegration into their homes, schools, and communities during and subsequent to the discharge process.
Pediatric Resource Management
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What Can RM Do for You?
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“To keep her house from going into foreclosure”
“Getting all of her medical needs met through one
provider” “Successful transition home from the hospital with rehabilitation in place”
“Find an educational placement that will support emotional and
behavioral needs”
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Resource Management
The BIAWA has boots on the ground in counties that cover more than 90% of the TBI incidence
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Clinical Case Management
Conducts assessments and implements care plans for individuals referred to Resource Management whose needs require complex care coordination.
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“Clarify his status in relationship to potential guardianship needs and legal ramifications of recent
divorce”
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Who We Help
- 25% of the people we help are caregivers and 80% of them are unpaid
80+ 65-79 50-64 35-49 20-34 5-19 0-4
Fe-male39%
Male61%
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Contact Closer to Injury
0-1 Year 1-5 Years 5-10 Years 10-20 Years 20+ Years0
10
20
30
40
50
60
70
80
90
100
Reported Time Since Brain Injury for Clients of the Resource Center
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Support Groups
• Help find facilitators
• Provide staff to fill in when needed
• Help start new groups such as the Pediatric Brain Injury Support Group
• Boost public awareness about current groups and their activities via:• Website,
• Facebook,
• Referrals through the Washington TBI Resource Center.
www.braininjurywa.org/supportgroups24
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Support ActivitiesSki for All
Strolling through the Tulips
Academic Scholarships
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Advocacy Leaders in Legislation
The Zackery Lystedt Law, 2009
Contains 3 essential elements:• Athletes, parents and coaches must be educated about
the dangers of concussions each year.• If a young athlete is suspected of having a concussion,
he/she must be removed from a game or practice and not be permitted to return to play. When in doubt, sit them out.
• A licensed health care professional must clear the young athlete to return to play in the subsequent days or weeks.
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“As of October 2011, 31 states (plus the District of Columbia and the city of Chicago) have adopted youth concussion laws.”
http://nflhealthandsafety.com/zackery-lystedt-law/states/27
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What It’s All AboutRita received Resource Management
through the BIAWA and had this to say about one of our Resource Managers, “She's been my Resource Angel. I was feeling lost and overwhelmed
when I moved to the Great Northwest w/ my significant other of 8yrs from California where my TBI situation
first started, but with her warm friendly heart she welcomed me to
the support group n encouraged me to seek help. Thank You & God Bless
You!”
Elizabeth had this to say about one of our resource Line Specialists, “I just wanted to thank you for your time
yesterday. I was feeling so frustrated, alone, depressed and
not sure what to do to help myself. You gave me great advice and
referrals I desperately needed… I am so glad this organization exists and I am very grateful. Thank you again for all your time and help. I appreciate it more than you can
know.”
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Contacts
Washington TBI Resource Center877-824-1766
Brain Injury Association of Washington877-982-4292www.braininjurywa.orgwww.facebook.com/braininjurywa
Jessica [email protected] 29
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Thank You!
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