What Is Out There? What Is Needed?

Information on Female Genital Cutting: What is Out There? What is Needed? 1

In response to an expressed need by the Female Genital Cutting (FGC)Interagency Working Group of the U.S. Agency for InternationalDevelopment (USAID), five collaborating agencies have worked over the

last year to answer the question: what information exists on female genitalcutting and what information gaps are perceived by individuals and groupsthat work to eradicate this practice?

The participants in the information gathering and assessment included:� Population Reference Bureau—Nancy Yinger and Charlotte Feldman-

Jacobs� Family Health International—Rose Wilcher and Kathleen Shears� PATH—Mary Ellsberg� Population Council — Laura Raney, Joanne Gleason; (Washington

Office); Barbara Ibrahim and Mona Bur (West Asia and North AfricaRegional Office in Cairo); and Nafy Diop (Sub-Saharan Africa Region,Dakar office)

� The Manoff Group—Laurie Krieger and Amy Pearson

MethodologyInformation was gathered for this report in three ways:1. In-country questionnaires—The collaborating agencies collected

information for this assessment in the following African countries whereFGC is practiced: Burkina Faso, Egypt, Ethiopia, Guinea, Kenya, Mali,Senegal, and Uganda. Through a variety of methods—including face-to-face interviews, emails, and focus groups—individuals working to eradi-cate FGC in these countries were asked about their use of FGCinformation resources as well as what they believe to be the gaps inresources. (See Appendix 1 for sample of questionnaire.)

2. Survey Monkey—This innovative Internet survey tool was used by PRBto gather information from nearly 100 respondents. These respondentsincluded representatives from government agencies, NGOs, academicinstitutions, and bilateral or multilateral organizations. The survey wasemailed to a wide audience culled from lists provided by the IGWG,PRB, INTACT, USAID (missions), and Wallace Global Fund (donors).Again, respondents were asked about the information resources theyuse as well as perceived gaps in information. (See Appendix 3 for SurveyMonkey questionnaire.)

3. Website review—The five collaborating organizations reviewed 29websites and databases that were identified as containing informationon FGC. The sites were evaluated using a questionnaire prepared by

Information on Female Genital Cutting:What Is Out There? What Is Needed?An Assessment (July 2004)

Table of ContentsMethodology..................................1Who Were the Respondents?.......2Where Do They Get TheirInformation? ..................................2Information Gaps..........................2Where Are the Gaps?....................3Review of Websites.......................3Recommendations ........................4

Appendix I

In-Country Questionnaires ..........6

Appendix II

In-Country Organizations andIndividuals .....................................8

Appendix III

Survey Monkey Questionnaireand Results ..................................15

Appendix IV

Review of FGC Websites ...........18


PRB. Reviewers examined theavailability of FGC informationon each site, the amount of cov-erage, and how easy it is to findthe information. Each site wasassessed on the timeliness of itsinformation, accessibility to theaudience, and overall presenta-tion. (See Appendix 4 for sam-ple of evaluation form.)

Who Were theRespondents?In total, there were 288 survey

respondents (98 via Survey Monkeyand 186 in-country).

The in-country questionnaireswere administered to respondentsin the eight countries mentioned. InApril and May 2004, PopulationCouncil administered the question-naires to 22 associations or individ-uals in Burkina Faso, 28 in Egypt,four in Guinea, and 16 in Senegal.The majority of the respondents inthese countries are representativesof NGOs involved mainly in commu-nity-based work and behaviorchange communication programsrelated to FGC. The fewest numberof responses received were fromorganizations involved in healthcare service delivery and the media.In all four countries, the majority ofactivities are conducted at thecountry and community level asopposed to regional or global.

In Kenya, Family HealthInternational (FHI) administeredthe questionnaire to 39 associationsand individuals, receiving responsesfrom 14 associations or individuals,the majority of whom representNGOs. Most of the organizationsconduct programs in policy advo-cacy and in behavior change com-munication at the community andcountry level.

PATH administered question-naires to 24 organizations and indi-

viduals in Ethiopia, 26 in Mali, and27 in Uganda. In Ethiopia, respon-dents are equally divided betweenNGOs and government organiza-tions. The majority work in healthcare service delivery – though therewere respondents who work inbehavior change communication(BCC), community-based work, andpolicy advocacy, operating at thecommunity and country level aswell as regionally. In Mali, therespondents are with NGOs work-ing on public health issues, predom-inately on BCC andcommunity-based work, with halfdoing policy advocacy, and a quar-ter working on operations researchand on prevalence. In Uganda,respondents are from NGOs work-ing on public health issues, with vir-tually all of them working on BCC,with community-based work andpolicy advocacy following closelybehind. Most of their work is at thecommunity level.

The same questionnaire wasmade available electronically, viathe Internet tool Survey Monkey. Aninvitation to respond to the surveywas sent by e-mail to a large sampleof potential respondents, includingUSAID mission health officers, col-laborating agencies in the U.S. andoverseas, in addition to beingposted for several weeks on severalweb sites and listservs. Of the 98respondents who filled out thequestionnaire using the Internettool Survey Monkey, over half (51%)work for NGOs, with the restspread among government agencies(17%), university or research institu-tions (14%), multilateral or bilateralorganizations (10%), or the privatesector or other (8%). In terms of thetype of work they do, the majorityconduct programs in community-based work (56%), in BCC (50%),behavioral or social scienceresearch (43%), or in policy advo-

cacy (41%). Fewer respondentswork in operations research (26%),measuring prevalence (16%), orhealth care service delivery (23%).Almost two-thirds report that theywork at the country level (61%), butalso at the community (52%), inter-national (32%), and regional levels(21%).

Where Do They Get TheirInformation?The second part of the survey askedrespondents how they get the infor-mation they need on FGC – theirorganization’s library, other organi-zation’s library, web searches, list-servs (e-mail), face to face, or other.

About 83 percent of SurveyMonkey respondents said they getthe information they need regardingFGC from printed materials fromresearch or advocacy groups. Thenext two most popular resourceswere via web searches (69%) andthrough symposiums, conferencesor workshops (62%). Informationwas also obtained from face-to-faceencounters (59%), libraries (43%), orlistservs (34%). (Note: The SurveyMonkey questionnaire listed moreoptions here than the in-countryquestionnaires, which did not listprinted materials from research oradvocacy groups, symposiums, con-ferences, and workshops.)

In-country respondents fromeach of the eight countries reportedthat their most common source ofinformation on FGC was throughface-to-face communications. Leastpopular in most countries is the list-serv method. Libraries and websearches fell in between.

Information GapsIn May 2004, the five collaboratingagencies met at PRB to compareand evaluate their findings. After


examining the collected data, thegroups were able to draw someconclusions about access and gapsin information.

Access: While a large percent-age of Survey Monkey respondentsstated that they do not have muchdifficulty in accessing informationover the Internet (42% gave it a “1”on a scale of 1 to 5 with 1 being theeasiest), most of them (63%) stillprefer print materials to electronicmaterials.

In Burkina Faso, Egypt, Guinea,and Senegal, most respondents saidthey find it relatively easy to accessinformation on the Internet, butnearly all participants prefer printto electronic material.

In Kenya, respondents weresplit on ease of access to informa-tion on the Internet (an average dif-ficulty of 2.5 on a scale of 1 to 5) aswell as their preference for print orelectronic materials (six of therespondents prefer print materialsto electronic materials, four preferelectronic, and four had no prefer-ence).

In Uganda, respondents found itquite difficult to access the Internet(nearly 4 on a scale of 1 to 5); inEthiopia, respondents found it a bitless difficult to access informationon the Internet (3.4 on a scale of 1to 5); and in Mali respondentsfound it even easier (2.2). InUganda most preferred print materi-als (22 out of 29). (No informationwas collected on preference of printor electronic materials in Mali orEthiopia.)

Where Are the Gaps? In an attempt to clearly identifywhether there are gaps and whattypes of gaps there are, we askedthis question on Survey Monkey inmany ways: how do respondentsget the information they need, how

easy is it to access information overthe Internet, for what types of infor-mation do they need to have betteraccess, do they believe there areinformation gaps, and what arethey?

An overwhelming number ofSurvey Monkey respondents (85%)said they do believe informationgaps exist. And the top three typesof information that they identifiedas most needed (on a scale of 1 to5, with 5 being “desperately need itto be better, more accessible”) arebest practices/evaluation results,advocacy tools, and statistical infor-mation. These were followedclosely by training manuals and bycase studies.

This pattern is also born out bythe open-ended question: What arethe gaps?

While many people mentioned avariety of information gaps—onprevalence, on projects that involvemen, on networking, legislativedata, medical resources and recon-structive surgery, on alternativejobs for circumcisers, etc.—by farthe areas mentioned most were:best practices, success stories, andevaluated operations research. (See Survey Monkey, http://www.surveymonkey.com/Report.asp?U=43466451127, question #10 fordetailed, open-ended responses on“what are the gaps.”)

In-Country Data on Gaps:

Generally, the in-country findingson information gaps (with theexception of Mali) were consistentwith the Survey Monkey findings.Respondents expressed an over-whelming belief that there are infor-mation gaps and that moreinformation is needed, especially onbest practices/evaluation results,operations research results, trainingmanuals, and advocacy tools.

Nearly all respondents inBurkina Faso, Guinea, Senegal, and

Egypt believe that there are FGCinformation gaps. The most neededtype of FGC information in BurkinaFaso, Guinea, and Senegal is opera-tions research results. In Egypt, it isbest practices/evaluation results,but followed closely by case stud-ies, training manuals, advocacytools, links to other organizations,operations research results, and sta-tistical information. Least requiredamong respondents in all four coun-tries is FGC policy-in-country.

In Kenya, 12 of the 14 respon-dents feel there are informationgaps. The number one type of infor-mation for which they would likemore information is training manu-als and support materials, followedclosely by best practices/evaluationresults and, third, by advocacytools.

In Ethiopia and in Uganda,respondents are almost unanimousin their belief that there are infor-mation gaps (23 of 24 in Ethiopia,and 25 of 27 in Uganda). Mali, how-ever, was split, with 10 responding“yes” there are gaps and 15 sayingthere are not. In Ethiopia, the typesof information most desired areoperations research as well as advo-cacy tools, followed by best prac-tices/evaluation results. In Uganda,significantly better access is desiredof almost every type of informationmentioned, but number one is oper-ations research information, fol-lowed by training manuals andother support materials, and then atie between links to other organiza-tions and advocacy tools. (No infor-mation was collected in Mali ontypes of information desired.)

Review of Websites: WhatIs Out ThereThe participating NGOs had deter-mined from the outset that it wouldnot be enough to stop with what are


the “perceived” needs and gaps. Wewanted to look at what is availablein various websites to see if theinformation is out there but notwidely known. Thus, the group alsoassessed 29 websites and databasesidentified as containing informationon FGC. What we found was that,while there are some goodresources out there, they do not fillthe knowledge needs.

There are many reasons forthis: they are difficult to find, notwell advertised, not easy to navi-gate, not comprehensive, and, per-haps most common, not updatedregularly. Many of the groups thatare readily identified with workingon eradication of FGC (for exam-ple, Rainbo or InterAfricanCommittee) have websites thatneed to be further developed orupdated regularly. ORC Macro’sDemographic and Health Surveyssite has very good datasets on FGC,yet, surprisingly, one of the “infor-mation needs” respondents men-tioned was for more statisticalinformation. This could be becausepeople just don’t know about thesite or don’t know how to use it, orperhaps it has more to do with hav-ing limited access to the Internet.Moreover, while some sites arenoteworthy (see below), there doesnot appear to be one definitive sitefor FGC—one site might do a goodjob on prevalence, another on linksto organizations, another on defin-ing the different types of FGC, andyet another on their particular suc-cess story, but no one site seems todo it all. (See Appendix 4 for thegrid used to compile information onwebsites, for the sites analyzed, anda table summarizing site content.)

Three websites were given high“marks” in reviews by the collabo-rating organizations: those of theIntact Network, the ReproductiveHealth Gateway, and Gesellschaftfür Technische Zusammenarbeit(GTZ). Criteria included type ofinformation, ease of use, and fre-quency of updates.

1. Intact Network – InternationalNetwork to Analyze, Communicate,and Transform the Campaignagainst FGC/FGM/FC

The mission of the InternationalNetwork to Analyze, Communicateand Transform the Campaignagainst Female Genital Cutting(INTACT), based in Cairo, is to pro-mote and disseminate evidence-based research and to activelyengage donors and local actors --governments and civil societyorganizations -- in a dialoguearound applying collective learningto accelerate positive social change.

� Information is relatively current� Links to FGC-specific projects

at local level� Message Board to engage global

dialogue� Developing an Arabic Language

Site� Announces regional training

courses

2. Reproductive Health

Gateway

“Relevant, reliable information forreproductive health professionals.Search through specifically selectedwebsites. Your queries areanswered with links straight to theinformation you seek.”

� Best search engine reviewed forFGC documents

� Information is relatively current� Able to search FGC specific

information from main page� Pulls information from a wide

variety of sources

3. Gesellschaft für Technische

Zusammenarbeit (GTZ)

“Since May 1999, a GTZ suprare-gional project has been supportingand promoting action groups cam-paigning for the abolition of femalegenital mutilation.”

� Site includes information inEnglish and French

� Up-to-date information includedfact sheets by country

� Describes approaches used bypartner organizations

� Downloadable documentsinclude monitoring and evalua-tion, qualitative, and quantita-tive information

While determined to be thethree “best available websites,”even these sites would benefit fromtechnical assistance in organizingtheir sites, updating them, facilitat-ing navigation, and marketing them.


Based on this compilation of infor-mation, the following recommenda-tions are proposed by thecollaborating agencies:

Better Dissemination of

Information. Two proposedvehicles to improve disseminationof FGC information are:� Production of a CD-ROM that

compiles currently availableinformation on FGC, includingstatistical data, a list of organi-zations working in FGC, a list ofexisting programs and projectreports, relevant websites, etc.This would address the problemof availability and expense ofInternet connections in develop-ing countries.

� Collaboration with HIPNET(the Health Information andPublications Network), a groupof organizations who work withUSAID on informationdissemination.

Operations Research. Since mostin-country respondents asked formore information on operationsresearch, an intense effort should

be made on the part of USAID tocollect information on existing ORprojects and they should beincluded on the CD-ROM mentionedabove.

Best Practices. Support the collec-tion and dissemination of informa-tion on FGC best practices orlessons learned. This can be ful-filled through:� A printed publication on suc-

cess stories--this would be acompilation of a “good” (evalu-ated) set of project reports,either similar to the IGWG “SoWhat” report or possibly afolder or binder containing aseries of these success stories,identified by country or region.

� One or more of the existingwebsites should publish thesebest practices in an easilyaccessible format and theyshould be widely marketed.

Face-to-Face Information

Exchanges. Work with variousorganizations, such as Rainbo orInterAfrican Committee, to organizenational or regional symposia for

these types of informationexchanges; work with the Cairo-based INTACT network via their in-country researchers. Focus also onfacilitation of better networkingamong in-country organizations.

Policy Information. Produce ashort (4-6 pages) brief aimed at pol-icy audiences and drawing from thesuccess stories in the longer printpublication mentioned above.

Improved Websites and

Information Dissemination. Inresponse to the website reviewsand to the surveys which indicatethat the information that does existis not getting out there, USAID andCAs could undertake: � Technical support for websites

that have an important role toplay in disseminating FGC infor-mation.

� A marketing effort to dissemi-nate information about avail-able statistical sites and aboutthe new FGC CD-ROM that hasbeen produced by MEASUREDHS.

For more information about this report, contact Charlotte Feldman Jacobsat Population Reference Bureau: [email protected]

Recommendations


In-country Questionnaires

Questionnaire for Groups and Individuals Working on FGC

This questionnaire is being circulated by ________________ (name of group) in order to gather information on thescope of existing information on female genital cutting (FGC). We are interested in learning what information andtools are being used by individuals and groups working on FGC, and on what information gaps need to beaddressed.

Name of Individual/Organization _____________________________________________________________________

What kind of organization do you work for (NGO, media, Ministry of Health, etc.)? ____________________

What type of work are you doing related to FGC?

�� Operations research�� Measuring prevalence�� Behavioral or social science research�� Health care service delivery�� Conducting programs in

___ policy advocacy___ community-based work___ behavior change communication (bcc)

�� Other: ___________________________________________________________________________________________

At what level is most of your work?

�� International�� Regional�� Country�� Community

How do you get the information you need on FGC?

�� Organization’s own library�� Web searches�� Listservs�� Other organizations’ libraries�� Face to face�� Other ____________________________________________________________________________________________

How easy is it for you to access information over the Internet? (1=easy, 5=difficult)1 2 3 4 5

Do you prefer print materials to electronic materials? �� YES �� NO

APPENDIX I


Of the various types of information you access, rate each type as to how critical it is for you to get

better access

(1= can now get it easily or don’t really need more, 5=desperately need it to be better, more accessible)A. Operations research results 1 2 3 4 5B. Statistical or prevalence information 1 2 3 4 5C. Training manuals and other support materials 1 2 3 4 5D. Advocacy tools 1 2 3 4 5E. Best practices/evaluation results 1 2 3 4 5F. Case studies 1 2 3 4 5G. Information on FGC policy in-country 1 2 3 4 5H. Links to other organizations 1 2 3 4 5

Do you think there are information gaps �� YES �� NO

If yes, how would you like to see the information gaps filled? ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________

APPENDIX I (continued)


In-Country Organizations and Individuals

List of Organizations and Individuals Queried By Country

Burkina FasoNo. Organization Person Contacted

01 G.T.Z Mme Segboo02 DEMP ( Direction de l’éducation en matière M Bakyono

de population)03 RECIF/ONG Mme Sanogo04 Musée Nationale05 Association Burkinabè des sages femmes Mme Thiombiano06 UNICEF07 CROIX ROUGE08 Direction de la santé de la famille (DSF)09 Mouvement Burkinbè des droits de l’homme

et des peuples(MBDHP)10 Association Pugsaba Mme Gama Lea11 Association »Femmes en Action » Mme Kabore Celestine12 Association « Vie Nouvelle » Mme Napon Julienne13 PROMO FEMMES/DEV-SOLIDARITE14 PAG-LA-YIRI15 Association des jeunes pour la cause des enfants M Ouedrago Hamidou

des enfants démunis.16 Association NASONGB ZANGA Mme Kombasse T Madeleine17 Radio Maria M Joseph Parcouda18 Radio Evangile Développement19 Mwangaza Action Djingri Ouoba20 UNFPA Olga Sankara21 Commité National de Lutte Contré la Pratique

de l'excision (CNLPE)22 SPONG M Jean Marie

APPENDIX II


APPENDIX II (continued)

EgyptNo. Organization Person Contacted

1 New Woman Foundation Dr. Amal Abdel Hadi2 UNICEF Egypt Ms. Yuko Osawa3 Egyptian Fertility Care Society Dr. Naglaa El Nahal4 CARITAS Egypt Dr. Magdy Helmy5 Coptic Organization for Services and Dr. Joanna Salib

Training (COST) Egypt6 National Council for Childhood and Motherhood Ms. Mona Amin7 MediaHouse Ms. Maggie Morgan8 Independent Researcher Ms. Riham Shebl9 Independent Anthropologist Dr. Seham Abdel Salam10 UNHCR Egypt Ms. Yasmine Rifaat11 Appropriate Communication Techniques Dr. Azza Kamel

(ACT) Egypt12 Coptic Center for Social Studies Dr. Vivian Fouad13 UNDP Egypt Ms. Simona Galbiati14 Association of Upper Egypt for Education Mr. Hamdy Samuel

and Development (AUEED)15 CEDPA Egypt Ms. Sahar Mashhour16 Center for Egyptian Women's Legal Assistance Mr. Wahid Dessouky

(CEWLA)17 El-Zanaty & Associates Dr. Fatma El Zanaty18 Egyptian Center for Women’s Rights (ECWR) Ms. Abeer Shehata19 Alliance for Arab Women (AAW) Dr. Afar Marei20 Center for Development Studies (CDS) Dr. Tandiar Mosaad21 Institute for Cultural Affairs (ICA) Mr. Mohamed Fikry22 Association for the Development and Ms. Nermine Fahmy

Enhancement of Women (ADEW)23 Coptic Evangelical Organization for Social Dr. Samira Luka

Services (CEOSS)24 Egyptian radio Mrs. Amal Fahmy25 VP of Arab Federation of NGOs for Prevention Dr. Ahmed Gamal Madi Abul-Azayem

of Substance Abuse26 Egyptian television Ms. Rola Kharsa27 Scriptwriter, author Osama Anwar Okasha28 Head of Population and Family Planning Sector, Dr. Yahia El-Hadidi

Ministry of Health



GuineaNo. Organization Person Contacted

1 COTAFE Dr. Morissanda Kouyate 2 Director of RH, Ministry of Health3 Ministere des Affaires Sociales/ De La Promotion Mariama Sylla

Feminine et De L’Enfance4 Director of Women, Ministry of Social Affairs

SenegalNo. Organization Person Contacted

1 Ministere de la Famille du Developpement Social Ndye Astou Syllaet de la Solidarite Nationale

2 Association Sénégalaise pour le bien-Etre Hawa TallaFamilial(ASBEF)

3 Ministere de la famille du developpement social Dia Awa Nianget de la solidarite nationale (MFDSSN)

4 Comité Sénégalais sur les Pratiques Marianne Ndiaye SidibeTraditionnelles ayant effet sur la Santé mére et enfant (COSPERA)

5 GTZ/MST/SIDA Dr. Eppel6 TOSTAN Molly Melching7 Reseau des Journalistes sur la Population

et le Developpement8 OFAD/NAFOORE9 CNLS Malal Sow10 Ministere de la Sante Mariama Mbaye Sarr11 UNICEF WCARO Lalla Toure12 Ministere de la Famille du Developpement Social Fatoumata Gueye

et de la Solidarite Nationale13 UNICEF Dakar14 Agence Panafricaine D’Information (Panapress) Moussa Diarra15 Manoore FM Oumou Cantome Sarr16 Réseau des Journalistes Bechir Sow Soleil


KenyaNo. Organization Person Contacted Contact Information

1 COVAW Hilda Mawanda [email protected] EL-TALLER Mary Okumu [email protected]

John Inganga3 EQUALITY NOW Faiza Mohammed [email protected]

Carol Ageng’o [email protected] FPAK Godwin Mzenge [email protected]

Charity Mailutha5 FIDA Jane Kiragu [email protected]

[email protected]@fida.co.ke

6 FAWE Shiprah N. Gichaga Tel: 3749900 / 79697 GCN Mercy Musomi [email protected] JULIKEI International Julie Maranya [email protected] CATHOLIC SECRETARIAT Janet Mang'era [email protected] KONRAD ADENAUER FOUNDATION [email protected]

[email protected] Life Springs Counseling Centre June Koinange [email protected] Maendeleo Ya Wanawake - YWO Rose Arungu [email protected]

Rosemary Moraa13 Min. of Education Science & Bibiana Chege [email protected]

Technology - MOEST14 Populationa Council Ian Askew [email protected] PATH Mitchell Folsom [email protected]

Rufus Esuchi16 Save the Children Canada Mathenge M. [email protected]

Jane Rita Meme17 International Migration Timnit Embaye [email protected]

Organization - IOM 18 Kenya National Drama Festival Job Osiako [email protected]

[email protected] Norwegian People’s Aid Hoddan Karani [email protected] 20 ALWAN Communications Roselida Taabu [email protected] 21 Ripples Inter. Chidi Ogbano [email protected] WORLD VISION Thomas Mulheam [email protected]

Monica Okwalo23 National Council on Population Vane Nyong’a [email protected]

& Development24 Centre for the Study of Adolescents Rosemary Muganda [email protected] KENYA SCOUTS ASSOCIATION [email protected] PACWA Dr. Judy Mbugua [email protected] NAHWO Peter Kunyiha [email protected] AMWIK Pamela Mburia [email protected]

[email protected] THE CRADLE Millicent Odhiambo [email protected] MAP INTERNATIONAL Samson Radeny [email protected] ANPPCAN Rose Oloo [email protected]




Kenya (continued)

32 GOAL KENYA Margaret Gwada [email protected] [email protected]

33 African Women's Development Mary Wandia [email protected] Network (FEMNET)

34 SNV Christine Anam [email protected] UNICEF Nicholas Alipui [email protected]

Jayne Kariuki [email protected] Chowdhry [email protected]

36 UNIFEM Nyaradzai Gumbonzvanda [email protected]

Mary Mbeo [email protected] Women and Law in East Africa Jane Waithira Mbugua [email protected] ABANTU Elizabeth Kariuki [email protected] AIC Kajiado Girls Primary School Priscilla Nangurai [email protected]

MaliNo. Organization Person Contacted

1 Associaticu Nyeta- Sira2 ASDAP3 CAFO4 COMADE5 Sibity DIARRA6 Assad Florahim7 ASEEM8 Baara Nyuman9 Association Subaahi Gumo10 Sini Souumou11 UNAFEM12 AMUPI13 Eglise Protestante Mme Dukite Pauline14 Tagne15 CEMIO Dranue Fataunala16 Association des Femmes Musulmanes17 Reseau des Communicateurs18 ODEF Koudea Traore19 AMPE20 AMOSPT21 ANPPP Dme Assetou Dourbia22 Centre Djoliba23 Mali 200024 Groupe Pivot25 APDF26 Association des Femmes Catholiques de Mali



EthiopiaNo. Organization Person Contacted

1 TAH 4 individuals2 MOH3 Pope (KMG) Kemsatti Mertti Gezzimma4 Ethiopian Women Lawyers Association (EWLA) 5 individuals5 Dr. B. Tolosse6 G. Gebeyohu7 Dehab Benay8 Ali Hassen9 Fantu Madgu10 Tikur Anbassa Hospital Andullem Tesfaye11 Nat'l Committee on Traditional Practices of Ethopia12 Yekatit 12 Hospital Dr. Abiyof Belas + 3 other individuals13 Daughters of Charity14 Kembatti Mentti Gezzimma-Tope (KMG)



UgandaNo. Organization Person Contacted Contact Information

01 Family Planning Association of Uganda Jackson Chekweko 256 77 49393902 Community that Cares – Uganda (COTHACU) Jane Francis Kuka 256 77 49583703 National Committee for Traditional Practices in Chemutai Joyce 256 77 637111

Uganda (NCTPU) Kasajja04 Karamoja Save the Children (Just starting – Nathan Chyelimo 256 77 512358

carrying out a baseline survey in Karamoja)05 Population Secretariate Dr. Angela Akol 256 77 46629606 UNICEF Peter Kabagambe [email protected] UNDP Dr. Chris Baryomunsi 256 41 345600/34487108 Reproductive Education and Community Health Dr. Bazirake Justice 256 41 340874

Program - Kapchorwa (REACH)09 The Association of the Re-orientation and Alice Emasu [email protected]

Rehabilitation of Teso Women for Development 256 77 951838(TERREWODE)

10 The African Network for Prevention and Protection Topher Mugumya 256 41 254550/ 77 592773against Child Abuse and Neglect (ANPPCAN Uganda Chapter)

11 Action Aid International Uganda Lawrence Tiyoy 256 77 62790412 Action Aid International Uganda Akiti Alfred

c/o Lawrence Tiyoy 256 77 62790413 Tuban Organic Farmers Association Kapchorwa c/o Lawrence Tiyoy 256 77 62790414 Post Test Club (PTC) c/o Lawrence Tiyoy 256 77 62790415 Kapchorwa Integrated Community Mobilization Toskin Micheal

Program (KICOMPE) c/o Lawrence Tiyoy 256 77 62790416 Kapchorwa AIDS Support Organization c/o Lawrence Tiyoy 256 77 62790418 Kapchorwa Human Rights Initiative Kamunon Peter

c/o Lawrence Tiyoy 256 77 62790419 Chesower Integrated Farmers Association (CIFA) c/o Lawrence Tiyoy 256 77 62790420 Tuiket Watershade c/o Lawrence Tiyoy 256 77 62790421 An Alliance of CSO’s Nakami Sylvia

c/o Lawrence Tiyoy 256 77 62790422 Kapchorwa Family Planning Association c/o Lawrence Tiyoy 256 77 62790423 Sabiny Elders Association (SEA) c/o Lawrence Tiyoy 256 77 62790424 Kapchorwa Godparents Association c/o Lawrence Tiyoy 256 77 62790425 Kaptoyoy Integrated Farmers Association (KIFA) c/o Lawrence Tiyoy 256 77 62790426 Women of Glorious Association c/o Lawrence Tiyoy 256 77 62790427 Ngenge Development Foundation c/o Lawrence Tiyoy 256 77 627904


Survey Monkey Questionnaire and Results (as of July 31, 2004)

To view complete Survey Monkey questionnaire on FGC (including names of individuals responding and specificson gaps perceived), click on this link: http://www.surveymonkey.com/Report.asp?U=43466451127

APPENDIX III

1. Name of Individual

Total Respondents 97(skipped this question) 1

2. What kind of organization do you work for ?

Response ResponsePercent Total

Government agency 16.5% 16

University/research institution 14.4% 14

Nongovernmental organization (NGO) 50.5% 49

Private sector 2.1% 2

Multilateral/bilateral organization 10.3% 10

Media 1% 1

Other (please specify) 5.2% 5


3. What type of work are you doing related to FGC? (May check more than one)


Operations research 25.8% 25

Measuring prevalence 16.5% 16

Behavioral or social science research 43.3% 42

Health care service delivery 22.7% 22

Conducting programsin policy advocacy 41.2% 40

Conducting programs in community-based work 56.7% 55

Conducting programs in behavior change communication 49.5% 48



http://www.surveymonkey.com/Report.asp?U=43466451127


APPENDIX III (continued)

4. At what level is most of your work?


International 32% 31

Regional 20.6% 20

Country 60.8% 59

Community 51.5% 50



5. How do you get the information you need on FGC? (May check more than one)Response ResponsePercent Total

Library 43.3% 42

Web searches 69.1% 67

Listservs 34% 33

Face to face 58.8% 57

Symposium, conferences, workshops 61.9% 60

Printed materials from research or advocacy groups 82.5% 80



6. How easy is it for you to access information over the Internet? (1=easy, 5=difficult)Response ResponsePercent Total

1 41.7% 40

2 21.9% 21

3 21.9% 21

4 9.4% 9

5 6.2% 6



APPENDIX III (continued)

7. Do you prefer print materials to electronic materials?


Yes 63.5% 61

No 36.5% 35


8. Of the various types of information you access, rate each type as to how critical it is for you to get

better access (1=can now get it easily or don't need more, 5=desperately need it to be better, more accessible)

Response1 2 3 4 5 Average

Operations research results 10% (9) 16% (15) 29% (27) 27% (25) 18% (17) 3.28

Statistical or prevalence information 18% (17) 20% (19) 14% (13) 26% (25) 22% (21) 3.15

Training manuals and other support information 12% (11) 17% (16) 23% (22) 27% (25) 21% (20) 3.29

Advocacy tools 12% (11) 22% (20) 23% (21) 19% (18) 25% (23) 3.24

Best practices/evaluation results 8% (7) 11% (10) 19% (18) 28% (26) 34% (32) 3.71

Case studies 6% (6) 20% (19) 19% (18) 33% (31) 21% (20) 3.43

Information on FGC policy in-country 13% (12) 27% (25) 20% (19) 26% (24) 14% (13) 3.01

Links to other organizations 17% (16) 27% (25) 21% (20) 21% (20) 14% (13) 2.88


9. Do you think there are information gaps?


Yes 84.5% 82

No 15.5% 15


10. If yes, what are the gaps?



Review of FGC WebsitesInstructions to Data Collectors: When collecting information on what information exists on FGC (literature review,review of existing FGC databases, websites, library resources, etc.), please use the following grid:

I. Resource Examined

Name of resource: ________________________________________________________________________________

Source (where located): ___________________________________________________________________________

Type of resource:�� Website �� Library resource �� FGC database�� Publication/article �� Other (please specify) _________________________________________________________________________

II. Nature of Information

�� Statistical information �� Organizations working on FGC �� Best practices/evaluation results �� Advocacy tools �� Training manual and other support materials�� Information on FGC policy in country �� Other kinds of information (please specify) _______________________________________________________

III. Scope of resource or site

�� International �� Regional�� Continent �� Country

IV. Opinion of the site (with 1 being the worst and 5 being excellent)a. Timely, up-to-date 1 2 3 4 5b. Accessible to audience 1 2 3 4 5c. Overall presentation 1 2 3 4 5

Comments: _________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________

APPENDIX IV


APPENDIX IV (continued)

� Amnesty International

http://www.amnesty.org/ailib/intcam/femgen/fgm1.htm

� CARE

www.careusa.org� Center for Development and Population

Activities

www.cedpa.org� Center for Reproductive Rights

www.crlp.org/pub_fac_fgmicpd.html� Circumcision Information and Resource Pages

www.cirp.org/pages/female� Communication Initiative

www.comminit.com� Development Gateway

http://topics.developmentgateway.org/population� End Violence against Women database/Johns

HopkinsUniversity/Center for Communication

Programs

www.endvaw.org� Equality Now

www.equalitynow.org� Family Health International

www.fhi.org� Female Genital Mutilation Education and

Networking Project

www.fgmnetwork.org� Foundation for Women’s Health, Research and

Development (FORWARD)

www.forward.dircon.co.uk� Gesellschaft für Technische Zusammenarbeit

(GTZ)

www.gtz.de/fgm/english/� Intact Network

www.intact-network.net� Inter-African Committee on Traditional

Practices Affecting the Health of Women and

Children

www.iac-ciaf.ch/

� ORC/Macro International

www.measuredhs.com� PATH

www.path.org/resources/fgm_the_facts.htm� Pathfinder

www.pathfind.org� Population Council

www.popcouncil.org/frontiers� Population Reference Bureau

www.prb.org� PRIME II

www.prime2.org/prime2/section/42.html� Reproline

www.reproline.jhu.edu� Reproductive Health Gateway

www.rhgateway.org� Reproductive Health Outlook

www.rho.org� Research Action and Information Network for

the Bodily Integrity of Women (RAINBO)

www.rainbo.org/� Save the Children

www.savethechildren.org� Tostan

www.tostan.org� UNFPA

www.unfpa.org� WHO

www.who.int/health_topics/female_genital_mutilation/en/

List of Websites Reviewed



Summary of Site Content

Type of Information1 Sites Containing Information

Statistical information DHS – Stats CompilerGTZWHOUNFPACommunication Initiative Center for Reproductive Rights,Population Council PRB PATHReproductive Health GatewayRHODevelopment GatewayAmnesty International (OD)

Links to organizations All have some links

Best practices/evaluation results WHO UNFPA Communication Initiative Population Council Reproductive Health Gateway RHO Development Gateway

Advocacy tools Communication Initiative PRB Pathfinder INTACT PATHEquality Now Reproductive Health Gateway Development GatewayAmnesty International (OD)

Training manual and support materials *Available by request: RAINBO, IAC, WHO, andReproductive Health Gateway

Development Gateway

1 Note: This is a general heading. Because a site contains this information doesnot mean the information is current, easy to find, or easy to use.

(Table continued next page)



Info on FGC policy in country FGM Network WHO UNFPA Communication Initiative Center for Reproductive Rights Population Council Pathfinder INTACT Network Circumcision Information and Resource Page Equality Now Reproductive Health GatewayDevelopment GatewayAmnesty International (OD)

Language other than English IAC (French), GTZ (French), WHO (French - only main page), INTACT Network (Arabic site being developed) Equality Now (Spanish, French, Arabic), Reproline, RHO (Spanish only), Development Gateway (only main page)

Program Descriptions GTZTostan Communication Initiative Reproductive Health Gateway RHO INTACT Network

Reasons/Cultural Context IAC GTZCircumcision Information and Resource PageReproductive Health GatewayPathfinderFGM Network

1 Note: This is a general heading. Because a site contains this information doesnot mean the information is current, easy to find, or easy to use.

Summary of Site Content (continued from previous page)

Type of Information1 Sites Containing Information

What Is Out There? What Is Needed?

Documents

Transcript of What Is Out There? What Is Needed?