Western and Western and Central Central

Washington Washington State ChapterState Chapter

www.alzwa.orgwww.alzwa.org

Why You Want Our Number:Why You Want Our Number:

The Alzheimer’s Association The Alzheimer’s Association

GRECC V-Tel seriesGRECC V-Tel series

Department of Veterans AffairsDepartment of Veterans Affairs

January 25, 2010January 25, 2010

Joanne Maher, MSWJoanne Maher, MSW

Joanne.Maher@alz.org

1-800-848-7097 ext. 2341-800-848-7097 ext. 234

Western and Central Washington State Chapter

Mission:

“To eliminate Alzheimer’s Disease through the advancement of research; to provide

and enhance care and support for all affected; and to reduce the risk of

dementia through the promotion of brain health.”

Western and Central Washington State Chapter

A Chapter of the National Alzheimer’s Assoc. located in Chicago

Not-for-profit 501(c)(3) since 1978 Serves individuals living with Alzheimer’s disease

and related dementias, their families, health care professionals and the general public

23-county service area

From Funding to ServicesFrom Funding to ServicesGoal of the presentation is to familiarize you with Goal of the presentation is to familiarize you with

the programs and services available to the the programs and services available to the general public and to professionals.general public and to professionals.

FundraisingFundraising ResearchResearch AdvocacyAdvocacy EducationEducation Programs & ServicesPrograms & Services

Memory WalkMemory WalkThe Alzheimer’s Association Memory Walk is the The Alzheimer’s Association Memory Walk is the nation’s largest event to raise awareness and nation’s largest event to raise awareness and funds for Alzheimer care, support and research.funds for Alzheimer care, support and research.

In 2009, our Memory Walks in Washington State In 2009, our Memory Walks in Washington State raised a total of $522,000.raised a total of $522,000.

Memory WalkMemory WalkThe 2010 Memory Walks are coming up soon!The 2010 Memory Walks are coming up soon!

Saturday, August 28Saturday, August 28thth South Sound, Tacoma South Sound, Tacoma Saturday, September 11Saturday, September 11thth, Pacific Northwest, , Pacific Northwest,

SeattleSeattle Saturday, September 18Saturday, September 18thth, Olympic Peninsula, , Olympic Peninsula,

SilverdaleSilverdale Saturday, September 25Saturday, September 25thth, North Sound, Mount , North Sound, Mount

VernonVernon

Memory WalkMemory Walk

For more information about how to get For more information about how to get involved with Memory Walk, please call involved with Memory Walk, please call

Stephanie Watson at Stephanie Watson at

(800) 848-7097 ext. 236.(800) 848-7097 ext. 236.

A Reason to Hope Community Breakfast

1st annual “A Reason to Hope” Community Breakfast will be held Thursday, March 11, 2010 in the Benaroya Hall Grand Lobby, downtown Seattle from 7:30 to 9:00 am

Please join us to get to know local families living with Alzheimer’s disease and hear from our keynote speaker, Elaine Jones, COO at the Paul Allen Institute for Brain Science.

For more information and to make your reservation for the Breakfast please contact Liz McNeil at (800) 848-7097 ext. 243.) 848-7097 ext. 243.

ResearchResearch

Alzheimer’s Association National Alzheimer’s Association National Chapter is the largest source of Chapter is the largest source of private funding for Alzheimer’s private funding for Alzheimer’s research in the world.research in the world.

ResearchResearchAt the 2009 An Evening to Remember Auction, At the 2009 An Evening to Remember Auction, our Chapter received:our Chapter received:

$130,000 donation from Sherrill Miller and $130,000 donation from Sherrill Miller and EB EB Foote WineryFoote Winery

$100,000 from individual donors$100,000 from individual donors

These donations funded a research study by These donations funded a research study by Brian Kraemer, PhD at the ADRC.Brian Kraemer, PhD at the ADRC.

Each year, our Chapter funds an important Each year, our Chapter funds an important research project by money raised at the auction.research project by money raised at the auction.

ResearchResearch

Alzheimer’s Disease Research Center (ADRC)Alzheimer’s Disease Research Center (ADRC)

1-800-317-53821-800-317-5382

Memory Wellness CentersMemory Wellness Centers

Seattle 1-888-291-7316Seattle 1-888-291-7316

Tacoma 1-866-638-8813Tacoma 1-866-638-8813

Most of the research areas were not even Most of the research areas were not even conceived of 10 to 15 years agoconceived of 10 to 15 years ago

AdvocacyAdvocacy Together our voices are a powerful

tool for change Alzheimer advocates call for

advancements in research, care, and support at the federal, state and local levels

If you are interested in participating in the 2010 Washington State Advocacy Day in Olympia February 16, call Patricia Hunter at (800) 848-7097.

EducationEducationOur Education Department presents a rich Our Education Department presents a rich curriculum about Alzheimer’s disease and curriculum about Alzheimer’s disease and other types of dementia for people working other types of dementia for people working in the health and long-term care field, as in the health and long-term care field, as well as for the public. well as for the public.

Our trainings are interactive and based on Our trainings are interactive and based on the latest best practices in dementia care-the latest best practices in dementia care-giving.giving.

Education Classes for Education Classes for ProfessionalsProfessionals

Keys to Dementia CareKeys to Dementia Care Dementia & Intellectual/Developmental Dementia & Intellectual/Developmental

DisabilitiesDisabilities Encountering Dementia: A Guide for First Encountering Dementia: A Guide for First

RespondersResponders Annual Alzheimer’s Regional ConferenceAnnual Alzheimer’s Regional Conference

Education Classes for Education Classes for Community MembersCommunity Members

Maintain Your BrainMaintain Your Brain Partnering With Your Partnering With Your

DoctorDoctor Memory Loss: Memory Loss:

Understanding the Understanding the BasicsBasics

The Warning SignsThe Warning Signs

Education Classes for Education Classes for Family CaregiversFamily Caregivers

Keys to Dementia Care for FamiliesKeys to Dementia Care for Families At the Ready: Personalized Activity BagsAt the Ready: Personalized Activity Bags Communication ChallengesCommunication Challenges Deciphering BehaviorsDeciphering Behaviors Disaster PreparednessDisaster Preparedness Courageous ConversationsCourageous Conversations

Annual Education Annual Education ConferenceConference

Moments in Mind: Moments in Mind:

The 25The 25thth Annual Alzheimer’s Regional Annual Alzheimer’s Regional Conference will be held April 15-16, Conference will be held April 15-16, 2010 at the Washington State 2010 at the Washington State Convention Center in Seattle, WA.Convention Center in Seattle, WA.

African American African American Caregivers ForumCaregivers Forum

Provides a culturally relevant setting that informs Provides a culturally relevant setting that informs participants about Alzheimer’s disease.participants about Alzheimer’s disease.

Gives the most up-to-date information about Gives the most up-to-date information about Alzheimer’s, current treatment options, caregiving Alzheimer’s, current treatment options, caregiving issues and current research.issues and current research.

Teaches caregivers how to reduce stress, access Teaches caregivers how to reduce stress, access respite care and other services.respite care and other services.

Provides an opportunity for social engagement Provides an opportunity for social engagement with other caregivers which reduces feelings of with other caregivers which reduces feelings of isolation.isolation.

Who Participates in the Who Participates in the Forum?Forum?

The focus audience is African American family The focus audience is African American family caregivers.caregivers.

Professional caregivers, individuals with Professional caregivers, individuals with Alzheimer’s and members of the community also Alzheimer’s and members of the community also participate.participate.

In 2009, attendees came from Pierce, Snohomish, In 2009, attendees came from Pierce, Snohomish, King, Kitsap, Thurston, Mason and Yakima King, Kitsap, Thurston, Mason and Yakima counties.counties.

98-100% report overall satisfaction with the forum.98-100% report overall satisfaction with the forum.

24 - Hour Helpline24 - Hour Helpline

The first point of contact for most The first point of contact for most people who call the Alzheimer’s people who call the Alzheimer’s Association.Association.

Assistance is available 24hrs/day, 7 Assistance is available 24hrs/day, 7 days/week, including all holidays.days/week, including all holidays.

Connects the caller with a Connects the caller with a knowledgeable and compassionate knowledgeable and compassionate professional who will tailor professional who will tailor information and assistance to the information and assistance to the caller’s needs.caller’s needs.

In 2009, Helpline responded to 3,257 In 2009, Helpline responded to 3,257 requests for information or requests for information or assistance.assistance.

Why do people call Helpline?Why do people call Helpline? Seeking information about Alzheimer’s or related dementia Seeking information about Alzheimer’s or related dementia

disordersdisorders Connection to our Chapter and community resources Connection to our Chapter and community resources Requests for information about current research and treatment Requests for information about current research and treatment

optionsoptions Seeking support with care-giving concernsSeeking support with care-giving concerns Care planning servicesCare planning services Seeking video and printed resources from the Chapter library (we Seeking video and printed resources from the Chapter library (we

currently have over 2,000 articles addressing a variety of currently have over 2,000 articles addressing a variety of dementia-related issues).dementia-related issues).

Please call our Helpline at:Please call our Helpline at:

206-363-5500206-363-5500

oror

1-800-848-70971-800-848-7097

Six out of ten people will wander.Six out of ten people will wander. Twenty-four hour nationwide Twenty-four hour nationwide

identification, rapid response, support, identification, rapid response, support, and enrollment program that includes and enrollment program that includes other vital medical information.other vital medical information.

A staff member from the Chapter A staff member from the Chapter serves as the contact for the entire serves as the contact for the entire state when a person enrolled in the state when a person enrolled in the program is “missing.”program is “missing.”

The staff member offers support during The staff member offers support during & following the incident.& following the incident.

Contact our Chapter for a brochure and Contact our Chapter for a brochure and applicationapplication

MASRlogo_horzWht.ps

Comfort Zone Comfort Zone is a Web-based service that works

with a variety of location devices to monitor the whereabouts of an individual with Alzheimer’s.

With this service, the entire family has secure, simultaneous access to this critical information.

Comfort Zone includes a 24/7 call center and enrollment in the Medic Alert + Safe Return program as well.

To learn more about Comfort Zone visitwww.alz.org/comfortzone or call 1-877-ALZ-4850. 1-877-ALZ-4850.

Support GroupsSupport Groups

Over 100 groups Over 100 groups staffed by Chapter -staffed by Chapter -trained volunteerstrained volunteers

Offer a safe, non-Offer a safe, non-judgmental setting for judgmental setting for people to share people to share experiences and adviceexperiences and advice

Support GroupsSupport GroupsThe Chapter offers specialized ongoing support groups for The Chapter offers specialized ongoing support groups for

specific groups of caregivers, such as:specific groups of caregivers, such as: Men’s Only Men’s Only Long-Distance Caregiving Long-Distance Caregiving Spanish Speaking CaregiversSpanish Speaking Caregivers Lesbian, Gay, Bisexual, Transgender CaregiversLesbian, Gay, Bisexual, Transgender Caregivers African American CaregiversAfrican American Caregivers Adult Child CaregiversAdult Child Caregivers Young Onset CaregiversYoung Onset Caregivers Bereavement/Grief and LossBereavement/Grief and Loss Early Stage Memory LossEarly Stage Memory Loss

Support Groups are offered Support Groups are offered throughout Western and Central throughout Western and Central

WAWA King County: 40 Support groupsKing County: 40 Support groups Pierce County: 9 Support GroupsPierce County: 9 Support Groups Snohomish County: 9 Support GroupsSnohomish County: 9 Support Groups Central Washington Counties: 7 Support GroupsCentral Washington Counties: 7 Support Groups Clallam County: 4 Support GroupsClallam County: 4 Support Groups Clark County: 4 Support GroupsClark County: 4 Support Groups Gray’s Harbor and Lewis Counties: 5 Support GroupsGray’s Harbor and Lewis Counties: 5 Support Groups Island, San Juan and Skagit Counties: 4 Support GroupsIsland, San Juan and Skagit Counties: 4 Support Groups Kitsap County: 6 Support GroupsKitsap County: 6 Support Groups Mason and Thurston Counties: 6 Support GroupsMason and Thurston Counties: 6 Support Groups Southwest Washington: 8 Support GroupsSouthwest Washington: 8 Support Groups

The need for support groups is The need for support groups is growing, and we are always in growing, and we are always in need of volunteer facilitators.need of volunteer facilitators.

Please call Linda Whiteside at 1-Please call Linda Whiteside at 1-800-848-7097 ext. 237 for more 800-848-7097 ext. 237 for more

information.information.

Early Stage Memory Loss Early Stage Memory Loss ProgramProgram

Seminars are designed to offer support and education to people in the Seminars are designed to offer support and education to people in the early stages of dementia and their care partners.early stages of dementia and their care partners.

2 types of seminars: 8 week program with 90 minute weekly meetings and 2 types of seminars: 8 week program with 90 minute weekly meetings and a one time, 3 hr. programa one time, 3 hr. program

Both programs are held in different areas of Western & Central WA Both programs are held in different areas of Western & Central WA throughout the year.throughout the year.

The ESML program covers the basics of dementia, coping strategies, The ESML program covers the basics of dementia, coping strategies, communication issues, social and family relationships, disclosing the communication issues, social and family relationships, disclosing the diagnosis, planning for the future, legal issues and next steps.diagnosis, planning for the future, legal issues and next steps.

Early Stage Memory Loss Early Stage Memory Loss ProgramsPrograms

ESML is provided in partnership with a ESML is provided in partnership with a variety of health and human services variety of health and human services organizations, professionals and organizations, professionals and individual volunteers.individual volunteers.

The program is being studied by the The program is being studied by the University of Washington’s School of University of Washington’s School of Nursing Nursing

The research is funded by the National The research is funded by the National Institute on Aging.Institute on Aging.

The study has found a positive impact The study has found a positive impact for individuals with dementia in for individuals with dementia in depression, communication and depression, communication and improved social function.improved social function.

To learn more, contact Samantha To learn more, contact Samantha Woodward at 1-800-848-7097 ext. 229Woodward at 1-800-848-7097 ext. 229

Care ConsultationCare Consultation

Care Consultants provide Care Consultants provide a personalized yet a personalized yet comprehensive comprehensive assessment service that assessment service that includes care-planning, includes care-planning, goal setting, referrals, and goal setting, referrals, and on-going follow-up.on-going follow-up.

Connections Care Consultants Connections Care Consultants can provide:can provide:

Ways to enhance communication skills for the person with Ways to enhance communication skills for the person with memory lossmemory loss

Strategies for copingStrategies for coping Understanding & working with changes in behaviorUnderstanding & working with changes in behavior Long-term planningLong-term planning Legal and financial considerationsLegal and financial considerations Understanding long-term care optionsUnderstanding long-term care options Balancing personal life with caregiving or care-receiving rolesBalancing personal life with caregiving or care-receiving roles Latest information on medical research, diagnosis and Latest information on medical research, diagnosis and

interventionsinterventions

ConnectionsConnectionsThe program is free of charge to The program is free of charge to

clients through funding from:clients through funding from: Dementia Partnership Dementia Partnership

Program through the Program through the Administration on AgingAdministration on Aging

King County Family Caregiver King County Family Caregiver Program, ADS – City of Program, ADS – City of SeattleSeattle– Includes El Portal Northwest Includes El Portal Northwest

Snohomish County Senior Snohomish County Senior Services - FCPServices - FCP

United Way King CountyUnited Way King County Private donations and fund-Private donations and fund-

raisingraising

ConnectionsConnections In 2009, 1,511 Care Consultations were In 2009, 1,511 Care Consultations were

provided to approximately 328 individuals provided to approximately 328 individuals and their family caregivers, totaling 1,368 and their family caregivers, totaling 1,368 hrs. of servicehrs. of service

To refer to Connections, professionals or To refer to Connections, professionals or individuals can call Helpline or the HL individuals can call Helpline or the HL Navigator.Navigator.

El Portal ProgramEl Portal Program• Partnership with SeaMar Community Health Partnership with SeaMar Community Health

CenterCenter

• Provides specific Care Consultation and Provides specific Care Consultation and outreach/education services for the Hispanic outreach/education services for the Hispanic community in King County through the ADS – community in King County through the ADS – City of Seattle grant.City of Seattle grant.

• Like Connections, includes assessment, care Like Connections, includes assessment, care plan development, goal setting, referrals, and plan development, goal setting, referrals, and follow-up.follow-up.

Sally and Family

Helpline

ConnectionsCare Consultant

Support Group Education

Assessment Care Plan Goal Setting

Memory Walk &Advocacy Day

Research

SafetyRespite &Home Care

Legal and financialplanning

Reduced stress

Reduced feelingof isolation

New support network

Understanding disease process

Empowerment

Home Visit

Long Term CarePlanning

Our Neighboring ChaptersOur Neighboring Chapters Inland Northwest ChapterInland Northwest Chapter

  http://www.alz.org/inlandnorthwest/

– Offices in:Offices in:

Spokane, WA (509) 473-3390Spokane, WA (509) 473-3390

Walla Walla, WA (509) 520-3077Walla Walla, WA (509) 520-3077

Couer d’Alene, ID (208) 666-2996Couer d’Alene, ID (208) 666-2996

Our Neighboring ChaptersOur Neighboring Chapters

Oregon ChapterOregon Chapter

http://www.alz.org/oregon/

– Offices in:Offices in:

– Portland, OR (503) 416-0201Portland, OR (503) 416-0201

– Eugene, OR (541) 345-8392Eugene, OR (541) 345-8392

Our Vision:Our Vision:A world without A world without

Alzheimer’sAlzheimer’s

www.alzwa.orgwww.alzwa.org

our work is about people and science