Enhancing Lives, Connecting Communities

3 Colorado Support Groups

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Parkinson VoiceSpring 2018Volume 10, Issue 1

105 Exercise Classes2

FAREWELL & THANK YOU!

Seven years ago, the Association changed its logo to reflect hope and community through uplifted arms. Now we are updating and evolving our logo to add strength and courage to the uplifted hands. Our logo better reflects the depth of today’s Colorado Parkinson’s community, your community; a strong, vibrant community determined to thrive. The strong arms are still rejoicing in conquering the peaks and navigating the valley’s of Parkinson’s. The bolder font demonstrates the determination and tenacity of the Colorado Parkinson’s community to thrive with Parkinson’s. The overall strength of this logo reiterates the Parkinson Association of the Rockies’ commitment to always seek out and deliver programs and services that connect and empower people with Parkinson’s to thrive; to provide the care that counts on the way to a cure.

In January 2011, I was honored to be selected to serve as your Executive Director. After seven glorious years, I am retiring to embark on my next journey. While I have done many things in my life, serving the Parkinson’s community has been the highlight of my career. I am humbled and stand in awe of the tenacity and determination of the Parkinson’s community. With your strength, courage and perseverance you have provided the energy for the growth and change seen over these past seven years. Where once there were only seven weekly exercise classes, community members now have the opportunity of attending more than 46 weekly exercise classes. Seven years ago our newsletter circulation was 2,800; community demand and engagement has raised that circulation to over 12,000. During my tenure, you challenged us to build; we did, and you came to support. You challenged us to reach higher; we did, and you responded through

your engagement. You have taught me and you have urged the Association to be bold and ever-present. This is an ongoing challenge we gladly accept. To live up to this challenge, we are introducing a new logo that better reflects the strength of our constituents and the Parkinson Association of the Rockies.

Thank you all for your support and for sharing your determination, strength, hope and courage. I retire a better person because of you.

Sincerely,

Cheryl Siefert, MNM

It Takes a Village to Build Awareness

Hello from the Executive Director

Nurturing YourselfThrough Your Loved Ones Illness

2018: A YEAR OF NEW BEGINNINGS

2018

2011

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HELLO FROM JODI BROWN, EXECUTIVE DIRECTOR I am excited and humbled as I step into the Executive Director position for the Parkinson Association of the Rockies. I am fortunate to be joining such an outstanding organization with an amazing team in place. I am looking forward to many years of growth in this organization. I am excited to serve our current constituents with enhanced programs, while continuing to grow our services throughout the state.

While my background is in corporate finance and marketing, I have been honored to serve on nonprofit boards where I was actively involved in expanding the programs and services while remaining focused on the mission and the people served. Having owned my own business for the last ten years, I understand the importance of listening to and meeting the needs of the community I am serving; and implementing programs and services to best serve the community. I look forward to working with all of you, and continuing the great tradition of cutting-edge programs and services which have already been established by this organization. I am looking forward to meeting as many of you as possible and sharing your ideas that will help us all continue to take the Parkinson Association of the Rockies to even higher peaks and ensure the Colorado Parkinson’s community continues to soar.

As we head into 2018, we have a lot of exciting plans in place. We currently offer 46 exercise classes each week, and we are adding three new classes in the Denver Metro area, as well as expanding our exercise classes to Carbondale, Durango, Longmont and Grand Junction. I’ve already had the honor of meeting some of the support group leaders and know how valuable this time is for people with Parkinson’s and their care partners. There are currently 49 support groups, and we have three new groups joining the community as well. Windsor Gardens in Denver is already up and running, and we

are working on starting a group in Moffatt County and another care partner support group in South Denver. In addition to the exercise classes and support groups, we are working to overhaul our Equipment Loan Program to make sure we have sufficient U-Steps walkers available for those who are currently on our wait list, or will have a need in the future.

Our educational programs are already in full swing, and we had our first webinar of the year. We have a full schedule of webinars, Chat with the Parkinson’s Pros and Ahead of the Curve seminars coming throughout the year. Make sure to read the eNewsletter to register for the webinars, or attend a live educational event close to you. Lastly, the Parkinson Association of the Rockies will be heading up two conferences this year – the Colorado Community Conference is returning this Spring (see page 4 for more information) and the much loved e3 educate.empower.energize conference will continue this Fall.

I look forward to meeting with and getting to know all of you,

Jodi Brown, Executive Director, Parkinson Association of the Rockies

WE CARE ABOUT CARE PARTNERS!For tips for the care partner and respite care resources, contact Cari Friedman, LCSW at (303) 861-1810 or CFriedman@ParkinsonRockies.org

For more information on Support Groups and contact information for support group leaders, please contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

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ARVADA2nd Friday • 1:30pmCommunity Recreation Center of Apex6842 Wadsworth Blvd.

BOULDER3rd Monday • 10:30am Frasier Meadows Retirement CommunityMountain Vista Room, 2nd floor350 Ponca Pl.

BROOMFIELD Friday after 1st Tuesday • 10:30amBroomfield Community Center280 Spader Way

COLORADO SPRINGS3rd Friday • 1:30pm Care & Share Building2605 Preamble Pt. Provided by Colorado Springs Parkinson’s Support Group www.co-parkinson.org

DENVER4th Wednesday • 6:30pmNo Meeting in June or JulyScheitler Recreation Center5031 W. 46th Ave.

ENGLEWOODMSA/PSP/CBD4th Friday • 10:00amJohnson Adult Day Center3444 S. Emerson St.

EVERGREENThursday before 1st Friday • 3:00pmLariat Lodge Brewery 27618 Fireweed Dr.

LONGMONT1st Tuesday • 11:30amPerkins Restaurant2051 Main St.

STEAMBOAT SPRINGSContact Parkinson Association

CARE PARTNER SUPPORT GROUPS

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ARVADA3rd Thursday • 1:00pmCommunity Recreation Center of Apex6842 Wadsworth Blvd.

AURORA2nd Tuesday • 1:00pmHeather Gardens 2888 S. Heather Gardens Way

BOULDER4th Tuesday • 10:00am Frasier Meadows Retirement350 Ponca Pl.

BRUSHQuarterly MeetingsContact Parkinson AssociationEben Ezer Lutheran Care Center122 Hospital Rd.

BROOMFIELD1st Tuesday • 10:30amBroomfield Community Center280 Spader Way

BUENA VISTA1st Saturday (ODD months) 10:00am127 Hill St.

CEDAREDGE1st Wednesday • 9:30amCedaredge Assembly of God1596 S.W. 9th St.

CENTENNIAL2nd Thursday • 10:30amHolly Creek Retirement Community5500 E. Peakview Ave., Fellowship Hall

CHERRY HILLS VILLAGE2nd Wednesday • 11:00amBethany Lutheran Church4500 E. Hampden Ave., Room 315

2nd Thursday • 6:30pmBethany Lutheran Church4500 E. Hampden Ave., Room 315

MSA/PSP/CBD 2nd Friday • 10:00amFIrst Plymouth Congregational Church3501 S. Colorado Blvd.

COLORADO SPRINGS/MONUMENTProvided by Colorado Springs Parkinson’s Support Group www.co-parkinson.org The Young MINDset Parkinson’s2nd Wednesday • 5:00pmVisit www.co-parkinson.org

2nd Saturday • 10:00amFirst Presbyterian Church105 N. Weber St.

3rd Saturday • 10:00am Woodland Park Library218 E. Midland Ave., 3rd floor

3rd Saturday • 10:00amTri-Lakes Senior Center17250 Jackson Creek Pkwy., Monument

DENVER3rd Monday • 10:00amWindsor Garden595 S. Clinton St.

Recently Diagnosed (1-3 years)4th Tuesday • 11:30amChrist Episcopal Church2950 S. University Blvd., Barnes Hall

Parkinson’s & Lewy Body Dementia3rd Thursday • 6:00pmRoss University Hills Library4310 E. Amherst Ave., 2nd Floor Conf.

3rd Thursday • 6:00pmDahlia Campus for Health & Well-Being3401 Eudora St.

DURANGO3rd Thursday • 1:00pm First United Methodist Church2917 Aspen Dr.

EAGLE VALLEY/EDWARDS4th Thursday • 5:00pmTrinity Church90 Lariat Loop

ESTES PARK3rd Tuesday • 2:00pm US Bank Building363 E. Elkhorn Ave.

EVERGREEN1st Friday • 1:00pm Evergreen Christian Church 27772 Iris Dr.

FORT COLLINSRecently Diagnosed/Young Onset4th Monday • 6:30pmCouncil Tree Library2733 Council Tree Ave.

1st Wednesday • 10:30amFt. Collins Senior Center1200 Raintree Dr.

GRAND JUNCTION1st Wednesday • 3:30pmFirst Christian Church1326 N. 1st St.

GREELEY4th Thursday • 10:00amFMS Bank 2425 35th Ave., Lower Level

HIGHLANDS RANCH4th Tuesday • 10:00amHighlands Ranch Library9292 Ridgeline Blvd.

3rd Friday • 10:00amWind Crest Community3235 Mill Vista Rd. LAFAYETTE4th Tuesday • 2:30pmExempla Good Samaritan Med. Center200 Exempla Cir. LITTLETON3rd Saturday • 3:00pmNo Meeting in June or JulyMorning Star Senior Living5344 S. Kipling Pkwy.

LONE TREE Young Onset3rd Friday • 6:00pmFox & Hound9239 Park Meadows Dr., Mezzanine Rm.

LONGMONT2nd Wednesday • 10:00amLongs Peak United Methodist Church1421 Elmhurst Dr.

LOUISVILLELast Tuesday • 2:00pmBalfour Retirement Community 1855 Plaza Dr., Wellshire Unit

LOVELAND/JOHNSTOWN3rd Friday • 10:15amGood Samaritan - Loveland Village2101 S. Garfield St.Majestic View Private Dining Room

MSA/PSP/CBD 2nd Friday • 1:00pmNorthern Colorado Rehab Hospital4401 Union St.

MONTROSELast Monday • 2:00pmMontrose Memorial Hospital800 S. 3rd St., Room B

PARKER2nd Tuesday • 10:00am Life Care Center of Stonegate 15720 Garden Plaza Dr.

PUEBLO 2nd Tuesday • 11:15am YMCA Campus3200 E. Spaulding Ave., Room B SALIDA1st Saturday (EVEN months) 10:00am205 G St.

STEAMBOAT SPRINGS2nd Monday • 5:00pmCasey’s Pond2855 Owl Hoot Trail

SUMMIT COUNTY3rd Friday • 10:00amContact Parkinson Association

WESTMINSTER1st Monday • 1:15pm Covenant Village Retirement 9153 Yarrow St., Evergreen Room

WHEAT RIDGE3rd Wednesday • 10:00amApplewood Baptist Church11200 W. 32nd Ave.

SUPPORT GROUPSFor more information on Support Groups and contact information for support group leaders, please contact the Parkinson Association at (303) 830-1839 or Info@ParkinsonRockies.org.

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APRIL 6 • 2:00 - 3:00PMAhead of the Curve: Medications Overview Webinar www.ParkinsonRockies.org

APRIL 11 • 6:00 - 8:00PMAhead of the Curve: Palliative CareHealthSouth Rehabilitation Hospital, 1001 W. Mineral Ave., Littleton

APRIL 14 • 10:00AM - NOONChat with the Parkinson’s Pros: Nonmotor SymptomsLaramie County Library, 2200 Pioneer Ave., Cheyenne

MAY 12 • 8:30AM - 2:00PM Colorado Community Conference Hyatt Regency Aurora-Denver Conference Center, 13200 E. 14th Pl., Aurora

MAY 16 • 12:00 - 1:00PM Ahead of the Curve: Treatments for Advanced Parkinson’s DiseaseHealthSouth Rehabilitation Hospital, 325 S. Parkside Dr., Colorado Springs

MAY 19 • 10:00AM - NOONChat with the Parkinson’s Pros: Nonmotor SymptomsMercy Regional Medical Center, 1010 Three Springs Ave., Durango

MAY 23 • 6:00 - 8:00PMAhead of the Curve: Deep Brain Stimulation Bethany Lutheran Church, 4500 E. Hampden Ave., Cherry Hills Village

JUNE 3 • 9:00 - 11:00AM 16th Annual Vitality Walk Washington Park, Denver | Sandstone Ranch, Longmont See back page for more information.

JUNE 12 • 11:00AM - 12:00PMAhead of the Curve: What If It’s Not Parkinson’s? Webinar www.ParkinsonRockies.org

JUNE 16 • 10:00AM - 2:00PM Chat with the Parkinson’s Pros: Topics NOT Regularly DiscussedGrand Vista Hotel, 2790 Crossroads Blvd., Grand Junction

JUNE 19 • 2:00 - 4:00PMAhead of the Curve: Sleep & Fatigue Community First Foundation, 5855 Wadsworth Bypass, Unit A, Arvada

JUNE 26 • 2:00 - 4:00PMAhead of the Curve: Parkinson’s 101 Balfour, 1500 Little Raven St., Jockey Club Room, Denver

JULY 14 • 9:00 - 11:00AMChat with the Parkinson’s Pros: Deep Brain StimulationCommunity Center, 1605 Lincoln Ave., East Room, Steamboat Springs

UPCOMING EVENTSFor more information or to register for any of the following events, please call (303) 830-1839 or email Info@ParkinsonRockies.org. Continue to check our event calendar on our website at www.ParkinsonRockies.org for updates on event details and for additional programs.

SATURDAY, MAY 12 • 8:30AM - 2:00PM HYATT REGENC Y AURORA-DENVER CONFERENCE CENTER, 13200 E. 14TH PL., AURORA

The Parkinson Association of the Rockies’ Colorado Community Conference is Colorado’s premier conference focused on Parkinson’s research and treatments.

2018 marks the third Colorado Community Conference. This conference brings together individuals with Parkinson’s, their care partners and family members, as well as professionals who work with the Parkinson’s community to provide them with updates on the latest research on Parkinson’s, medications and medical devices. The conference also includes a Clinical Research Resource Fair. This Fair provides an opportunity for conference participants to speak directly with clinicians and physicians who currently have open research trials as well as individuals who have participated in past and/or present clinical research trials.

CONFERENCE DETAILS: Registration is FREE, but required. Lunch will be provided. For more information and to pre-register visit www.ParkinsonRockies.org/CommunityConference or contact the Association at (303) 830-1839 | Info@ParkinsonRockies.org.

Northern Colorado Transportation: A bus will be available to bring participants coming from Northern Colorado to the event at no cost. For more information, contact Elena Cussler at ECussler@ParkinsonRockies.org.

Additional Sponsorship Opportunities Available: Contact Jodi Brown at JBrown@ParkinsonRockies.org.

Special Thanks to Our Sponsors

PARKINSON ASSOCIATION CLASSESA liability waiver from your doctor is required. As of November 2017, we no longer charge for these classes, but encourage participants to Pay It Forward. Not all classes meet every week. For more information, please contact (303) 830-1839 or Info@ParkinsonRockies.org.

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POWER PUNCH PARKINSON’S NON-CONTACT BOXINGMondays • 2:00 - 3:00pm Ed & Ruth Lehman YMCA950 Lashley St., Longmont

Tuesdays • 3:00 - 4:00pm UFC Highlands Ranch7824 Park Meadows Dr., Lone Tree

Tuesdays • 4:00 - 5:00pmGrinders Fitness455 W. 115th Ave., Unit 4, Northglenn

Tuesdays • 4:30 - 5:45pmOld School Boxing2112 E. Platte Ave., Colorado Springs

Wednesdays • 10:00 - 11:00amDenver Red Shield2915 High St., Denver

Wednesdays • 10:30 - 11:30amHybrid Nation Martial Arts 150 Beaver Creek Blvd., Avon Wednesdays • 10:45am - Noon TITLE Boxing Club4360 S. College Ave., Fort Collins

Thursdays • 4:30 - 5:45pm Old School Boxing2112 E. Platte Ave., Colorado Springs

Fridays • 10:30 - 11:30amHybrid Nation Martial Arts 150 Beaver Creek Blvd., Avon Fridays • 10:45am - NoonTITLE Boxing Club4360 S. College Ave., Fort Collins

Saturdays • 9:00 - 10:15amOld School Boxing2112 E. Platte Ave., Colorado Springs

Saturdays • 9:00 - 10:30amDenver Red Shield2915 High St., Denver

Saturdays • 11:30am - 12:30pmOld Town Hot Springs136 S. Lincoln Ave., Steamboat Springs

TAI CHI2nd Thursday • 11:00am - NoonYoga Center of Steamboat701 Yampa Ave., Steamboat Springs

CIRCUIT TRAINING FOR PARKINSON’SMondays • 10:00 - 11:00amTriple Threat Gym5739 Observation Ct., #120, Colorado Springs

Tuesdays • 11:15am - 12:15pmKelly Performance and Wellness10835 Dover St., Ste. 1300, Westminster

YOGA FOR PARKINSON’STuesdays • 9:30 - 10:30amHealthSouth Rehabilitation Hospital of Littleton1001 W. Mineral Ave., Littleton

Wednesdays11:00am - Noon12:30 - 1:45pmScheitler Recreation Center5031 W. 46th Ave., Denver

Thursdays 11:00am - NoonYoga Center of Steamboat701 Yampa Ave., Steamboat Springs

Thursdays • 8:00 - 9:00amHigher Intensity YogaVernon PT & Wellness7373 S. Alton Way, Ste. 120, Centennial

Thursdays • 11:30am - 12:30pmThe Center for Integrative Medicine University of Colorado Hospital3055 Roslyn St., Ste. 250, Denver

Thursdays • 1:00 - 2:00pmChair Yoga ClassLife Care Center of Stonegate15720 Garden Plaza Dr., Parker

PAFIT HIIT CLASS Thursdays • 10:45 - 11:45amFit36 Studios 9370 S. Colorado Blvd., Ste. A-2, Highlands Ranch

B.E.A.T. HIGH INTENSITY EXERCISEThursdays • 12:15 - 1:15pm5700 W. 25th Ave., Edgewater

ESSENTRICS CLASSMondays • 8:30 - 9:30amUnited Methodist Church 736 Oak St., Steamboat Springs

Fridays • 9:00 - 10:15am United Methodist Church 736 Oak St., Steamboat Springs

EXERCISE CLASS Mondays • 10:30 - 11:30amThe Haven Assisted Living Center300 S. Shelton St., Hayden

Wednesdays • 11:00am - 12:15pmUnited Methodist Church 736 Oak St., Steamboat Springs

PAR FOR THE COURSE EXERCISEMondays • 11:00am - NoonHighlands United Methodist Church3131 Osceola St., Fellowship Hall, Denver

Tuesdays11:30am - 12:30pm, High12:45 - 1:45pm, LowSchlessman YMCA3901 E. Yale Ave., Denver

Wednesdays • 1:45 - 2:45pm, Low Southwest YMCA5181 W. Kenyon Ave., Denver

Thursdays • Noon - 1:00pm, Low Schlessman YMCA3901 E. Yale Ave., Denver

Fridays • Noon - 1:00pm, HighSchlessman YMCA3901 E. Yale Ave., Denver

High Intensity: for individuals early inthe diagnosis of Parkinson’s diseaseLow Intensity: for individuals who needassistance with mobility

PWR! CLASSMondays • 1:45 - 2:45pmTherapies of the Rockies300 E. Hampden Ave., Ste. 100, Englewood

Wednesdays • 11:00am - NoonGarden Plaza of Aurora14221 E. Evans Ave., Aurora

Wednesdays • 11:00am - NoonDurango Recreation Center 2700 Main Ave.,Twilight Room, Durango

TREMBLE CLEFS2nd Wednesdays • 11:00am - NoonValmont Community Church3262 61st St., Boulder

RHYTHM AND GRACE:DANCE FOR PD® Mondays • Noon - 1:15pmColorado Ballet1075 Santa Fe Dr., Denver

TANGO DANCE CLASS Tuesdays • 2:30 - 3:30pmSt. Barnabas Episcopal Church1280 Vine St., Denver

GOOD VIBRATIONSThursdays • 1:00 - 2:00pmRehabilitative Rhythms Music Therapy 2222 S. Fraser St., #2, Aurora

LOUD FOR LIFEMondays • 2:00 - 3:00pmOur Father Lutheran Church6335 S. Holly St., Rm. 300-301, Centennial

Wednesdays • 1:00 - 2:00pmGardens on Quail 6447 Quail St., Arvada

AQUATIC AEROBICSSundays • 10:00 - 11:00amOld Town Hot Springs Pool136 Lincoln Ave., Steamboat Springs

WALKING GROUPMondays • 8:00 - 9:00amFairmount Cemetery 430 S. Quebec St., Denver

Thursdays • 8:00 - 9:00amHighland Heritage Regional Park9651 S. Quebec St., Highlands Ranch

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DONATIONS Your thoughtfulness helps the Parkinson Association continue to provide services & support. The following gifts were received between November 1, 2017 – February 28, 2018

MEMORIALSGregg Abell

AnonymousCol. ET Archuleta

Emily ArchuletaLita Arehart

Jim ArehartWilliam Askwig

Mona AskwigHelen Bacheller

AnonymousBarbara Baller

AnonymousRichard Berger

The Colorado Association of REALTORS

Don Bohning Larry Bohning & Marie Fitzpatrick

Elaine Bornmann Marilyn J. DorseyDonna & Dan GerlachTracy & Dennis HuddlestonDawn & David KoldykeCharlene & Ned VogelChris & Sandy Vogel

Harry & Elaine Bornmann Marcella BuhrSandra & Jacob Schlemmer

Paul Browne Helen BrowneCarol Sandy

Jerry Carr Barbara CarrJulie CarrC & M Iron & Metal Co.

Ruth Carrell Kenneth & Candace Lyon

Roger W. Catlin Janet C. Loughry

Myung Cha Mercy IPT

Marvin Clein Donna Rood

Robert L. Clifton Heather Clifton

Rita Corn Joan Miller

Jackson Cravens Barbara Cravens

Jo Ann Crew Anonymous

Clifford L. Cryer Anonymous

Barbara Ann Curtis Robert Curtis

Monireh Darbandi Robabeh Jamshidy

Ina Day Cynthia Withers

Dan Dayton Stephanie Feuer & Norman Friedman

Colman L. Dell Martha Dell

Earl Huffman Marie Huffman

Dan Ivarson Arnold Schenck

LeRoy Kats Carol KatsLawrence & Helen RooseJohn Sodia, III

Ann Kehoe Robert Kehoe

Dr. Randy Kessler Dawn Kessler

Dr. Alex Kotch Anne Kotch

Annette Lammers Margie Wood

A.G. LaMunyon Lisa LaMunyon

George Laue Elaine Laue

Dick Lazzeri Tom & Marge Bassett

Janice Lehman Amy LehmanDaniel Lehman

Hans J. Liebe Roswita Liebe

Wills Long Pat Long

Richard W. Loughry Janet C. Loughry

Caroline Luttrull Jessica Langren

Janean Manske Paul BaldwinMichelynne DefreesSable Weander

Meredith Kay McConnell Genia BrownBBVA Compass Bank

Michael McGill Molly McGill

William Patrick McGovern Joan & Bill CoteMark & Milena McGovernMark & Debbie PorterAnne & George Romero

Patti McWhorter Thomas & Dianne Honig

Janice Menzie Norman L. Menzie

Nancy Miceli Rosalie Miceli

Cecilia Teresa Mills Randolph Mills

Julia Mozeliak John & Anne Mozeliak

Robert Neumayer Caleb H. Sample

Edward O’Brien Jr. Dell & Alyce Van GilderDaniel & Jean MurrayPatrick Murray

Dennis Dick Ethel Dick

Warren Discher Mildred Discher

Burton “Burt” Dunevitz Anita & Ray BittleWillis V. CarpenterGina DealBetty KarshWendy W. OakesRobert & Debbie PressPatricia ShirleyRuth B. ToltzJudith Wolter

Duane Dunn Laurie Goss

John Durrant Margaret & Peter Fee

Clara Edmonds Rendel Edmonds

Larry Ellis DeAnna & Randy Ellis

Cay Engleson Ashley FaganKate & TJ Kratofil

Sue Feingold Joel & Tiffany AppelJack & Karen FeingoldLane & Jennifer FeingoldBarbara & Steven Zimmerman

Barbara Fishkin Ely FishkinJoanne & Larry Kahn

Linda Fligg Ken Fligg

Marlene Frasier Navin, Haffty and Associates

John French Joan French

Gordon Friednash Ken & Judy Friednash

Stanley Goodman Zelda Friednash

Patricia Gregory Judi & Lee Mason

Stuart Gunckel Kristin Gunckel & Marcy WoodPatricia Gunckel

Marilyn Guthals Frank Guthals

Elaine Halford Dorothy & Bill DeBusTami Knopping & Family

Denny Hartshorn Barbara Hartshorn

Camille Heverly Chris EveristPatricia Freeman

VJ Higgins Mary Tinker

Richard Hoch Betty Hoch

Bernie Hope Betty Hope

Helen Schaefer Dianna Schaefer

William R. Secor Mary Louise SecorBarry Segal

Ruth & Russell KincaidAndrew & Sharon McMinimeeBetty MulveyElizabeth RothEllen & Philip RothHolly & Joe TempelJohn Venema

John Shotton Spotswood M. Shotton

Nancy Sommer Barbara Jansen

Lester Sonnenberg Susan & Bob Stewart

Ruth Spangler Kayla Imbrogno

Jack Spitzer Deborah Spitzer

William Spurrier Helen HawkinsRosemary M. Harper

Paul Stowell Randy Skizinski

Kathryn Tallerico Norman RowellJo Ann Wilson

Warren Toltz Margo BlumenthalLinda & Jerry KernisJoe PellsAmy RadetskyFrank & Dena SchneiderDana & Neal SchwartzPhillip Yeddis

Foster Tudor Nancy Bretz

Alta Van Gundy Andrea Van Gundy

Otto Van Martin Mike Ramunno

Jim Waring Clifford & Bernadean GebowBruce & Nancy Waring

Larrie Ned Weaver Betty & Ned Weaver

Charles William White Anonymous

Dr. Larry Osborn Elizabeth Ross

Eugene Pepper Sara & Ron EpsteinAlan & Sally GassCraig & Debra HoffheimerLinda LevinFrances WolpoMarlene & Jackie Zekman

Gaylord L. Pinney Carolyn Pinney

Robert Rector Janet Grohs

Alan Roberts Tom & Anita Ging

Henry Robinson Bernard Thorn

Don Rohr Donna CreelRichard & Christina ErdmannGlorie & Gerald GeiselGayle HartChristine PlebanJean RasbachTom & Kathy RohrChad & Jolene StinemetzJim & Robi Walker

Joan Rooney Mark Rooney

Bill Root Anne Reed

Dr. Leonard Ruby David & Wendy Ruby

Carol June Rudnik Andrew & Sam BowlesJerri CopenhaverLorraine HoganMaxine E. Massey

Virginia Russell Fran Berry

Chaim Sales Anonymous

Norbert Joseph Samford Heather Kramer

Farokh “Fae” Samimi Maxine Bartschi Sarah Erickson Lieza FiccaEdward & Janet GodinMark GouldRobabeh JamshidyKobra JimenezJanet B. KeetchBehrooz & Tahmineh KhavariPeter MannaniLaurie & Chris MarloweThomas NoonanLee StarrTim ThayerMatty & Richard WilseyTed Zadeh

John Samples Betty Samples

HONORSSusan Abbott

Kelley HowesGus Achey

Dann & MeriLou MilneDr. Mihaela Alexander

Alyssa ClausenIva Arndt

Kathleen GaffneySteve Berkowitz

Jane A. DiamondTami & Joel Bertelsen

Tracy SchmittSuzanne Bortner

Norma GoldblattMartin Buckley

Kayte & Scott WisorMartin Burdick

Dorothy & Martin BurdickJohn S. Capra

Roberta Peters WengerLynda Cavanaugh

Patrick CavanaughRandi Clark

Robert ClarkBarbara Coddington

Fran & Lorraine BurdKen Coddington

Fran & Lorraine BurdAdele Cornelius

AnonymousMargie Dahlin

Maureen & Richard BrummerMike Davis

Brent & Kelsey HarrisAmy Dressel-Martin

Elizabeth DresselSteve Driggers

Penny & Steve Driggers

Fred Duemling Deb Duemling

Don Esstman Catherine Kent Esstman

Lane & Jennifer Feingold Florence & Michael Laubacher

Jack Feuer Stephanie Feuer & Norman Friedman

Dick Filer Carole Milligan & Jack Dysarthria

Norma J. Garbrick David Garbrick

Harold Gibson Steven SchradeBig O’ Tires

Don Gorewitz Barbara Suson

The Gunckel Family Francine Mahan

Kirk Hall Brian Hall

Johnnie C. Hamilton, Jr. Tanisha Hamilton

Dolores Harr Julia & Mark Gwaltney

Karen Hensley Will & Jennifer Hensley

Brian Hyde Deborah Clendenning

Irene M. Ibarra Armando Quiroz

Joe Jaudon Tamara Jaudon

Ed Johnson Carol Johnson

Tim & Lela Kathka’s 50th Anniversary

David & Linda KathkaPamela & Phillip Rosnik

Fred Kerstiens Kathy & Richard Kerstiens

Sandra Korfhage Judy Martinez

Sol Landow Barbara Suson

Rich Lathrop Jana Mendez

John Lochhead Ronald & Sheila MillerLesley Shiffrin-Lochhead

Kennard Lubbs Patrick Wilson

Randall S. Mason Randall & Bonnie Mason

John McWilliams Catherine McWilliams

Kelly Melcher Kay Griffel

Barbara & Lee Mendel Charles & Gretchen Lobitz

Lee Mendel John Sadwith & Karen Grote

Dominic Meylor Elizabeth Meylor

Garry Mick Mary Korch

James O. Nazario Georgia Nazario

David & Dianne Nelson Tracy Schmitt

Cal Newlin Flo Newlin

Dr. Simon Oh Meredith Roberts

Gail Oltmanss Charles Vandenberg

Dina Pace Patricia Martinez

Chrissy Stein Catherine Williams

Jeff Stein Catherine Williams

Layton Stewart Helen Stewart

Ted Swain Kathleen Cline

Audrey Sword Bonnie Baggenstoss

Dave Turney John & Lois Walton

Raj Unadkat Manu & Indu KotechaDr. Sindhu NayakAnanth PaiIla UnadkatRekha Vijay

Jeanne Upbin The Bensler Family

Dr. David VanSickle Cindy & Bret BolinMeredith Roberts

William “Bill” Vollbracht Brent & Linda CorriganJeris Loser

Paul, Sharon, Sam & Oral Wagner

Mary Beth & Gregg MinionHeather & Jonathan Weaver

Kenneth & Barbara HosackBill Weiskopf

Harold HeinKathy Wells Allen

Bud WellsJames Wilkinson

Kathleen Wilkinson

Jerry Pederson Linda PedersonMark & Stephanie Pederson

Donald Penn Anonymous

Dan Porreco Norma Porreco

Sally Pridonoff West Tony & Susan Delgado

Judith Prince James & Susan Dreisbach

Jerry Reed Jennifer & Jay Reed

Greg & Phylis Ritscher Katherine Henschen

Mike Ruether Elsa & Gary Bradley

Rick Schwartz Ruth Ann SchwartzCarol & Albert Tucker

Mary Searson Patty Battles

Diane Seguin Gerald Seguin

Ray Shelmire Jimi Halstead

Cheryl Siefert Judith Butz

Betty Gaunt Smaha Cathy Smaha

Dennis Smith Sue Smith

Marc Sorkin Roy & Arlene Hohn

Dan Starishevsky Susan HeinzerothDave & Jodi MannMatt & Natalie MansiJina SchaffTien SchryerTom Vieregger

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Join us on Saturday, July 21 for the 6th Annual Breaking Par for P.A.R. Golf EventA Golf Experience in Honor of Gary Bass and Those Touched by Parkinson’s

Walnut Creek Golf Preserve | 10555 Westmoor Dr., Westminster6:00am Event Check-in | 6:30am Driving Range Open and Putting Challenge | 8:00am Shotgun StartRegistration: $110/Player (Register as Foursome, Pair or Individual Golfer)

To Register: www.ParkinsonRockies.org/BreakingPar4PARAll proceeds from the event will benefit the Parkinson Association of the Rockies’ programs and services in honor of Gary Bass and those touched by Parkinson’s.

Interested in sponsoring? Contact the committee at (720) 339-8599 | GBassParkinsonsGolf@Gmail.com

Special Thanks to Event Sponsor:

GOLF FOR A GREAT CAUSE

NURTURING YOURSELFTHROUGH YOUR LOVED ONE’S ILLNESSBy Laura Michaels, LPC, JD, Mental Health CounselorWhen your partner or loved one is diagnosed with Parkinson’s, your world changes. Not only are you each impacted individually by this development, but your relationship must acclimate to a new reality. Adapting our lives can leave us searching for guidance to help us move through our pain to a place of hope and peace.

Accepting a New NormalParkinson’s disease is an unwanted visitor when it comes to our door. But, as unacceptable as the intrusion may feel, we have to learn to cope with the fact that it is here to stay. This reality becomes our new normal, something we must integrate into our lives. It is not realistic for us to think we can go back to exactly how things used to be. We move forward together, incorporating the new normal into the essence of our lives.

Living Your Old Life TooEven as we adjust to the new normal, most aspects of our old lives continue to happen. We celebrate birthdays, anniversaries, holidays, weddings and new babies. We go to social, school and work events. Other family members have their own health or personal problems and we want to support them. It is important that we don’t allow our loved one’s illness to rob us of the joys, sorrows, activities and relationships that make us who we are. If we step entirely out of the structure of what is routine and familiar to us, we will lose ourselves and find that the only identity left of us is that of care partner and patient. Being present for our lives helps us maintain a sense of ourselves and keeps us connected to the people and events that are important to us.

Allowing Yourself to GrieveWe often think of grieving as something we do when someone dies. While illness can bring many losses, it is healthy to acknowledge and feel them. Parkinson’s disease brings with it justifiable sadness and it isn’t helpful to completely shun or dismiss those difficult emotions. It can be very productive to specifically name your loss. For example, if your friend tells you she is planning a cruise with her mother next year, you may grieve that you are not

in a position to plan such a vacation in the foreseeable future. If your spouse is unable to go to work or do tasks around the house, you may grieve the loss in his or her capacity. You may grieve the loss of your expectations for the future, your loss of optimism, your sense of security. It is adaptive to allow yourself to notice and validate real losses that are occurring in your life.

Finding Opportunities to GrowAs care partners, it can sometimes feel like an achievement just to get out of bed in the morning and face the necessary tasks of the day. But are there ways you can grow? Things you can learn? Maybe you find new appreciation for your ability to be brave, selfless, empathic, strong. Perhaps you see yourself stretching beyond what you ever imagined was within your range. When we handle a difficult situation well or when we fight exhaustion and fear to rise to our highest level of functioning, we are afforded the opportunity to provide our lives with ultimate meaning and create a connection with our loved one that is more authentic than it was before the health crisis. This level of awareness may not be constant, or even often, as caregiving may also be truly sad and overwhelming. When you are able to notice the more transcendent moments, it can be both gratifying and inspiring.

There are many other ways to nurture yourself and your loved one while living with Parkinson’s disease. In this article, I have only been able to touch on a few. In my recent book, Living in Limbo: Creating Structure and Peace when Someone You Love is Ill, co-authored with Dr. Claire Zilber, we discuss these topics and many others in depth. For those of you are engaged in this process of caregiving for your partner, I wish you fortitude, resilience and serenity.

Laura Michaels is a mental health counselor in private practice in Denver, Colorado. She specializes in trauma, grief, illness, life transitions, depression, anxiety and works to help clients find purpose and meaning in their lives. You may reach Laura Michaels at www.lauramichaelscounseling.com.

VOLUNTEERINGWITH THE PARKINSON ASSOCIATION

We need your help! Even with all of our educational events, fundraising events, exercise classes and support groups, it can still be hard to get the word out to the right people.

Throughout the year there are many new and recurring programs and services that come about. To better serve those in the Parkinson’s community that may not be connected with us yet, we need people like you all over Colorado to help post flyers, brochures and postcards at the places you frequent most (e.g., coffee shops, doctor’s offices, libraries). As events near, we will provide you with the marketing materials for you to distribute among the local community.

Is public speaking more your style? Have you participated in our previous events? Ambassadors can also choose to attend Parkinson’s exercise classes or support groups in your area to give small presentations and distribute flyers about upcoming events, like our annual Vitality Walk or Colorado Community Conference.

For more information about the new Ambassador program or if you are interested in other volunteer opportunities, contact Leesah Barbieri at LBarbieri@ParkinsonRockies.org.

BECOME AN AMBASSADOR

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Coordinating a support group takes time, energy, organization and commitment. From handling logistics, facilitating meetings, encouraging participation, planning speakers to finding community resources, it is not a one person job.

While providing this resource is an important aspect of our Parkinson’s community, the leader cannot, and should not, do it all. We are encouraging others to volunteer and join a support group as committee members; and ideally avoid burnout in our support group leads. To sustain the life of the group, we are putting a call to action to healthcare professionals, care partners and people with Parkinson’s to help fill some basic responsibilities in groups. Delegating tasks and responsibilities brings group members together while promoting ownership and cohesion. The below committee positions are suggestions provided by the Parkinson’s Foundation’s Support Group Manual. Each group can decide what is right for them.

• Co-leader: Assists in planning and leading the meetings, especially in the leader’s absence.• Telephone Contact: Serve as a point of contact on outreach material.• Secretary: Maintains membership list, prepares and sends meeting announcements.• Hospitality Committee: Greeters, coordinates room/snacks/refreshments.• Publicity/Outreach Coordinator: Contacts local paper, hospitals, clinics, centers, etc. for outreach.• Librarian: Records and maintains books, videos, newsletters and other materials that have been borrowed. • Historian: Keeps a scrapbook of group’s activities, including photographs, newspaper clippings, etc.• Social/Activity Coordinator: Organizes activities for group members outside regular meeting times.

ASSIST A SUPPORT GROUP

LAUGH AS THOUGH YOUR LIFE DEPENDED ON IT!By Bob Wells, Chicken Lips Comedy Theater

“Did you ever wake up, kiss the person next to you and know it’s going to be a good day? I did that yesterday, and apparently, I’m not allowed on that airline again.”

Did that give you a bit of a laugh? Or even a slight smile? If yes, then good things are happening for your body, your mind and your spirit. We all know that there are many physical, mental and social benefits from laughter, whether it’s a gut-bustin’ chortle, a tear-generating guffaw or even a diminutive giggle. Laughter is powerful, and many doctors and researchers agree that laughter improves your mood, relieves anxiety and fear, reduces stress and creates a more positive state of mind.

You probably know that there are agreed-upon physical benefits from laughter: it lowers your blood pressure, increases your heart rate, releases pain-reducing chemicals in your brain, oxygenates your blood, strengthens your immune system, may lower blood sugar – and it’s free!

“Humor is so important that I place it as a daily requirement for a healthy heart, just like diet, exercise and sleep,” says Dr. Michael Miller, professor of Cardiovascular Medicine at the University of Maryland School of Medicine.

“In fact, a good laugh will make you more likely to experience a good night’s sleep and give you more motivation to exercise.” Other benefits are that you’ll feel less pain, you’ll sharpen your brain and you’ll stress less. Cool!

“Kids today don’t know how easy they have it. When I was young, I had to walk nine feet through shag carpet to change the TV channel.”

Did that cause another laugh or smile? Great! As we get older we may get wiser, but we don’t laugh nearly enough. Again with the research: Children laugh 200-300 times a day. While adults laugh about 10 -15 times. Think about how easy it is even for babies to giggle uncontrollably during a repeated bout of “peekaboo,” or for young children to fall down laughing when something silly happens. We can recapture some of that child-like joy if we take the opportunities. After my Parkinson’s diagnosis (and Deep Brain Stimulation procedure, which changed my life for the oh-so-much better), it was through great medical care, a support system of loving friends and family and a steady diet of humor and laughter, that supported my recovery.

What can you do? Oh, so much! Join or form a laugh club. Take a laughter yoga class. Host a game night. Read funny authors. Watch comedy on TV or the internet. Separate yourself from negative people. Concentrate on the good. And celebrate your victories. Laugh as though your life depended on it – because it does!

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HUMOR IS SO IMPORTANT THAT I PLACE IT AS A DAILY REQUIREMENT FOR A HEALTHY HEART, JUST LIKE DIET, EXERCISE AND SLEEP.

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If you’re a healthcare professional or community member looking to assist existing support groups, please contact Erica Wright at EWright@ParkinsonRockies.org.

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Does the thought of fundraising or asking for a gift make you queasy? Why is that? Many people think that in order to make a difference you have to contribute thousands of dollars. This really isn’t the case.

Building awareness is more important than the dollars raised.

n THINK SIMPLE AND LOCALFind a place you frequent: a restaurant, coffee shop or boutique. Know the manager or owner of an establishment?

Ask the manager, your friend or your supervisor to partner with you and the Parkinson Association to raise awareness in April. A dollar or percent of an item or meal could benefit the Parkinson’s community. Employees who want to wear jeans on Fridays in April, pay $5 to be Casual for a Cause. The opportunities for partnership are endless. M ADVOCATEJoin our Advocacy Committee. We need more voices! As an advocate you’ll be sharing your story via email, phone or in-person visits with local, state and national representatives. From writing letters to editors or congressmen to attending city council meetings, you won’t be alone!

The Association’s Advocacy Committee will provide training, create message scripts and assist with setting up meetings and outlining calls to action. You will decide what level of involvement is comfortable for you.

6 PUSH FOR PROCLAMATIONSAs the second most common neurological disease, Parkinson’s awareness needs to be viewed as state and national importance. Act now by asking your local mayor or city council to declare April to be Parkinson’s Disease Awareness Month with a proclamation.

With over 49 support groups in Colorado, connect with the closest one to you to show the many faces of Parkinson’s and the impact it has in your very own community. The Parkinson Association has a template to share with the community.

GENERATING AWARENESSThink of fundraising as sharing your story and your passion. Keep it simple, and know that every time you share your story with others you’re making a difference.

It’s likely everyone we know, knows someone affected by Parkinson’s. Yet people don’t talk about Parkinson’s the way they talk about breast cancer or Alzheimer’s. The more that people talk about Parkinson’s the better off we will all be.

While the Parkinson’s community may be aware that April is Parkinson’s Disease Awareness Month, many Coloradans remain in the dark and unaware of the 17,000 Coloradans living with Parkinson’s and the significant impact it has on the community. Act now by engaging your community in conversation, awareness and understanding of this disease.

DON’T FORGET TO CONTACT US

Remember to let us know what you are planning. We want to share these stories and events with others. We want to celebrate their success with you. We can help provide you with materials about Parkinson’s and resources in Colorado.

If there is something specific you’re looking for, let us know. We are happy to support you in your efforts.

HAVE A FUNDRAISING IDEA?

Contact Erica Wright at (303) 830-1839 or EWright@ParkinsonRockies.org to see how the Parkinson Association of the Rockies can help you develop your event!

IT TAKES A VILLAGE TO

BUILD AWARENESS COMMUNITY EVENTSON OUR CALENDAR

APRIL 7 • Pickleball for Parkinson’s Meadow Creek Tennis Club • Denver

APRIL 28 • PunchathonFort Collins Title Boxing Club • Fort Collins

MAY 19 • Poker for Parkinson’sSwingers Sports Lounge • Lone Tree

JULY 1 • Support Ride to Defeat Parkinson’s Denver Metro Area

JULY 21 • Breaking Par for P.A.R. Walnut Creek Golf Preserve • Westminster

AUGUST 28 • Redneck Ride for Parkinson’sFoothills of Larimer County • Loveland

WANT TO ATTEND OR SUPPORT?

Contact Erica Wright at (303) 830-1839 orEWright@ParkinsonRockies.org for more information.

“WHAT IF IT’S NOT PARKINSON’S DISEASE?”By Dr. Luisa Solis-Cohen, Colorado Neurodiagnostics

Communication is essential to our sense of self. Up to 89% of people with Parkinson’s will experience a change in their voice or speech; causing frustration and withdrawal. However, it is important to recognize that there is a specialized therapy treatment which can keep your voice strong!

“My voice is strong because I’ve continued to work through this program; I’ve never stopped. Your voice will be like this too if you keep working! There’s room to grow, there’s room to strengthen. Don’t quit.” - LOUD for LIFE participant

LSVT LOUD® is an effective, individualized, one-month speech therapy program supported by over 25 years of research data. There are currently over 80 LSVT LOUD Certified Clinicians in Colorado ready to help people with all stages of Parkinson’s!

Once individuals finish LSVT LOUD treatment, it is important for them to continue to practice prescribed voice exercises to maintain their improvements. LOUD for LIFE voice exercise classes provide an encouraging, motivating way for people to do this with others! These community-based groups meet once a week and include practice of the LSVT LOUD exercises along with conversational practice during a variety of fun activities. New members are welcome to join at any time!

KEEP YOUR VOICE STRONGBy Angela Halpern, MS CCC-SLP, LSVT Global

There are a number of Parkinson’s ‘look alike’ diseases that your neurologist will consider when weighing the diagnosis of Parkinson’s. In the early stages, it can be quite difficult to differentiate Parkinson’s disease from the less common “atypical Parkinsonisms.” Your neurologist will rely on a detailed medical history and physical examination to help differentiate among these options. In fact, even a DaT (dopamine transporter) scan will offer little help in such decision making. Here, you will find more information on the atypical Parkinsonisms.

Progressive supranuclear palsy (PSP) is suspected when there is early imbalance and unexplained falls in addition to other Parkinsonism symptoms. The name of this condition refers to the difficulty moving one’s eyes in the vertical direction, a feature often seen later in the disease course. Other symptoms include personality changes and forgetfulness. Individuals with PSP may have a less robust response to levodopa. Often a more rapid disease progression is experienced.

Multiple system atrophy (MSA) refers to a subgroup of Parkinsonisms that affects numerous body systems early in the disease and often leads to a more rapid disease progression. In some individuals, the autonomic nervous system is affected, leading to early orthostatic hypotension, erectile dysfunction and bladder habit changes. Other symptoms can include impaired speech, troubles swallowing and difficulty breathing. Treatment is symptom-specific as levodopa provides little benefit.

Lewy bodies dementia (LBD) is the second most common cause of dementia in the elderly. While a person may have motor symptoms similar to Parkinson’s disease, the hallmarks of this condition are: difficulty with thinking, fluctuating level of alertness and visual hallucinations. Typically the signs of dementia appear before or within the first year of Parkinsonian

motor symptoms. Treatment is focused on cognition and hallucinations, but often includes low doses of levodopa.

Corticobasal degeneration (CBD) is the least common of the atypical Parkinsonisms. Often a person will describe difficulty with voluntary control of one side of the body; there can be involuntary postures or jerking movements of that side. Speech is often affected.

Vascular parkinsonism is considered in individuals with stroke risk factors; such as high blood pressure, high cholesterol and diabetes. This condition arises after multiple small strokes in the basal ganglia, one of the brain regions implicated in Parkinson’s disease. Gait difficulties and lower extremity stiffness are often the primary complaints. Symptoms can appear abruptly and there can be “step-wise” progression with periods of worsening followed by plateaus. This may or may not respond to levodopa, the gold standard medication used in Parkinson’s disease.

Drug-induced parkinsonism can arise when dopamine levels in the brain are altered by certain drugs such as anti-nausea medications, antipsychotics or mood stabilizers; some calcium channel blockers and stimulants such as amphetamines and cocaine. Symptoms often improve if the medication is discontinued, but this can take time.

Normal pressure hydrocephalus (NPH) is characterized by difficulty walking, cognitive impairment and loss of bladder control. It results from excess cerebrospinal fluid surrounding the brain and diagnosis involves both brain imaging and examinations before and after a spinal tap. Treatment involves neurosurgical placement of a shunt to remove excess cerebrospinal fluid.

LOUD for LIFE Class Members in Costume for a “Solve the Mystery” Event 11

ALREADY AN LSVT LOUD GRADUATE?

Join our LOUD for LIFE classes in Arvada & Centennial to keep your voice strong and loud! See page 5 for more information. For more information or to register call (303) 534-0324.

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WALK THE WALK THAT CONNECTS COMMUNITIES AND ENHANCES LIVES...WALK THE VITALITY WALK!

Join us for our Sweet 16th Annual Walk on Sunday, June 38:00am Registration Begins • 9:00am Walk Start • 10:00am Resource Fair

Wash Park, Denver • Sandstone Ranch, Longmont • Choose to Snooze Registration $30/adult • $10/child (ages 5-14) • FREE/child (ages 0-4)

For more info & to register visit www.ParkinsonRockies.org/VitalityWalk

SPECIAL THANKS

Whether you walk the Vitality Walk or Choose to Snooze, join more than 1,600 individuals who are making a difference by increasing awareness of Parkinson’s disease and raising critical funds to support the

programs and services provided by the Parkinson Association of the Rockies. Engage your time, energy and support to help connect our communities and enhance the lives of those

living with Parkinson’s. People of all ages and their dogs are welcome.

JOIN THE 20% CLUB The Parkinson Association is committed to increasing programs and services by another 20% in 2018. Join the 20% Club by raising

$200; as an incentive, you’ll receive a customized shirt.

MISSION