Consultation In-Person Feedback Collection

Date: January 29, 2014Group: Community consultation in-person sessionLocation: West VancouverNumber of Attendees: 90

Note: all the information and feedback gathered at this session will be inputted into the overall collection of data and feedback for consideration of the development of the Disability White Paper.

Feedback:

Deaf and Hard of HearingWhy do you think it’s important to decrease barriers and increase accessibility?

As a parent: Still feeling lots of responsibility – need to advocate Ryan needs to be able to be completely independent What will be my child’s future?

How to welcome contributions and remove barriers Access to housing and post-secondary 1.5 years to apply for funding for a tutor Equality is really important So long it’s been difficult for deaf to heave access and be able to do things on own I’m depending so much on hearing people Lack of technology Need to be able to do my own things Transit is a big issue Lots of transit barriers

Meeting Places My friend has no friends

Feedback:

Social problems Social org called ASPIRES The boys meet once a week to create groups Doesn’t take millions

ASPIRES 10 – 12 people Social activities – rock climbing, kayaking Taking Tai Kwon Do together Sat. class for severe autism to be the helper instead of the helped

Tech is quite expensive for PWD Tech aid have to be lower income – how do you create quality if you can’t afford it? $200 for a pocket talker Each little piece in hearing aids Higher priced until more people use it – incomes are lower Grant system – Sask has more If you’re working you get the support and if not you don’t Technology out of date already There’s a lot of hearing (?) people on their own, something to help people pay for tech

Employment How about having the legalisation that states all employers require to higher (sic) ex-numbers of percentage disability people Utilize Neil Squire, their expertise to assist the disability people to gain employment The employer maybe require to be better educated in term of how hire a disability person – WCB? – cost of training – the setup for the

job Work together with community partners, parents, family members and employers

RDSP Why do ppl don’t access RDSP? (sic) Citizen do not understand the concept of RDSP Navigating jobsite, using a phone, living in a rural area, the PWD applicant has so many problems MLA contact to be made within their area – navigator has been started – PWD Phone line does not work, not flexible, we don’t offer choices, hard to get same answers Navigators have difficulties Somebody who needs to understand mental disability not one Employee Services, not someone who gets both EAW is an entry level position – not an entry level position, so much more SDSI office has an opportunity to reach out to individuals, and help, and if more resources and training and competence given out, they

Feedback:

can be helped PWD are not being taken care of in public places where they can’t take care of their mental issues WorkBC, EAW, resource people where they can meet at central place – customise these meetings to particular problem – family are

the big support – what about people who do not have family Funding for difficult/aids/teeth/dentures not average $100 clothing is not sufficient PWD client – shelter – always on the crisis – split/administer now she can pay her rent in full – can’t manage because she is always

short Rural area – no transport, get car, cannot afford gas, insurance, MPA – advocacy group in Vancouver which helps to contact More advertising about what is available

RDSP Thumbs up, has allowed for small nest egg and money has tripled Change age limit restrictions and penalty for moving funds Also tax free savings acct Still needs to be administered If gov’t stopped all funding then would only cover care costs for 1 year RDSP has no “means” testing, doesn’t’ matter if assets EATI (DO NOT CLOSE PROGRAM) No means testing, provide adaptive equipment they provided iPad – increased communication, also got new chair that allows to stand

make eye to eye contact with people Move BC forward to making BC the most accessible place in Canada Have at the policy level/concept level – need to take direction from PWD in technology Failure of public policy Best practices – from D.A. Education to general public Accessible Mandate Public policy – EATI – should be available to all – structure for eligibility – should be fair, clear Not threaten easily The cost of D.A. Transition – youth/adults Rates Chronic Sechelt blind

Feedback:

Rather than the system imposing, info on need would be good if you can take or access your info yourself Recognize stages of life in changing needs Did volunteer work, become very proactive\volunteer at something you enjoy doing, suggesting to people what they could be doing Volunteer bureau Everyone can work – need people who are paid Need the ability to not show up for work with episodic disability Seasonal work could help but then you don’t quality fo EI or PWD, etc. benefits (health benefits) Ability to have work is a positive benefit Earn and learn Mental illness and employment is a problem area (invisible disabilities) Need much more flexible employment situations Need incentives for employers WorkBC – highlights abilities/strengths (value proposition) of hiring PWD but not true for all PWD Disclosing a disability is a huge risk because it’s a risk employers view a PWD as a problem not a solution Employers vie w job as 5 days a week, 8 hrs a day Labour relations need to be revisited because it’s not a level playing field – special consideration (flexibility) can be taken as “special

treatment”Hearing aids

I would like to focus on the lack of hearing aid cost subsidies by the BC Government They lag far behind other provinces in this regard The few categories they do subsidize leaves major gaps in meeting needs and consequently many hard of hearing people, mostly

seniors, but also young adults seeking jobs or education are going without the access they need I might mention it was reported that hearing aids costs only $125 to manufacture, but are being sold for between $2k and $4k each! And the price for two hearing aids can total up to $8k – many people can’t afford the cost and end up not wearing hearing aids Why could not the hearing aids be subsidized by the BC Medical Plan as in other provinces??

White Paper Response – C. Frostad (cfrostad@shaw.ca) 604 926-2922

Barrier – the “D” word Goal: change the word; change the paradigm The word DISABILITY and the perspective of brokenness, pity, helplessness and charity that the word infers, is the top barrier

preventing the best development in and most progress in the design of programs, support systems, housing, transportation, societies, education, employment, social inclusion and attitudes of acceptance

New premise: by rewording every question to reflect the notion of DIVERSIBILITY, the paradigm shifts awareness to the POTENTIAL of every individual to all that is possible

Feedback:

Barrier – Tom, Dick, and Harry – “the systems” Goal: streamline and reduce administrative paperwork by 95% The systems (health, education, social services, employment) that were originally designed to help people now have

overburdened the very people they are designed to help. Administrative requirements have increased to the point where families cannot keep up. Because they fall further and further behind, they lose the services they need. Concurrently, services providers and therapists are forced to reduce the hours of service they were hired to provide in order to fulfill administrative and accreditation process requirements. The more complex the care of an individual, the more paperwork is required.

New premise: return parents to parenting – use the principle of plain language in all documents Innovation: for each individual there is only ONE set of information. Store this information electronically; store all of Tom,

Dick, and Harry’s forms; allow access to information only through individual/family/legal representative and multi-level security; design it to be dead EESI.

Barrier: Old Tools of “us” and “them” Goal: update teacher education foundation courses

Continued use of old methods of teaching based on a 1960’s model of education still present barriers to learning for today’s student. Brand new teachers are entering the classroom without knowledge of diverse learning styles or experience in how to use behavioural support strategies. Student’s rights to a safe and inclusive school environment are being shattered by the use of methods of restraint and seclusion. It is important to acknowledge that wherever happens to one person, impacts others. We must start at the root of the challenge and equip teachers with the skills they need to meet today’s education needs of every individual in the diverse spectrum of learners. And UNDER-challenged student becomes a ‘disruption’, ‘non-compliant’, a ‘behaviour challenge’.

New premise: a motivated student is an engaged student; train teachers to become facilitators of learning Goal: open up access to education to all l; plan for ‘ability’ and develop potential, as opposed to dealing the ‘dis’ability –

extend the BC teaching degree to a two year program In order to be eligible to apply, teacher college applicants must complete 70 hours volunteer work in the area of special needs Immediate update of the first year teacher education to include a mandatory foundation course covering the latest research

on diverse learning styles, behavioural support strategies, how to implement the principles of universal design for learning (UD), sensitivity training using resources in the community, how to plan for diversity and engage every student every time and methods of best practice.

All current teachers, education assistants, school and senior administrator have three years to complete online professional development in the above, and a three hour sensitivity training workshop.

New research, training in and best practice has been available for many years. It is literally a click away. Getting all the teachers up to the same level of competence in working with diversity has not become the opportunity and a worthy goal. Everyone wins.

Barrier: the building code

Feedback:

Goal: universal design principles from the ground up Doorknobs, curbs and stairs – oh no! electronic doors, cutouts and ramps – oh yes! Municipally, legislate all new buildings, homes, apartments to follow architectural principles of universal design. Much less

initial cost compared to retrofit costs. Those who wish a different design, must retrofit or return the universal design features before allowing to sell or move out

New premise: all access, for people, all of the time Barrier: in harms’ way

Goal: acknowledge, heal and move on The smallest corner of the kid of Pandora’s Box was lifted the moment the results of a survey were made public about the use

of restraint and seclusion in our schools. It has been described as The Silent Epidemic. It is known in parent circles as having a culture of retaliation. The majority of people turn a blind eye or choose to pretend not to hear, many have no idea what is going on, but this is called willful blindness in legalese. We most certainly have a problem. It is time to address our systemic practices and ring our better selves to a public forum. This will require that we – all of us – acknowledge and resolve this big, difficult issue. A lot of harm has been done. A lot of harm continues to be done. It acts in a ripple effect outwards. It affects every single person. It has to be stopped. It must be rectified.

New-old premise: treat all others as you wish to be treated Start by adopting and implementing a program of restorative justice in every district throughout BC….might we well thing big.

Then we can all heal. We must hear from five year olds to 19 year olds. We must hear from their peer witness/onlookers. We must hear from those

who work under bosses. We must hear every single hurt. We must find out why these harms have happened. We must notice patterns. Acknowledge. Apologize. Make amends. Write policies. Stick to it. Review and rework it. Is there a training and education piece missing? Collaborate. Partner. Buddy up with the neighbouring school, with a colleague, with a parent, with a child. Work hard. Say – no. Not this. Never again. Ever. Acknowledge that we are all vulnerable. Every person must become a protector of rights. Embrace uniqueness. Move onwards, upwards. Seek ways to develop potential. Treat others as you would like to be treated.

Barrier: our outdated, 1950s model of education system has become the barrier to students’ learning Goal: update and revamp outdated teacher education foundations courses to reflect meeting today’s diverse classroom and

needs of all student. Open access to education to all learners, plan for ‘ability’, develop potential, as opposed to allowing ‘dis’ability to lead education

New premise: a motivated student is an engaged student; train teachers to become facilitators of learning. New research, training in a best practice has been available for many years. It is literally a click away. Getting all teachers up to the same level of competence in working with diversity has now become the opportunity and a worthy goal. Everyone wins

Innovation: extend the BC teaching degree to a two year program In order to be eligible to apply, teacher college applicants must complete 70 hours volunteer work in the area of special needs

Feedback:

Immediate update of the first year teacher education to include a mandatory foundation course covering the latest research on diverse learning styles, behavioural support strategies, how to implement the principles of universal design for learners (UDL), sensitivity training using resources in the community, how to plan for diversity and engage every student every time, and methods of Best Practice.

All current teachers, education assistants, school and senior administrators have three years to complete online professional development in the above, and a three hour sensitivity training workshop.

Disability savings are good Asset accumulation means accumulation of wealth and cash Gov’t cuts back Can never get ahead Should be a change for PWD Ryan: I agree common challenge Have to change the system Gov’t to try and analyse how to support each person with diff. requirements You don’t want people on welfare you want them to work – how? PWD – slowly decrease? Living in poverty, want live decent (sic) Have to encourage a switch on the system No money for disability savings – can’t afford Supports disappear

Lost in bureaucracy of CLBC So many families Day program – nothing after 3 Exhausted parents

Our child – higher functioning Grim prospects 18% are employed Not enough post-secondary Emp support

Misunderstood disability Look typical – speak eloquently System shuts down Less able to cope emotionally Social tragedy in life Gave up

Feedback:

Suicide Don’t’ want to be a burden

Other provinces have dedicated Asperger’s Society – BC doesn’t Need Asperger’s advocates, consult with gov’t Asperger’s is an add-on Criteria is very narrow You have to as. their accepted sp. (sic) 1.5 years funding for tutor

Getting closer Slow and frustrating process Nothing exists for him on systems Lots of goals – policies, law, history Unsupported for him to reach his dream MLA Jane has tried to assist Ministry of Advanced Ed said all kids struggle, does not understand the degree of struggle Brother with brain injury Substance life (sic) Claw back funds

Wonderful human beings, deserve full and happy life 6.2 million people PWD, family and friends 12mil Political power Need to demand more compassion – citizens don’t realize how little people get and how difficult it is Apprenticeship – you need work experience, compassionate employers Computers are so helpful – Skype, can’t talk every week Biggest barrier – treat people with visible/invisible disabilities, people who are deaf attached b/c someone misunderstood sign Compassionate towards wheelchair, but Asperger’s and HH lots of discrimination Get teased Ron with it – don’t’ know what you’re missing Deaf people don’t consider themselves disabled Deaf is another language Deaf has its own spectrum of disabilities Communication barriers

PWD Funding Right now PWD designated individuals get $1000/month from the government

Feedback:

Previously they could earn $300/month extra and were allowed to keep the money with “no claw” back, however a PWD could not have assets/savings in excess of $3000

Now PWD designated individuals can make $800/month without having any of it “clawed back” however they are not allowed to accumulate (have in assets/savings) more than $5,000

This should be so, it doesn’t allow a PWD individual to save for a holiday, a new car, etc It reduces their incentive to work more and it discourages them from being truthful about how much they earn Requirements for RDSP – 49 years cut off – s/b no age limit s/b no tax to withdraw RDSP funds There should not be any age limit in order to contribute to RDSP Those who need it don’t have money to contribute Should bring back Endowment 150 Start “PWD credit union” Making |BC access it will increase tourism Why are we talking about RDSP it’s a federal….(sic) We should be talking about how ppl get PWD Not everyone on PWD can get RDSP Unable to fill forms when a person is on their own Complex forms without advocate to fill out Limits on funds/assets Unable to save Only if RDSP Need to be able to save outside of RDSP Need to be able to save earned income Expand AEE to everyone Can only save $5k People wait till 65 Rolling savings from one year to another year Not enough money to put into RDSP Great program for people/families with money Takes money to contribute to it Should be an option for families to contribute (without penalty) ie. inheritance able to be put into svings for PWD child Citizenship Add quality – how framework….(sic) Vision and values – cost and values, strive to be health, enforce

Feedback:

Ryan eg. Asperger’s – a dr to bk (sic) of developmental delay – not able to live independently Row of townhouses – start with lots of support move along graduate towards independence Want to be independent – move – co-sign loan – get in trouble need to be protected

Special supports at university to tolerate surprises in life Monica

Go on to website google hearing coops – just starting in the US , enable travel What not sure (sic) if hearing loops work for the deaf Access to info

Housing combined with social network/supports /friends people to rely on How is deaf culture socially? For Ryan? Ryan – deaf culture people love ambience, they like dark, where deaf people need light Alarms that tell us when knocking at door Able to see, remove barriers in room Every deaf person is unique Some have tunnel vision There’s no standard Paper system, paper on your hp so you know when someone’s at the door Monica

Raising 3 young children Hearing dog Can’t tell where sound is coming from Dog would tell me where it is coming from I didn’t have to hover

Lights for phone - change rings - different types of rings work, others don’t These tech (sic) also for hotels and work places Vancouver Foundation, “Giving in Action” – foundation that gives private funding for renovations/modifications – a lot of paperwork

and administration Need continued funding for accommodations and modifications to housing Challenging to find qualified contractors who can do modifications to homes, commercial buildings, etc. and do those modifications to

a certain standard Some modifications or accommodations in commercial buildings and/or community buildings are not done to a standard which makes

it accessible to PWDs Perhaps there is a need to encourage tradespeople to specialize in the area of construction to do with modifications and/or

Feedback:

accommodate PWD In this way there would be more contractors who were experienced in constructing these types of modifications to a good standard New buildings should be constructed and planned with stairs, ramps and elevators/lifts so that they are accessible to all persons Parking stalls for disabled persons are not wide enough, many underground parking places are not suitable for wheelchair vans which

have the rear entry (these vans are too high to fit in these parking places) Transit – school bus system – only the child with a disability is allowed on the school bus and the family’s other able bodies children

are not allowed to go on the bus to the same school, therefore by the time the bus picks up the child with the disability, the other children (who have to be driven) are late to school

What is going well? Very supportive – group home Self Missing the ones that may not need the support in home and yet not high functioning enough to be self-independent Maybe coop housing type of setting

Is there a way that we can have a residence with support of the community partners Maybe get models that is (sic) currently being use (sic) such as : Aging population Dementia long term care home live with functioning dementia in the same building How about seniors that owns home (sic) who doesn’t want to go to senior home that may consider opening their home to public that

may assist them other needed (sic) (mutual benefit) Group homes becoming obsolete/group homes tax free Parents are left with housing bill for their PWD child Change language – instead of group home because sounds institutionalized Parents have peace of mind that their child will be taken care of (developmental disabilities) PWD clients assessed as individuals on one to one basis Funding for housing Higher rates – shelter especially Safer access to sidewalks, etc., in the community – safer access within community in general Vancouver has a new building code – why not provincial only Vancouver? Can provincial gov’t champion at this? Federal – provincial – municipal? Strategy that provincial should get working on housing If you are senior then senior housing is available but if you are young – then to end up living in senior housing – why not have seniors

and young people live together – much easier for caregiver New housing with mental issues are coming up, permanent apartments, no recovery centres in West Van. Lots of senior housing in

West Van.

Feedback:

Prorate your shelter where you live – needs to raise the rates for shelter overall - $375 too little Use people to help people – elderly people who have houses can help PWD a room (sic) – wise people helping mentoring PWD Accessibility – Rick Hanson Foundation – accessibility standards – can the ministry endorse this Building permits/codes Municipal codes Connections point – municipal, provincial, federal Built environment for people with mental health disabilities What is the expectation of where/how PWD live Need to look at the big picture Municipality/BC Housing/non-profits involved to participate Evolution of acceptance Active parents bring attention to issues Small towns/rural communities have very few services Lower Mainland has far more services Signage and technology – plain language Welcoming settings Physical attributes of a building needs to be welcoming – welcoming/knowledgeable staff Welcoming environment Clear signage People need to be tech savvy Technologies to assist Tools to be used for communication, learning, work skills More apps More supports for aging PWD and housing options Options for aging PWD is very limited, difficult to navigate More housing Building/development community needs to change perspectives on how to build and design for all General public needs education on universal access Increase affordable housing base More coop options Allowing PWD to make decisions and be involved in decision making when it comes to planning assisted living Encourage corporate involvement as community partners More support for non-profit projects Focus and support for long term sustainable projects

Feedback:

Resource sharing Provincial housing strategy Provincial government pressure on federal government to develop housing strategy Timelines Say Hello! Start a public friendly initiative to be pleasant – Alberta started one, smile you are a tourist attraction for the Olympics Just say hi campaign (CLBC or inclusion BC) For less expensive to make adaptions before start construction that to retrofit National resource that allows builder/designer to have access to plans that show how can make accommodations ex. Slanted parking

spots for PWD Need national standards for all things that get the logo applied (parking, washrooms) Need to have rollover curbs Have tax exemption or breaks available for people to donate housing to be used for PWD, would help with housing shortage and save

gov’t funds they pay for assisted living facilities/group homes Disability friendly bus drivers please More education for bus drivers Lots of younger families feel that they might to build (sic) their own micro communities (eg. a farm where everyone works together

and are supported) – these microcommunities system should expand to community at large (sic) More coop and rental housing for those with disabilities Example of building complex where 2-3 buildings are open to all renters and 1 building is for those with disabilities including caregivers Go after architect institute of BC – needs to be a mind shift for architects to build to address all the needs of those with disabilities –

raise standards and enhance the building codes No institutions Single rooms Individualized funding Personal choice Family care – funding for family members looking after family members Providing incentives to keep families together Aging parents still with a PWD fear for the future Affordable/accessible housing Universal living space – being able to live in over time Tool developed by Rick Hansen Foundation Plan@.com – tool to talk about the building environment (route their experience) Recommendation for ministry (SDSI) to endorse Human factor

Feedback:

What’s the expectation for PWD to live (home) ie. group home? We’re not thinking “all inclusive” in our housing Should be/needs to be… Talks active parents to have a voice Need good signage and plain language as a standard for buildings Physical attributes needed; right staff in buildings, somewhere on site all the time, proper/clear signage, access features (large buttons

for auto-doors, wide entrances) Welcoming environment Tools within the environment for true learning to take place Coordination and cross gov/municipality requirements for building standards Can’t climb stairs afford to paid (sic) – no housing subsidy for disabilities Building code – doors are wider, no stairs, raised numbers on houses and on washrooms, ramps, visit friends – cafes, restaurants Should have a design mandate Someone with disabilities on design plan I might suggest that smoke alarms in apartments, basement suites and hotels be equipped with strobe lights, as well sound generating

beepers Video phone Talk face to face For 11 years in Canada we’ve not has this service Having text set-up Interpreters and services for us Go to bank more readily Restaurants and shopping malls very limited for low vision Restaurants are very dark Braille menus Government foes – fine print Can’t read it Most deaf people struggle with English Constantly having to ask for help VRS – what happened – was started then shut down

Cut in 2000 It’s been a very slow start Finally in 2008 CRTC began to recognize the import (sic) of video relay Just one year pilot program

Feedback:

Deaf still having to advocate again When the relay services were running ti was great Antique machines for TTY Now people rely on email, talk messaging and therefore TTY is no longer effective b/c of lack of updated technology

Trying to get CAPTel Something like caller ID They have it in the US CHHA is trying to get this started Communication is biggest barrier Hearing aid and lip reading not perfect Can use the telephone Can but can only understand some voices – I have moderate hearing loss For people who are deaf and use sing language, its best to have video phone – TTY is old technology Using English to communicate when you’re having a video phone you’re using natural language to communicate Deaf – blind – when they speak with interpreter can see them on the screen. So the interpreter watches me – they’re able to watch the screen and actually take the message Relay in how 1 actually communicates I don’t’ think we should get rid of TTYs – keep them What would you do with TTY – don’t know US& Europe

Using hearing loops/hooks – we got one in this room ,a kind of echo A little cubicle – if you lean in you can hear clear as day They have in taxis, train station, churches US has it, we’re behind

Not just for people like me, for everyone We have these cavernous buildings, lots of echo, can’t hear anything – I don’t go to cavernous bldgs. So anything like this, CART, makes it a lot easier They don’t have these systems in schools It’s usually wired into a T- (sic) I can’t hear a word anyone is saying here, I can only read lips – lots of errors with reading lips All new bldgs. are hollow, open concept – open concept is awful for HH folks, everything echoes Can’t hear at this table Ted Talks – stress of reverberation

Access for PWD

Feedback:

No central place to go to find out where to go or what do when you have (ie give birth) to a child who is sick (a child with a disability) You need to go to so many different sources – ie you need to connect with a therapist, a social worker, etc…. Even now that my child is older, you still need to seek out the information and services Even for individuals whose child become disabled later in life, it is still difficult to navigate the information and services – there is no

central place to go to get information and find out about services Should be a listing of all the resources/services available (centralized listing) OR centralized database – could be electronic (ie web

based) but it would have to be delivered in different formats so that people who are new immigrants, or who were blind, etc…could access the information

Need one path to go down – right now it is very splintered An idea would be a NAVIGATOR to help individuals go down one patch – to access all the right information and services So many activities are not available to PWDs If you want a progressive BC – you have to change the mindset of people – so that you have people wh will take the time to learn how

they can support PWDs Availability of services for PWDs – not enough support In Australia – they give you a lump sum each month and you source your own carers, you pay your own carers/support – hospitals

provide a lot of support and information (if the disability is from birth or a young age) Don’t feel the hospitals in BC provide enough support/information from the beginning In BC you are shuffled from one doctor to another and you are not getting the right information in this setting Feel that the social workers at the Ministry could be a better source of assistance and information – it doesn’t seem that the social

worker has enough knowledge nor provides enough information for families with children/family members with disabilities Social workers could be a potential conduit of information/assistance What would BC look like as the most progressive place in Canada for people and families living with disabilities Can we think outside the box and seek for people with expertise gather together and brainstorm the idea rather than focus on the

techniques that we’ve use (sic) in the past It would be nice that if the citizen can just go and get ideas to assist their children, or support the community rather than running

around to all different agencies Individualize funding network – more infrastructure to support people to choose options For example, when funding is approved to CLBC a client with disability is accessed and approved for X amount of funding – consumer is

able to apply for the funding for client to use best to better improve activity towards independenceVision

Montreal (full rehabilitation training) No supports/aids in BC Other disabilities covered by health services CNIV – 91% funded by charity only

Feedback:

Life skills should be covered by health services Initiative assisted technology – shouldn’t be just for employment/SIB volunteer work, student, etc Toronto – 80% funded / Alberta – 50% funded / BC – 0% funded Permanent disability (by disability tax credit) More red tape More money on medication, than rent or food Have a navigator – who you can speak to, to assist you through system everybody has to have full participation we should have systems in place so that Q1 should not be asked we should not be wasting energy into funding we cannot afford to have these people’s lives wasted 90% of moms change their work to accommodate If PWD don’t have family support they are not helped Family members and PWD are not living potential People who are living in poverty are not motivated Survival is difficult with less financial support New definition should be set for PWD so that can achieve success Gov’t limits choice – there is no support for finding work – PWD – clients do not have too much choices – goes into centralized, forms

are difficult, to fill lout, clients/applicants leaving office as they are frustrated with technology so do not get help Human contact is important IA workers – training with PWD $906 – challenge anyone to try and live on this Clients eat every 2nd day We are not treating people with respect Politicians do not have knowledge of how people are surviving – they should be aware of it and they should hire in return EAW for this

FY2012 Annual Report – Mayors Commission for Disabilities We want quality of life, new opportunities for PWD, acceptance of PWD, opportunities Fully engaged citizens – inclusive Maryland – policies that provide education of two concepts

Reasonable accommodations – expect accommodations for living, working Universal design – education system

All communities to have discussions around universal design High schools need to be more accepting, children/teens need to continue learning Support for post-secondary learning

Feedback:

Ministries should be working together No learning component for youth with disabilities, continuity Continuity of services Erosion of services available Services <19yrs, >19yrs Crisis Families without resources, financial, health, childcare, health (sic) Problem is services scattered, convoluted More resource for crisis management More resources for non-crisis times Use human ingenuity to introduce new laws/changes to laws within the federal and provincial governments in regards to civil rights for

PWD Choices for independent living Choices in supportive living Transition planning should begin earlier “patchwork” of services is difficult to navigate, need help to connect to necessary services Parents and families need support, not just institutions Funding needs to get to recipients Need to update educ system, educ teachers so they have skills to work w/diverse classroom Have them complete volunteer work in sector so they have better understanding Modelling behaviours for the children will help the inclusion and make natural when they enter community More time you spend w/PWD the more comfortable you are Hands on training for current teachers so have better understanding (in wheelchair, etc.) Step out of comfort you discover a richer life Not all teachers may be able to handle PWD children in the classroom Legislation says they have the right to be in the class UDL universal design for learning allows greater access to greater # of people Everyone can learn, behaviours are due to person not being engaged It will honor strengths of all people and help others and themselves have greater worth and will go on to be employers and employees

and become productive, empathetic members of society Teachers have many kids, many languages, only so much that children can do No sin in not being involved in mainstream if specialized classes could help them be the best they can be

Why do you think it’s important that we reduce barrier sand increase accessibility for PWD in BC? Right of all to full access

Feedback:

Make sure everyone is entitle to meaningful employment – improves self-esteem, everyone benefits, this would reduce public debt Felt judgement and stigma – important to recognize disability Improve social integration so everyone is more involved Supports in school should be normal eg. augmented device and service dog Curriculum could be adapted to different learning styles Support staff in the filed should be more innovative – remove old school thinking – physiological thinking down from the 70’s to now Have more understanding of disabilities and symptoms Everyone is affected by the diagnosis differently Why are we still asking this question now after all these years? Everyone needs full access to community People don’t find disabilities a “sexy thing” to talk about and people focus on higher profile topics Disability stays forever so maybe people lose interest Social integration is very important Gate keepers are the problems – too many steps to go through These same questions were asked 15 years ago when I was injured and nothing’s changed PWD are the ones able to …. (sic) There needs to be a platform – the personal supports to be able to go meetings/events Gov’t is the biggest barriers – bureaucracy Can prejudge Physical, cost/funding, being isolated (social) Open accessibility/transparency/accountability w/$ with the gov’t Efficiency with tax money Need to get away from the medical modal of disabilities –innovation Look at abilities as opposed to disabilities Impartialization (sic) of different organizations Review of how we spend this money – use what we have and make it better look more at soft management Seamless from birth – process From child to adulthood – needs to be seamless transition Having people know how to access services This is done with the community resources Networking Declaration Put it all in one place Clearing house where there is information/services

Feedback:

Centres where people can get information Accessibility maps – to provide PWD with accessibility in the city – maybe an app Having OT, PT having the ability to fill out forms Navigation and tax incentives for employers to support workers with disabilities Coordination of services/integration/transition Services should be a continuum (not disjointed or siloed) Employment services (prov/fed) Housing and accessibility (prov/fed/municipal/building code, etc) One path to services Maryland state – progressive concepts - universal design, and reasonable accommodations (mostly used in post-secondary, ie. plain

language and concept accessible) Maryland expand that to non profit group Currently no expectations of true learning for PWD in elementary + Everyone (non profit) not working together – in silos (continuity and integration of services needed) No expertise/know how to each properly for progression It’s a crisis, family with resources area able to survive it, but not others No one path/resource to navigate and access services We need to get more creative to identify real job opportunities – real life contributing and meaningful work Impt. To talk about barriers other than physical barriers and increasing accessibility other than physical accessibility Create a friendship centre, a place for PWDs and the homeless to go to Provide a place to go to work and contribute and feel part of the community Persons with mental disabilities cannot find work Innovative programs like “just work” Must be client-centered Need to look at what other jurisdictions are doing in terms of innovations England and Australia have innovative programs to help PWDs find work Ministry services need to accommodate individual needs ex. One on one, face to face services May not need the same person if a file exists, but if very personal issues being discussed then better to have one person Can’t afford to purchase personal supports/aids needed to assist with communication – service needs to be client centered Trouble getting supports and support workers for son that will never call the ministry Need to improve access to technology The system works against families to support the independence of children Ministry policies need to support families to support the independence of children Services need to be more streamlined not spread out all over – one placed to coordinate municipal, provincial and federal services and

supports

Feedback:

Once children turn 19, supports end – parents req’d to provide more support to adult children Need a centre, based in the community, that will advocate on behalf of the family and communicate with all levels of gov’t – what

needs are, less layers, less levels, always told to call 1-800 #s – families are busy, current system too complicated, takes too long to get support and service

Housing, childcare, employment – these are the kinds of needs families need help coordinating – ministries entities unto themselves, communication needs to be more streamlined, like a community liaison worker

Technology ca make the disabled – abled – gov’t can deliver on that Seniors will have to take care of seniors – not enough social workers around – need to train more social workers All 3 levels of gov’t should operate together at the community level Living centre independent, run by people with ideas Person centered remove barriers not (sic) Public policy not having PWD – WorkBC yet nothing for the blind – third party and fails the comm.resources Network this is hot working – end user CNIB and others should be at the table Accessible website – larger print Speak to the computer Was not confident the website worked\ Yes it should have been designed for and mandated Basic medical needs out of reach – living aids – dragon computer General public needs to be informed – should learn about the problems and barriers Access – accommodation – buttons w/braille Research what buildings, etc. are blind accessible Deaf/blind share some same issues Tech is important and access to it, eg. if there was already accessible blog you wouldn’t need research Awareness is a basic starting point- you don’t know a place is not accessible until it’s too late (someone cannot access) Hotel should know People aren’t aware because the current (unreadable) doesn’t consider them (PWDs) Training the builders not just involving PWDs in planning Not enough services/supports for families – even if families were provided the money to source there (sic) own services/supports,

there are not a lot of services available for persons with disabilities, ie. recreation options for children with disabilities Need supports like “access to entertainment”, “BC Ferries”, “disabled person’s identification card” – would be good to have a BC wide

card that was recognized at a multitude of places, ie BC Ferries, movies, transport, etc. that provides cost savings for PWDs and family member who needs to attend to them (less red tape and administrative process to have one card)

Wheelchairs

Feedback:

Gov’t provides a new wheelchair every four years There is no incentive for people to keep their wheelchair for more than four years Would be good to have some flexibility around the funding ie. if you kept your wheelchair for longer, you could get a rebate

for another services It is a waste of money to provide wheelchairs every four years if a person doesn’t need it

One family says school team is quite helpful and supportive in terms of equipment and devices for their son Nurse OT PT Augmented communication Speech therapist

Only 2 authorized dealers for equipment, devices, supports and therefore these dealers have a monopoly and charge and exorbitant price

Should be more authorized dealers who provide equipment, devices, etc. EATI

Program should continue because you can self apply The program is working should not eliminate

Variety Club Kids has the support (sic) but what happens when they turn 19? Maybe open up the program to adult (sic) as well Health supplements – so many steps to get funding – better process Participation model – what is your disability? A worker who assists you and stays w/you like a doctor (better pay for these workers to stay) More supports and assisting with daily activities, shopping, etc. Looking at efficiencies, so much bureaucracy Must pay for aids – care, etc. Cost savings in the end Accessible voting – to independent voting In gov’t they should hire people who have experience to work with PWD EATR (sic) – program to be reintroduced Programs, tools, training, used to be there for PWD by Federal program Program – loan bank – post secondary students They could loan the equipment Now they don’t get the training or time to try out the programs – WorkBC – do not help people who are not job ready

Feedback:

Youth Job Program – interface was not there Students are paid by federal program Provincial program did not support While in classroom, interface needs to be ironed out Disability consultant has been removed and no contact b/t client and specialized services is not there, WorkBC do not have this Job support system – first couple of weeks not enough workers to support this service We need a navigator to show them what they need to get the right info

Loop hearing made available!! “induction loop sytem” High cost ($4-6k basic) for hearing aids – no gov’t subsidies Specially for seniors

Lend an ear program – long waiting list/used hearing aids refurbished WCB – only will help if happened during income

Some private insurance will pay up to $500 once per 5 years Deductible on income tax Hearing loss affects seniors approx. 50% of population Lead to navigate through the SDSI system Child transition into adulthood These not in home program, what do they do for athletics, etc. Nowadays everyone is working for themselves, no big company benefits All extras can be covered by charities however feel gov’t feels these charities can handle so they (gov’t) doesn’t (sic) need to look into

and worry about it Gov’t relying on charities/non-profit to make up the shortfall Gov’t is relying on non-profit to handle what they can’t Constant long application forms and hoops to go through Already feel rejected from the gov’t from the beginning Constant hoops, constant denials before anything gets approved Long term to get approval and during process child has grown – when finally approved child has outgrown original request Takes too long to go through processes and by the time approved child may be gone or have new issues Disconnect from child into adulthood Parents need help as to future planning with PWD lives Gov’t possible to support individuals or employers in hiring PWD employees Gov’t confusing as to process at (sic) children making money Weak support system from schools, drs as to future planning Where is the line as to getting help with funds as to where you live

Feedback:

BC Housing long wait list Gov’t not keeping up with demand at PWD needs Needs to be better education towards PWD needs – educate the public, children, school – public in general Communities need to be educated Seniors get withdrawn from social events when hard of hearing – reason to have hearing aids so those who need them can attend local

events with confidence Demonstrate to public the benefits of hearing loss Intervention needed and be made readily available when in need People withdraw from society often end up with dementia (sic) due to not being active State of Maryland – tax reductions for work expenses to support employers of employees with disabilities Leisure passes for PWD and their care aids/escorts Tax breaks for employees with disabilities – to access necessary work/employment supports Need for provincial and federal incentives for PWD Coordination of services for individuals – too much crossover between ministries, federal, provincial, etc Elections interrupt continuity of services Lack of mental health services for children, youth, adults except when the situation is acute How do you get services? How do you access services? More opportunities Expand on existing services Support for current programs should continue where they are working CSIL should be provincially expanded not administered discretionally by regional health authority Individualized funding should be law Fundamental changes to the concept of autonomy Requirements of PWD designation may be in conflict with what is asked of clients after (ie. “assistance w/daily living activities vs. being

employable”) Changes should be legislated Funding for technology in assistive devices, iPads Incentives for employers to accommodate Unions need to be educated as well as employers Dignity in work and participation Create jobs based on a person’s skills and abilities Individual services over just group services (not everyone fits in the same box) Accessibility to innovative technology

Feedback:

Financial needs of individuals should be addressed Network of peer support workers Support to hire and train support workers Vocational training in school for peer support Financial supports or incentives for support workers Finding funding is difficult Education for employers and authority on duty to accommodate Government has to lead by example Having scooter changed life to be independent, pd for by MS Society took 1 year to be approved, huge difference Access to parks (no steps) let’s do it right the first time Universal design of architecture – change building codes to have universal access, flat level entry Safety issues (fire exit) not addressed Cheaper to start than to retrofit Inclusion, independence, improves health, more part of the community, mental health improves Fire doors aren’t currently wheelchair friendly Was only approved for one door @ schools 42 inch doors meant little more indep. made life easier Wheelchairs and scooters don’t currently have to wear helmets and should be reviewed, only vehicle not req’d to have helmet and not

safe if in traffic Should be coached on how to use it, similar to drivers ed. Course for scooters and power chairs Given communication device but minimal instruction on how to use (1 hr) so cannot use/program so limiting personal ability to

communicate Family feels like barrier as don’t have the access to training and training isn’t offered when good time for client The big blue swing that for PWD kids @ park is always kids’ favorite so why just have one, why not just have all swings same? It’s specific to the person’s disabilities Too long to wait for devices Personal device – I have a tape recorder and some people have problems with me bringing the tape recorder – has to be recognized

that I need the tape recorder for my disability Any personal support, aid or device needed for the person is necessary for the person Need better general education to the public and public needs to understand why these supports, devices are needed so it will be more

accepted in society eg. employers need to learn these are needed These supports , aids and devices should be seen as being normal in society What out of the box ideas are out there? – advertising CLBC workers can do better job at listening and accept that it is necessary, trust that the person needs it – trusting and honouring the

Feedback:

request There were no supports or help with transitioning from high school – did not get any help – websites were poor Owing (sic) a personal computer and phone changed my life and any PWD to move freely should have one Need more accessible info and help with transition from high school Personal supports network Equipment – not covered by gov’t Quality of life aids – not just what min. offers Provide resources/aids Not being rigid Flexible EATI – restore funds One to one support MCFD reducing support What is the goal? Increase the time limits not just limit it to 6 months Retaining staff Increase/individual supports to participate Efficiency in spending money – spending money when need not just when end of budget Developments/building codes helps everyone – make them accessible Tax deductions for work expenses Work incentives Assisting employers/employees to support PWDs “Working Poor” tax break where related to work More incentives across governments (fed and prov) Needs coordination of services and seamless to the client Continuity Nothing currently available for mental health What are the services and how do you get them! – it’s the best kept secret RDSPs like RRSPs – should be life long or to a specific age, not just 10 years PWD - $900/month, scooter 7.5 years old, replacement cost $5000 – no aid to help replace vehicle from MSDSI Clear Not eligible for wage – teach me the program if not on PWD Not threaten No control over Pro-support saves money

Feedback:

Tech support should be available Universal Can’t be system centered No institution Transform home support – save $, cost increase lives (sic) A fair assessment Individual choices on what the needs are No cuts down the road for the supports Individual like the Swedish system Have own hone workers Security of support Adequate support for all activities of life – personal care, housework, ventilation care, catheter care, assistance for work, social

recreation, education Support consistent w/UN convention on Rights of PWDs Fair assessment – functional, provincial not local, independent appeal Individualized funding like Swedish system 3 options

Hire own worker 60 thru user coop or independent living centre 60 through agencies of choice

Security of support Support can’t be reduced unless can demonstrate condition has improved No fee to PWD No institutions – only community living Transform housing – everyone belongs Visitability (sic)

Stair free entrance Wider doors Bathroom accessible

Inclusivity Reduce segregation All part society (sic)

Low cost, huge benefits Housing subsidy

Feedback:

Accessibility Adding ramps, etc. to….(sic) No docs do house calls so cost $100 for every doc visit for ambulance to take him Centralized resource to access personal support (not just website) Cohesive place to find all the links – being able to take advantage of the knowledge of those who have been there before (roadmap) Rural/urban issues – rural has v. little supports Take the table and add links & get technology for PWD students – where do you find out Apply for student grant for PWD – links to other programs if you check the box Flexibility of programs to tailor supports to spec. nee Being proactive Would be good to have a central clearing place – where people in a community could put there (sic) name forward to spend time with

PWD Could do criminal record checks which would allow able bodies individuals (who volunteered) to spend time with PWDs in a social

setting Microboards The disability kids social network is dependane4 on the parents How about the disability child able to pair with a volunteer mentor? Maybe have volunteer resource centre in each city Volunteer mentor could be from school coop program in university or college – for example speech therapist, social worker, child

autism psychologist CNIB – more supports for recreational activities – no more - funding cut – even though it was from charities Limits on funding – taking exercise courses, pottery classes etc., more funding Helps mental health More choices on programing – should not be limited Compass card – for PWDs will have to go to places to load cards People with mental health – peer support training – room to expand to other people Transition to leave supportive child care extremely scary – where’s the help Very skeptical Professionals and one to one contact worked best to support parents Parents to get help with direction IDP cut off at age 3 – need a better transition what to do after that cut-off Parent now on their own at that stage – maybe continue the support care however add stages – supportive child care while child in

school stays Continue access to IDP (after school care) when not working

Feedback:

After school care/ministry still offers however due to PWD and child not up to requirements so now excluded Eg. 8 yr old has an aid to go to summer programs however 8 yr old not able to be with the average 8 year old activities - would be great

for child to go to a program that suits them and their needs Parents and children need to be properly diagnosed as may are getting missed at early age – if teacher/school was properly education

they would be able to see and help the child at the beginning states – if child had been properly diagnosed then they would have had an aid etc. to help them

Booklet needed to educate People making decisions need to be made aware of barriers and be educated as to what family etc. going through Travelling medical record Special needs designation card Hard to know what’s there to help, hard to know what’s available for them Better education in schools Hard for adults with needs to get around when not on assistance Support child care Program pays adult parents when having to look after your child rather than paying an aid etc. Parents who decide they cannot work due to loo9king after their children may get some type of subsicising so they may look after child

as needed Gov’t has to listen to noise, gov’t needs to be made aware Building codes to accommodate PWD needs to be made mandatory Facilitate more planning Apps to communicate in a more effective way Kids/people can use technology The bar is too low! More ways to support people to find individualized services Dealing with real people Evaluations every 5 years Ongoing communication People with special needs want what everyone wants Online safety for PWD esp. developmental disabilities Educate PWD to use social networks safely Online safety net missing Risk involved in social networks Loneliness/isolation/lack of connection is a huge problem for PWD Community centres

Feedback:

YWCA Universal design – everything is aimed to everyone’s needs Support for self-advocacy Too many agencies When do kids/youth become self advocates PWD mentoring other PWD Peer advocates Mentoring – meaningful, purposeful Evolution of services Self advocacy skills should be a part of a transition plan Networking btwn PWD Online network/blog to bring people together A critical mass is req’d

Highlights: Continuity of services Secure funding required PWD are not heard Universal design – physical environment, social environment Models for increasing community networks and housing need to be updated Local store tried employment but didn’t work out but came to agreement and resulted in him being known in store, got uniform, lead

to community involvement Benefit to person by giving purpose and meaning Can’t claim tax benefits for spouses, disincentive to be married, etc. Lots of charities where only certain percent goes to actual charity cause If we can identify social networks then we can allocate funds to them to help those with disabilities Creating a coop style living so that we can be supported Dollar matching – if federal and provincial governments will match social groups that assist those with disabilities Interfit – match those who are physically able to those who may have physical disability to do activities eg. hiking, camping, etc. – great

example Have common interest groups Are there outlets in place or groups which can facilitate these social, community groups such as Interfit Bring together those that have common interests Provincial funding to be given cities, eg. community groups to run programs for those with disabilities Community recreation programs could have goal to have for example 5 PWD to join a particular program

Feedback:

Make funding more accessible to community based programs Funding should be grandfathered – if approved before then should be approved again Can have reps come and see the programs Seems to be most funding goes to a few high profile groups and smaller groups don’t get anything Education system is the biggest possible thing Inclusion Out in the community/make PWD visible Individualize learning Continue support from school to/onwards Expansion of HandiDART/taxi Transportation More funding Ability to use taxes for transportation Everyone needs to be included and put that effort in now at an early age More support for ppl w/mental illness Steady the money – having HandiDART cost less money than taxi HandiDART – trained CANADA ranks – the lowest developing programs w/PWD in increasing inclusion ie. youth for summertime There needs to be a review of how we spend the money ie. community care vs. hospital Matching experience with policy Create apps to support PWD social networking and build tech learning into PWD programs Ongoing communication/transition and assessment of services in increments ie. 5 Year plans, not life long (too overwhelming) Education needed for safety ie. education around chat lines, etc. Human contact is needed Community centres are still generic – community oriented – aim at inclusion; accessible environments Support for self-advocacy (via education, knowing one’s disability, etc.), mentorship You get “agency-ed” out as a parent of a child with disabilities Using devices to help communicate (ie. email, blog, etc. where someone has challenges verbalizing for self advocacy) WorkBC (sucks) Failure Personal support centre Not client driven Duplication/bureaucratic Pay on per source basis

Feedback:

All work is valued Nature and form of work Full time/part time, coop All work is valued The nature and form and work Wage structure What are your goals for work and education Not sure Like to work with people, social work Going to school to be an ASL leader There’s not ASL program here now for me to become a leader I applied to Gallaudet Univ. but expensive I’ll try next year Important for gov’t to give funds for deaf people to attend Gallaudet, unfortunately no funds Families with deaf children have to fight for grant money for deaf children No deaf oriented post-secondary schools here You recently took the test, the entrance test for Gallaudet and did very very well so he’s in just need money now Gallaudet is a fully deaf environment I just want to talk a bit about barriers I have low vision, often need a support worker with me – I actually work as a community support worker for other adults Really difficult to find a job that matches my skills I can’t get a driver’s license I have to depend on transit to get to work My sons has Asperger’s

Multilayered Social iss. Anxiety 20 yrs old but 15 or 16 yrs developmentally

WorkBC – one umbrella front line person, didn’t have any understanding of disability and invisible disabilities WorkBC – inadequate for PWD – remember invisible disabilities - receptionist didn’t have skill to serve PWC One umbrella – links in the system Employer – employed autistic people A lot of people with Asperger’s can be attention in one area – a swiss company? (sic) Diff. encounter with ed and emp

Feedback:

Play the game – uncomfortable – no help I had to tape every lectures (sic) then copy it all out – took me twice the time Worked in museum, it was quiet Then family biz I cannot deal with people more than two hours When wanting to go back – flower arrangement? Not my thing What can I do that doesn’t require hearing We can be as good as anyone else Right now I can’t hear Next time use….(sic) Use to have support agencies – combined them all into WorkBC – huge problem for students WorkBC building – not welcoming – not staff, building Other country – 3% of PWD companies had to hire Opportunities fund – pay is subsidized by the government Government provides employee w/tax credit for aids, devices for employee w/disability Accessible washrooms for employees with disabilities (private developers s/b mandated) Offering skills program for PWDs Too many barriers at the education level (funding, for assistance w/tasks) Business community is never represented at these meetings Interesting to know what barriers employers have Costs connected to hiring PWD Funding should be offered to employers to hire PWD Costs are higher for making the design for buildings to hire PWD – everything has to be designed different Provincial gov’t grant for accessibility tools Education – studies that prove when you hire PWD more stable, less sick, will stay more, making money to spend in community, stays

within – to educate employers HR courses for PWD and how to hire them Hiring process is a huge barrier Customize employment to be created for certain types of disability Employer – have no problem giving interview but when a wheelchair person goes in for an interview, employers mind change – more

gov’t should hire PWD as an employee WorkBC – run programs for 12 weeks and to meet their targets consider employables rather than PWD People are very worried about disclosing whether thy have mental issues – once they get an episode, they are out – WAVE subsidy Some incentive for employer, tax benefit, like wage subsidy program (federal gov’t) – have part time jobs created

Feedback:

Encourage people to become entrepreneurs to sell bath bombs, popcorn, etc. but usually family help them Mentorship should be encouraged – job coach so that they could be encouraged Employer support should be there so that they call if something goes wrong PWD are left out/looked over by employers There is a lot of fear of the unknown A lot of community development is needed Community development/education WorkBC is not working for PWD Employment programs for PWD have been cut Turnover in staff offering services Underfunding for services needed for PWD Need to get more creative with real job opportunities for PWD – “real pay for real, meaningful work” Some programs that were working rally well are no longer funded – programs are not protected No legislation protecting a minimum amount of funding for education/training for PWD Service continuity “ticket to work program” – Maryland Funding to support work search Employer network for employers willing to hire PWD There is a need for provincial and federal tax incentives for employers of PWD Continuity of services Funding cuts to agencies that support PWD One stop shop for all needs Services/agencies scattered Patchwork quilt of services Brain injury so not ‘allowed’ to work, volunteers as adaptive instructor – he was included in program as user and now as instructor on

volunteer basis Make adaptive program for everyone Very rewarding program Need to get communication out Resource centre w/available programs – Interfit on NorthShore, Disability foundation Sean Sullivan, need more volunteers University could be using students as volunteers Match the students w/families that need assistance Barrier to getting PWD is employer not being flexible enough Disincentives tax benefits, family members giving care cannot claim tax saver benefit but hire someone you can

Feedback:

The income allowance doesn’t encourage PWD to work, its deceptive because lose medical benefits, lose subsidized housing, lose pharmacare so encourages people to stay home and in turn remain isolated

Best buddies program Even if persons employed they still are isolated so start peer partnerships so people included work environment Put incentives in place for employers and existing employees eg. if employee becomes mentor for someone with disabilities can get

extra $5 per hour Put money in place for employers who are willing to give those with disabilities training Owndership, support, system in place would occur PWD earning exemption should be increased as still not on par with Alberta and Ontario Increase PWD rates to be brought in par with other provinces with same economic outcast and population eg. Alberta My son has been waiting months for a job coach Not a lot of resources or advertising to find these problems Need a central recourse bank Too many people standing in the way of accessing resources Way too much bureaucracy After 2 years still no success with job coach Can’t just throw money at something and hope it works – need to manage it – check and measures need to be in place so agencies do

a good job Employers no ready to welcome PWD No amount of job coach work will change the employer’s perception 14 years ago was unemployed, went to HRDC and it helped – now it’s run by federal gov’t PWD make great employees, bring a lot to work/business Offer The supports need to be in place to gain the skills WorkBC site/changes and the cuts to WorkBC Not functioning 18% should be broken down - the gov’t isn’t providing us with the information – there is mild and serve (sic) – providing services

accordingly Inclusive school – if they weren’t put in separate schools, they will learn what they are good at Also other people can learn from PWD – peers can see what it looks like and how it can be overcome Having individual supports/training program Having dignity/equal rights/ability to access services Preserving dignity 18% of PWD – the breakdown and providing services accordingly

Feedback:

For parents – with more supports have the ability to work List of employers that hire PWD The gov’t should be setting an example Setting a standard of hiring Medical benefits prevent employers from hiring – get MSO status to reduce the barriers of employers to reduce medical costs To have access need to have the ability If red ribbons were removed employers would hire more PWD are not taken seriously for employment Educating employers to make the ‘unknown’, known around what is needed to support PWD employment WorkBC is not working for PWD; focus right now, for the year, on PWD employment services

A lot of expertise was lost Capital was built up, but lost through the loss of…(sic) Under funded for what is truly needed

Education Some programs that worked very wall had funding cut Pushed down to schools, etc. Don’t have America’s Legislation Act (or similar) to protect a minimum amount of funding allocated to disability funding/education “ticket to work program” tax break for employers @ employee PWD (sic) Prov/fed tax breaks need to be increased/expanded to encourage and support hiring PWD Have to go to numerous agencies, fill out numerous forms to access services Patchwork to access services, not a path – create a path! Give people a change – PWD only good for volunteering, doesn’t help financially Need more employment programs\ Not enough job developers to help PWDs to provide job coaching and educate employers on accommodation Employers need to be educated – they can do lots of jobs Need follow up, support for young adults transitioning from high school to work – need consistent support – companies should be

forced to hire PWDs in their workplace PWDs should be allowed to volunteer and receive wages from the ministry, compensation Through tax policies encourage or compel companies to hire PWDs BC needs a disabilities act to ensure PWDs have access to the same services and supports as everyone Need more individualized services, client –centered, not what the ministry wants Transportation accessibility a big issue on the North Shore Ministry – get your act together, work with the mayors and put together a well-functioning and accessible transportation system Back in Motion has two clients waiting for job development services

Feedback:

Ministries don’t talk to each other – soiled – sense of pride if work independently – ex. Ministry of Transportation doesn’t even think about disability issues, Ministry of Transportation new bus pass must be tapped out – difficult for PWDs

Not enough HandiDARTS – can be left waiting for hours for the next one Some bus drivers won’t put ramp down for persons with a wheelchair or scooter – some bus drivers are good but more training and

education for bus drivers on the needs of PWDs Transit should have support for bus drivers dealing with issues/conflict dealing w/persons with mental disabilities More education and training for police regarding dealing with persons with mental disabilities Education system needs to do a better job of diagnosing learning and mental disabilities Gov’t needs to make sure services diagnosing learning and mental health disabilities are available Transition planning, aging for life

Solution Wall Posts:

Legislated helmet use for motorized wheelchair road users – are most vulnerable – no more concussionsI love wheelchair people! Just say hi!Health charities provide social service staff to VGH, Surrey Mem. and BC Children’s to support family non-medical issues eg. Muscular Dystrophy Can., BC Epilepsy SocietyBring back fare saversRepresentatives from social assistance, WorkBC, Mental Health agencies and other major agencies providing services to PWD – give regular (eg. 3 times/year) to the public to give info re: services for PWD at various communities agencies where PWD feel comfortable (not hotel or business building that can be threatening to them)EESI – call me – Cindy Frostad 604-926-2922Centralized contact point for resources that’s not discretionaryProvide employment supports, resource centres that have qualified professionals who can assist with workplace modification and/or assistive devices ie. occupational therapists, speech therapists (move away from multiple agencies providing supports through poorly qualified people)Need for navigators to connect to services and walk through processesNeed tax relief for spousal supportResurrect EATIIncrease funding to hire more community workers who can give in person supportLegislate employers over a certain size to employ a certain % of PWD in their workplace - % increases as size of employer increasesOffer incentives for companies who exceed targetsThere needs to be help for the technology aids for disability – too expensive , low incomes, need to be made affordable

Increase resources at the community level in employmentEducating employers and creating programs that help to hire PWDPromote individualised funding and build resources to support individuals and families to use this model, ie. resource centres around how to hire, schedule, payroll companies, like CeridianCAYA devices old communication equipment, breaks down“work without limits” Massachusetts – strategic plans, market analysis, results, brochures, the whole shebang!Well just it’s better if we get more time with wheelchair peopleSome houses don’t have wheelchair elevators I don’t’ know why some houses do not have elevatorsWe need to work good for wheelchair people so they get better not badder (sic)Just be nice to themWe get better and wheelchair people get betterRollover curbs and no bump outs nationallyWell if we don’t’ reduce the barriers just think about what we’re doing for the PWDs – we’ll be helping them by adding ramps, and lifts in every building not just around BC but in every province around CanadaMention how few people even know about CSILContinue community partnerships (developers, municipal gov’t and foundations) to building housing for PWDLook at services offered in Europe and Britain – BC can do better than that in many ways for the disabled – the US is ahead of us alsoBC building code needs to add acoustical design for buildings, inside and out for HoH and everyone, actually too much noise, hard spaces not good!Volunteer to be part of bus transportation to give assurance and protection for PWD could be part of a community policing systemRaise the PWD rates! Saves $ in the long runThere is confusion between welfare and disability – disabled people feel motivated and funded, eg. Big BrotherBring disability pension above or equal to minimum wageIf you have government services for PWD then have staff in government that have expertise with PWDsHave a provincial building code like the new code from VancouverHelp employers realize hiring PWD is not a disadvantageMore ramps, less curbNeed for legislated rights to accessLegislature, public and others need to be educated to understand what it is like to walk in our shoesAssist Red Cross to expand medical equipment loan programCreate a provincial health action group including all professions in health, consumer, advocate, and gov’t – must work togetherConnecting services to each otherNeed intervention service for deaf blindWe need floating subsidies for housing – stop ghettoizing subsidized housingCAP-TEL needs to be brought to BC and Canada for HoH – USA has its CAPTEL and VRS – VRS also needs to be put in place for deaf – in Europe

– ahead of North AmericaRestaurant require larger print menu, brailleVideo relay service to break com. BarrierPermanent disability cardWe must help those who cannot help themselvesWhen you consult with PWDs pay them for their service, expertise and work – demonstrate you aren’t just using us for free – plus people value what they pay for more than what they get for freeConsider alternative formats for government forms for PWDsLarger print and braille on crosswalksCoordination of services, connecting families at municipal, provincial and federal levelsHearing loops should be installed everywhere – from meeting rooms, to taxis to airports, etc. – England is a good example of hearing accessibility in actionThe system is too difficult to navigate particularly taking into account PWDDon’t force people applying for PWD to sell all assets firstCreate environments where people can age in place where they are known, familiar, and have support systemsChange and enforce bylaws to improve accessibilityAllow people on PWD to save moneyRDSP is a good start but what happens before they turn 60?Hire PWDs within government – PWDs have great skills and opinions and they should be utilized in the decision process and policy makingDon’t force PWDs or acquired disabilities to move to the most expensive city in BC – spread the services throughout the provinceThere needs to be an information package that explains what is available while on PWD – talking to whatever worker answers the phone is not reliable and are often gets different/incorrect informationOffer support to employers to educate and assist in their role in hiring PWDsFund EATIRaise disability ratesAddress the upcoming crisis of loss and subsidies in coopsPublic transport needs to be deemed a scent-free environmentDon’t stop funding programs that work in favour of innovative ideas that start from square oneImproved signage for low vision and blind (braille) in transportation servicesCost of using busies going up but services seem to be getting worseRecognize that PWDs don’t’ all fit in the same box – stop trying to force the person into the system, program, work but rather fit the program around the personGo back to assigned ministry workers – there needs to be a relationship and trust but there must be channels available to change workers if necessaryStop consulting and start doing!

Stop supporting institutionsStreamline and simplify the RDSP processMore signage for tran (sic)For all businesses and non-profit agencies, provide information/education on reasonable accommodations, universal designWebsite that has all resources available by location, age, diagnosis, regularly updated, dedicated gov’t fundingBuild capacity in all health professionals ie. increase # of graduates from all disciplines, allied, nursing and doctorsLarger grants to fund education for PWD – it takes longer to complete a program when you have med. issuesGuide Dog Act – no act in BC for guide dogs or service animalsProvide loop systems in public buildings, meeting grooms, churches, etc. – universal symbol posted!Make evidence based decisions/policy for spending on healthcare – shift from acute to community basedCaregiver assigned when child is born or diagnosed with a disability – marriages continue – life resumes – couples back at workAccessible education for college, university, including post graduate, incl. funds for assistance and access to technology (software and equipment)Extra assistance on buses and other transit for security and safetyPrimary health teams in each community – interprofessional teams to service everyone – GP,RN, OT, PT, SWWe need to change consciousness – start in our schools by creating inclusive high schoolsNo institutionsCovering medical devicesLegislate that employers must have 3% of their work force be PWDsLaw that requires employers to hire 3% - 5% PWDs (UK, Brazil)Full transparency of all funds top to bottomEverybody must have the opportunity and support to meaningfully participate in their own lifeCriteria to measure meaningful – choice, safety, acceptance, accessibility, accommodations made, adapted from Dr. Roberta Woodgate, Winnipeg ManitobaPost secondary education resources targeted/protected for people with DDReview how we are spending money on health – is it effective, efficient?Accessible voting – independent voting for PWDStop making PWD fight bureaucracy for basic needs, housingTake actionNeeds to be a provincial disability act - accountabilityBetter coordination between MCFD and MSD – need seamless system – no more hitting a wall at 19!Accessible bus stops/busses - transitFunding for vision rehabTax breaks for equipment and supplies for employmentAccess/transparency/linking information re: available resources

All gov’t services provide customer services and sensitization and disability confidence trainingMake sure PWD asset limits/bank acct limits are separate from earnings/earning programs“one stop” is not working! We need choices in employment/job assistStigma – old school – understanding of individual’s skills #1 – integration – why are we asking the same questions? immobilityGovernment needs to take action and lead by example – hire PWDs – equip your office with universal designed technologyUniversal designMinistry or body that coordinates all disability – related services across all ministries, and provincial and municipal bordersUniversal design in environment, technology and education s/b a requirementAccessible gov’t websites – websites need to be accessible by screen reading programs for the visually impairedPlanning, planning, planning – professionals individuals and families must share knowledge so transitions will go smoothlyMore housing options to match individuals level of independence that is within the community they liv in that is affordable and safeGovernment responsibility accountability and transparencyReallocate the subsidies currently going to “big oil” to the disabled – much better return on your/our dollar!Allow allied health like OT and PT to compete disability forms in addition to doctorsIt is difficult to present innovative solutions when most of have (sic) been struggling for years to achieve the obvious solutionsPWD funding is not sufficient and does not consider market rates and inflationFrom day one individual or family should have access to a navigator – if disability happens at birth need to meet with this person before being home from hospitalDisability legislation so we can be proactive and not have to retrofitUniversal standards for sidewalks (no poles in the middle of sidewalks!) – pedestrian signals – universal std for all buildingsMore direct employment courses for disabled individual to give them the skills required by employers to do their jobsEATI program must continue to be funded!Individualized funding giving direct funds to the PWD instead of the service group/businessCanadians with Disabilities Act – like USACentralized resource database to locate all resources available to PWDsRe: physical accessibility check out plan@.com to rate various elements of accessibility (phone app) developed by Rick Hanson FoundationIncentives to be given by Gov’t to families to get more supported housing for disabled adultsProvincial support for accessible library!Subsidies for family members – more included to stay – may be more cost effective – increased securityBraille and large print menus at restaurantsHub library services for Canadians with print disabilitiesAs an adult, when services become more fragmented the individual needs to have a travelling medical recordChange our language when we refer to PWD – no longer use the word “handicapped” or “disabled” instead use accessible - “accessible parking”Once a person has perm. Disability status, no more red tape – make it easier to access all services across all ministries

Cutting Red Tape:

Employer incentives to innovate!Do not make PWD travel to 3 locations to fill out one form to access funding for an orthosis (sic) for which their doctor has already prescribed for them Make it easier for employers to apply for incentives to hire – user friendlyOnce a person qualifies for “permanent disability status” stop making them fill in forms – it should automatically approve them for funding across ministriesAuthorize registered dietician to give written confirmation for all nutritional/supplement programs – to expedite approval have dietician consultant I MSDI to coordinate an evaluate applications Stop talking, get shit done!Graduate in their second language and not their first language of ASLUsing ASL and not English – ASL is not a recognized language for education in BC so our deaf children have to…(sic)ASL needs to be a recognized language and children should be able to graduateI have to see a lawyer to prove my disability?Family liaison office – streamline their needs from communities to prov gov’t – in each municipality as local city hall – to work w/families to address their issues w/a family member who has mental physical emotional or developmental disabilities I was relieved when I was shown how to report IF online – after 1.5 years CLBC audited us! I had to dig up years of proof!Centralized information and central contact to assist in navigating systems, services, funding etc., and advocacyPension equality – PWD = 906ish? (sic) old age pension = ? refugee funding = ? political pensions = ?Funding for devices for pleasure – daisy players for people with print disability – lift for recliner in living room not just bedroom to bathWhy are we asking the same questions?Don’t cut programs that are working to bring people together sociallyBeing accessible brings touristsCheck out Maryland’s “ticket to work” program/employer network – ‘user friendly’ tax break for employers hiring PWDOur MCFD social worker and the dept. manager are only somewhat better than useless – get MCFD to provide services and info to familiesHave people available to fill in simple forms – not everyone has access to a computer or knows how to use themI am using all a very large chunk of respite hrs. to come to all these meetings for change….I need to go to the dentist, get a haircut, spend time with my other childrenA dedicated Asperger’s syndrome society to advocate their unique needsStop the new MCFD 6 mos. Max service limits – making families reapply every 6 months is creating red tape for no reasonA specialized PWD worker in each office that is a consistent, knowledgeable, positive presenceCut red tape with belter communication between departments in government

No claw backs – why keep them down?Have a navigator help PWDCLBC is a huge waste of money – too many layers of bureaucracyForms, forms, forms – trust the doctor – rely on the requests/approvals of doctors and health professionals for services the families (I) need!People from Victoria meet with people that are using the programs services face to face contactHave a worker at every office be available at all times for PWD instead to call/go on a computerAllow RDSP qualifications to go beyond age 50 – why not 65?Transportation improvement structure for PWFDI can cut administrative paperwork by 90% - EESIMandatory volunteer work I special needs sector for all – policy makers, administrators, educators, physiciansJust say Hi!It’s goodVirtual navigator one that is consistent (people change not good)