United Nations Economic Commission for Europe Statistical Division Sources of Disability Data Angela...
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Transcript of United Nations Economic Commission for Europe Statistical Division Sources of Disability Data Angela...
United Nations Economic Commission for EuropeStatistical DivisionUnited Nations Economic Commission for EuropeStatistical Division
Sources of Disability Data
Angela Me, Chief Social and Demographic Statistics Section
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 2
An example of populations with disability
Body Functions and Structure Limitations
Activity limitations
Participation restrictions
Visual impairment
Hearing impairment
Working disability/Benefits
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 3
Counting/Identifying the different population groups
What statistical sources can we use to identify and count the different population groups?
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 4
Only limited forms of disabilities can be identified using administrative registers
Body Functions and Structure Limitations
Activity limitations
Participation restrictions
Severe impairments
Working disability/Benefits
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 5
Only limited forms of disabilities can be identified using administrative registers
Body Functions and Structure Limitations
Activity limitations
Participation restrictions
Severe impairments
Working disability/Benefits
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 6
Counting/Identifying the different population groups
• Some of the body functions and structure limitations can be measured through administrative registers
• Activity limitations and participation restrictions can be accurately measured only through population-based methods (household surveys and population censuses) because they can assess the individual’s functioning as a whole person, as opposed to those function and structure of his/her body parts which may not be relevant for administrative purposes
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 7
Counting/Identifying the different population groups
• In principle, population-based data methods can identify people according to all the ICF domains because they can measure the individual’s experience of the disability process in all its components
• The more population groups we want to identify, more information we need to collect in the data collection methods
• Not all population-based methods can identify all the relevant populations
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 8
Population-based data collection
• Population census
• Specialized disability surveys
• Other household surveys
• Health examination surveys
Each of these data sources can identify all or only some of the population groups relevant for studying disability
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 9
Population Census
No history in Central Asia in the collection of disability data through the census
BUT
Long tradition in other parts of the world
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 10
Population Census
Source: Archives of the 1811 Census, General Register Office of Scotland
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 11
Population Census
Source: Archives of the 1811 Census, General Register Office of Scotland
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 12
Population Census
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- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 13
Population Census
Advantages
Provide data for small areas and small population groups
Data are not affected by sampling errors Comparison between persons with and without
disabilities can be done for education, employment and other relevant characteristics collected in the census
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 14
Population CensusLimitations
Only short/simple questions can be included therefore it can identify only one population group relevant for disability (one ICF domain)
Only basic socio-demographic characteristics for people with disability can be collected
Often institutionalized population are covered only through a short questionnaire
It is very costly Extend use of proxy Disability has low priority – limited training Data only every 10 years
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 15
Population Census
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 16
Population Census
Countries with similar statistical systems existing in Central Asia used the census to collect data on disability:
Bulgaria Estonia Hungary Lithuania Poland
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 17
Population Census
Why is it used in many countries to collect disability data?
For some countries it is the ONLY source of information
For some countries it is a complementary source to provide disability data for small areas/population groups
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 18
Population Census
Disability is a non-core topic in the Conference of European Statisticians Recommendations Recommendations for the 2010 Census Round
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 19
Population Census
In very few countries it is used to screen for a follow-up specialized survey (Canada)
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 20
Household Surveys
Specialized disability surveys Other surveys (disability modules)
Health Interview Survey Living Standard Measurement Survey Labour Force Surveys, Victimization
surveys Multi-purpose surveys
Examination surveys
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 21
Household Surveys
Source: Tajikistan LSMS 2003
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 22
Household Surveys
Source: Kyrgyzstan LSMS 1993
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 23
Household Surveys
Source: Kyrgyzstan LSMS 1998
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 24
Household Surveys
Advantages
Greater flexibility in the depth and range of topics
Greater flexibility in designing a proper module to identify persons with disabilities
If existing in the statistical plan, they are easier to use by including a disability module
Greater control over the conditions of observation and the interview, better training
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 25
Household Surveys
Limitations
Limited ability to analyze prevalence rates for local areas/small population groups
Often populations in unusual circumstances, such as institutionalized persons, homeless, refugees or nomadic populations, are not covered
Greater control over the conditions of observation and the interview, better training
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 26
Household Surveys
Potentially, specialized disability surveys are the most comprehensive tools to describe the disability process since they can implement the most extensive modules. They can identify the disability experience according to all the ICF domains and they can collect the most extensive set of information on the persons with disabilities
On-going surveys (like censuses) have the advantage of providing information to compare people with and without disabilities but have the disadvantage of employing short measures/questions and therefore limiting the identification of persons with disabilities to one domain
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 27
Household Surveys
However, the group of persons with disabilities that can be identified depends on the instrument/questions used more than on the source
Bad/narrow questions used in specialized disability surveys identify a narrow process of disability
A good instrument/module included in the census can identify the population with disabilities which goes beyond the people in need for social security and can address relevant policy questions such as the equalization of opportunities
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 28
Disability prevalence rates by data collection methods Source: DISTAT
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1 3 5 7 9 11
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Census
Specialized Survey
On-going Survey
- UNECE Statistical DivisionBishkek, 13-15 December 2006
Slide 29
Household Surveys
Health surveys are also a good source of disability data
Could they be potentially used in Central Asia to improve the disability data currently available?