Unique Respite Care Unique Respite Care Opportunities: Opportunities:

Established Programs andEstablished Programs andWays to Create Your OwnWays to Create Your Own

George Palmer, Frontline MinistriesGeorge Palmer, Frontline Ministries

Gayle Chesley, Ph.D., The Children's Gayle Chesley, Ph.D., The Children's Hospital of PhiladelphiaHospital of Philadelphia

OverviewOverview

Respite care definitionRespite care definition Considerations for a Respite Care Considerations for a Respite Care

ProgramProgram Development of Two Respite Development of Two Respite

Programs:Programs: FrontLine Traumatic Brain Injury FrontLine Traumatic Brain Injury

RetreatsRetreats Camp CraniumCamp Cranium

Your ideasYour ideas

Respite CareRespite Care

Short-term, temporary relief for Short-term, temporary relief for caregiverscaregivers

Another person or group assumes Another person or group assumes caregiving responsibilities for a caregiving responsibilities for a period of timeperiod of time

A change from typical-care A change from typical-care arrangementsarrangements

Can be inside or outside of the homeCan be inside or outside of the home

Respite Care Program Respite Care Program DevelopmentDevelopment

Consider:Consider: Program goalsProgram goals Target populationTarget population LocationLocation ProgrammingProgramming FundraisingFundraising

Example 1: FrontLine Example 1: FrontLine Traumatic Brain Injury Traumatic Brain Injury

RetreatsRetreats Program goalsProgram goals Target populationTarget population LocationLocation ProgrammingProgramming FundraisingFundraising

Example 1: FrontLine Example 1: FrontLine Traumatic Brain Injury Traumatic Brain Injury

RetreatsRetreats Program goalsProgram goals Providing rest, relaxation and renewal for Providing rest, relaxation and renewal for

survivors and family members.survivors and family members. Providing opportunity for networking.Providing opportunity for networking.

Target populationTarget population Survivors, families and friends, spouses, Survivors, families and friends, spouses,

parents, and siblings.parents, and siblings.

Example 1: FrontLine Example 1: FrontLine Traumatic Brain Injury Traumatic Brain Injury

RetreatsRetreats LocationLocation

Camps, private properties, hotels. (be creative)Camps, private properties, hotels. (be creative)

ProgrammingProgramming ““Simple” is good for the family. Simple” is good for the family. Massage therapy, good food prepared for the Massage therapy, good food prepared for the

guest!guest! The “break” in the daily grind is what we focus The “break” in the daily grind is what we focus

on.on.

FundraisingFundraising Local Business, churches, friends and familyLocal Business, churches, friends and family

Example 2: Camp Example 2: Camp CraniumCranium

Program goals:Program goals:

1. An enjoyable, safe experience for children 1. An enjoyable, safe experience for children with brain injury to gain independence away with brain injury to gain independence away from caregiversfrom caregivers

2. A break for caregivers from everyday care 2. A break for caregivers from everyday care demandsdemands

Target population:Target population:

Camp is open to children 6 – 17 with any type Camp is open to children 6 – 17 with any type of of

acquired brain injury; must be medically stableacquired brain injury; must be medically stable

Example 2: Camp Example 2: Camp CraniumCranium

Location:Location:

Central Pennsylvania- MillvilleCentral Pennsylvania- Millville

Camp VictoryCamp Victory

Programming:Programming:

Juggling needs of campers, Juggling needs of campers, parents, and therapistsparents, and therapists

Example 2: Camp Example 2: Camp CraniumCranium

Fundraising:Fundraising: Events, mailings, and websiteEvents, mailings, and website Lessons learned:Lessons learned:

Most challenging aspect of respite care Most challenging aspect of respite care developmentdevelopment

Needs to be a yearlong processNeeds to be a yearlong process Best done with a team rather than a lone Best done with a team rather than a lone

individualindividual

ConclusionConclusion

If opportunities for respite in your If opportunities for respite in your area are lacking, it is possible to area are lacking, it is possible to create your own program!create your own program!

Be prepared for hardwork, Be prepared for hardwork, roadblocks, and unanticipated roadblocks, and unanticipated challengeschallenges

Build a team who is committed to Build a team who is committed to the goalthe goal

Your IdeasYour Ideas

Please share with the group:Please share with the group: Your knowledge of any existing Your knowledge of any existing

respite care programs in respite care programs in Pennsylvania and beyondPennsylvania and beyond

Your ideas for needed respite Your ideas for needed respite programsprograms