Translating vision and strategies into the real world: community perspective
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Transcript of Translating vision and strategies into the real world: community perspective
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Translating vision and strategies into the real
world: community perspective
Lihle Dlamini (Treatment Action Campaign, South Africa)
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INTRODUCTION Civil society
organisation 10 December 1998
(Human Rights day) SA based in 7/9
provinces with over 53 Accredited branches (Support groups)
Programmes-PTL, CHA and PCR
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STRATEGIES USED: Policy, communications and research Treatment literacy Community mobilisation Media Demonstrations (pickets, night vigils,
marches, sit-ins) Litigation
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HOW WE DO TREATMENT LITERACY
Taking science into communities and support groupsHIV lifecycleART regimens, benefits and side effects PreventionsCommunity education
Drug lawsTrips and patentsDrug pricing- genericsFixed dose combinations
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TREATMENT LITERACY TRAINING WORKSHOPS
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COMMUNITY MOBILISATION Education
Support groups Churches Faith based
organisation Traditional healers NGOs Schools ClinicsDoor to door, ET and pamphlet distribution
Partnerships Clinics (clinic
committees) Civil society
organisations Traditional leaders Media Ward councillors AIDS councils Researchers Health care workers
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COMMUNITY MOBILISATION
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STUDYING THE LAW South African constitution sec 27:Health care, food, water and social security(1) Everyone has the right to have access to-
(a) Health care services, including reproductive health care;
(b) Sufficient food and water, and(c) Social security, including, if they are unable to
support themselves and their dependants, appropriate social assistance
(2) The state must take reasonable legislative and other measures, within its available resources, to achieve the progressive realization of each of these rights; and
(3) No one may be refused emergency medical treatment.
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STUDYING THE LAW CONT… National Health Act Promotion of Administrative Justice Act
(PAJA) Public Finance Management Act (PFMA) Promotion of Access to Information Act
(PAIA) Patent Laws
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FIGHTING DENIALISM AND FALSE CURES
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PLHIV DEMANDING ACCESS Closer health care
facilities Access to ART e.g.
PMTCT/ Rx plan Policy engagement
– SANAC Rx for OIs e.g.
Fluconazole-Amphotericin B
Reproductive health rights
HPTN 052 study resultsEarly treatment Importance of
adherence
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CHALLENGING PHARMACEUTICAL COMPANIES
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CHALLENGING OUR GOVERNMENT
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CHALLENGING OUR GOVERNMENT
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POLICY COMMUNICATIONS AND RESEARCH
Equal treatment
District newsletters Letters to individuals, departments and
companies Petitions Outside electronic and print media South African National AIDS Council -
NSP
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LITIGATING PMTCT case Annexure A of the Rx plan Westville inmates SASFU- Defence force Rath case
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LITIGATING
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RESULTS Adherence Prolonged lives Healthy lifestyles- “back to work” Knowing PLHIV and health rights Reduced drug prices Generic drug production Change in political will (Zuma & Motsoaledi) Addressing the health systems National strategic plan 1.4 million people on ART 12 million tested in 1 yr (i.4 mil +)
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THE RESULTS
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ACKNOWLEDGEMENTS Partners Researchers Health care workers Funders TAC staff Media TAC Volunteers
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BUT STILL … Better Rx regimens and FDC TB/HIV integration Early treatment Combating stigma Supporting recently diagnosed people Role in prevention Funding Challenge the EU trade laws
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BUT STILL … GLOBAL FUND
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THANK YOU…