to be or not to be Autism
99
To be or not to be
-
Upload
intervention9449 -
Category
Education
-
view
168 -
download
2
description
presentation that questions the reality of providing services for children with autism as oppose to families with developmental disabilties
Transcript of to be or not to be Autism
To be or not to be
That is the ?Famous
quote from Shakespeare - Hamlet
Quote + Autism = Dilemmas
Personal experience Vs Professional
Warning This presentation asks questionsWe can agree to
disagree.
Personal Experience
Yes that is my son . No wife yet
He is 27 years old
He lives with
Autism
Professional Experience
I have worked in Lagos
Most of my professional life
Better known for it's business.
This is Chizzy with Bimbo her therapist.
She lives with Down syndrome
These children & adults live with
developmental disabilities including Autism
19 years service provision.
Training community paediatrics
Trainer - teacch floor time
Portage schemeMakaton vocabulary
systemLecturer and trainer
CDC training centre for special educators
Medical students and physiotherapists
Social entrepeurAn award winning programme
through Lagos state Government.
From early intervention Special OlympicsMaking candles
Functional academicsTraining
AdvocacyRoad show Diagnoses
Tea breakersResource etc
Therapy includesDiagnosis and assessments
Designing programmesCommunicationMulti sensoryHydrotherapy
School supportOutreach programmes
Presently in five statesThrough
We 2 Can Grow
154729000What does this mean to you
Total child population 2009
Child population 0-5 0-14
54053337
Nigeria has 54%
Coverage
Where polio remains higher
on the list
8.2 million children are Out of educational
system
0.2-3% of children receive any services
So many problems
Looking at the big picture
Where do we start
To be or not to be
Slow learners
Intellectual disabilities
Developmental disabilities
Learning disabilities
Autism Mental retardation
Attention Deficit disorders
Mental disabilities
Attention deficit Hyperactive Disorder
TerminologiesHow do we
explain them
Can they be interpreted intoLocal languages
Who identifies what?
Where..........
Physically challenged is a term used to cover all
disabilities .
Or Autism means autosome or auto
parts or auto what ?
Cripple Deaf and Dumb
RetardedSlow leaner
Are still in use.
And could mean anything or Everyone or Everybody.
Did you know In the days of
old.
That anyone not in public service Was refered to
as an idiot
Water, water everywhere not a
drop Drink.
Information
Information
Information Information
Information Information
Information
Information Information
Information
Information
Information
Information
Information
Information
Information
Information Information
Courtesy The Internet
Making information available for
some
Limited for others
And gives higher expectations for
others.
Where........
Everyone is looking for a
speech therapist.
Rather than a team
Or seeing parents as part of the
team.
The focus is Education
Forgetting .....
Health Education
Social welfare Recreation.
That children will become
Adults
Then what ?
Where......
Majority do not receive
Services
Abracadabra
Families who have services
Look for
the "cure".
And continue to shop
Or look for those who tell them what they want to hear.
As professionals
Playing catch up
Services as a breadbasket
Few services
Makes it costly
So many interventions
Eeny, meeny, miny, moe
One size fits all.
• Or does it
Teacch Vs ABAFloor time Vs Lovass
Chelating Vs no immunisation This programme Vs that
program
At present we work in an
unstructured Environment
So I ask againTo be or not to be
Confusion
So what should we
do?
To be or not to be autism
That is stillA question for me
Looking at different ways to help families and their children.
At all levelsMaking the very best Of what is available.
Do we drive autism like a single bus.
How many passengers can we
get into the bus
Leaving out many
Suggestions
Getting bored of the labels.
At the end of the day it is not about just
our children
• Collaboration - partnerships
• Information - that the majority can understand.
• Looking at a broader perspective
• Using what we have to make a better impact.
Catch them young
Mothers as therapistsOr Fathers
Mothers can fill in the gaps to
become therapists
Look at what we can create. When we
collaborate.
Shining bright might bring us to
the attention of the powers that be
That can and will create
Change.
Yes this is my son he is surely loved
