There’s no they will die. prevention. · • Introduced “Nightscout”, aka, “CGM in the...

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Title: Name: Company: Address: Suburb: State: Postcode: Mobile: Email: Please accept my donaon of: (please circle) $100 $50 $25 Other: ¨ Yes, I/we wish to support the work of DANII Foundaon with a monthly giſt of $ per month. Preferred method of payment: (please circle) Credit card Cheque EFT Credit Card: (please circle) AMEX VISA Mastercard Card Number: Expiry: CVV: Name on card: Signature: Cheque: Please make payable to: DANII Foundaon See reverse for contact details EFT: DANII Foundaon Bank: Suncorp Bank Account BSB: 484 799 Account no: 503 202 593 Ref: (Donaon – YOUR SURNAME) Email EFT Donaon Transmissions to [email protected] to receive 100% Tax Deducble Receipt It’s thanks to people like you that we connue invesng in delivering diabetes alert technology, connue educaon and awareness that will assist in the management of type 1 diabetes, and ulmately save lives. Your support makes the world of difference – Thank you! Saving the lives of Type ONE Diabetes A CHILD #isupportdaniifoundation Will not outgrow Type 1 Diabetes. Type 1 is not reversible and Exercise and healthy eating Will not cure it. #isupportdaniifoundation No matter how hard they try as children, or how hard they work as an adult, the blood glucose levels of a person with Type 1 will not truly “stabilise”. Life with type 1 means good days, highs, lows, constant monitoring, insulin dosing, carb counting and adjusting. There’s really no such thing as “under control” #isupportdaniifoundation A person with Type 1 Diabetes must take insulin every day or they will die. No amount of healthy eating, exercise or carefully concocted herbal remedy will ever eliminate the need for insulin. #isupportdaniifoundation There’s no prevention. Nothing the person (or patient) did or did not do could have prevented the onset of Type 1 Diabetes. No amount of healthy eating or exercise can stop the unknown trigger that causes the body to mistakenly attack and destroy the insulin producing cells within the pancreas. DONATION FORM CONTACT US DANII Foundaon 1/111 Wicks Road NORTH RYDE NSW 2113, Australia ABN: 91 157 880 147 Phone: +61 (0) 455 905 904 Email: [email protected] Web: www.danii.org.au

Transcript of There’s no they will die. prevention. · • Introduced “Nightscout”, aka, “CGM in the...

Page 1: There’s no they will die. prevention. · • Introduced “Nightscout”, aka, “CGM in the Cloud” to Australia after contacting US Developer. Nightscout is a DIY system which

Title:

Name:

Company:

Address:

Suburb: State: Postcode:

Mobile: Email:

Please accept my donation of: (please circle)

$100 $50 $25 Other:

¨ Yes, I/we wish to support the work of DANII Foundation with a

monthly gift of $ per month.

Preferred method of payment: (please circle)

Credit card Cheque EFT

Credit Card: (please circle)

AMEX VISA Mastercard

Card Number: Expiry:

CVV: Name on card:

Signature:

Cheque: Please make payable to: DANII Foundation

See reverse for contact details

EFT:

DANII Foundation

Bank: Suncorp Bank Account

BSB: 484 799

Account no: 503 202 593

Ref: (Donation – YOUR SURNAME)

Email EFT Donation Transmissions to [email protected] to receive

100% Tax Deductible Receipt

It’s thanks to people like you that we continue investing in deliveringdiabetes alert technology, continue education and awareness that will assist in the management of type 1 diabetes, and ultimately save lives.

Your support makes the world of difference – Thank you!

Saving the lives of Type ONE Diabetes

A CHILD

#isupportdaniifoundation

Will not outgrowType 1 Diabetes.

Type 1 is not reversible and

Exercise and healthy eating

Will not cure it.

#isupportdaniifoundation

No matter how hard they try as children, or how hard they work as an adult, the blood glucose levels of a person with Type 1 will not truly “stabilise”. Life with type 1 means good days, highs, lows, constant monitoring, insulin dosing, carb counting and adjusting.

There’s reallyno such thing as“under control”

#isupportdaniifoundation

A person with Type 1 Diabetesmust take insulin every day or

they will die.No amount of healthy eating,

exercise or carefully concocted

herbal remedy will ever eliminate

the need for insulin.

#isupportdaniifoundation

There’s noprevention.Nothing the person (or patient) did or did not do could have prevented the onset of Type 1 Diabetes. No amount of healthy eating or exercise can stop the unknown trigger that causes the body to mistakenly attack and destroy the insulin producing cells within the pancreas.

DONATION FORM

CONTACT US

DANII Foundation

1/111 Wicks Road NORTH RYDE NSW 2113, Australia

ABN: 91 157 880 147

Phone: +61 (0) 455 905 904 Email: [email protected]

Web: www.danii.org.au

Page 2: There’s no they will die. prevention. · • Introduced “Nightscout”, aka, “CGM in the Cloud” to Australia after contacting US Developer. Nightscout is a DIY system which

ABOUT US WHAT WE DO - THE DANII FOUNDATION’S VISION, MISSION AND VALUES ARE:

Established in 2012 by parents Donna and Brian Meads-Barlow, the DANII Foundation was set up as a legacy to their 17 year old daughter Daniella following her sudden passing in 2011 as a result of a night time hypoglycaemic episode - a diabetes complication more widely known as “Dead in Bed” syndrome.

DANII went to bed a happy, healthy teenager, but sometime during the night, her blood glucose levels (BGL’s) fell so low that she became unresponsive and was unable to alert her parents that something was terribly wrong. DANII’s BGL’s fell to such a critically low level that she experienced a seizure, pushing her into a coma, and causing her death – alone and in silence.

On learning that there was technology overseas that could have prevented DANII’s death, her parents knew what they had to do – through their own tragedy, they had to do everything possible to prevent another life being cut short. Through her passing, DANII gave her parents a parting gift – the inspiration to create a lasting legacy in her name and the courage to offer today’s T1D’s the care and safety they need to help them manage their diabetes and in doing so, help them live a normal, long and enjoyable life. This gift is today known as #daniisgift.

I can’t thank the DANII Foundation enough. The CGM scholarship has turned my life around. I no longer feel sick all the time, depressed and scared. Instead I’m happy, energised and have hope again. Thanks to everyone at the foundation for all your hard work #DANIIsgift - Cait Fry VIC

Thank you DANII Foundation - T1 diabetes for everything you do. Hand on heart I can tell you that the CGM has kept my husband alive countless times ... life would be very different without him and I don’t want anyone to experience that kind of loss if it is preventable. Keep up the incredible work and we are happy to support you in any way we can to ensure that this technology is attached to every T1! - Jenny White NSW

DANII’s principal aims are to raise awareness of potentially fatal hypoglycaemia and hyperglycaemia (DKA), and to deliver globally an affordable alert device to provide support, security and peace of mind for the management of type 1 diabetes (T1D). The Foundation believes this technology – a continuous glucose monitor and alert system, should be readily available and affordable to every single person in Australia, and around the globe living with type ONE diabetes.

The DANII Foundation has established itself as the ‘Face of Type 1 Diabetes’. As a result, the organisation has close contact with many thousands of T1D’s and their families in Australia and around the world. Importantly the organisation has established high levels of trust and is both a leading and credible source of education and support. Key Achievements of the DANII Foundation – EST 2012

“At just 17, she had her whole life before her. Diabetes took that away from her, and it took her away from us.”

As DANII often said:

“Life isn’t about waiting for the storm to pass, it’s about learning to dance in the rain”.

Saving the lives of Type ONE Diabetes

A lively strawberry blonde, year 12 student, DANII had just commenced her HSC and had aspirations of a singing career. Sadly, all her dreams were shattered on November 8th 2011, when her life was suddenly cut short. That spring night, DANII went to bed a happy, beautiful, vibrant 17 year old teenager – and never woke up.

visionmissionvalues To make affordable, life-saving alert technology a

reality for ALL people living with Type ONE diabetesand those insulin dependent. To educate the wider

public and advocate for a Type ONE community.

A world where people with type 1 diabetes live without fear of never waking up.

Innovative, compassionate, inspirational, caring, driven, brave.

Achieved funding as part of the 2016 federal election for lifesaving Continuous Glucose Monitors for those eligible under 21.

• Participated in the Department of Health CGM implementation committee.

• Facilitated a process and subsidised over 1000 people with type 1 diabetes to have access to a 2 week Continuous Glucose Monitor (CGM) trial (i.e. try before you buy). Currently there are 500 T1D’s on the waiting list to trial a CGM.

• Subsidised the purchase of 40 CGM’s for under privileged type 1 diabetic families.

• Introduced “Nightscout”, aka, “CGM in the Cloud” to Australia after contacting US Developer. Nightscout is a DIY system which allows real time access to an insulin pump reading data from web browsers via smartphones, computers, tablets and the Pebble smartwatch. DANII delivered “Nightscout” at the 2015 Jelly Bean Ball.

• Developed and implemented an in-school Type 1 Awareness Program and an on-line hypoglycemia training module to raise awareness.