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    Adaptation & integration of telecare &telehealth into whole systems care:

    the experiences of frontline community

    health & social care professionals

    DR VIRGINIA MACNEILLSenior Research OfficerDepartment of Public HealthUniversity of Oxford

    [email protected] 2010

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    OutlinePart 1DefinitionsBackgroundPolicy context

    Part 2The research study

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    Terminology

    Assistive technology Assistive technologyTelecareTelecareTelehealthTelehealth

    TelemonitoringTelemonitoringTelemedicineTelemedicineSmart homesSmart homesEE--healthhealth

    Remote careRemote care

    All are used interchangeably to describe the All are used interchangeably to describe theremote delivery of health and social careremote delivery of health and social care

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    Ass is tive TechnologyTELEC AR E An emergency service

    Aim: to keep people safeat home

    Electronic sensors and aids

    that make the homeenvironment safer so thatpeople can live at home,independently, for longer.The sensors automaticallyraise the alarm bycontacting control centre and then afamily member,friend, neighbour, or warden (in sheltered housing) or emergency service eg ambulance

    TELEHE A LTH A monitoring service

    Aim: to keep people well at home

    Patients record their vital signs and

    transmit the data to aresponse centre or clinicianscomputer, where it ismonitored againstparameters set by the

    individuals clinician.Evidence that vital signsare outside of normalparameters triggers aresponse.

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    M aking a ca s e for telehealth and telecare

    Throughout most of the world birth rates aredeclining, life expectancies are increasing

    populations are ageing and the prevalence of

    chronic conditions is growing. Almost 1 in 3 of the population, in England suffer from a long-term condition (LTC)

    People less likely to have the support of anextended family

    = a growing need for health and social care

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    Increasing focus on a whole system approachto care, integrating health and social services

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    The need for remote care

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    H owever, the concept of remote health care is not new.H owever, the concept of remote health care is not new.

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    UK Government Policy Context

    Lot s of official report s and recommendation s over the la s t few year s eg:

    Assistive Technology Assistive Technology Independence and WellIndependence and Well- -BeingBeing Audit Commission 2004 Audit Commission 2004

    Building Telecare in EnglandBuilding Telecare in England J uly 2005 J uly 2005

    D H White Paper, Whole System Long Term ConditionsDemonstrators (2006)

    Putting People First ConcordatPutting People First Concordat D ec 2007 D ec 2007

    Transforming Social Independent Living StrategyTransforming Social Independent Living Strategy F eb 2008 F eb 2008

    Building Britains Future /Building a Society for all AgesBuilding Britains Future /Building a Society for all Ages/ Working Together for Older People in Rural Areas/ Working Together for Older People in Rural Areas J une/ J uly 09J une/ J uly 09

    Shaping the Future of Care Together (Green Paper July 2009)Shaping the Future of Care Together (Green Paper July 2009)

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    Part 2

    The Research Study

    (Whole Systems Demonstrator)

    DH White Paper, Wh ole System Long Term ConditionsD emonstrators (2006)

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    The Whole Sy s tem D emon s trator Programme

    Led by the UK Department of H ealth

    Aims to demonstrate whether the use of telecare and/or telehealth technologies allows:

    1. individuals to manage their condition better and improvetheir quality of life

    2. Deliver gains in the integration of service delivery andcost effectiveness of care

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    Whole Sy s tem D emon s trator

    Randomised control trial of 6000 patients in three sites inEngland with embedded qualitative studieswith embedded qualitative studies

    RCTComparison 1: comparing telehealth technology with usual health

    care in 1000 patients with long term conditions *Comparison 2: Compare telecare technology with usual social carein 1000 patients with social care needs.

    Complex LTC

    Chronic heart disease,Chronic obstructive pulmonary disease [COPD]Diabetes 1&2Social care needs

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    WS D Goal sTo what extent the WSD model of care:

    promotes individuals long term well-being andindependence

    improves individuals and their carers quality of life

    improve s the working live s of s taff

    is more cost effective

    is more clinically effective

    Provide an evidence base for future care and technologymodels

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    Co-ordinator role

    Quantitative Qualitative

    Service utili s ation

    Impact on co s ts

    Clinical mea s ure s and patientreported quality of life

    M echani s m s of impact ons ervice u s er outcome s &variation s between s ubgroup s

    Patient, carer & profe ss ionalexperience

    Organi s ational context &implemation proce ss

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    The Oxford team i s part of a con s ortium in charge of the programme evaluation.

    Funding bodyDepartment of H ealth

    R e s earch partner sImperial College LondonKing's FundLSEOxfordManchester

    UCL

    Oxford teamThe experience s of front line profe ss ional s

    delivering telehealth & telecare

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    The WSD interventions

    TelehealthTelehealth

    TelecareTelecare

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    TELEHE A LTH agenda: remote monitoring toprovide appropriate intervention when nece ss ary

    The interventionTelehealth equipment installed in patients homestores the patients clinical information -

    peripherals (eg blood pressure cuff) arephysically connected to it or Bluetooth enabledPatient records vital signs daily using equipmentCommunity nurse monitors patients informationremotely and dailyCommunity nurse acts if patient vital signs areoutside agreed parameters

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    Spirometer measuresvolume of air inhaled &exhaled

    Blood pre ss uremonitor checks bloodpressure.

    Pul s e oximeter measures bloodoxygen levels and/or heart rate.

    Blood glucometer measures bloodsugar level

    Weighing s cale smonitors weight

    Telehealth monitoringequipmentu s ed by patient s

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    Telehealth s ervice delivery arrangement sTelehealth s ervice delivery arrangement s

    The three sites have adoptedThe three sites have adoptedsimilar service models:similar service models:

    Community matron s erviceCommunity matron s ervicecommunity matrons deliver carecommunity matrons deliver careto the T H patients withto the T H patients withmost complex needsmost complex needsbut still keep a caseload of non telehealth patientsbut still keep a caseload of non telehealth patients

    M onitoring s erviceM onitoring s ervice

    telehealth nurses monitor patients whose conditions is less well advanced.telehealth nurses monitor patients whose conditions is less well advanced.The monitoring service varies from site to site but typically a team of nursesThe monitoring service varies from site to site but typically a team of nurseshave telephone contact with the patients; if they observe an exacerbation or have telephone contact with the patients; if they observe an exacerbation or

    A set of unusual reading on the computer screen, they will alert the community A set of unusual reading on the computer screen, they will alert the communitymatron or GP. Thus the patient continues to be managed by the clinicianmatron or GP. Thus the patient continues to be managed by the clinicianresponsible for their care, who also benefits from the T Hresponsible for their care, who also benefits from the T H monitoring tool.monitoring tool.

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    TELEC AR E - agenda: to help people live s afely at home

    The interventionLifelines and movements sensors installed in

    service users homeConnected to a call centre manned by telecare

    operatorsOnce a sensor is triggered, an alert is receivedby the call centreThis generates a response by operator to checkstatus of alert by contacting service user telecare operator then arranges appropriateresponse eg emergency call out

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    Examples of telecare equipment anduses around the home

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    Part 3

    Our Qualitative Study

    (Whole Systems Demonstrator)

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    Our research question(Oxford)

    What are the experiences of health and social

    care professionals and key workers usingtelehealth or telecare and their attitudes towardssustained use?

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    Why qualitative?Why qualitative? A better understanding of provider experiences leads to: A better understanding of provider experiences leads to:more effective interventions that meets patients needsmore effective interventions that meets patients needs

    AN D AN D work processes that are acceptable to the providerswork processes that are acceptable to the providers

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    Some methodological challenge s

    Understanding service delivery arrangements in the 3 sitesUnderstanding service delivery arrangements in the 3 sitesIdentifying key interview participantsIdentifying key interview participantsChanges in delivery structuresChanges in delivery structures

    -- within and between siteswithin and between sites-- and over timeand over time

    Time management and travelTime management and travel

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    Preliminary Finding s

    to follow

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    Adaptation & integration of telecare & Adaptation & integration of telecare &telehealth into whole systems care:telehealth into whole systems care:

    the experiences of frontline communitythe experiences of frontline communityhealth & social care professionalshealth & social care professionals

    DR VIRGINIA MACNEILLDR VIRGINIA MACNEILL

    Senior Research OfficerSenior Research OfficerDepartment of Public HealthDepartment of Public HealthUniversity of OxfordUniversity of Oxford