The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking
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Transcript of The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking
PewInternet.org
The Rise of the e-PatientUnderstanding Social Networks and Online Health
Information Seeking
Lee Rainie, Director, Pew Internet Project5.5.11Institute for Healthcare AdvancementEmail: [email protected]: @Lrainie
The story of e-patients (and netweavers) Trudy and Peter Johnson-Lenz
New social operating system (1):Networked Individualism
• Social networks are more influential• Social networks are differently
composed• Social networks perform different
functions• Social networks are more vivid and
tied to creation of information/media
New social operating system (2):New kinds of patient communities
• Condition/illness centered• Patient centered• Disease posses• Just-in-time, just-like-me peer-to-peer
support groups• Fifth Estate of content contributors
6
Revolution #1 Internet and Broadband
70% 66%
Consequences for info ecosystem
Volume Velocity
Vibrance Valence /Relevance
Consequences for info ecosystem
Explosion of creators and niches
Networked creators among internet users• 62% are social networking site users• 55% share photos• 33% create content tags • 32% contribute rankings and ratings• 30% share personal creations • 26% post comments on sites and blogs• 15% have personal website• 15% are content remixers • 14% are bloggers• 12% use Twitter• 4%-17%??? use location-sharing services
• Empowered and engaged – 61% of all adults get health info online (80% of internet users)
• Participatory e-patients – 60% consume social media; 29% have contributed content
• Crowd-sourced via e-patients: 19% consult rankings/reviews of providers (5% post them); 18% consult reviews of hospitals (4% post them)
• On alert: 14% signed up for alerts
Each of the revolutions has changed health care searches and interactions
(1)
13
Revolution #2 Wireless
Connectivity
Cell phone owners – 85% adults
96% 90% 85%
58%
Urban-84% Suburban-86% Rural-77%
2/22/2011 15
Mobile internet connectors – 57% adults
62% 59% 55%
Urban-60% Suburban-60% Rural-43%
Cell phones as social tools
2/22/2011 17
% of cell owners
• 54% send photo or video • 23% access a social networking
site• 20% watch a video • 15% post a photo/video online • 11% have purchased a product• 11% charitable donation by text • 10% status update service such
as Twitter
85% use cell phones
35% have apps
24% use apps
All adults
May 2010 and Nov 2010 surveys
1 in 4 adults use apps
55% of adults own laptops – up from 30% in 2006
45% of adults own MP3 players – up from 11% in 2005
50% of adults own DVRs – up from 3% in 2002
42% of adults own game consoles
7% of adults own e-book readers - Kindle
7% of adults own tablet computer – iPaddoubled in 6 months
Consequences for info ecosystem
Anywhere Any device
PresencePlace
Any time
Alone together
Mobile reaches a different audience
4 in 10 U.S. adults have used their cell phones to access the internet:
48% of African Americans40% of Latinos31% of whites
1 in 4 U.S. adults used their cell phones for political activities during the 2010 election:
36% of African Americans25% of Latinos and whites
November 2010 survey
• Real-time – 17% use mobile phone for health info; 7% have health apps on handhelds
• Over-represented among young, minorities, urban residents, upper SES
• NO FEMALE/MALE DIFFERENCES
Each of the revolutions has changed health care searches and interactions
(2)
23
Revolution #3Social
Networking
The social networking pop. is diverse
2/22/2011 24
5x
5x
7x5x
Online video
2/22/2011 25
What You Need to Know:• 69% of internet users (half of all US
adults) watch videos online – and not just funny cat videos
• 14% of internet users have uploaded their own video content (up from 8% in 2007); sharing as likely to occur on social networking sites as specialized video sites
• “Last search”: 48% for others; 36% for self; 11% for both
• Read others’ commentaries: 34%• Find others who have same condition: 18%• Get info from social networking site: 11% of SNS
users• Get info from Twitter: 8% of Twitter users
Each of the revolutions has changed health care searches and interactions
(3)
How online searches affect decisions (1)
• 60% of e-patients say the information found online affected a decision about how to treat an illness or condition.
• 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.
• 53% say it lead them to ask a doctor new questions, or to get a second opinion from another doctor.
• 49% say it changed the way they think about diet, exercise, or stress management.
• 38% say it affected a decision about whether to see a doctor.
• 38% say it changed the way they cope with a chronic condition or manage pain.
How online searches affect decisions (2)
June 25, 2010 29
What technology has done to social networks and the role providers can play in them
• Made it possible for experts to become “nodes” in people’s networks that can help them solve problems, make decisions
• Allowed for immediate, spontaneous creation of networks that can include professionals
• Given people a sense that there are more “friends” their networks like professionals whom they can access when they have needs
Where providers are best – 1Accurate diagnosis
Where providers are best – 2Info about prescription drugs
Where providers are best – 3Info about alternative treatments
Where providers are best – 4Recommendations about specialist
Where providers are best – 5Recommendations about a medical facility
Where personal conn. are best – 1Emotional support for dealing with illness
Where personal conn. are best – 2Quick remedy for everyday health issues
Where personal conn. are OK – 3Quick remedy for everyday health issues
What social networks do for patients: Why experts can be “nodes”
• Attention – act as sentries– alerts, social media interventions, pathways through
new influencers• Assessment – act as trusted, smarter companion
– help assess the accuracy of info, timeliness of info, transparency and rigor of info
• Action – act as helpful producers/enablers– help give people outlets for expression, interpretation
of their creations
Good news about new info ecologyHave you or has anyone you know been HELPED by following medical advice or health information found on the internet?
• Major help – 10%• Moderate help – 20% • Minor help – 11%• No help – 50%• Don’t know – 4%
Have you or has anyone you know been HARMED by following medical advice or health information found on the internet?
• Major harm – 1%• Moderate harm – 1%• Minor harm – 1%• No harm – 94%• Don’t know – 3%
41% 3%
Be not afraid