The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking

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PewInternet .org The Rise of the e-Patient Understanding Social Networks and Online Health Information Seeking Lee Rainie, Director, Pew Internet Project 5.5.11 Institute for Healthcare Advancement Email: [email protected] Twitter: @Lrainie

description

Lee Rainie discusses e-patients and their online behavior.

Transcript of The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking

Page 1: The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking

PewInternet.org

The Rise of the e-PatientUnderstanding Social Networks and Online Health

Information Seeking

Lee Rainie, Director, Pew Internet Project5.5.11Institute for Healthcare AdvancementEmail: [email protected]: @Lrainie

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The story of e-patients (and netweavers) Trudy and Peter Johnson-Lenz

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New social operating system (1):Networked Individualism

• Social networks are more influential• Social networks are differently

composed• Social networks perform different

functions• Social networks are more vivid and

tied to creation of information/media

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New social operating system (2):New kinds of patient communities

• Condition/illness centered• Patient centered• Disease posses• Just-in-time, just-like-me peer-to-peer

support groups• Fifth Estate of content contributors

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Revolution #1 Internet and Broadband

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70% 66%

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Consequences for info ecosystem

Volume Velocity

Vibrance Valence /Relevance

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Consequences for info ecosystem

Explosion of creators and niches

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Networked creators among internet users• 62% are social networking site users• 55% share photos• 33% create content tags • 32% contribute rankings and ratings• 30% share personal creations • 26% post comments on sites and blogs• 15% have personal website• 15% are content remixers • 14% are bloggers• 12% use Twitter• 4%-17%??? use location-sharing services

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• Empowered and engaged – 61% of all adults get health info online (80% of internet users)

• Participatory e-patients – 60% consume social media; 29% have contributed content

• Crowd-sourced via e-patients: 19% consult rankings/reviews of providers (5% post them); 18% consult reviews of hospitals (4% post them)

• On alert: 14% signed up for alerts

Each of the revolutions has changed health care searches and interactions

(1)

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Revolution #2 Wireless

Connectivity

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Cell phone owners – 85% adults

96% 90% 85%

58%

Urban-84% Suburban-86% Rural-77%

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2/22/2011 15

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Mobile internet connectors – 57% adults

62% 59% 55%

Urban-60% Suburban-60% Rural-43%

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Cell phones as social tools

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% of cell owners

• 54% send photo or video • 23% access a social networking

site• 20% watch a video • 15% post a photo/video online • 11% have purchased a product• 11% charitable donation by text • 10% status update service such

as Twitter

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85% use cell phones

35% have apps

24% use apps

All adults

May 2010 and Nov 2010 surveys

1 in 4 adults use apps

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55% of adults own laptops – up from 30% in 2006

45% of adults own MP3 players – up from 11% in 2005

50% of adults own DVRs – up from 3% in 2002

42% of adults own game consoles

7% of adults own e-book readers - Kindle

7% of adults own tablet computer – iPaddoubled in 6 months

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Consequences for info ecosystem

Anywhere Any device

PresencePlace

Any time

Alone together

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Mobile reaches a different audience

4 in 10 U.S. adults have used their cell phones to access the internet:

48% of African Americans40% of Latinos31% of whites

1 in 4 U.S. adults used their cell phones for political activities during the 2010 election:

36% of African Americans25% of Latinos and whites

November 2010 survey

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• Real-time – 17% use mobile phone for health info; 7% have health apps on handhelds

• Over-represented among young, minorities, urban residents, upper SES

• NO FEMALE/MALE DIFFERENCES

Each of the revolutions has changed health care searches and interactions

(2)

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Revolution #3Social

Networking

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The social networking pop. is diverse

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5x

5x

7x5x

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Online video

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What You Need to Know:• 69% of internet users (half of all US

adults) watch videos online – and not just funny cat videos

• 14% of internet users have uploaded their own video content (up from 8% in 2007); sharing as likely to occur on social networking sites as specialized video sites

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• “Last search”: 48% for others; 36% for self; 11% for both

• Read others’ commentaries: 34%• Find others who have same condition: 18%• Get info from social networking site: 11% of SNS

users• Get info from Twitter: 8% of Twitter users

Each of the revolutions has changed health care searches and interactions

(3)

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How online searches affect decisions (1)

• 60% of e-patients say the information found online affected a decision about how to treat an illness or condition.

• 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.

• 53% say it lead them to ask a doctor new questions, or to get a second opinion from another doctor.

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• 49% say it changed the way they think about diet, exercise, or stress management.

• 38% say it affected a decision about whether to see a doctor.

• 38% say it changed the way they cope with a chronic condition or manage pain.

How online searches affect decisions (2)

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What technology has done to social networks and the role providers can play in them

• Made it possible for experts to become “nodes” in people’s networks that can help them solve problems, make decisions

• Allowed for immediate, spontaneous creation of networks that can include professionals

• Given people a sense that there are more “friends” their networks like professionals whom they can access when they have needs

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Where providers are best – 1Accurate diagnosis

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Where providers are best – 2Info about prescription drugs

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Where providers are best – 3Info about alternative treatments

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Where providers are best – 4Recommendations about specialist

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Where providers are best – 5Recommendations about a medical facility

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Where personal conn. are best – 1Emotional support for dealing with illness

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Where personal conn. are best – 2Quick remedy for everyday health issues

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Where personal conn. are OK – 3Quick remedy for everyday health issues

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What social networks do for patients: Why experts can be “nodes”

• Attention – act as sentries– alerts, social media interventions, pathways through

new influencers• Assessment – act as trusted, smarter companion

– help assess the accuracy of info, timeliness of info, transparency and rigor of info

• Action – act as helpful producers/enablers– help give people outlets for expression, interpretation

of their creations

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Good news about new info ecologyHave you or has anyone you know been HELPED by following medical advice or health information found on the internet?

• Major help – 10%• Moderate help – 20% • Minor help – 11%• No help – 50%• Don’t know – 4%

Have you or has anyone you know been HARMED by following medical advice or health information found on the internet?

• Major harm – 1%• Moderate harm – 1%• Minor harm – 1%• No harm – 94%• Don’t know – 3%

41% 3%

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Be not afraid