The Most Powerful Weapon Against Asthma Is Education

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Marisela Robles, MS Katrina Kubicek, MA Michele D. Kipke, PhD SC Clinical and Translational Science Institute and Childrens Hospital Los Angeles Neal Richman, PhD Saba Firoozi, MPH BREATHE California of Los Angeles County Charlene Chen, MHS Hannah Valino, MPH COPE Health Solutions AFTER-SCHOOL SETTINGS AS A METHOD OF ADDRESSING ASTHMA MANAGEMENT AND PREVENTION: A COMMUNITY-BASED RESEARCH PERSPECTIVE

description

Community-Driven Asthma Research Project between SC CTSI and Community Groups Helps Kids in Long Beach Breathe Easier. This presentation summarizes the research project: After-school settings as a setting as a method of addressing asthma management and prevention: A community-based research perspective. Read the full story: http://sc-ctsi.org/index.php/news-dev/the-most-powerful-weapon-against-asthma-is-education#.UeNOeWRARhU View the booklet now "What you can do about your child's asthma" - http://sc-ctsi.org/assets/asthma/flash-booklet/ This SC CTSI-supported study was developed by: Marisela Robles, MS; Katrina Kubicek, MA; Michele D. Kipke, PhD - SC Clinical and Translational Science Institute and Children’s Hospital Los Angeles; Neal Richman, PhD; Saba Firoozi, MPH - BREATHE California of Los Angeles County; Charlene Chen, MHS; Hannah Valino, MPH - COPE Health Solutions. Learn more about SC CTSI at USC and CHLA: http://sc-ctsi.org/

Transcript of The Most Powerful Weapon Against Asthma Is Education

Page 1: The Most Powerful Weapon Against Asthma Is Education

Marisela Robles, MS Katrina Kubicek, MA

Michele D. Kipke, PhD SC Clinical and Translational Science Institute and

Children’s Hospital Los Angeles

Neal Richman, PhD Saba Firoozi, MPH

BREATHE California of Los Angeles County

Charlene Chen, MHS Hannah Valino, MPH

COPE Health Solutions

AFTER-SCHOOL SETTINGS AS A METHOD OF ADDRESSING ASTHMA MANAGEMENT AND

PREVENTION: A COMMUNITY-BASED RESEARCH PERSPECTIVE

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PRESENTER DISCLOSURES

(1) The following personal financial relationships with

commercial interests relevant to this presentation

existed during the past 12 months:

Marisela Robles

“No relationships to disclose”

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PARTNERSHIPS

This project is a unique partnership with:

•University of Southern California

•Children’s Hospital Los Angeles

•BREATHE California of Los Angeles County

•COPE Health Solutions

•Boys and Girls Club of Long Beach

•Community and Clinical Partners

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BACKGROUND

• Asthma is the most common chronic childhood disease in the US.

• It accounts for three times more lost school days than any other chronic disease

• Higher rates of asthma among children living along congested freeways and ports and other industrial areas

• Long Beach is particularly burdened with higher rates of childhood asthma, where asthma affects 21.9% of children ages 5-17, compared with 15.6%, 18%, and 14.2% in LA County, CA and the US respectively.

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BACKGROUND CONTINUED

• Providing parents and children with the tools needed to effectively control asthma is an essential component of pediatric care for children with asthma.

• School-based programs were found to be effective in increasing knowledge about asthma.

• No identified after-school program based on asthma education and management.

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METHODS

• Community-Based Participatory Research (CBPR) approach

o Healthcare Community Advisory Board

o Parent Advisory Board

• Photovoice method

Study Participants:

• 124 total participants,16 focus groups

• 9 children (8-12 yrs. old) focus groups, 74 child participants 36 male and 38 female

• 6 parent focus groups, 41 parent participants 4 male and 36 female

• 1 staff focus group, 9 participants

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ANALYSIS AND CONCEPTUAL MODEL BASED ON EMPOWERMENT THEORY AND SOCIAL SUPPORT

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RESULTS

LIMITATIONS

“If other people challenge you and you want to take the challenge, and you know you can’t but you are competitive so at the end, you’re out of breath and might have an asthma attack.”

“…how can you explain to a

little child, you can’t play like

everyone else?”

“If they [children] have asthma they

can’t touch them [pets] or pet them…

or get near them… they get asthma.”

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RESULTS CONTINUED

SOCIAL SUPPORT

“My friend said let’s go racing, and I said, ‘no you can’t because you have asthma,’ and then he started running and he had to stop and use his inhaler.”

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RESULTS CONTINUED

ADVOCACY

“My neighbors are smokers they

just moved in so I don’t know

what I am going to do. A least we

have more laws. People can’t

smoke in restaurants, But what

about where you live?”

“I have a picture of the refineries. I work close to it in the childcare. There are kids there who already come with asthma, but they have to withdraw because the smoke from the refineries aggravates their asthma.

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CURRICULUM ADAPTATION

• New emphasis on how children with asthma can safely engage in physical activity

• Incorporated a buddy system

• New section on advocacy

• Added to the asthma myths activity

• Included photographs and examples provided by study participants

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DISSEMINATION

• Parent Asthma Booklet

• Photo Gallery

• SC CTSI Website

•Manuscript

• Community Presentations

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CONCLUSIONS

• This study provides guidelines for how to conduct a CBPR project with the goal of creating a community-driven and scientifically-grounded asthma curriculum.

• The first asthma curriculum identified that integrates social support as a way to mediate positive health outcomes.

Next Step:

• Take the newly adapted curriculum into an efficacy trial to identify whether the desired outcomes are met.

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ACKNOWLEDGEMENTS

National Institutes of Health

Grant number UL1RR031986

Boys and Girls Club of Long Beach Staff

Healthcare Community Advisory Board Members

Parent Advisory Board Members