GETTING THE MOST FROM THE INTERNET

RICK DAVIS ANSWER CANCER FOUNDATION PCRI 2017

WITH THANKS TO

https://www.ancan.org

https://www.ancan.org/recorded-calls

Intimidated …… don’t be!

New World of Information

• Education/Research

• Blogs

• Interactive

Be Smart

• Selective

• Diligent

• Skeptical

Verify Sources

• Credibility

• Conflict of Interest

• Bias

https://www.myprostatecancerroadmap.com/

LET’S SLEUTH ……..

My Prostate Cancer Roadmap

•Great site •Very helpful …… •Janssen •Zytiga/ abiraterone acetate

EDUCATION

“Reference Library” - Topics

Medical research

Insurance & financial

Support

Advocacy

EDUCATION /REFERENCE

“Reference Library” - Sites UsTOO

PCRI

Prostate Cancer Foundation

ZERO

Malecare

http://www.ustoo.org/

http://pcri.org/helpline-resource-center/#helpline-resource-center-home

EDUCATION/RESEARCH

Academic Research & Journal Articles

PubMed

Google Scholar

Centers of Excellence/ Hospital Sites

NCCN

NCI

UCSF Urology

https://www.ncbi.nlm.nih.gov/pubmed/

http://www.urology.ucsf.edu/patient-care/cancer/prostate-cancer

EDUCATION/RESEARCH

‘Pharmas’, BioTech, Manufacturers

Goes without saying ….. these are marketing sites – “Caveat emptor”

EDUCATION/RESEARCH

‘Pharmas’, BioTech, Manufacturers BUT – some good, helpful, informative sites:

Foundation Medicine/ Foundation Act’s liquid biopsy video

Janssen’s My Prostate Cancer Roadmap

http://planetnutshell.com/portfolio/foundation-act/

EDUCATION/RESEARCH

Clinical Trials clinicaltrials.gov

Emerging Meds

NCCN/NCI Hospitals viz UCSF

UsTOO + Foundation Medicine

https://clinicaltrials.gov/

INTERACTIVE WRITTEN BLOGS

Educational PCa Blogs New Prostate Cancer Infolink Prostate Cancer News

Interactive PCa Blogs UsTOO Inspire – self moderated Healing Well – moderated

JimJimJimJim - moderated Health Unlocked/ Malecare – moderated Cancer Survivors Network / ACS - moderated

https://prostatecancerinfolink.net/

https://www.inspire.com/groups/us-too-prostate-cancer/

INTERACTIVE VIRTUAL SITES

Webinars

CureTalk

New Prostate Cancer Infolink

Answer Cancer Foundation

Cancer Care

Zero

JimJimJimJim

http://www.curetalks.com/prostate_cancer

INTERACTIVE VIRTUAL SITES

Support Groups Live Written

Cancer Care

Live Spoken/Visual

Answer Cancer Foundation – peer

JimJimJimJim - peer

CancerCare – professional (NO PCa)

INTERACTIVE VIRTUAL SITES

Answer Cancer Foundation Home of Virtual Support Groups

High Risk/Recurrent/Advanced PCa

Low Risk/Intermediate PCa

Inner Conversation – Men’s Group

Advanced Cancer Caregivers – All Ca

https://www.ancan.org/

INTERACTIVE SOCIAL SITES

Facebook & now virtual

Twitter

INTERACTIVE PCRI SITE

Answer Cancer Foundation

In the EXHIBIT HALL …… DON’T MISS

our live interactive demonstration of

‘MAN JUNK’ MAN’S BITS & HOW THEY WORK

MISCELLANEOUS GENERAL SITES

Some helpful resource sites:

Caring Bridge

Cancer Care

Cancer Support Community

Cancer Commons

Smart Patients

GETTING ORGANIZED

• Use your Bookmark function

• Set up a filing system – just like a file cabinet

• Heading ‘Prostate Cancer’

– Sub –Headings

• Surgery

• Radiation

• Active Surveillance

• Hormone Therapy

Example – my file cabinet …….. www.ancan.org

WITH THANKS & APPRECIATION TO:

https://ancan.org rd@ancan.org