The Missing Piece in Health Care Reform: Patient & Caregiver Roles
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Transcript of The Missing Piece in Health Care Reform: Patient & Caregiver Roles
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How To Be A
SavvySavvyPatient/Patient/CaregivCaregiv
ererUse Arrows Below to Advance Slides
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DefinitionDefinition
A “Savvy Patient / Caregiver” is a person who:– Is Well-informed / Knowledgeable– Has Practical Understanding & Ability to Apply– Is Intelligent about a Specific Subject
• Him or her self or the person for whom Him or her self or the person for whom he or she is a caregiverhe or she is a caregiver
Personal Health Literacy
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Cutting Health Care Costs: The Missing Piece
Studies show involved patients have better results & lower costs“Savvy Patients” do even better…One test, one appointment, one error at a time, patients & caregivers can make a BIG differenceThis presentation shows How & the Benefits
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Cutting Health Care Costs: The Missing Piece
Government, Providers, Insurance Companies all working to improve the systemElectronic Health Records, Patient Information Websites & Disease Management Programs help
BUT…None truly Empower Patients to Take Control of & Manage their own careThere are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver
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Goal
How people can take control of their health care by becoming Savvy Patients
&/or Caregivers
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How to Do It
Decide to be more involved in their and / or another’s healthcareBecome:– The Leader & Coordinator of their healthcare team– Partner with each member of the team
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How to Do ItImprove their personal health literacy by– Setting up & using a Health Record
Management System• That provides fingertip access to their information• Enables use of that information in the Right Way at the
Right Time – tell a better story– Research
• Becoming knowledgeable • Knowing what questions to ask & when to ask them
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Outcomes“Savvy Patients /
Caregivers” who:Are able to interact more effectively with healthcare providers to help them think & better help themMake joint decisionsObtain timelier & appropriate treatment plans / best for you or your loved oneKnow how to & can prevented medical errorsAre better stewards of their health & healthcare $$$ - <costsLess time away from workHave better outcomes & more Confidence & Peace of Mind
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WHY People Aren’t Savvy Patients
Never Taught How To Be Patients / Caregivers– Don’t know how to tell story– Lack Personal Health Management System– Lack knowledge about “Medical-related Things”
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Results
Don’t know how to be involved or tell our stories effectivelyTend to leave everything up to the doctorOften feel intimidated by medical professionalsFeel powerless to do anything about quality of care or to fix the system
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Impact
Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan)
Delayed diagnosis or misdiagnosis (15% are misdiagnosis)
Medical errorsLevel of care unsatisfactoryHigher health care cost
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Medicine was rather simple
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Medical System is Complex A doctor for every body part
Now…
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Ideal: Patient’s Medical Team Meets Regularly
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Reality: Each has a Piece of Patient’s Story
Specialist #2
Specialist #1
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The Missing Piece
Who Has It?
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Job of Patients / Caregivers
Help Collect & Connect The Pieces
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Individually Patients / Caregivers CAN Make A Difference
Receive more timely & accurate diagnosesPrevent duplicate testingDecrease number appointmentsPrevent many kinds of errors– Especially medication & use of over-the-counter
drugs
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Making the Transition to a
Savvy Savvy Patient / Patient /
CaregiverCaregiver
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Key Roles & Responsibilities
1st Change Mind Set & Make Personal Decision
To be an engaged & active participantTo do personal preventative & health habits activitiesTo be a good StorytellingTo have a Personal Health Management SystemEngage in personal health education
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Details of Roles & Responsibilities
Engaged & Active = Willing to:– Be a Leader & Coordinator of healthcare team & Partner
each member– Be open & honest– Share everything with every provider
Storytelling:– Be prepared
• With thorough, complete & accurate story • To remind of & connect numerous pieces• To fill gaps
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Details of Roles & Responsibilities
Management System – Good records with fingertip access to details & test results
Appointment– Questions written & prioritized– Have advocate aid during appointment – Prep while wait
Research - Knowledgeable– Conditions, medications, procedures, etc.
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Details of Roles & Responsibilities
Ask educated questionsMake joint decisionsGood follow throughGood outcomes
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Health Care ProviderRoles & Responsibilities
Expert - Explain What, Where, Why, When & How
Consultant / Coach - Discuss options & Make recommendations, not decisions Listener - Reflect back concerns & goalsEducator - Understandable language & suggest resourcesPartner - Mutual Respect
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Communication
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“Doctors desperately need patients & their families & friends to help them think…
…when the patient Tells His Story, the patient gives cues and clues the doctor may not be
thinking about.”How Doctors Think, 2007
Jerome Groopman, MD
Communication
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Desired Effect of Your Story
Get immediate attention of your clinicianHelp her be a good listener & prevent interruption Tell for maximum benefit– Right sequence & right details– Allow connections with his knowledge bank– Enable her to think of alternatives & prevent premature
diagnosisProvide him with information he may not think to ask about
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Story & Discussion
The Right InformationRight Information
In the Right WayRight Way
At the Right TimeRight Time
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Questions
– The Right QuestionsRight Questions
– In the Right WayRight Way– At the Right TimeRight Time
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Fingertip Access to Questions
Critical Question Series Times When Patients / Caregivers Need to Know the Right Questions
1. Interviewing New Provider 2. Appointment Preparation 3. Test or Procedure / Especially Invasive4. Test Results Outside the Normal Range5. New Diagnosis / Chronic Condition 6. New Medication / Change in Medication 7. Research 8. Surgery9. Hospital
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Personal Health Management
System
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Needs to Be More Than Documentation
It’s one thing to compile personal medical information…
It’s another thing to have the Right Details & know how to Use
that information
How It’s Compiled makes A BIG difference , too!
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Goals of A Personal Health Management System
Forms constructed in a way that help connect the pieces of medical story when:– Capturing medical history– Tracking ongoing care in a meaningful way– Preparing to tell story effectively & efficiently w/ the right
details– Providing fingertip access to medical information in any
circumstance – Helping patient / caregiver help their provider think &
connect the pieces
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Health System Components
Personal & Family Medical HistoryAppointments – Before, During & AfterSymptom TrackingChronic Condition TrackingMedication ManagementTracking & Using Test & Procedure ResultsResearch – Conditions. Procedures, Medications, etc.Making & Tracking Lifestyle ChangesUsing Your System in the HospitalTracking Medical ExpensesAdvance Directives
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Keys To Effective Care
Storytelling – Right Information, Right Way, Right Time
Questions– Right ???, Right Way, Right Time
Ability to Answer Provider Questions – Fingertip access to information
Joint Decisions – Plan of action
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Benefits
Better Quality Care
Less chance of & able to Prevent medical errors
Save money & help Cut healthcare costs
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Greater Confidence & Peace of Mind about care
Biggest Benefit for Patient / Caregiver
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Biggest Benefit for Employer
Less employee absence & greater productivity
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Offerings
Lunch & Learn SeriesIn Person & via Teleconference
Self-Directed Online Course www.SavvyPatientSchool.com
Signed Book w/ or w/o CDw/ Free Critical Question Series
Free e-newsletterwww.SavvyPatientToolkit.com
Access to Patient Advocates TeleSeriesAvailable to Speak In-Person & via Teleconference
E-mail form on websites
Phone: 336-529-0441