The Cleveland Clinic Statistical Education Dataset Repository: Examples and more Examples

June 18, 2013June 18, 2013Amy Nowacki, PhDAmy Nowacki, PhD

Assistant Professor of MedicineAssistant Professor of Medicine

• Study Design• Data Collection• Data Preparation• Data Analysis• Reporting of Results

• Searching for Data• Data Preparation• Data Use

The Survey•Sent to 175 past/current research preceptors at CCLCM•74 (42%) responded•Q1: “Would you ever consider granting permission for your de-identified data to be posted to a Cleveland Clinic medical study statistical repository (open website)?•76% (56/74) responded favorably!

The Website•Attributes that enhance the instructional suitability of a dataset:

- raw form- authentic- include background information- intrinsically interesting or relevant- current or controversial- lend themselves to various statistical analyses

-Cleveland Clinic Statistical Education Dataset Repository- raw data - real medical studies - study vignette- clear documentation - several variables

http://www.lerner.ccf.org/qhs/datasets/

Rationale for study

Research question

Example Study Vignette

Description of sample

Primary outcome

Secondary outcomes

Example Data Dictionary

Effective Data Sharing•communicating that data are available•providing sufficient descriptive information about the data•rendering the data in a usable format•making data accessible

Future Plans•expanding the repository to allow outside dataset submissions•generate a bank of educational materials associated with the datasets to assist or inspire statistical educators

This repository will continuously be appended to and enhanced…check back regularly!