The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are...

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Transcript of The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are...

Page 1: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently
Page 2: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently

The care of children with chronic kidney disease involves many facets of the healthcare system, including support from non-governmental organisations to reduce the impact chronic illness may have on their families. Unlike many other chronic illnesses such as cancer and heart disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently unprepared for major upheavals which can place huge strain on families, parents and other children. Some of these families and children will require transfer to Starship Hospital for long periods of time. Families’ w�>�V�>�� ÀiÃ�ÕÀViÃ� �>Þ� LiV��i� ÃÌÀ>��i`°� � ��`�iÞ� ��`Ã��>Ûi� Lii�� >L�i� Ì�� >ÃÃ�ÃÌ� Ü�Ì�� i�iÀ}i�VÞ� ÀiÃ�ÕÀViÃ� v�À�many of these families, whilst their children are receiving ÌÀi>Ì�i�Ì����-Ì>ÀÃ��«°����`�iÞ���`ý��i�«����Ì�iÃi�`�vwVÕ�Ì�V�ÀVÕ�ÃÌ>�ViÃ��>Ã�Lii����Û>�Õ>L�i°

��À��>�Þ�Þi>ÀÃ]���`�iÞ���`Ã��>Ûi��À}>��Ãi`�>��Õ>��V>�«Ã�for children with kidney disease. This allows children to develop friendships with other children with similar health needs, and to know that they are not alone with their illness. First and foremost, these camps encourage �ÕÌ`��À�«ÕÀÃÕ�ÌÃ�Ì�>Ì�V>��Li�Õ�`iÀÌ>�i��LÞ�>��°�/�i�V>�«Ã��>Ûi� >�Ã�� Lii�� >� �i>�Ã� �v� �iÌÜ�À���}� v�À� «>Ài�ÌÃ� �v�children with chronic kidney disease.

��`�iÞ� ��`Ã� >�`� �ÌÃ� ÃÕ««�ÀÌiÀÃ� �>Ûi� >�Ã�� À>�Ãi`�funds to purchase much needed equipment for children with chronic kidney conditions. ���>��Þ]� ��`�iÞ� ��`Ã� �>Ûi� >�Ã�� ÃÕ««�ÀÌi`�clinical research in children’s kidney `�Ãi>ÃiÃ� Ü��V�� �>Ã� Li�iwÌi`� V���`Ài��with chronic kidney disorders throughout the world.

��`�iÞ���`Ã��>Ã�>�`�Ü����V��Ì��Õi�Ì��«�>Þ�a pivotal role in the welfare of children and their families with chronic kidney diseases.

William Wong | Clinical Head Department of Paediatric Nephrology STARSHIP CHILDREN’S HOSPITAL

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Starship Children’s Health is the main hospital for children with chronic kidney disease. This can mean lengthy periods away from home for the child and their «>Ài�ÌÉV>Ài}�ÛiÀ°��ÕÀ��}� Ì��Ã� Ì��i�>Ü>Þ]���`�iÞ���`Ã�>��Ã� Ì���i�«�>��iÛ�>Ìi� Ì�i�ÃÌÀiÃÃ� LÞ� �vviÀ��}� i��Ì���>�� >�`� «À>VÌ�V>�� ÃÕ««�ÀÌ� Ì�� v>����iÃ� Ü���i� Ì�i�À� V���`�receives specialised medical treatment.

"�Vi� ÀiviÀÀi`]� ��`�iÞ� ��`Ã� «À�Û�`i� V��Ì��Õi`� ÃÕ««�ÀÌ� Ì�� Ì�i� Ü�ń�>Õ]� Ü�Ì��>`Û�V>VÞ� >�`� ��ë�Ì>�� �À� ���i� Û�Ã�Ìð� ��`�iÞ� ��`Ã� >�Ã�� «À�Û�`i� i`ÕV>Ì���>��ÃÕ««�ÀÌ�v�À�V���`Ài��Ü���v>���Li���`�>Ì�ÃV�����>Ã�>�ÀiÃÕ�Ì��v��>Û��}���`�iÞ�`�Ãi>Ãi°�7i�>�Ã���À}>��Ãi�ëiV�>��iÛi�ÌÃ�i>V��Þi>À]�Ì�i���}���}�Ì�����ÕÀ�V>�i�`>À�Li��}�our camps.

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Kidney Kids NZ is a registered charity that supports families throughout New Zealand.

Kidney Kids NZ KU�C�PQP�HQT�RTQƂV�organisation that is dependent on grants and donations.

We provide families with resources, information, events, personal development, hospital visits, home visits and any other assistance required.

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���>Ûi�Lii����iv� ÝiVÕÌ�Ûi��v���`�iÞ���`Ã�v�À���Ài�Ì�>��Ã�Ý�Þi>ÀÃ�>�`��>Ûi�served on the Board for eight years.

7�Ì��{ä�Þi>Àý�iÝ«iÀ�i�Vi����Ì�i�commercial sector, my focus is on i�ÃÕÀ��}���`�iÞ���`Ã��Ã�>�ÃÕÃÌ>��>L�i�organisation, so we can continue to ÃÕ««�ÀÌ�Ì�i�}À�Ü��}��Õ�LiÀ��v���Ü��children with various forms of kidney and urinary tract conditions.

��`�iÞ���`Ã��Ã�>���Ì�v�À�«À�wÌ��À}>��Ã>Ì����v�Õ�`i`����£��ä°��Ì��Ã�>�nationwide organisation, passionate >L�ÕÌ�«À�Û�`��}�ÃÕ««�ÀÌ�Ì��V���`Ài�]�young people, and their families iÝ«iÀ�i�V��}�Ì�i�`�vwVÕ�Ì�iÃ��v���`�iÞ�`�Ãi>Ãi°�Ƃ�Ì��Õ}���ÕÀ�Ìi>���Ã�L>Ãi`�in Auckland, we travel nation-wide to meet with our kidney kids and their families.

As a small charity with just four staff, ��`�iÞ���`Ã�Ài��iÃ����Ì�i�}i�iÀ�Ã�ÌÞ��v�Ì�i�«ÕL��V�Ì�À�Õ}��`��>Ì���Ã]�>Ã�Üi���>Ã�grants from community organisations and the support of corporate partners.

Keith Mackenzie Chief Executive

��ÃÌ>ÀÌi`���`�iÞ���`Ã����£��ä�>Ã�>�parent support group.

My oldest daughter Jennifer was diagnosed with chronic renal failure at L�ÀÌ��>�`��Þ�ÃiV��`�V���`�,iLiVV>�Ü>Ã�diagnosed with the same condition. One of the things I found frustrating was the lack of information and support for families who have a child with a ��`�iÞ�V��`�Ì�����À�>L��À�>��ÌÞ��v�Ì�i�urinary tract.

When my youngest was four years old I decided I needed to take action to ensure other families wouldn’t have to deal with a lack of support and ��v�À�>Ì����Ü�i��Ì�iÞ�w�`��ÕÌ�Ì�i�À�child has a chronic kidney condition.

���ÓääÈ���Ü>Ã�����ÕÀi`�Ì��Li�>Ü>À`i`�a Queen’s Service Medal for what I �>Ûi�>V��iÛi`�v�À���`�iÞ���`ð��½��ÃÌ����actively involved as the Secretary for the organisation.

Elaine Simons QSM Founder & Secretary

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/��i�ÃÕÀi�Ì�>Ì�Ì��Ãi�V���`Ài��Ü���iÝ«iÀ�i�Vi���`�iÞ�`�Ãi>Ãi��>Ûi�Ì�i�LiÃÌ���ÛiÃ�«�ÃÃ�L�i]�>�`�Ì�>Ì�Ì�iÞ�>Ài���Ì�disadvantaged as they progress through education and into employment as young adults.

/���>�i���`�iÞ���`Ã���Ài�ÃÕÃÌ>��>L�i�LÞ���«À�Û��}��ÕÀ�funding strategies, with increased corporate involvement through project partnerships.

To partner with Starship Foundation to provide funding for a nephrology fellowship to ensure the ongoing training of pediatric care physicians at Starship children’s hospital.

/���i�«�vÕ�`�Ì�i�`iÛi��«�i�Ì�>�`���«�i�i�Ì>Ì�����v�,i�>��,i>��ÌÞ\�>�«>Ì�i�Ì�`>Ì>L>Ãi��>�>}i�i�Ì�ÃÞÃÌi��v�À�-Ì>ÀÃ��«]�Ì��improve patient care.

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Our kidneys have a vital role in keeping us �i>�Ì�Þ°�/�iÞ�>Ài�>��>�>â��}��À}>��w�ÌiÀ��}�Ü>ÃÌi�>�`�Ü>ÌiÀ�vÀ����ÕÀ�L���`�Ó{ÉÇ]��i�«��}�Ì���ii«��ÕÀ�L���`�«ÀiÃÃÕÀi����V�iV�]��ÕÀ�L��iÃ�ÃÌÀ��}]�>�`��>���}�Ài`�L���`�Vi��ð

��`�iÞ�`�Ãi>Ãi�V>��ÃÌ>ÀÌ�>Ì�Ì�i�Li}�����}��v���vi�>�`�>L��À�>��Ì�iÃ�V>��Li�`iÌiVÌi`�Liv�Ài�L�ÀÌ�]����i>À�Þ�V���`���`]��À�>���ÌÌ�i��>ÌiÀ°���`�iÞ��À�ÕÀ��>ÀÞ�ÌÀ>VÌ�`�Ã�À`iÀÃ�V>��Li����`�>�`�ÀiµÕ�Ài��i`�V>��ÌÀi>Ì�i�Ì�v�À�>�Ã��ÀÌ�Ì��i]�LÕÌ�Ü�Ì�� �`�-Ì>}i���`�iÞ��>��ÕÀi�Ì�i�À���`�iÞÃ�������}iÀ�function. Therefore, dialysis treatment or a kidney transplant is necessary.

��`�iÞ�`�Ãi>Ãi��Ã�>���vi�V�>�}��}�V��`�Ì����>�`���«>VÌÃ��i>Û��Þ����Ì�i�v>���ÞÉÜ�ń�>Õ°�/��Ì�i��ÕÌÃ�`i�Ü�À�`���`�iÞ���`Ã��>Þ���Ì������Ã�V��LÕÌ�Ì�i�ÃÌÀi�}Ì��>�`�`iÌiÀ���>Ì����`�ë�>Þi`�LÞ�L�Ì���ÕÀ���`Ã�>�`�Ì�i�À�Ü�ń�>Õ��Ã���ë�À>Ì���>�°�

ƂÌ���`�iÞ���`Ã�Üi�Ã�>Ài���v�À�>Ì����>�`��vviÀ�educational, practical, and emotional support, and work closely with other support agencies to �i�«�«À�Û�`i�Ì�i�V�ÀÀiVÌ�ÃiÀÛ�ViÃ�v�À��ÕÀ�Ü�ń�>Õ°�/�i�Ìi>��>Ì���`�iÞ���`Ã�>Ài�«À�Û��i}i`�Ì��Ü>���>���}Ã�`i��ÕÀ�LÀ>Ûi�Ì>�>À����Ü�Ì����`�iÞ�`�Ãi>Ãi�as they make their way forward in life.

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Rachel Barrett NATIONAL MANAGER SUPPORT SERVICES

Imeleina Ale

In 2012 at the age of three Imeleina (now ten years old) was diagnosed with Nephrotic Syndrome, a serious kidney disorder. For the past seven years she has battled through both peritoneal dialysis and haemodialysis plus numerous surgeries. Imeleina has been having haemodialysis treatment at Starship Hospital four days a week, four and a half hours each treatment. She is a bright and outgoing girl who loves to perform with dance and song. You may recognise her as the face on our collection boxes around the country. Imeleina received a kidney transplant on the 4th July 2019 and is doing very well and is now looking forward to going back to New Lynn Primary School later in the year as a well kidney kid.

Imeleina enjoying the water slide at Camp KeeWee

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KIDS AGES0 - 5 ......................................456 - 10 .................................... 8311 - 15 ................................13316 - 21 ................................162

KIDS ETHNICITYNZ European .............. 290

Maori ........................... 76

1BDJàD�*TMBOET� ............ 33

Other ........................... 24

3%

15%

35%

45%

2%

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CAMPS�Ì��>�«��ii7ii�­n�£x�Þi>Àî�>�`�>�«�9>��­£È�Ó£�Þi>Àî�ÃiÀÛi�Ã����>À�purposes - to give the opportunity for our kids to connect with each other. �À�i�`Ã��«Ã��>`i�>Ì�V>�«Ã�>Ài�Ã�}��wV>�Ì�>�`�Ì�iÃi�Ài�>Ì���Ã��«Ã�ÃiÀÛi�as strong pillars of support as a young person continues their journey with kidney disease. We see the fun, activities, and fellowship provided through V>�«Ã�>Ã�>�Ûi��V�i�Ì��`i��ÛiÀ���vi����}�ÃÕ««�ÀÌ�Ì��i>V����`�iÞ���`°

REGIONAL FAMILY EVENTSWe play fun and crazy games, share a meal, and meet families when we visit the regions and hold our family events. The events are a great �««�ÀÌÕ��ÌÞ�v�À��ÕÀ�v>����iÃ�Ì��Ài�>Ý�>�`��>Ûi�Ã��i���}�Ì��i>ÀÌi`�vÕ�]�>�`�an opportunity to share with others.

-Ì>ÀÃ��«��i«�À���}�ÃÌÃ�ÌÀ>Ûi��Ì��Ì�i�Ài}���Ã�v�À�>««À�Ý��>Ìi�Þ�Óä�«>i`�>ÌÀ�V�Ài�>��V����VÃ�«iÀ�Þi>À°����`�iÞ���`Ã�ÃÌ>vv�>ÌÌi�`�Ì�iÃi�V����VÃ�>Ã�Üi���>Ã�providing early support for new families at the onset of their kidney journey. We aim to arrange a family get together after each of these clinics Ü�i�iÛiÀ�«�ÃÃ�L�i°

REGIONAL CHRISTMAS PARTIES These events are full of festive fun and Christmas goodies! They are also a perfect opportunity for new families to meet up with other parents and kidney kids, and make their own connections over mince pies and ice VÀi>�°���À�ÃÌ�>Ã�Ü�Õ�`�½Ì�Li��À�ÃÌ�>Ã�Ü�Ì��ÕÌ�Ì�i�Ü�`i�iÞi`�v>ViÃ�of the younger kids waiting patiently for the arrival of Santa, who never v�À}iÌÃ��ÕÀ���`�iÞ���`Ã�>�`�Ì�i�À�Ã�L���}ð

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RACHEL BARRETT National Manager Support ServicesI have had the privilege of spending �ÕV���v��Þ�V>ÀiiÀ����Ì�i��i`�V>��wi�`�working as an oncology nurse in the 1°�°]�Liv�Ài�ÀiÌÕÀ���}�Ì�� iÜ�<i>�>�`�with my family. I worked at Mercy ��ë�Ì>�����Ì�i�ÃÕÀ}�V>��wi�`�>Ã�Üi���as managing their Home Healthcare -iÀÛ�Vi°���Ài�ÀiVi�Ì�Þ]����>Ûi�Lii��involved with the care and support of renal patients, spending time in the hospital and visiting patients at ���i°�/��Ã�iÝ«iÀ�i�Vi��i`��i�Ì����`�iÞ���`Ã����Óä£Î�>�`��Þ�VÕÀÀi�Ì�role supporting kidney kids and their v>����ið���>��>�>�Ì��>����ÕÀ���`�iÞ���`Ã�>�`�Ì�i�À�Ü�ń�>Õ°

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DALE VAN DEN BERG Family Support WorkerMy passion for working with people led me to studying social work at MIT Ü�iÀi���}>��i`�>����Ã�}�Ì���Ì�� iÜ�<i>�>�`½Ã�Õ��µÕi�VÕ�ÌÕÀ>���>�`ÃV>«i�>�`�}>��i`�Û>�Õ>L�i�iÝ«iÀ�i�Vi�working with people from a diverse À>�}i��v�L>V�}À�Õ�`ð�7�i����wÀÃÌ�����i`���`�iÞ���`Ã]�Ì�i��i`�V>��wi�`�Ü>Ã�V��«�iÌi�Þ��iÜ�Ì���i]�LÕÌ�thanks to the leadership and support �v��Þ�Ìi>����>����Ü�V��w`i�Ì�Ì�>Ì�Ì��Ã��Ã�iÝ>VÌ�Þ�Ü�iÀi����ii`�Ì��Li°��½��so grateful to our kidney kids and their families, who allow me to work alongside them.

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RACHEL SHERMAN Family Support CoordinatorHaving previously worked for a Sydney L>Ãi`�V�>À�ÌÞ]�/�i���Û��}���`�iÞ�Donor Program and in Aged Care, I’m thrilled to have joined a great team of hard-working and dedicated people at ��`�iÞ���`Ã]�ÃÕ««�ÀÌ��}�v>����iÃ�>�`�children with kidney disorders. I was lucky enough to have visited Camp �iiÜii�Óä£�]���i��v��ÕÀ�>��Õ>��camps, where I met some of our v>����iÃ�>�`�iÝ«iÀ�i�Vi`�wÀÃÌ��>�`�the joy of our kidney kids who were laughing, smiling, chatting and having a wonderful time meeting friends and iÝ«iÀ�i�V��}��iÜ�>VÌ�Û�Ì�ið

KELLIE GAUDIN (WPFTCKUKPI���1HƂEG�#FOKPKUVTCVQT�½Ûi�Ü�À�i`�>VÀ�ÃÃ�>��Õ�LiÀ��v�industries over the course of my career LÕÌ��Þ�À��i�>Ì���`�iÞ���`Ã�>�`�Ì�i���Ì�v�À�«À�wÌ�ÃiVÌ�À��>Ã�Lii��Ì�i���ÃÌ�vÕ�w����}°���Ü�À�����>��Õ�`À>�Ã��}�>�`�Administration role where I manage the Grant and Foundation applications as well as looking after accounts and administration. I love working with our team and supporting our kidney kids and their families on their journey with kidney disease.

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�½���>Ì�iÀ��i]��½��Óx]�>�`����>Ûi�i�`�ÃÌ>}i�Ài�>��v>��ÕÀi�V>ÕÃi`�LÞ�>�}i�iÌ�V��ÕÌ>Ì���°���Ü>Ã�`�>}��Ãi`����Óään�>�`���Ü>Ã����«iÀ�Ì��i>��`�>�ÞÃ�Ã�v�À�ÃiÛi�����Ì�Ã�Liv�Ài���ÀiVi�Ûi`�>�ÌÀ>�ë�>�Ì� from my mum. I was lucky enough to have my �Õ�½Ã���`�iÞ�v�À�Ã�Ý�Ü��`iÀvÕ��Þi>Àð��Ì�>���Üi`�me to continue living a normal life. I travelled to �À>�Vi����Óä£ä�>�`�Ì����«>ÀÌ����Ì�i�7�À�`�7��ÌiÀ�/À>�ë�>�Ì��>�ið����Óä£Ó���ÌÀ>Ûi��i`�Ì���À>�Vi�and Bulgaria to compete and train in rhythmic }Þ��>ÃÌ�VÃ]�>�`�i>À�Þ����Óä£{���ÌÀ>Ûi��i`�to America to compete in two rhythmic V��«iÌ�Ì���ð���Ü>Ã�>L�i�Ì��w��Ã����}��ÃV����]�get my vet nursing degree and start a vÕ���Ì��i���L°���>�Ã��>ÌÌi�`i`�ÃiÛiÀ>����`�iÞ���`Ã�V>�«Ã°�/�iÃi�V>�«Ã�ÜiÀi�ÛiÀÞ�ëiV�>��Ì��me. I made many great friends and overcame lots of challenges. I’m still in contact with many of my kidney kid friends.

->`�Þ]�����iVi�LiÀ�Óä£{���Ü>Ã�Ì��`��Þ���`�iÞ�Ü>Ã�v>����}�>�`�����Õ�i�Óä£x��Ì�Ü>Ã�Ài��Ûi`°���Üi�Ì�L>V����Ì���>i��`�>�ÞÃ�Ã�v�À�wÛi����Ì�Ã�Ì�i��L>V����Ì��«iÀ�Ì��i>��`�>�ÞÃ�ð����iÛiÀ��iÌ�Ì�>Ì�ÃÌ�«��i°����Óä£È� ��Üi�Ì�L>V��Ì��}Þ��>ÃÌ�Vð����Óä£Ç���Ài«ÀiÃi�Ìi`� iÜ�<i>�>�`�����iÛi��£ä�>Ì�Ì�i�ƂÕÃÌÀ>��>�� >Ì���>�Ã�>�`����Óä£n���}�Ì�Ì��ÌÀ>Ûi��Ì�� ÕÀ�«i�­i�>ÀÕÃ]� ,ÕÃÃ�>]�Õ�}>À�>®�Ì��V��«iÌi����ÌÜ��7�À�`�Õ«Ã�>�`� a World Championships. All while on dialysis - I just Ì�����Þ�ÃÕ««��iÃ�>�`��Þ�L�ÝiÃ�ÜiÀi�>���Ã��««i`�Ì�� my destination.

�Þ���ÕÀ�iÞ��>Ã�Lii��Ì�Õ}��>Ì�Ì��ið����>Ûi�}��`�`>ÞÃ�Ü�i����vii��}Ài>Ì�>�`�L>`�`>ÞÃ�Ü�i�����>Ûi�Ì��ÃÌ>Þ�home all day. I think of the things I can control like what ��i>Ì�>�`�`À����>�`��Þ�>ÌÌ�ÌÕ`i°���`��Ì�i�LiÃÌ���V>�°�

�½��«À�Õ`�Ì��Li�>��Ƃ�L>ÃÃ>`�À�v�À���`�iÞ���`Ã�>�`��>««Þ�Ì��}�Ûi�L>V��Ì��Ì��Ã�}Ài>Ì��À}>��Ã>Ì����Ì��support the kids.

Page 13: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently

7>�ÌiÀ� i��>�`Ã��Ã�>���Ü��/6�«iÀÃ��>��ÌÞ]�LiÃÌ����Ü��v�À���ÃÌ��}�/6Î�V���`Ài�½Ã�«À�}À>��i�-Ì�V�Þ�/6�>�`�ÃÌ>ÀÀ��}����ÃiÛiÀ>���Ì�iÀ�/6�Ã��ÜÃ���V�Õ`��}�Ì�i�Óä£��season of Dancing with the Stars, where �i�Ü�Üi`�Ì�i��>Ì����­>�`��Õ`}iî�LÞ�L>V��y�««��}��vv�Ì�i��Õ`}iÃ�Ì>L�it�

7>�ÌiÀ��Ã�«À�Õ`�Ì��Li�>���`�iÞ���`Ã�>�L>ÃÃ>`�À�>�`���ÛiÃ�}iÌÌ��}���Û��Ûi`�in our fundraising activities and events. Walter is leading the Water in Schools project, encouraging all children to drink Ü>ÌiÀ���ÃÌi>`��v�ÃÕ}>À�L>Ãi`�`À���ð

Walter loves hanging out with our kidney kids and their families, supporting them on their journey. With his infectious energy and huge grin, Walter inspires our ��`Ã�Ì��Li�Ì�i�LiÃÌ�Ì�iÞ�V>��`ië�Ìi�Ì�i�challenges along the way.

Page 14: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently

AmbassadorWe are privileged to have former All Black >�`�����>��ÀÕ}LÞ�Õ�����v��ÌL>���«�>ÞiÀ� ��i���6�`�À��>Ã�>��>�L>ÃÃ>`�À�v�À���`�iÞ���`ð�

��i���L>ÌÌ�i`���`�iÞ�`�Ãi>Ãi�v�À�>�`iV>`i�and was on haemodialysis for several Þi>ÀÃ�Liv�Ài�ÀiVi�Û��}�>���`�iÞ�ÌÀ>�ë�>�Ì����Óä£x°�ƂvÌiÀ�ÀiVi�Û��}���Ã�ÌÀ>�ë�>�Ì]�Joeli pioneered the Sports for Health programme in Fiji to educate children on the importance of leading an active and healthy lifestyle.

��i����Ã�>�Üi���ÀiëiVÌi`��i�LiÀ��v�Ì�i�community, especially to the kidney kids who love seeing him at social events - a recent highlight of which was Christmas where Joeli dressed up as Santa.

4+2�,QPCJ�.QOW�������������|

���>�����Õ�Ü>Ã�>����ë�À>Ì����Ì���>�Þ]�LÕÌ����i���Ài�Ã��Ì�>���ÕÀ���`�iÞ���`Ã�who were on the same journey as Jonah with kidney disease. Jonah was our Patron for over ten years and spent many hours at our camps and events offering support to our kids. His inspirational words are still ÛiÀÞ��ÕV��Ài�i�LiÀi`�>Ì���`�iÞ���`ð

�������)RU�PH�WR�JHW�WKURXJK�WKH�WRXJKHVW�SHULRGV�RI�P\�OLIH��,�KDG�WR�ORRN�ZLWKLQ�WR�¿QG�WKH�HQHUJ\�WR�GR�LW���,�GRQ¶W�JLYH�XS��1HYHU�KDYH��1HYHU�ZLOO�Jonah Lomu

Page 15: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently

,Q������RQH�RI�RXU�.LGQH\�.LG�IDPLOLHV�ZLOO�EH�PRYLQJ�LQWR�WKHLU�QHZ�KRPH�RQ�-RQDK�/RPX�'ULYH��3DHUDWD�5LVH��7KLV�QHZ�WRZQVKLS�LV�EHLQJ�GHYHORSHG�RQ�WKH�JURXQGV�RI�:HVOH\�&ROOHJH�ZKHUH�-RQDK�/RPX�ZDV�D�SXSLO��VR�LW�LV�YHU\�VLJQL¿FDQW�WR�WKH�.LGQH\�.LGV�FRPPXQLW\�

Page 16: The care of children with chronic kidney disease involves€¦ · disease, kidney diseases are often silent and of insidious onset. The affected children and their families are frequently

Learn more about Kidney Kids, Ãii��ÕÀ�}Ài>Ì�Ü�À�]�>�`�w�`�>������Ì��`��>Ìi°°°

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Special thanks to A

lsco NZ

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