Surveying Pennsylvania’s Families of Young Children who ...
Transcript of Surveying Pennsylvania’s Families of Young Children who ...
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Surveying Pennsylvania’s Families of Young Children who are Deaf/Hard of Hearing
Results of the FY 2018-19 Family Satisfaction Survey & Record Review
·tn \nfants/io oeaf/Hard
ddlers whO are ·a families w,
f pennsylvanl 1he results survey O 1th heanng \ass e the of Hearing ab1es and young ch1:~~e~r:grarn and to irnprov
s !or pennsy\van1a 1a:;\;:~:::: ~n the ~:r~; :::~r:~::s are irnportantl 8 minutes to ih1s survey I rnprove services h heanng \ass hou\d take about w1\\ be used to \ oung ch1\dren wit ih1s survey s 1dent1f1cat1on o y can answer
uest1ons that you i . s diagnosed pond to a\\ the C\ ur part1c1pat1on nen your child wa
p\ease res thanks !or yo xperiences w rnp\ete t,\anY about your e
co . . n this section are est1ons1
part 1: 1'he qu hearing loss with deafness or a
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
-4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Two Methods to Collect Data P
PELICAN-EI
S
--
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
• -
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
The survey return rate for FY 2018-19 decreased.
900 25%
CY 2015 FY 2016-17 FY 2017-18 FY 2018-19
# surveys sent # surveys returned % return rate
9%
0%
5%
10%
15%
20%
0
100
200
300
400
500
600
700
800
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
Early Intervention Record Reviews • Random sample
of 10% for a total of 77 infants and toddlers
PELICAN-EI
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Hearingscreening test
for all babies no later than 1
month of age
Diagnostic evaluation by an audiologist no later than 3
months of age
Early intervention no
later than 6 months of age
1month 3months 6months
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■
■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Families knew their child was screened at birth but didn’t have clear information to get additional testing. 100%
80%
60%
40%
20%
0%
96% 92%
75% 81% Screened at birth Given clear information
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■
■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
86% of infants in EI with a hearing loss were identified at NBHS. 100%
FY 2017-18 90%
82%
18%
86%
14% 0%
10%
20%
30%
40%
50%
60%
70%
80% FY 2018-19
Referred to EI from NBHS Passed NBHS and in EI
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Hearingscreening test
for all babies no later than 1
month of age
Diagnostic evaluation by an audiologist no later than 3
months of age
Early intervention no
later than 6 months of age
1month 3months 6months
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■
■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Infants are getting diagnostic evaluations and EI referrals early. 100%
80%
60% 75% 74%
83% 83%
FY 2017-18 40%
FY 2018-19
20%
0%
Obtain Diagnostic Eval by Referred to EI Program 3 mos
■
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
While most families are satisfied with how quickly their child received a diagnosis, satisfaction has decreased since last year.
100%
80%
60% 80%
40%
20%
0%
71%
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Hearingscreening test
for all babies no later than 1
month of age
Diagnostic evaluation by an audiologist no later than 3
months of age
Early intervention no
later than 6 months of age
1month 3months 6months
-~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT
AND EARLY LEARNING
--....... -•••••••••
•••
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
Most infants receive hearing services by 6 months of age 40%
30%
20%
10%
0% Birth to 4 - 6 7-9 10-12 13 - 15 16 - 18 19 - 21 22 - 24 25-27 28 -30 31 - 33 34-36 3 mos mos mos mos mos mos mos mos mos mos mos mos
In FY 2018-19, 58% of infants had an IFSP in place by 6 months of age.
FY 2016-17 FY 2017-18 FY 2018-19
FY 2018-19 EHDI & EI Family Survey Results P
Newborns who received a NBHS, were referred and reached EI by 6 months.
100%
70% 75% 66%
0%
20%
40%
60%
80%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
• Outreach to local hospital Newborn Hearing Screening Programs
• Outreach to local audiologists
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Learn more about EHDI and the goals for early identification of children with a hearing loss
https://www.health.pa.gov/topics/programs /Newborn-Screening/Pages/Hearing.aspx
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Parent Experiences in Early Intervention
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Overall, my child’s EI services made me feel better equipped to care for his/her needs.
100%
80% 98% 94% 85%
60%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
I am satisfied with the progress my child has made in the Early Intervention Program. 100%
80% 91% 87%
60%
40%
20%
0%
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
I am satisfied that EI staff included me in the IFSP/IEP decision making process. 100%
80% 92% 90%
60%
40%
20%
0%
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
I am satisfied that the EI program communicated with me to ensure that my child experienced a smooth transition from one program to another.
100%
80%
60% 74% 66%
40%
20%
0%
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
99% 100% 95%100%
In EI, I was given access to at least one staff person who is qualified in the areas of deafness and hearing loss
80%
60%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
I am satisfied with my EI Service Coordinator's level of knowledge regarding hearing loss in infants and young children 100%
95% 89% 78%80%
60%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Approximately ½ of the families reported using a Communication Plan. 70% 59% reported a
Communication
FY 2016-17 FY 2017-18 FY 2018-19
30%
58%
49%
0%
10%
20%
30%
40%
50%
60% Plan in PELICAN
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■ ■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
Infants in EI are receiving services from hearing specialists and speech therapists.
Both SLP & SI-Hearing
SLP Only
SI-Hearing Only
17%
39%
44%
0% 10% 20% 30% 40% 50% 60%
FY 2018-19 FY 2017-18
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
• Provide training to Service Coordinators who are likely to get referrals of children with hearing loss
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Learn more about how to use the Early Intervention Communication Plan
http://www.eita-pa.org/low-incidence/hearing-deafness/
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Providing Information & Support to Families
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
In EI, I received parent support information about Hands and Voices Guide By Your Side 100%
83% 82% 66% 60%
80%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
98%
I am satisfied with the support provided by my Guide By Your Side Parent Guide. 100%
80% 91% 91%
60%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
In my community, I had access to professionals and/or other adults in a variety of roles, who are themselves deaf or hard of hearing. 100%
80%
60%
40% 54% 56%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
48%
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
Family Connections for
Listening & Learning
Contact: Anne Gaspich [email protected]
to Parent of Pennsylvania
Home About •
My experience ...
My heart ...
Matches • Affiliate Programs & Partnerships •
Peer Supporters • P2P Supports Groups • Commun ications • How Can I Help •
• • ,Ir Affiliate Programs & Partnerships
Parent to Parent of Pennsylvania
Trisomy 21 Parent Peer Program
Penn State Hershey NICU Parent Support Program
Pediatric Therapy Professional Family Connection
FY 2018-19 EHDI & EI Family Survey Results
Parent to Parent of Pennsylvania www.parenttoparent.org
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
In EI, I was provided with information about community organizations, agencies, and events that are of interest to families who have children who are deaf or hard of hearing. 100%
94%80%
80% 60%
40%
20%
0%
FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
The information provided in the booklet Getting Started was reviewed with me by a service coordinator or other person. 100%
83% 77%
60%
80%
61% 40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
• Now Online Job Aid & Document
• Getting Started: Resources for Parents and Families of Infants and Young Children with Hearing Loss
http://www.eita-pa.org/low-incidence/hearing-deafness/
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
FY 2018-19 EHDI & EI Family Survey Results
Parent experiences with communication options and technology
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
96% 94% 87% 80%
I am satisfied that in EI the information I received about a variety of different languages and communication options/methods was provided in an unbiased way.
100%
60%
40%
20%
0%
FY 2016-17 FY 2017-18 FY 2018-19
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
EI staff consistently give parents information about all communication options.
91% 84% 77% 86%
60%
80%
100%
40%
20%
0%
L&SL ASL Cued Speech Total Comm
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
••••••• • •• • •• •• • •• • . , .. :... ······ •••••••• •••
•••
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Information on communication options is more often provided by EI staff than staff diagnosing hearing loss. 100%
40%
60%
80% EI Staff FY 2017
Eval Staff FY 2017
EI Staff FY 2018
Eval Staff FY 2018
20%
0%
L&SL ASL Cued Total Comm Speech
■
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
■
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
Most families Cued Speech are choosing
Listening & ASL Spoken
Language or Total Comm Total
Communication as their child’s L& SL
communication 0% 10% 20% 30% 40% 50% 60% 70% method.
FY 2018-19 FY 2017-18 FY 2016-17
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
~···················· ~· ........
••• -•••
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results S
Information on Hearing Aids/ALD comes equally from EI staff and staff diagnosing hearing loss. 100%
EI Staff 2017
Eval Staff 2017 80% EI Staff 2018
Eval Staff 2018 60%
40%
20%
0%
Hearing Cochlear FM Systems Aids/ALD Implants
■
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
□ □
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results P
Most infants in Early Intervention use Hearing Aids.
None/Unknown
Cochlear Implants
Hearing Aids & FM
Hearing Aids
0% 10% 20% 30% 40% 50% 60% 70%
FY 2018-19 FY 2017-18 FY 2016-17
FY 2018-19 EHDI & EI Family Survey Results
~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING
4. pennsylvania Y• DEPARTMENT OF HEALTH
FY 2018-19 EHDI & EI Family Survey Results
You can find the slides for today’s presentation at:
http://www.eita-pa.org/low-incidence/hearing-deafness/
Professionals>Low Incidence>Hearing/Deafness