Summer (April) 2014 Apostrophe magazine.

1Apostrophe Summer 2014

SUMMER 2014

Focusing on PEOPLE – not their disABILITIES

Inside

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20AnniversAry

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Win a trip to DisneylandPage 34

Presume competence — 11 People First of Louisiana — 14 Book: History of Willowbrook — 32 Backyard burgers — 48 Yoga connections — 52

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Sierra Lode faceddepression; now she’s helping others do the same — 26

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ApostropheMagazine.com4’InsideApostrophe

Contents/Departments

36 Fashion & Style College bound? Go casual, formal or business

ON THE COVER TIM HARRIS Photo by Amanda Horton

5 Letter from the Editor

6 Inbox Letters to the Editor8 Think About It! Training for independent life More support needed A matter of perception

14 People First Guest columnist Donna Spears

16 The Arc Center for Criminal Justice and Disability opens

20 Financial planning Providing for your grandchildren

22 ADA Barrier-free health care

24 Home & Garden Imagine! SmartHomes

32 Book Marks A History and Sociology of the Willowbrook School Making Self-Employment Work for People with Disabilities Just Like Other Daughters

54 Exclamation Points! Kyle Miller, volunteer firefighter Voices of the Village music ensemble Artist Candy Waters

58 Access Adaptable tools for summer fun

60 Assistive Tools Products that promote independence

62 Jigsaw Cartoon Fay and Friends

63 Worth Watching Laser Beak Man 46 / 47

65 Mercantile Goods made by some of our favorite entrepreneurs

52 Health & Wellness Connect your mind, body and soul

63 WORTH WATCHING Laser Beak Man — Superhero

57 EXCLAMATION POINTS Artist Candy Waters’ ‘bright happy world’

48 IN THE KITCHEN World’s best backyard burgers

Belle, or Beau, of the Ball? What about your social life? There will be plenty of time to hang out with friends in your comfy clothes, but there’s also going to be special events that call for a little oomph and pizzazz, such as formal dances, banquets or elegant weddings. Think tuxedos, evening gowns and shoes that reflect like mirrors.

It’s time to close that suitcase and lock it. Why? Because you don’t really need to pack formal wear.

Ladies, once you get to campus, look for a local resale or consignment shop. Many women wear evening gowns once and then they give them away. You can pick up a designer dress for a price that will still allow you to pay tuition!

Guys, get outfitted in a tux or formal suit for a reasonable fee at a store that rents clothing. The rental fee covers everything except your underwear! Save the big bucks for your education.

Fashion TIP!

Olya

Photos by Nate Peterson (fashion photos) Russ Kinkade, Angela Houk (behind the scene)

Wardrobe byBurlington Menswearburlingtonmenswearwi.com

Chic & Unique Consignment Boutiquefacebook.com/chicburlington

Ashley by Design ashleybydesign.com

Hair and Makeup by Gateway Cosmetology School

Grill Star!Backyard Burgers Prep and cook times 30 min · Makes 4

Ingredients• 1lb ground beef• 4 hamburger buns• 4 slices of cheese• 4 lettuce leaves

• 4 slices of onion• 4 slices of tomato• Salt and pepper• Olive oil

You will needGas grill, grill pan or charcoal grill (firing the coals will take an extra 30-45 minutes), metal spatula, sharp cutting knife and cutting board.

Make the perfect backyard burger!1. For extra juicy burgers, choose ground beef that is at least 18 percent fat.

2. Divide meat into four equal portions and gently form patties.

3. Sprinkle salt and pepper on both sides before putting the burgers on the grill.

4. Set your gas grill to high or heat the charcoal until it is glowing bright orange with ash.

6. Brush the burgers with oil and grill until golden brown and slightly charred. Cook three minutes.

7. Flip the burgers and cook until golden brown and slightly charred, four minutes for medium rare.

8. Add cheese at about 3 minutes, cover the burgers with tin foil or a lid to melt the cheese.

9. Place burger between two buns and serve immediately with preferred toppings.

Downward DogStart on your hands and knees with hands and feet a shoulders width apart. Curl your toes under and place the balls of your feet to the floor. Press your hands to the floor with your fingers facing forward. Lift your hips to the ceiling to form an up-side-down "V." Press your chest to your knees, focus your eyes on your toes and push your heels to the floor. Hold for two-three breaths.

Tips: Your upper and lower body should be equally supported. Push the floor away with your upper body, and press your heels to the floor.

Benefits: The downward facing dog lengthens your spine, the back of your legs and your feet. It also strengthens your shoulders and wrists. The downward facing dog is a rest position in between yoga poses and is considered a calming stretch.

Warrior 1 Begin in the downward facing dog position. Move your left foot forward and place it between your hands. Turn your right heel in (with toes to the right). Press your feet into the floor, and lift your torso. Ensure the arch of your right foot is in line with the left heal. Gently square your hips by pressing your right hip back and your left hip forward. Lift your arms over your head, and press your palms together. Raise your head and gaze at your hands. Stay in this position for five breaths. Return to the downward facing dog position. Repeat on the other side.

Tips: Modify Warrior 1 by reducing the distance between the heels to decrease intensity.

Benefits: Warrior 1 helps lengthen and strengthen muscles in the legs, hips, back, and shoulders. This pose helps build patience.

Learn more online at:yogajournal.commindbodygreen.com

Yoga is a physical, mental, and spiritual practice or discipline that was originated in ancient India. It's a practice that harmonizes the body with the mind and breath by using of various breathing techniques, poses and meditation. To the right, are some basic moves that will help you get started with your yoga practice. While the photos and descriptions will give you an idea how to perform each pose, it's best to learn from a certified yoga instructor. Also, don't forget to consult you physician before starting any exercise program.

Connect with your body, mind & soul

Summer 2014

5Apostrophe Summer 2014’ Contact us:P.O. Box 638205 E. Park Ave.Anaconda, MT [email protected]

Subscriptions:$19.99 a year — four issuesCopyright © 2014 Apostrophe

All rights reserved.Reproduction in whole or in part without express written permission is prohibited.

Got a story idea? Apostrophe welcomes articles for, by and about people with developmental disabilities. Send story ideas via e-mail to [email protected]. Or call us at 406.563.8117 and ask for Apostrophe staff.

Read Apostrophe online:www.apostrophemagazine.com

Publisher

Larry Noonan AWARE Inc.

Editor Jim TracyCirculation Manager & Graphic Designer

Jacquie PetersonAdvertising Manager

Eric ElanderBusiness Associate

Bryon Higgins

ApostropheAdvisory BoardStephen AddingtonBarbara AndreozziRussell CarstensChris ClasbyDr. Krista DavidDr. Bill DocktorJeff FolsomDr. David GummJohn HaffeyMarlene HolayterJesse LaslovichGraydon MollLarry NoonanAlison PaulRichard SaravalliMike SchulteDr. Henrietta ShirkAl SmithAlexandra VolkertsGeri WyantCheryl Zobenica

Contributing WritersChris ClasbyLeigh Ann DavisSusan GriffisKevin HardingTommy HarrisBlake HempsteadJudd KrasherTess LangstonJonathan MartinisDavid MorstadCindy PowellTony SampsonDr. Henrietta Shirk Donna SpearsTracy Terrill

Contributing PhotographersBlake Hempstead Angela Houk Russ KinkadeNate PetersonKenton RoweLuke Sanchez

Volume 6, Number 4Published by AWARE Inc.

Letter from the Editor’Turning can’t do’s into can do’sA few weeks back, Apostrophe staff sat down for a “Round-table Conversation” with the Dr. Samir Husni, better known as Mr. Magazine.

Dr. Husni is the founder and director of the Magazine Innovation Center at the University of Mississippi’s Meek School of Journalism and New Media. As Mr. Magazine (the name is trademarked), he does media consulting and research for the magazine media and publishing industry.

No one knows the business better.

We first came to know Dr. Husni in 2007 before there was an Apostrophe magazine.

We sent him an email asking what he thought of the concept of a periodical for, by and about people with developmental disabilities.

We kept the email he sent back: “There are a few magazines and newsletters that can be classified

as clinical. None on the consumer side. There are magazines for ADD children, diabetic children, (children with) asthma, but none like you are talking about.”

That short message gave us the courage to launch Apostrophe. A few months later, after writing a business plan that was long on hope and faith, the first issue went to press.

It was only fitting on our sixth anniversary (issue No. 24) that we would reconnect with Mr. Magazine, who grasps the purpose of Apostrophe and expresses it with eloquence. Here’s what he wrote in his weekly blog:

“Usually, leaving off an apostrophe can make a big difference in something, whether it’s grammatical or an attachment in people’s lives, especially people with developmental disabilities. When the apostrophes are eliminated, people realize “can’t do’s” become “can do’s.”

“And that is the mission of Apostrophe

Magazine – Apostrophe promotes inclusion of people with intellectual and developmental disabilities, showcasing that they too can become a productive and important part of our society.”

This issue of the magazine features two people who embody that notion.

On page 44 and following, you’ll read about restaurateur Tim Harris of Albuquerque, N.M., whose business model includes hugs for customers. Younger brother Tommy tells us about growing up together and wonders today why he ever doubted Tim would succeed.

Beginning on page 26, Sierra Lode describes her triumphs but also discusses a secret she kept to herself for many years.

Sierra, who is quadriplegic and has severe cerebral palsy (she also has a college degree), is learning to deal with depression and is helping other people with disabilities do the same.

— Jim Tracy


Inbox’‘Gabe has enhanced our lives’ Thank you for featuring my son Gabriel and his business, Gabe’s Glass Creations, in the Spring 2014 issue of Apostrophe magazine. Gabe is very proud of the article and shares it with everyone. He has received a lot of positive feedback on his story.

I thoroughly enjoyed reading all the articles and am thankful that a magazine like Apostrophe is working diligently to let everyone know the positive aspects of the lives of our loved ones. I wholeheartedly agree that Gabe and his peers deserve to be celebrated for their achievements.

I did, however, notice an omission in Gabe’s story. Gabe is able to live an inclusive, fulfilling life in the community because he has a strong support system. Gabe’s immediate family (Dad – Dennis, Sister – Andrea, and Mom – Loretta) work alongside Gabe so that he can create and sell his glasswork. Gabe designs the pieces but needs help with the sales, financials, paperwork and transportation. Gabe is also fortunate that his grandparents, aunts, uncles, cousins and friends purchase his glasswork and encourage his creativity and independence. I can only assume that the same underlying support networks are in place for all the success stories described in your magazine.

Gabe has enhanced our lives in more ways than I can mention. We wouldn’t change a thing. I just want to make sure your readers know that it is a team effort when you start a business. The possibilities are endless, but it requires a longtime commitment by everyone involved.

Loretta SilvaSanta Fe, New Mexico

Reader likes families’ storiesThe first time I read the magazine I was in Billings, Mont., at an Arc Montana conference. I was also fortunate enough to meet some of the amazing staff that makes this possible. In my opinion, the magazine is extremely informative, and being a mother of a special needs adult, I find it tough sometimes to find information. I am always researching for things that will improve Mikayla’s quality of life, and throughout the magazine, I was able to find many useful resources. Reading other families stories was my favorite. To learn about other families out there that have experienced some of the same challenges that I have is actually the most useful resource. Knowing that I am not alone

”

Letters To The EditorLetters to the editor should include the writer’s full name, address, daytime telephone number for verification and e-mail (if available). We do not accept anonymous letters. Letters should be short (fewer than 300 words). All letters may be edited for length, clarity, grammar and accuracy. In Box is a forum for promoting open discussion of topics of interest to our readers. To be accepted for publication, letters must relate to an article published in Apostrophe or relate to events and issues surrounding disabilities. We will not publish a letter if it is deemed potentially libelous; if it maligns a person or group; if it addresses topics beyond the scope of Apostrophe’s coverage; or if it is written to promote a product or service. We may limit the number of letters on one subject for space reasons. Priority for publication will be given to timely letters that directly relate to the content of Apostrophe.

Letters can be submitted via e-mail to:[email protected]

or by mail to:ApostropheP.O. Box 638Anaconda, MT 59711-0638

is extremely comforting. Having my story recently written, I am hoping that I have helped at least one family out there.

I highly recommend Apostrophe magazine to anyone and every family with or without a family member with special needs. I look forward to being more involved with this amazing family at the Apostrophe Magazine.

Sabrina WisherKalispell, Montana

“I just wanted to make sure your

readers know it is a team effort

when you start a business....

it requires a commitment by

everyone involved.

Celebrating progress and success The spring 2014 issue of Apostrophe was informative and entertaining. As I read the different stories celebrating the progress and success of people with disabilities, I was excited to learn how much progress is taking place around the country for people


anniversary. The group has supported the development of many advocacy leaders.

Apostrophe is a fantastic resource for people with disabilities, family members and friends who want to stay current and abreast about what is happening in the world with and for people with disabilities.

Phyllis Holton, Associate DirectorQuality Trust for Individuals with Disabilities and Project ACTION!Washington, D.C.

with disabilities. In our work at Quality Trust for Individuals with Disabilities, an independent advocacy organization in the nation’s capital, my colleagues and I advocate each day with people to live quality and fulfilling lives and fight with them for their rights and access to opportunity and independence. I enjoyed the article by Ruth Morris, a self-advocate with People First of Oregon. Self-advocacy plays a critical role in the lives of people with disabilities to speak up for themselves and others who may not be able to do so or not as effectively.

Project ACTION! is the District’s self-advocacy coalition that recently celebrated their 25th


Think About it’

by TRACY TERRILL

Independence, the ability to function or operate without the assistance of someone or something else, is a multifaceted concept. It is not something that should be pursued or taken on haphazardly. In Appropriate Independence: Potential Realized, Psychologist Dr. Russ Kinkade writes, “Independence, like many other concepts, must be balanced with other values and limitations in order for it to be a profitable ideal.”

He points out that a proper understanding of authority, personal responsibility, and humility are all needed to balance the concept of independence.

A life of independence that is not balanced by these other core values can easily become a reckless, self-absorbed existence.Many individuals with disability have a strong desire to experience a higher level of independence.

Their focus may involve personal care, ambulation, employment, their residential setting or any other aspect of life. The desire

to live a self-directed life is an admirable one. Yet the pursuit of independence is something that requires great intentionality and in most cases a significant level of support and guidance – assistance that diminishes as skills and abilities are attained.

Training for Independent Life is a new editorial series that will appear in each issue of Apostrophe. This series of articles will be written by various faculty and staff members of Shepherds

College in Union Grove, Wis., one of the nation’s premier post-secondary schools for individuals with intellectual/developmental disabilities. Shepherds College offers a holistic training program that has been developed around the guiding philosophy of Appropriate Independence™, which is predicated on the idea that independence is different for each individual.

Many factors contribute to an individual’s Appropriate Independence – strengths, talents, abilities, as well as the degree of one’s limitations and/or disability.

Shepherds College offers a holistic training program designed to impact students’ lives through relevant and experiential instruction that touches every facet of a student’s life in an attempt to prepare students for the lifelong pursuit of Appropriate Independence.™ The entire experience has been designed with the intent purpose of practical skill development in an effort to help students become trained for life and empowered to serve, the action steps to our philosophy of Appropriate Independence.™

With great success the faculty and staff of Shepherds College have implemented REAL instruction to facilitate training both in and out of the classroom. REAL instruction has been adapted from Thom and Joani Schultz’s

Training for independent lifeIndependence is something that we all aspire to attain in one way or another. Most teenagers look forward to the independence that a driver’s license can afford or the independence of getting away from mom and dad and heading off to college. Many people strive for the independence that comes from owning their own business and being their own boss. As Americans, we have the privilege of living in a nation that treasures its independence.


Sam and Sean experience relational learning in the college classroom. Shepherds College photo §

book The Dirt on Learning and it impacts every facet of our training program. Here are the components of REAL:

R – Relational: involves setting aside time for learners to talk and work together, building relationships from authentic learning with fellow students and instructors. The relational component of REAL instruction emphasizes the importance of community and the value of shared experiences.

E – Experiential: fully involves the learner and does not accommodate a passive observer. Interest in activities and ideas is ignited when students learn by using any or all of their senses (taste, touch, smell, hearing, seeing). Experiential instruction allows the students to make discoveries for themselves, and then share them with other students, resulting in relational learning.

A – Applicable: provides validity and purpose to the learning. When information is applicable to the learner’s life, he/she is motivated to learn the information. All subject matter should serve a practical purpose and/or promote an individual’s growth, development and ultimate pursuit of independence. Training must be applicable to life in order to truly be meaningful.

L– Learner-based: based on student’s interests, learning styles and attention span. It is not driven by a set curriculum or an instructor’s preferences, but by the learner’s specific interests and needs. Learner-based instruction results in increased motivation, learning and achievement. REAL instruction and the guiding philosophy of Appropriate Independence™ are two cornerstones of the Shepherds College experience.

Please join us as we share relevant and practical approaches in Training for Independent Life. Upcoming articles will include topics such as: conflict resolution, self-advocacy, healthy relationships, transition, community engagement, postsecondary education, daily living skills and success in the workplace.

We look forward to accompanying you in your Training for Independent Life.

Tracy Terrill is the executive director for Shepherds College in Union Grove, Wis. For more information about Shepherds College, an accredited, faith-based post-secondary school for young adults with intellectual disabilities, visit www.shepherdscollege.edu.


People who live independently need more supportThink About It

“

”

by TONY SAMPSON

I had the roughest winter since 1996 after my father died. His name was Napoleon Sampson. He called himself Nick when he came to Washington in 1963. He named me Nick Anthony Sampson, because he liked it, but you and my friends and family refer to me as Tony.

During the winter of ’96, I was working at Ames Department Store in Waldorf, Md., and working at Spring Dell in the workshop during the day and on the work crew at night. I was making $5.15 at Ames; and working seven hours a day for a week. My Social Security was $190 a month. I had to use my day’s insurance money to pay rent. It was gone within two years. I struggled, which brings me to this topic: people who live in disability agencies want or expect to learn skills in the real world, but they do not — not even the most high-functioning people, not even those who have a full high school education...like me!

People who are in agencies are not there to succeed in the real world. They are treated like people with disabilities. How? By holding them back, by putting them in workshops and enclaves, and more important, in menial jobs.

I’m talking about menial work like washing dishes in a restaurant or cleaning hotels.

Moving on. There are independent self-directed programs run by federal and state governments. These programs don’t have

’The one problem they

face is how much money

they can make on their

job, which affects their

eligibility for Social

Security.

Tony Sampson

agencies or workshops or enclaves or work crews with sub-minimum wages!

These programs allow people with disabilities to live the lifestyle they choose, to hire and even fire the staff and to pay for services with their funds and funds from the agency budget. Staff can help them manage to pay their bills like cable, utilities and even the rent (it will always come first!). They can be responsible and enjoy life. They can also help them on the job and help them look for jobs, and when they get a job (or a new one), they can train the person.

And when that person gets good or better, they should fade away and see how well he or she does on their own. The one problem they face is how much money they make on their job, which affects their eligibility for benefits, like Social Security and Medicare. They make too much for that, and what is worse, people with disabilities don’t make enough for the American dream: renting a house, buying a car or raising a family. You’re too old for an allowance, too young for a credit card. For people with disabilities, life is different

than for so-called normal people. Let me elaborate. “Normal” people have families and homes to go to, but people with disabilities have parents and counselors and group homes to go to. There is help, such as subsidized housing for low-income people. I learned in one of my workshops about the Ticket to Work. It is for people 18 to 64 who have SSI or SSDI. It is free and voluntary. You can select time to go to work or work from home as an alternative to reach your goal or financial independence. Anyway, Old Man Winter is catching his flight to South America. Enjoy this season ahead.

Self-advocate Tony Sampsonis a graduate of Leaders inDisability Policy and a formermember of the MarylandDisabilities Council. He hasdelivered many trainingsessions on inequality in thetreatment of people withdisabilities. He has worked atHome Depot for five years.


by DAVID MORSTAD

Do you ever look at someone and make assumptions about the kind of person they are? Of course you do. We all do. Chances are your assumptions are inaccurate; but then, so are the assumptions of others about you.

Here’s an exercise. Next time you are in an airport, take a short break from people-watching (one of my favorite activities), and briefly consider the reality that you are one of the people being watched. How well do the watchers know you? How accurate are their assumptions? How much do they know about the extent of your love for family, the depth of your pain over the loss of someone dear to you, or simply the diversity of your interests? Obviously, not much. What they think about you and what you know about yourself are miles apart.

How people see themselvesAs professionals in the disability field, this is a subtle but critically important consideration. Why? Because how we see people with intellectual and developmental disabilities and how they as unique individuals view themselves are probably also miles apart.

In fact, people with developmental disabilities may not even see themselves as having a disability at all. In the last several years, there has been some research around the question of how adults with intellectual disabilities self-identify. If one’s professional interest is in things like advocacy or, more important, building self-advocacy skills, insight into this self-perception is vital.

A matter of perceptionThink About It’

David Morstad

“

”

Treating adults with disabilities as though they were children is a sadly ubiquitous practice in American culture and beyond.

It turns out, people with intellectual disabilities may or may not see themselves as having a disability. In fact, it is far more likely that they identify with people much younger than themselves — in other words, as children.

A recent studyi (Weller 2014) looked at how adults with intellectual disabilities perceived themselves. Only 73 percent of the participants self-identified as more closely resembling adults, whereas the remaining 27 percent self-identified as more closely resembling children. Who could be surprised at this? Treating adults with disabilities as though they were children is a sadly ubiquitous practice in American culture and beyond. Self-perception of a disability, though, is a different matter altogether.

Building self-identity

It turns out that the self-perception of people with disabilities is, to some extent, situational. On a field of competition, they identify as athletes; at work, they are fellow

employees; in relationships, they see themselves as friends and lovers. In other words, they do not build an identity based on what they cannot do but on what they can do. Sound familiar? Probably, since that is precisely the way everyone else in the world defines themselves.

Guided by this, professionals are better positioned to form mutual relationships, ask more questions, and listen more deeply to the answers. As writer Kathie Snowii has encouraged, we need to “presume competence.” In so doing, we come alongside people to discover a richer and more complex relationship; and perhaps along the way discover a little more about ourselves. iWeller, M.R. Self-Perception of Adults with Intellectual and Developmental Disabilities. (2014) Advances in Applied Sociology 2014.

iiSnow, K. Presume Competence. (2007) Disability is Natural. Found at http://www.mcdsig.org/education/presume-competence-challenging-conventional-wisdom-about-people-with-disabilities/

David Morstad is executive director of The Bethesda Institute in Watertown, Wisc.


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LEVERAGING YOUR TRUE COMPETITIVE ADVANTAGEYou deserve a true expert to manage the options, rising costs, and compliance requirements of your benefits programs. As a leading advisor of broad-based benefits solutions, you gain from our experience in designing plans that support your company's sustained success, including:

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The resultA benefits program that genuinely supports your defined objectives, makes the best use of your benefits dollars, and enhances employee satisfaction and productivity. We invite you to contact us to discover the difference an exceptional benefits program and an experienced advisor can mean for your company.

Find out moreMary Kay Puckett, Senior ConsultantLeavitt Great West Insurance [email protected] � Cell:406.439.7315

845 S Wyoming � Butte, MT406-723-6501 � bswinc.org

Building Self-Worth in People with Disabilities

1022 Chestnut St § Helena, MT406.449.2344 § 800.245.4743advocate@disabilityrightsmt.orgwww.disabilityrightsmt.org

Civil rights protection & advocacy for Montana

disabilitymontana

rights

J.O.B.S.

406.541.6966 (v)406.546.9112 (c)406.541.6967 (f)800 Kensington, Suite LL3 Missoula, MT [email protected] www.jobsinfomt.com

Michelle PickellPresident

Thrive in building new horizons

Montana Independent Living Project

OFFICES IN Helena, Butte, Bozeman and White Sulphur Springs

800.735.6457 § 406.442.1612 (fax)www.milp.us

Promoting Independence for people with disabilities




~Employment~



Since 1990





~Employment~



Since 1990





~Employment~



Since 1990


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mmeEmpowersPeople.org

330 Main Street SW Ronan, MT 59864(406) 676-2563

Mission Mountain Enterprises

An advocacy and resource center for Montanans with disabilities

Phone: 406.728.1630Toll free: 800.398.9002fax: 406.829.3309700 SW Higgins Ste 101Missoula, MT 59803www.summitilc.org




~Employment~



Since 1990


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§ Residential - including group homes, transitional living apartments and supported living§ Vocational - every client earns a

paycheck§ Transportation - using a fleet of 17

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activities and interests§ Supported Employment - premier

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[email protected]

www.rssmt.org


Think person before disability“ To be an advocate is

totally about being part of society. ”

People First’

,

Donna Spears joined People First in Louisiana because she believes in its mission and vision state-ment. She believes people should come before their disabilities.

by DONNA ANN SPEARS

IwasanofficerandaboardmemberofPeopleFirstfrom2005to2007,butnowI’mjustamember.Iwouldsaythereareabout25to30membersinourchapter.Igettomeetotherpeoplewiththesameissuesasmine.Wecomeupwithsolutions,thenwetakethosetothePeopleFirstofLouisianaBoardofDirectorstoseewhatadvocacyactionsweneedtotake.SharonHennesseyistheadviserforthechapters.

ThevalueofPeopleFirsttopeoplewithdisabilitiesisextremelyhigh.PeopleFirstteachesmembershowto

advocateforthemselves.Iftheyarenotabletoadvocateforthemselves,PeopleFirstmembersadvocateforthatperson.

Tobeanadvocateistotallyaboutbeingpartofsociety.Educatinglegislatorsaboutissueswehaveinourcommunities.The“R”wordisanongoingcampaignforPeopleFirstofLouisiana.

DuringthemonthofMarch,wesetupinformationboothsinthecom-munity.PeopleFirstisalsowork-ingontheABLEAct,whichmeansAchievingaBetterLifeExperience.MostofthePeopleFirstchapterscollectduesatmonthlymeetings.PeopleFirstofLouisiana—atthestateandlocallevels—isorganizingafundraiserfor2014.

Here’salittleaboutmyself.

IwasbornJan.13,1966,inLakeCharles,La.,toLarryLeeSpearsandLoriseMarieDeshotelSpears.Ihavetwobrothersandonesister.MybrothersareTimothyLeeSpearsandJohnathanWayneSpears.MysisterisBrookeRenaeSpearsBergeaux.

TheyallliveinLouisiana.TimothyandhisfamilyliveinGottsCove.JohnathanandhisfamilyliveinJennings.BrookeandherfamilyliveinEvangeline.IseeJohnathanandBrookeeveryday.

IwenttoHamiltonElementary,S.J.WelshJuniorHighSchool,NorthsideJuniorHighSchool,thentoJenningsHighSchool.IattendedcollegeatLouisianaStateUniversityatEuniceandalsoMcNeeseStateUniversity.IdidnotgraduatefromhighschoolbutreceivedmyGEDin1992.

IwasemployedbyPeopleFirstofLouisianaasaprogrammentorandthenasanadvocacyfacilitator.Ihelpedlocalchaptersinthearea.Iattendedstakeholdermeetings,boardmeetings,conferences,etc.Ireallydidenjoymyjob,butduetolackoffunding,Iamcurrentlyunemployed.

IfirstjoinedPeopleFirstofLouisi-anain1999.Ialsobelongtomanyotherorganizationsinmyhometownandthroughoutthestate.Iliveinmydeceasedparents’home,andIpaythemortgage.

Iliketalkingtofriendsonthephoneandinperson.Meetingnewpeopleisinterestingtome.Ienjoylearningaboutdifferentcultures.

MyfavoritemovieisTitanic.MyfavoritetelevisionshowisNCIS.Myall-timefavoriteisMexicanfood.

Myfriendssaymybestqualityistheabilitytolistenandsupportotherswithoutjudgment.

Donna Spears

Apostrophe Summer 2014 15

The Arc is looking for entrepreneurs with intellectual and developmental disabilities to promote their microbusiness enterprises at the 2014 National Convention in New Orleans this fall. Join us on site to be part of Entrepreneur Alley and showcase your business in person. Or, work with us to sell your merchandise for you...We offer highly reduced rates for people with I/DD!

Contact Sarah Kennedy for more details at [email protected] or 202-534-3720 today!

The Arc’s National Convention * September 30 – October 2, 2014 * New Orleans, LA

www.thearc.org/conventionRegistration opens in May!

Are You A Self Advocate Entrepreneur?


The Arc’The Arc launches Center for Criminal Justice and Disability

”

by Leigh Ann Davis, M.S.S.W., M.P.A.Program Manager, Justice Initiatives

The Arc, the nation’s leading orga-nization for people with intellec-tual and developmental disabilities (I/DD) has been awarded a two-year grant for $400,000 by the U.S. Department of Justice, Bureau of Justice Assistance to develop a Na-tional Center on Criminal Justice and Disability, specifically focused on I/DD. This is the first national effort of its kind to bring together both victim and offender is-sues involving people with I/DD under one roof.

According to the National Crime Victim Survey of 2010, the victimization rate is twice as high for individuals with disabilities as compared to those without disabilities.

And we don’t have to look far for examples where law enforcement and people with I/DD could have ben-efited from this kind of work, including the tragic death of

People with I/DD are often unable to report crimes or are not seen as credible witnesses. They are vulnerable to becoming perpetrators of crime, including sex offenses and used by other criminals to assist in law- breaking activities.

“

on this topic exists, nor are there sufficient resources to address the gap in expertise in the field, and so this effort is long overdue,” said Peter Berns, CEO of The Arc.

The Arc is working closely with several other national partners within the criminal justice, legal and victim advocacy communities to research, analyze and replicate evidence-based solutions to the problems of injustice and victim-ization that have gone on for far too long within the I/DD community.

For example, people with I/DD are often unable to report crimes or are not seen as credible witnesses. They are also vulnerable to becom-ing perpetrators of crime, includ-ing sex offenses, and used by other criminals to assist in law-breaking activities. And with many forms of mild I/DD not being easily identifiable, justice personnel may not recognize that someone has a disability or know how to work ef-fectively with the individual. Although organized training is

Robert Ethan Saylor in Frederick, Md., who died earlier this year af-ter three off-duty deputies attempt-ed to remove him from a movie theater over a misunderstanding over a ticket.

The goal of this ambitious project is to create a national clearing-house for research, information, evaluation, training and technical assistance for justice and disability professionals and other advocates that will build their capacity to bet-ter identify and meet the needs of people with I/DD, whose disability often goes unrecognized, and who are overrepresented in the nation’s criminal justice system — both as victims and offenders.

“When individuals with I/DD become involved in the crimi-nal justice system as suspects or victims, they often face miscom-munication, fear, confusion and prejudice. This new center will play a critical role in improving first response and communication between people with I/DD and the justice system. No similar center

Leigh Ann Davis


,

available for criminal justice professionals on mental ill-ness, few resources on I/DD exist. Many law enforcement and other justice professionals do not know the difference between mental illness and I/DD and often think they are synonymous.

“When our chapters work with their local law enforcement agencies, they hear time and time again that training is pro-vided for mental health issues, yet that doesn’t encompass millions of people with I/DD living in our communities. Through this grant, The Arc’s center will become a national focal point for the collection and dissemination of resourc-es and serve as a bridge between the justice and disability communities,” said Berns.

The center will consist of an online resource library, which will continually be updated as well as news and information about criminal justice issues as it relates to people with I/DD.

In addition, the center offers monthly online educational sessions and is in the process of developing curriculum and trainings for law enforcement professionals. Find out more about the center’s activities at www.thearc.org/NCCJD.

1600 S. 3rd St. West | Missoula (406) 541-3663 | 7am to 10pm Every Day

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Fetal Alcohol Spectrum Disorder (FASD) is the only 100% preventable intellectual and developmental disability. Yet, still many women think it is ok to drink during pregnancy. There is no safe amount. You can help prevent FASD and the lifelong, incurable problems it brings by spreading the word during Alcohol Awareness Month this April.

Find out more about FASD at www.thearc.org.

Talk to Your Doctor!


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FairmontMontana.com 800.332.3272

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Join us forThe Arc’s National Convention

September 30-October 2, 2014New Orleans, LA

Registration opens this spring. Details at convention.thearc.org.

Apostrophe magazine has come to know a group of people who continually amaze us by their relentless dedication to their children, whether young or old.

Moms are the best!

We call them Warrior Moms.

Read their

stories!

And we are proud to share their stories! (like Barb Rolf and her daughter Katie)

Sign up to read their inspiring stories...it's free!� ApostropheMagazine.com/subscribe

Barb Balko-Rolfwith daughter, Katie Rolf

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Sign uponline at


At MetLife, our focus on special needs planning is evolving with the families we serve. We recognize

that caregivers and their dependents are of all ages and relationships. And while caregivers are aging,

dependents are living longer as well.

That’s why the MetLife Center for Special Needs Planning is eminently qualified to help you

continue to financially protect your loved one—even when you may no longer be there for them. Let us

show you how.

Call MetLife at 877-638-3375 or visit us at www.metlife.com/specialneeds

Center forSpecial Needs

Planning

MetLife

SM

©2013 Metropolitan Life Insurance Company, New York, NY 10166. L1212295055[exp1214][All States][DC,PR] © 2013 PNT 1304-1072

Option 1 with the blue border.....and fixed color

October 2013 Ads fixed.indd 1 9/18/2013 1:46:48 PM


Grandparents want the best for

their grandchildren and often

give gifts while alive, or make

provisions for their loved ones

for after they are deceased.

Grandparents who are in a

position to leave money or assets

often want to do something

for their grandchild(ren) who

has special needs. They often

worry that their loved one may

need additional assets or assistance to lead a quality life. Grandparents

are sometimes told not to leave their grandchild(ren) with special needs

anything because the grandchild(ren) may lose government benefits.

People are often confused as to what to do or not to do.

Tips for planning for your grandchildren with special needs

Financial Planning’

Grandparents can leave money to their grandchild(ren) with special needs. There are very special ways to do it! Money has to be left in such a way so that government benefits are not lost. In most states, assets in excess of $2,000 will cause the loss of certain government benefits for a person with a disability.Money should not be left to the grandchild directly, but should be left to a special needs trust. The special needs trust was developed to manage resources

while maintaining the individual's eligibility for government benefits. The trust is maintained by a trustee on behalf of the person with special needs. The trustee has discretion to manage the money in the trust and decides how the money is used. The money must be used for supplemental purposes only. It should only supplement, or add to benefits (food, shelter or clothing) that the government already provides through Supplementary Security Income (SSI). It must not supplant or replace government

benefits. If properly structured by a knowledgeable special needs attorney, the special needs trust assets will not count towards the $2,000 SSI limits for an individual.

On the next page, find a brief summary of some Dos and Don’ts when planning for your loved one with special needs �


Dos:�Consult with trained financial, legal and tax professionals with expertise in

special needs estate planning.

�Make provisions for your grandchild(ren) with special needs. Leave money to their special needs trust. When properly drafted, a special needs trust for your grandchild will not result in the loss of government benefits.

�Coordinate all planning with your grandchild(ren)’s caregivers and other relatives. Notify the caregivers when you plan for grandchild(ren). Plan with others.

�Leave life insurance and annuity death benefits to the individual’s special needs trust. The special needs trust can be named as the policy beneficiary. When the insured or annuitant dies, the death benefit is paid to the special needs trust. The special needs trust then has a lump sum of money to be used in caring for the grandchild(ren).

Don’ts:�Don’t disinherit your grandchild(ren) who have a disability. Money can

be left to a properly drawn special needs trust. It does not make sense to disinherit these grandchild(ren).

�Don’t give money to your grandchild(ren) with a disability under UGMA or UTMA (Uniform Gift or Transfer To Minors Act). Money automatically belongs to the child(ren) upon reaching legal age. Government benefits can be lost!

�Don’t leave money to a grandchild with special needs through a will. Money left will be a countable asset of the individual - and may cause the loss of government benefits.

�Don’t leave money to a poorly set up trust. Money left in an improperly drafted trust can result in the loss of government benefits.

�Don’t leave money to relatives to “keep or hold” for the individual with special needs. The money can be attached to a lawsuit, divorce, liability claim or other judgment against the relative.

Due to the complexity of federal and state laws, you should confer with qualified legal and tax advisors and specially trained financial service professionals to help you plan for the future of persons your grandchild(ren) with special needs. MetLife Center for Special Needs PlanningSM. For more information about this and other related topics, visit our organization’s web site at www.metlife.com/specialneeds or call 1-877-638-3375. Metropolitan Life Insurance Company, 200 Park Avenue, New York, NY 10166 L1112292122 [exp0214][All States][DC,PR]


Barrier-Free Health Careby CINDY POWELL

in the room while discussing a diagnosis, test results or treatment.

�Health care personnel should talk directly to patients rather than companions. Providers should ask patients whether they require assistance, and if so, specifically how they may assist. Examples include, but are not limited to, assisting the patient with dressing and undressing and getting on and off and maintaining positioning on an examination table.

�Tenants and landlords are equally responsible for complying with the ADA. When leasing a space, the lease should specify who is responsible for some or all of the accessibility requirements. The tenant is frequently responsible for the space it uses, such as the examination and waiting rooms. The landlord is usually responsible for the common space used by more than one tenant, such as restrooms.

�Accessibility requests should be documented in every patient’s chart, so health care providers are prepared to accommodate and assist all patients as required during every visit. It is also imperative that health care personnel receive training to safely transfer patients to and from mobility aids to medical equipment.

�When accessible medical equipment is acquired, staff should immediately learn how to operate it. Adjustable examination tables can be adjusted to the same level as a wheelchair: 17-19 inches above the floor.

�Examinations are more thorough when patients are lying on an examination table. Patients should not be examined while seated in their wheelchairs unless the examination does not require that a person lie down. When examinations are provided to patients while seated in their wheelchairs they do not receive equal medical services as required by the ADA.

�All patients, regardless of disability status, are entitled to go to medical appointments alone. Health care providers cannot require patients who have disabilities to bring companions or their personal care attendants to assist during medical examinations. However if the patient chooses to bring a friend, family member or assistant, before beginning an examination, the health care professional should ask the patient whether their companion can remain

Cindy Powell is a training and development specialist at Carmel Community Living Corporation and its nonprofit ACESO Foundation. She advises businesses, employers, government agencies and nonprofits about best practices for people with disabilities. §

ADA’

Helpful links are specified below:People with Disabilities Often Miss Prevention, Wellness Carewww.amednews.com/article/20050822/health/308229973/6/

Access to Medical Care for Individuals with Mobility Disabilities www.ada.gov/medcare_mobility_ta/medcare_ta.htm

People with disabilities are less likely to receive routine preventative health care than people without disabilities. The Americans with Disabilities Act (ADA) requires health care providers to give accessible services to patients who disclose disabilities.

�Health care professionals would benefit from training in serving individuals with disabilities throughout all public areas in a health care facility such as the cafeteria, emergency rooms, gift shop, inpatient facilities requiring overnight stay, long-term care/rehabilitation facilities, outpatient facilities with no overnight stay, pharmacies and surgical units.

�A patient with a disability cannot be denied service because it might take longer to examine them. Some examinations are simply lengthier than others. All patients, those with or without disabilities, must be provided with thorough medical examinations regardless of how much insurance reimbursement the health care provider will receive.

�A patient with a disability should not wait longer than a patient without a disability. A prudent scheduler should ask every patient requesting an appointment if they require assistance. The health care provider can then reserve a room with an accessible examination table whenever a patient discloses a mobility disability.


1880 Harrison Ave.406-497-7000Butte, Mt 59701

3701 Harrison Ave.406-494-3900Butte, Mt 59701

307 East Park Ave.406-563-5203Anaconda, Mt 59711

In October, ANCOR and other disability organizations announced the declaration of The Rights of People with Cognitive Disabilities to Technology and Information Access. As the digital age continues to accelerate, access to technology and information is essential for community and social participation, employment, education, health and general communication. New technology has great potential to open doors for people with intellectual and developmental disabilities, so their unequal access is a significant loss to over 60% of the world’s population. The declaration puts forth the principle that all people have a right to inclusion and choice in relation to technology and access.

http://www.colemaninstitute.org/declaration

Individuals and organizations, learn more and endorse the declaration here.

ANCOR Supports the Rights of People with Cognitive Disabilities to Technology

and Information Access

Imagine! SmartHomes are living laboratories. They feature “SmartSupports” — assistive technologies that can be used in family homes to keep people with developmental and cognitive disabilities living in their own homes, or their family homes, for as long as possible. Photo courtesy of Fred Hobbs, director of public relations for Imagine! §


by Judd KrasherSocial Media Marketing ManagerLiving Resources

Kevin HardingDirector, Information TechnologyImagine!

Most people with intellectual and development disabilities (I/DD) are locked out of many areas of technology. Many providers and ANCOR have committed themselves to unlocking those doors and ensur-ing that individuals with intellectual and developmental disabilities are fully participating members of this technological revolution. One inno-vative way providers are doing this is by building SmartHomes.

Imagine!, a provider of services in

Colorado for people with I/DD and a member of ANCOR, opened its first SmartHome in 2009 (the Bob and Judy Charles SmartHome). It was designed with the goal of creating a space where people with disabilities could use technology to increase their independence and self-suffi-ciency. Since then, Imagine! received a HUD grant to help build a second

SmartHome, the Charles Family Sm-artHome. The SmartHomes project has received numerous awards, and the homes have hosted 1,500 visitors from 12 different countries.

Residents at the Bob and Judy Charles and the Charles Family SmartHomes are connecting with their family, friends and members of

Curb appealSmartHome technology unlocks the outside world

Today, most people use technology in a wide range of ways: enjoying access to entertainment, providing instant opportunities for mobile communications, and so on. Just when you think nothing more can be added to the list of how we can use technology, innovation surprises us.

Home & Garden’


their support team via an accessible email system (Endeavor Email). Residents are also using a newly developed, easily accessible Face-book application with great excite-ment as they further connect with family, friends and co-workers.

These tools have been developed by one of Imagine!’s main technol-ogy partners, AbleLink Technolo-gies in Colorado Springs; and this partnership continues to evolve thanks to the input from residents and staff members. SmartHome residents are sharing their experi-ences through a variety of blogs.

The technology being used in the SmartHomes was never meant to be permanent. As Imagine! discovers which tools and systems work, they are pushed out to other service areas of Imagine!, including day programs and other group residential settings.

For example, a resident at Imagine!’s 19th Street group home is working with his DynaVox communication device to take the first steps toward independent decision-making.

Auditory cues

The resident presses a switch with his head to interact with his device, and the speaker connected to the switch provides the resident with auditory cues based on his choices.

Utilizing similar technology, an Imagine! Communication Class con-sisting of three non-verbal students who use communication devices, and one partially verbal student who does not use a communication device, are working on different objectives, such as letter recognition and device navigation. Imagine! staff members have developed a game of Hangman that allows students with very differ-ent levels of communication skills to achieve similar goals with this one classroom activity.

Living Resources, a provider of services in New York for people with

I/DD and a member of ANCOR, has worked over the past five years to build the first Smart House in New York State. With $750,000 in public and private grants, Living Resources recently opened its SmartHome, exclusively serving people with intel-lectual and developmental disabilities and severe mobility issues, welcom-ing six individuals into their new state-of-the-art, 4,000 square-foot home. The technology encompassed within this SmartHouse is having a major, positive impact on the resi-dents and the community at large.

The house uses universal design to eliminate mobility barriers and 22,500 watts of solar collectors and solar heat storage to lower its carbon footprint.

Programmable technologies were built into the construction design that allows all six residents to control their individual room environment: lighting, shades, fan, phone, TV and website access. Another crucial goal was to build spacious bedrooms so that each resident could invite friends and family to visit in the privacy of their own personal space.

Located on a two-acre plot of land, Living Resources has plans to build outdoor recreational space and raised gardens over the summer months.

Thanks to a $50,000 kitchen design grant from Hannaford Supermar-kets, the kitchen is set up to allow each person to safely participate in food preparation and cooking. All kitchen counters and appliances are ADA compliant. Each individual can safely use the stove; an induc-tion stovetop designed so that it heats only the cookware without becoming hot to the touch and is programmed to shut off when not in use.

With these technologies, Smart-Home residents are able to fully ne-gotiate their environment. ANCOR and community service providers like Living Resources across the

U.S. believe that SmartHome de-signs create many opportunities for individuals with I/DD to exercise real choice, safely and independently, without limitations.

Imagine!, Living Resources, and ANCOR operate on the philosophy that individuals with intellectual disabilities have much to offer their community. They believe technology offers people with intellectual and developmental disabilities more op-portunities for greater independence. To this end, ANCOR collaborates with the University of Colorado’s Coleman Institute for Cognitive Disabilities in offering an annual Technology Summit held in October which is open to providers, people served and their families. Imagine! and Living Resources have long been active members in ANCOR, and Imagine!’s Chief Operating Officer and Director of Business Develop-ment, Greg Wellems, serves on ANCOR’s Board of Directors. Imag-ine!, Living Resources and ANCOR continue to believe the more services we can deliver using technologies that provide for lifelong learning and greater self-sufficiency the better the future will be.

“The house uses

universal design to

eliminate mobility

barriers and 22,500

watts of solar collec-

tors and solar heat

storage to lower its

carbon footprint.”

,


Sierra Blue Lode describes herself as non-verbal.

That doesn’t mean she’s not talkative. And when it comes to helping teens with disabilities make the transition to adult life, Sierra, who is quadriplegic and has severe cerebral palsy, is never at a loss for words.

“I present on various topics affecting youth with disabilities who are transitioning into the adult world,” she told Apostrophe in an email interview. “I have been there, and I have a lot of experience.”

That’s an understatement.

Shortly after Sierra was born, a virus attacked her central nervous system and damaged her brain.

“So the messages that my brain sends to my muscles get mixed up or don’t get there at all,” she said. “The part of my brain that thinks and learns is perfectly fine. I have to use other methods to communicate, like

using my communication computer to talk and to write.”

A bright-eyed blonde with an alert gaze, Sierra started to put those communication tools to work when she was young but hit her stride in high school while preparing a presentation on cerebral palsy.

Taking a riskSierra Lode’s

personal story

is about mental

health therapy

and depression,

but it’s also about

the success she’s

achieved with love

and support from

people who value

her contributions

‘Moments that take our breath away’ is the theme of the quote stenciled on the wall at the home of motivational speark Sierra Lode of Helena, Mont. Photos by Kenton Rowe §


“I was asked by my health teacher if I would give my talk to all of the sophomore health classes,” she said. “I welcomed the chance to explain what CP is and dispel any myths about the disability. And I was somewhat motivated to get a good grade.”

The presentation got her started on her life’s mission.

“To my surprise, I was well received by the classes,” she said. “I felt like I had credible information to pass on to my peers, and I was inspired to develop other topics involving the aspects of having a severe disability.”

Sierra developed her own IEP goals for her senior year to include doing two presentations at educational conferences. The school district provided support staff and travel expenses. She happily accomplished her goals.

Motivating people

She’s out of school now and wants to put her skills to work as a motivational speaker and actually get paid to do presentations.

On her journey to adulthood, Sierra has been helped to by a number of people who love her and value her contributions, starting with her parents.

“My mom and dad have been, and continue to be my rock and foundation!” she said

The daughter of Fred and Carol Lode, Sierra was born in Cut Bank, Mont., in September 1983. When she was 3, a forward-thinking pre-school teacher insisted on having a computer in the classroom for her.

“It was there that I learned ‘cause and effect’ on software called Catch the Cow,” she said. “By using a cheek switch, I trapped the cow in a rectangle on the screen at the appropriate time by hitting my switch. I cannot control a joystick or switch with any part of my body, but my head has always been my reliable resource for intentional use.”

She used a “Light Talker” for several years by switch-scanning pictures that represented things she wanted to say with synthesized speech.

“Once I learned how to spell, I moved on to an Apple laptop with ‘Speaking Dynamically’ software that had word prediction that I still operated with a cheek switch.”

Today she uses eye-gaze technology — a system that consists of a computer with several cameras that watch her eyes direct their focus to an on-screen keyboard.

“This technology is extremely sophisticated, and though miraculous, my cerebral palsy is unpredictable in my success using it,” she said.

“Sometimes my motor skills are right-on, and I can crank out lots of text, and sometimes it is laborious, fatiguing and frustrating. This technology did get me through college, taking me six years to obtain an associate of arts degree.”

‘A dear friend’

Sierra singled out another mentor.

“Her name is Diane,” she said. “Diane was my one-on-one paraprofessional from the second grade all the way through two semesters of college. She is remarkable and is a special gift to me to this day although she lives over 1,500 miles away now. Not only is she my dear friend and supporter, she continues to be a gift to all, especially to those individuals who have disabilities.”

Sierra graduated from Capital High School in Helena in 2002 and completed an associate of arts degree with an emphasis on communication studies from

‘Eye-gaze’ technology allows Sierra Lode to communicate. The system consists of a computer with several cameras that watch her eyes direct their focus to an on-screen keyboard. §

Continued on the next page


the University of Montana Missoula College of Technology in 2012.

Because of her disabilities, she felt the need to prove to herself.

“I felt that I had a better chance to do something meaningful with my life if I could prove to others that I had what it takes to be well educated,” she said.

She also wants to be a example for others with disabilities.

“I plan to be a more pro-active role model to those who have similar disabilities,” she said.

To that end, she started a business as a motivational speaker, calling the venture “Speaking Out of the Box.”

Getting personal

In her most poignant presentation she discusses her personal story about mental health therapy and depression.

“I’ve had serious depression probably since middle school years,” said Sierra, who is 30. “Since I was not willing to share my secret, I did not seek help until after high school.”

She took “the biggest risk of my life” by asking a female psychologist if she would take her on as a client after she did an assessment required as part of a vocational rehabilitation application.

“She seemed like a person with whom I could place my trust,” Sierra said. “Since then, I have been a client of a psychiatrist who goes above and beyond what you would expect a doctor would do in this day

and time – he comes to my house because it is so much easier for me than going to his office.”

Between sessions, the psychiatrist encourages her to send him emails on how medications he prescribed are affecting her and how her moods are.

“He’s the best,” Sierra said.In the part of her slide show presentation she calls the “Missing Therapy,” she talks about depression.

The presentation is geared toward young people with disabilities, but Sierra has noticed that parents, teachers and other professionals in

Dad and Mom (Fred and Carol Lode) are my “rock and foundation,” says Sierra Lode, who bought her own home in 2012 with her parents’ help. Photo by Kenton Rowe §


her audiences are keenly interested in the information she has to offer.

“When you can ‘come out’ with your own experience with depression,” she said, “it gives others the courage to do so also.”

It should go without saying, but she emphasizes that she is the same inside as any other person her age.

“I just don’t look the same on the outside,” she said. “You can actually see my disabilities. They are mostly physical, but I am intelligent, have a good sense of humor and I like meeting new people and I don’t like being alone. I like to travel and visit large cities like Chicago and Washington D.C., and I would love to go to New York City in the near future.

In her free time Sierra enjoys books, movies — especially musicals — and the theater.

Romantic comedies

“I like romantic comedies as well as the classics like Little Women and Pride and Prejudice” she said. “Les Miserables is my new favorite.”

She has never ever gotten tired of mac’n cheese and her dad’s homemade pancakes, she said, “are to die for.”

Like other young adults her age, Sierra lives in her own home, a tidy two-bedroom affair with a deck and spacious backyard in a quiet neighborhood in Helena. She shares her home with another young woman, Beth, whom she describes as “the best housemate and friend ever!”

Sierra bought the home last year with the help of AWARE Inc., a service provider in Montana, and NeighborWorks, which creates

opportunities for lower-income people to live in affordable homes.

“There is much involved in buying your own home, and I have relied on my parents’ knowledge about this huge step,” she said.

To qualify for government financing, she took classes, including a 16-hour “First-Time Homebuyers” course covering all of the topics involved with buying a home for the first time, such as qualifying for a mortgage, homeowner’s insurance, all aspects of the “buy-sell” legal document, property inspections, real estate agencies and Section 8 Home Choice Vouchers.

“The Section 8 component was really involved,” Sierra said. “I was also required to take a 16-hour class on money management to qualify for some additional funds that were put towards my mortgage. Both the class and the additional mortgage money were simply invaluable.”

She also had to save a certain amount of money to be matched by another program.

“I have been extremely fortunate to have these various government programs that made it possible for me to be a happy homeowner,” she said

Youth Leadership Forum

As if buying and keeping up a home and operating a fledgling business didn’t keep her busy enough, she is also active in the Montana Youth Leadership Forum and has been since 2000, when she was just 16.

“Attending the forum changed my life drastically,” she said. “I found my worth and my potential as a young person with severe disabilities through this forum that I actively promoted for the next 10 years

as well as being on the “Speakers Bureau.”

As for role models, she admires just about everyone who has a disability. Among the people who have had the greatest influence on her, she includes: June Hermanson, the founder of the Montana Youth Leadership Forum; Michael Beers, a peer advocate specialist for youth with disabilities “as well as a very funny stand-up comedian”; John Feught, a special education teacher who has quadriplegia and is also non-verbal (Feught is the founder of “Authentic Voices of America,” a camp at the University of Wisconsin-Madison for young people who are non-speaking and use technology to communicate; and Geri Jewell, an actress who has cerebral palsy.

‘I admire them all’ “She, too, is a stand-up comedian and professional motivational speaker,” Sierra said. “There are a lot more individuals who are so influential in my life. I admire them all, and I am so grateful for knowing them.”

Sierra is “a very active” member of the Montana Independent Living Project Peer Advocates Committee and the University of Montana Rural Institute on Disabilities Advisory Council.

“Our focus is on transitioning youth with disabilities into the adult world,” she said.

Sierra’s own transition is an excellent example to follow.

Story by Jim Tracy, Apostrophe editor.


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ExperiencethesmalltownwarmthofUnionGrove,WI.Meetwithfaculty,staffandstudents.Hearaboutfinancialaidoptions,includingscholarships,tohelpcoverthecostofthisthree-yearprogram.Tourthedorms,homesandapartments.EatlunchpreparedespeciallyforyoubyourCulinaryArtsstudents.Learnfromthestudentsastheypresentknowledgegainedintheirspecialtymajors.Fill your mind with hope and possibilities!

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A History and Sociology of the Willowbrook State School

David GoodeDarryl B. HillJean ReissWilliam Bronston

AAIDD (2013)

The Willowbrook State School is often regarded as the “ground zero” of the disabilities civil rights movement, and it is a significant part of the history of disabilities in the United States. A History and Sociology of the Willowbrook State School documents in great detail what life was like for people who lived and worked at Willowbrook during the period from its founding in 1948 until immediately before Geraldo Rivera’s sensational 1972 television expose about the conditions at Willowbrook.

Authors David Goode, Darryl Hill, Jean Reiss, and William Bronston collaborated on the contents of this book. At least two of these authors had first-hand experience at Willowbrook. The result is a multifaceted sociological and historical analysis of the notoriously infamous Willowbrook, an institution for intellectually and physically disabled children and adults. Historically, Willowbrook was not so different from similar state institutions of its time. The period before the 1970s was a time when disabilities were increasingly “medicalized.” This situation became

’Book Marksteach. Willowbrook was shut down in 1987. While this book provides grim reading, it serves as a necessary reminder of the perils of large-scale institutions and the “medicalization” of disability. Finally, it offers well-documented reasons for avoiding future inhumane facilities for the intellectually and physically disabled.

By Dr. Henrietta Shirk, who teaches in the Technical and Professional Communication Department at Montana Tech of The University of Montana, Butte, Mont. Dr. Shirk is a member of Apostrophe’s editorial board.

Making Self-Employment Work for People with Disabilities, Second Edition

Cary Griffin M.A.David HammisBeth KeetonMolly Sullivan

Brookes Publishing2014

As self-employment becomes a viable option for more and more adults with significant disabilities, give them realistic, practical guidance and support with the new edition of this popular guidebook.

Updated with a new and improved assessment approach, more self-employment success stories and the latest on policy changes and online opportunities, this book is your step-by-step guide to helping adults with disabilities get a small business off to a strong start.

the impetus for the creation of large-scale institutions like Willowbrook, where the intellectually and physically disabled were often warehoused either because their families did not want to care for them or because they had no other place to go.

The horrific and deplorable particulars of Willowbrook are showcased against the backdrop of the idyllic rural setting of Staten Island, New York, where the community of Willowbrook residents tried to survive in the midst of endemic inhumane and disreputable living conditions. Diseases, physical and emotional neglect and abuse, and even malnutrition were rampant. Within this highly self-contained institutional “island” that was hermetically isolated from the surrounding countryside, most residents were treated without any semblance of humanity and with systematic neglect. Although there were a few exceptions, most of the Willowbrook residents were treated as automatons and as laboratory experiments, with their disabilities manipulated through medications that kept them silenced, calm and under the control of their caregivers.

For their material, the authors conducted interviews with former Willowbrook patients and caregivers, providing as many different perspectives on the history of how the institution functioned as possible.

They maintain that perspectives on Willowbrook were different for different people, depending on the social status of the individuals involved at the institution. Willowbrook illustrated what American sociologist Erving Goffman described as a “total institution,” one completely cut off from the main society and in which a small number of powerful people were in charge of a large number of powerless ones. Today, the College of Staten Island occupies the buildings and 200-acre grounds of the former Willowbrook State School, where two of the authors


You’ll discover the nuts and bolts of person-centered business planning, and you’ll get concrete, step-by-step strategies for every aspect, from business plans to marketing to finances. A must-have resource for employment specialists, transition professionals and individuals with disabilities and their families, this book is the go-to guide for turning a small business into a big success.

Support people with disabilities as they: • discover their “personal genius” with a new assessment approach;• build a thorough and professional business plan based on their goals and interests;• successfully finance their small business using multiple revenue sources;• market their business, from defining customers to advertising in a variety of media;• maintain their benefits while navigating financial and social security systems; and• make the most of valuable support from rehabilitation personnel, vocational counselors, school transition staff, and community programs.

Practical materials

Photocopiable planning worksheets, case studies that clearly illustrate the “how” of successful self-employment, and an annotated list of websites with vital information for small business owners.

What’s new in this edition?• New, field-tested “Discovering Personal Genius” assessment approach• Up-to-date ideas on using social media and technology to develop and market a business• Completely revised information on person-centered business planning• Updated information about online business opportunities

Just Like Other Daughters

Colleen Faulkner

Kensington Publishing2013

Alicia Richards loved her daughter from her very first breath. Days later, when tests confirmed what Alicia already knew — that Chloe had Down syndrome — she didn’t falter.

Her ex-husband wanted a child who would grow to be a scholar. For Alicia, it’s enough that Chloe just is.

Now 25, Chloe is sweet, funny, and content. Alicia brings her to adult daycare while she teaches at a local college. One day Chloe arrives home thrumming with excitement and says the words Alicia never anticipated.

She has met someone — a young man named Thomas. Within days, Chloe and Thomas, also mentally challenged, declare themselves in love.

Alicia strives to see past her misgivings to the new possibilities opening up for her daughter. Shouldn’t Chloe have the same right to love as anyone else?

But there is no way to prepare for the relationship unfolding, or for the moments of heartbreak and joy ahead.

With grace and warmth, Colleen Faulkner tells an unflinching yet heartrending story of mothers and daughters, and of the risks we all take, both in loving and in letting go. ,

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Apostrophe Magazine and Trips Inc.are proud to o� er you a chance to win a Free Trip to Disneyland in 2015! Enter today! No purchase necessary! Th e winner will be chosen December 1, 2014, and will go to Disneyland on a Trips Inc. Offi cial Tour in 2015. Complete details at Apostrophemagazine.com. Winner must meet Trips Inc. guidelines.

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Ellie Ashley

Fashion & Style’

Fashion TIP!

Be 'cool' in casual clothingHeading to college in the fall? Odds are you’ll be dressed in casual clothing and sitting in a classroom. But before tossing all your sweats, pajama bottoms and yoga pants in your suitcase, consider a few things first:

1. Make sure your clothing meets the dress code policy.

2. What's the climate like where your new school is located? You’ll pack differently if you’re heading to a place with warm or cold weather.

3. College students don’t have a lot of money for dry cleaning or space for hanging hand washables. Read care instructions and select practical items.

4. Given your specific disability and all of the snaps, buttons, hooks, and zippers, can you manage the clothing on your own?

5. Are you so comfortable in your clothing that you can forget you’re wearing it? If it's uncomfortable, over-the-top, or just doesn’t make you feel good wearing it, you’re going to be distracted (and maybe even distracting) in class. Wear clothes that help you stay focused!Torrey



Business savvy selectionsAs your college years progress, you’ll be heading off to job fairs, internships and job interviews. Your college hoodie isn’t going to cut it! It’s time to break out the suit wrapped in dry cleaner’s plastic at the back of your closet. You don’t own one? Don’t worry! There are stores that sell gently used clothing at prices that won’t hurt your college budget. Check them out first before going to a full-priced department store.

Now what should you pack? If you already own a nice suit or classic dress, pack it carefully. One of these should get you through the first year or two of college. If you already know that your major is going to involve an internship that will require more dress clothes, start haunting your neighborhood resale or consignment shop. Talk to the manager, and let her know what size and types of clothing you need. Most shops will contact you when this type of clothing arrives. It wouldn’t hurt to pack a nice belt, dress socks, and a pair of dress shoes (black is safe). They don’t take up much space!

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Behind the scenes

Hair, makeup, school spirit

News, hoops, angels, pearls

Frame by frame at the Shepherds College fashion shoot


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& Candy StoreO l d W e s t C a n d y . c o mO n M a i n i n D a r b y • 4 0 6 . 8 2 1 . 4 0 7 6

We hope you will catch the vision and subscribe to Apostrophe.Too often people with disabilities are told what they can’t do. Apostrophe emphasizes what they can do. Each article turns “can’t” and “shouldn’t” into “can” and “should.” Every story, column and section in the magazine encourages eliminating the apostrophes in peoples’ lives.

www.apostrophemagazine.com

A one-year subscription to Apostrophe will help you stay up-to-date with the latest issues that a� ect your life. Read about advocates and entre-preneurs. Stay current with ADA, access, fashion, books, movies and recipes! And learn about health, home and garden and much more! Subscribe today! Apostrophe is $19.99 for a subscription. � at is four issues per year. Each issue is packed with stories for and by people with disabilities living their lives well. Look for Apos-trophe’s signature Exclamation Point! section, which highlights people who are athletes, entrepreneurs and artists, among others. Look for new ideas and outlooks on access by advocate Chris Clasby, avid outdoorsman.

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Apostrophe Spring 2014 45Apostrophe Summer 2014 45

The famous quote from Walt Disney, “If you can dream it, you can do it” applies to Tim Harris. Born in 1986 with Down syndrome, Tim has lived a life defined by exceeding expectations.

Today he owns Tim’s Place, a popular restaurant in Albuquerque, N.M., where he serves hugs and a hopeful message: “People with disabilities can do anything they set their minds to.”

Tim has been featured in People Magazine and on CBS’s On the Road with Tim Hartman. CNN Headline News picked up a story about Tim from KRQE New Mexico Works. He has also been featured on the KOAT Evening News and in Albuquerque The Magazine.

A story about Tim and how he influences others, written by his brother Tommy, begins on page 46.

If you can dream it


Before becoming proprietor of the ‘World’s Friendliest Restaurant’ Tim worked as a host at an eating establishment in Albuquerque and then studied food service in college. Today he greets customers at Tim’s Place with a smile and a hug. §

‘Disabiity is a funny word’

by TOMMY HARRIS

My older brother Tim has Down syndrome. We come from a family of four boys. Dan, Tim, Tommy and John, in that order, all two years apart in age. All families that have a child with a disability have a fascinating story to tell, some of these start heavy-heartedly, but most often, they turn out absolutely wonderful. I want to tell you the story from a voice not often heard, the voice of a sibling.

What’s normal?

From the outside looking in, some might think that because of Tim, our lives are not “normal.” I couldn’t begin to say how wrong they would be.

Being two years younger than Tim, I don’t remember too much from the early years, he was just my brother, no different from the

others. We were all very close, and we did all the things brothers do: built forts, played video games and ran around in the backyard all day wrestling and wreaking havoc.

Only when I started going to school did I notice that Tim was any different. My parents, like most others at that time, fought fiercely and moved a mountain to get him the education he deserved.

He was in different classrooms than I was though, and people called him names just because they didn’t understand; just one silly thing that kids do to others who are outside the “circle.”

That wouldn’t faze Tim though.By middle school, his infectious happiness started gaining him popularity, and people began to look past his shell that was different than theirs. When he got to high school, he was already well known, but after his Special Olympics team was introduced at the school’s sports assembly, he

was famous. He was so famous that in his senior year he was voted homecoming king, and by a staggering margin of votes I might add.

I wasn’t ever in Tim’s shadow, but I was known through school as “Tim’s brother.” My friends would tell me how they saw Tim between classes, and maybe Tim told them they were his best friend, or that he gave them a piggy-back ride to their class, or some other way he made their day better. I later found that it wasn’t just my friends that had these experiences though, it was everyone.

Rare gifts

Tim, like all people with Down syndrome, lives with laggard motor skills and cognitive processing. That certainly makes a lot of things difficult, but with that package also comes a rare set of gifts. One of Tim’s most marvelous gifts is a complete lack of prejudice. Most of us learn it at a very young age, and sometimes with a strong mind, it


Known as “Tim’s brother” in school, Tommy Harris (left) says his parents fought fiercely to get his older brother the education he deserved. §

,

can be suppressed, but in Tim it simply doesn’t exist.

Because of his gifts, he was friends with everyone at school. The jocks, the nerds, the skaters, the Goths... name any group, they all called him friend. He went from being “out” of our proverbial circle to “in.” He did come across the occasional bully, people that claimed to be his friend but had malicious intentions, but they were vastly outnumbered by friends and the bullies never got the best of him. At school, I was terrified to meet people, I didn’t want anyone else to think I wasn’t cool, a self-consciousness that quickly faded from being in close proximity to Tim.

After high school, while I was back home slowly figuring myself out, Tim went off to college. He had worked as a host in a restaurant in Albuquerque where we live, and he discovered his passion for people and the restaurant business. That’s where the idea of “Tim’s

Place” sprouted, a restaurant that he would open where he would not only serve food, but give out free hugs as well. He went to college in Roswell, N.M., for four years and took many different programs including food service and Office Skills, as well as classes to help him manage his life. Things like paying the bills, practicing good hygiene, or managing a budget can be hard for someone like Tim, but with the help of these programs, he made notable progress in that regard.

I remember thinking to myself how insane the idea was of Tim owning a restaurant, but as time went on and Tim came home from college, the idea went from a dream to reality, and my doubts were dissolved. In October of 2010, doors opened at a new restaurant in Albuquerque.

“Tim’s Place – Breakfast, Lunch, and Hugs,” open seven days a week serving traditional New Mexican food as well as other standard breakfast and lunch items.

One not so usual thing on the menu though, is a free “Tim Hug.” A hug is one of the most sincerest gestures of affection, and Tim understands that better than anyone I know. He knows how to connect with people and make them feel truly welcome and appreciated, even if they aren’t comfortable with a hug.

Tim really likes to give hugs, and when the restaurant first opened, we were worried that he would push people past their comfort zone. Our worries were pointless though, Tim has an acute awareness for that kind of thing and perfectly respects their boundaries.

Friendliest Restaurant

His role in the restaurant doesn’t exactly include cooking, serving, or even managing, but rather he creates an environment that no other restaurant has. We call it “The World’s Friendliest Restaurant,” and Tim uses his gifts to make it just that. His staff is getting ever better at putting the prejudices aside and taking people for what they really are, and engaging them with that mindset, Tim’s mindset. The result is phenomenal, it’s something that I wish everyone could see with their own eyes.

Looking to the future, my hope is that Tim’s Place will provide him self-sustainability for the rest of his life. One day, hopefully many years from now, my parents won’t be in the picture. I would do anything it takes to help him with whatever he needs when that time comes, but because of his restaurant, I just don’t think he’ll be needing my help.

Grill Star!Be a backyard

Make yourburgersgourmet

Cool it down!Add avocado,

tzatziki sauce or blue cheese

Ham it up!Add hickory-

smoked bacon with cheddar cheese

Slide it on!Form mini burgers

and serve with mini buns

Spice it up!Add jalapenos,

pepper jack cheese or salsa

Summer is the season for BBQs, and you can be the star of your own backyard. Follow the Backyard Burgers recipe, and they'll keep coming back for more!

Grill Star!Be a backyard Backyard Burgers Prep and cook times 30 min · Makes 4














Grill Star!Be a backyard

Make yourburgersgourmet

Cool it down!Add avocado,

tzatziki sauce or blue cheese

Ham it up!Add hickory-

smoked bacon with cheddar cheese

Slide it on!Form mini burgers

and serve with mini buns

Spice it up!Add jalapenos,

pepper jack cheese or salsa

Summer is the season for BBQs, and you can be the star of your own backyard. Follow the Backyard Burgers recipe, and they'll keep coming back for more!

Grill Star!Be a backyard Backyard Burgers Prep and cook times 30 min · Makes 4












In the Kitchen’


autism NOW

Autism NOW is an initiative of The Arc, the nation’s leading and largest organization for people with intellectual and devel-opmental disabilities and is funded by the Administration on Developmental Disabilities. Find out more about The Arc and

consider joining or becoming a chapter at www.thearc.org.

THE FIRST STEP TOWARD ACCEPTANCE IS UNDERSTANDING. DURING NATIONAL AUTISM AWARENESS MONTH THIS APRIL, THE ARC AND

AUTISM NOW INVITE YOU TO LEARN MORE ABOUT AUTISM SPECTRUM DISORDERS AND

OTHER DEVELOPMENTAL DISABILITIES.


No limits...... on fulfilling educational opportunities

... on professional development... on making a difference

... on your future

SPECIAL EDUCATION OPPORTUNITIES AWAIT

AT MSU BILLINGSThe MSU Billings College of •Education is the only public post secondary institution in Montana offering undergraduate and graduate degrees in special education.

The program at MSU Billings •prepares educators as special education generalists, well qualified to work with regular education preschool, elemen-tary and secondary teachers as they include students with special educational needs in their classrooms.

MSU Billings prepares individuals •for leadership in special educa-tion as supervisors for special programs — special education, reading and curriculum.

1-800-565-6782 ext. 2888 | 406-657-2888 | email: [email protected] | www.msubillings.edu

v Online optionsv Internshipsv Teaching endorsements

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oals

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We’re equally COMMITTED to helping one another

We’re COMMITTED to helping people with disabilities

www.aware-inc.org

�We train and provide guidance and direction to help advance your career


Downward DogStart on your hands and knees with hands and feet shoulders-width apart. Curl your toes under and press the balls of your feet to the floor. Press your hands to the floor with your fingers facing forward. Lift your hips to the ceiling to form an up-side-down "V." Press your chest to your knees, focus your eyes on your toes and push your heels to the floor. Hold for two-three breaths.

Tips: Your upper and lower body should be equally supported. Push the floor away with your upper body, and press your heels to the floor.

Benefits: The downward facing dog stretches your spine, the back of your legs and your feet. It also strengthens your shoulders and wrists. The downward facing dog is a rest position between yoga poses and is considered a calming stretch.

Warrior 1 Begin in the downward facing dog position. Move your left foot forward and place it between your hands. Turn your right heel in (with toes to the right). Press your feet into the floor, and lift your torso. Ensure the arch of your right foot is in line with the left heel. Gently square your hips by pressing your right hip back and your left hip forward. Lift your arms over your head and press your palms together. Raise your head and gaze at your hands. Stay in this position for five breaths. Return to the downward facing dog position. Repeat on the other side.

Tips: Modify Warrior 1 by reducing the distance between the heels to decrease intensity.

Benefits: Warrior 1 helps lengthen and strengthen muscles in the legs, hips, back, and shoulders. This pose helps build patience.

Learn more online at:yogajournal.commindbodygreen.comyogajp.com

Yoga is a physical, mental and spiritual practice or discipline that originated in ancient India. Yoga harmonizes the body with the mind and breath by using various breathing techniques, poses and meditation. To the right are basic moves that will help you get started with your yoga practice. While the photos and descriptions will give you an idea how to perform each pose, it's best to learn from a certified yoga instructor. Also, don't forget to consult your physician before starting any exercise program.

Connect with your body, mind & soul


Chair PoseBegin by standing with your feet hip-width apart. Inhale and raise your hands above your head, palms facing each other. Exhale, lowering your buttocks and bending your knees like you are going to sit in a chair. Together your thighs and torso will form an approximate right angle. Shift your weight to your heels. Inhale and return to the starting position after holding the Chair Pose for about one minute.

Tips: When you look down, make sure you can see your toes. You are at risk for a knee injury if your knees are over the line of your toes. Shifting your weight to your heels will help with the proper knee position and help you avoid knee pain.

Benefits: The Chair Pose strengthens your legs, hips, ankles and back. This position also stretches the chest and shoulders. This pose helps build patience.

Child Pose Start on your hands and knees. Untuck your toes and lower your buttocks back toward your heels, until you feel a stretch in your lower back and tailbone. With your knees about hip-width apart, stretch your body forward and rest your torso over your thighs. Lengthen your neck and rest your forehead on the ground. Position your arms in front of you with your hands on the ground. Hold the Child Pose for several slow breaths.

Tips: Gently ease your buttocks to your heels lowering into a position that is most comfortable for you.

Benefits: The Child Pose warms your thigh muscles, opens up the back, expands the hip flexors and helps improve the health of your organs. It is also a calming stretch used as a rest position between poses.

Health & Wellness’BreatheIn yoga, breathing is performed while holding a pose. Yoga breathing is different for each person. It's best to practice first to get an idea about how to breathe while holding a pose. To breathe, slowly inhale through your nose expanding your chest with your lungs. Pause for one or two seconds. Then slowly exhale your breath through your nose. Six to eight breaths equals about 30 seconds. Also, remember to breathe (don't hold your breath) while moving from pose to pose.

Apostrophe Models, Russ Carstens (top) and Judy Armbruster, receive a yoga lesson from instructor Liana Schmidt at Goosetown Racketball & Health Club in Anaconda, Mont. Liana recommends using a chair or other props if you are a beginner or have issues with mobility. §


by BLAKE HEMPSTEAD

As he navigates through a dark, cozy station hall tucked away adjacent to the I-90/Montana Street off-ramp in the Mining City of Butte, Mont., Kyle Miller makes his way to the equipment room as his Chief and mentor, Ed Fisher, hits the lights.The Boulevard Volunteer Fire Department has been located here for nearly 60 years, and Fisher, as a volunteer member, has been a member for 40.“Put it all on Kyle, just like you were in training,” Fisher instructs his 19-year-old protégé.Kyle obliges by putting on the yellow preventative clothing and

then practicing safety measures on his outfitting, no doubt learned from his mandatory firefighter training classes.Kyle will probably never engage in the dangerous undertaking of entering a burning structure to attack a fire, but Fisher and his 20-plus member crew stand in unison confirming their youngest volunteer is part of the family.

Hurdles becoming a firefighterWith every step in his gear, it’s evident Kyle loves the aura of the station. Then again, it’s in his blood. His father, Jeff, is the Chief of the Butte-Silver Bow Fire Department and has been a

firefighter throughout his life.“He doesn’t know any different,” says Jeff, who, along with his father-in-law, have spent their adult lives in the danagerous profession. “He’s been raised around the guys and in the department. It’s what he knows.”The members of Boulevard feel the same bond with the Kyle.“He’s a great kid to have around; he raises everyone’s spirits when he’s here,” Fisher says.

Overcoming the oddsDoctors never pinpointed Kyle’s disability but have narrowed it down to a disease in his metabolic chain at the cellular level.

Dressed in full gear, Kyle Miller, with Boulevard Chief Ed Fisher and Captain Guy Quam stand in front of The Boulevard Volunteer Fired Department located in Butte, Mont. Photos by Blake Hempstead. §

Firefighting is in his blood

Exclamation Point!’

“They are pretty convinced it’s a problem with his mitochondria,” Jeff explains. The problem causes Kyle fatigue and a handful of other setbacks. “He had seizures at a young age, so we think that’s part of the reason he’s has some learning and physical disabilities.”But love for his ancestry has propelled the kindhearted, soft-spoken Butte High Bulldog graduate to pursue his birthright. No disease will tell him otherwise.With his disability, Kyle is prone to heat exhaustion, yet he continues the pursuit to follow in his dad’s footsteps. He has been through the rigors of training just like all of the other Boulevard members, joining almost 150 others spread between 11 volunteer departments in Silver Bow County.

Finding his placeFisher keeps a special eye on his right-hand man at all times.

During fires, Kyle stays involved by helping firefighters keep their oxygen tanks refreshed and stays at the beck and call of his Chief.“They need us, don’t they Kyle? Without leadership it all turns to hell, right?” jokes the vet in what is obviously a common conversation between the pair.Kyle answers as he always does, with a nod, genuine smile and a one-word retort. “Yep.”The camaraderie found in the station — which comes hand in hand with their constant ribbing of Kyle being the son of a paid firefighter — is a time-honored tradition during Tuesday evening department meetings. “It’s comes with the territory,” laughs Jeff. “They take real good care of him there. I appreciate all they do for him.”

Paying the billsBecause no member of Boulevard is compensated monetarily, Kyle works at Flying J Truck Stop

five miles west of Butte up to three days a week. Gary Deitz, a former member of Boulevard who manages the facility, offered the position to him.“I brought Kyle on to clean windows and bag ice, and he did a fantastic job,” Dietz said. “He’s been such a valued employee we’ve been able to give him more hours and responsibilities.”The full service convenience store and lounge for over-the-road drivers operated by Town Pump Inc., — a champion for organizations involved in serving people with developmental disabilities and Special Olympics of Montana — opened its arms to Kyle, and the business is reaping the benefits.Now tasked with the cleanliness of the truckers’ bathroom and shower facilities, including the stocking of toiletries and linens for the customers, Kyle is keeping some of the property's most important clientele happy as ever.“Our customers are very particular. Kyle does a fantastic job keeping them coming back,” Deitz said.Deitz also found hiring Kyle improved the overall morale of his workforce.“He puts a smile on everyone’s face when he’s here,” Deitz said. “He’s a joy to have around.” At every turn, Kyle is proving the barriers he’s been saddled with aren’t roadblocks at all. Instead, he uses them as fuel to fulfill a life of happiness for him and those lucky enough to be in his circle.“He’s such a responsible and loyal kid — he’s always been that way,” Jeff said. “You just can’t beat him.”

Kyle dons the gear he wears when his fire department is called out on an emergency. §


Exclamation Point!’

“They are pretty convinced it’s a problem with his mitochondria,” Jeff explains. The problem causes Kyle fatigue and a handful of other setbacks. “He had seizures at a young age, so we think that’s part of the reason he’s has some learning and physical disabilities.”But love for his ancestry has propelled the kindhearted, soft-spoken Butte High Bulldog graduate to pursue his birthright. No disease will tell him otherwise.With his disability, Kyle is prone to heat exhaustion, yet he continues the pursuit to follow in his dad’s footsteps. He has been through the rigors of training just like all of the other Boulevard members, joining almost 150 others spread between 11 volunteer departments in Silver Bow County.

Finding his placeFisher keeps a special eye on his right-hand man at all times.

During fires, Kyle stays involved by helping firefighters keep their oxygen tanks refreshed and stays at the beck and call of his Chief.“They need us, don’t they Kyle? Without leadership it all turns to hell, right?” jokes the vet in what is obviously a common conversation between the pair.Kyle answers as he always does, with a nod, genuine smile and a one-word retort. “Yep.”The camaraderie found in the station — which comes hand in hand with their constant ribbing of Kyle being the son of a paid firefighter — is a time-honored tradition during Tuesday evening department meetings. “It’s comes with the territory,” laughs Jeff. “They take real good care of him there. I appreciate all they do for him.”

Paying the billsBecause no member of Boulevard is compensated monetarily, Kyle works at Flying J Truck Stop

five miles west of Butte up to three days a week. Gary Deitz, a former member of Boulevard who manages the facility, offered the position to him.“I brought Kyle on to clean windows and bag ice, and he did a fantastic job,” Dietz said. “He’s been such a valued employee we’ve been able to give him more hours and responsibilities.”The full service convenience store and lounge for over-the-road drivers operated by Town Pump Inc., — a champion for organizations involved in serving people with developmental disabilities and Special Olympics of Montana — opened its arms to Kyle, and the business is reaping the benefits.Now tasked with the cleanliness of the truckers’ bathroom and shower facilities, including the stocking of toiletries and linens for the customers, Kyle is keeping some of the property's most important clientele happy as ever.“Our customers are very particular. Kyle does a fantastic job keeping them coming back,” Deitz said.Deitz also found hiring Kyle improved the overall morale of his workforce.“He puts a smile on everyone’s face when he’s here,” Deitz said. “He’s a joy to have around.” At every turn, Kyle is proving the barriers he’s been saddled with aren’t roadblocks at all. Instead, he uses them as fuel to fulfill a life of happiness for him and those lucky enough to be in his circle.“He’s such a responsible and loyal kid — he’s always been that way,” Jeff said. “You just can’t beat him.”

Kyle dons the gear he wears when his fire department is called out on an emergency. §

56 ApostropheMagazine.comApostropheMagazine.com56

Exclamation Points!’You don’t have to limit yourself to toe tapping or finger snapping when you hear a live performance of Voices of Village.The band provides a box of instruments for the audience to play along — tambourines, maracas and cowbells, for example. It makes the joyful music Voices of the Village plays all the more fun to listen to. You can even bring your instrument with you to the dance floor.

Voices of the Village is a 27-member musical ensemble that performs throughout the Puget Sound region of Washington state and beyond.

The band consists of musicians and performers who have developmental disabilities plus guest musicians who sit in at jam sessions and shows. The audience at their annual concert is made up of people who have disabilities and their family, friends and caregivers. Musician Jon Dalgarn first organized the band about 10 years ago and still leads it. Adults with a wide ranges of abilities sing and play a variety of

instruments: drums, keyboards, accordions, banjos, saxophones and even an Australian didgeridoo.

Dalgarn had already worked with adults with disabilities through Village Community Services residential and vocational assistance programs in Arlington. But participating in the band, he said, allows people to express their artistic spirit and joy of living.

“It really changes their lives,” Dalgarn told The Arlington Reporter newspaper. “By being able to express themselves in this way, they learn a bit more about how to deal with the world, and the world learns how to deal with them. This is the best gig in the world, because there

is so much unmitigated joy in their performances. We hand microphones to people who, in many ways, didn’t have a voice, so that they can sing and hear other people clapping for them. It’s about way more than music. They have a real passion for it.”

In addition to playing gigs through out the Northwest, Voices of the Village hosts weekly Friday Music Jam Sessions and the monthly Evening with the Arts dance in Arlington.

The band’s influences include the Monkees, Beatles, Eagles and Steve Miller Band. They play “good country” (Elvis and Johnny Cash) and contemporary pop, show tunes, holiday music, Frank Sinatra and original compositions by Dalgarn.

Audiences join the fun with Voices of the Village

Voices of the Village from Arlington, Wash., hosts weekly Friday Music Jam Sessions and a monthy Evening with the Arts Dance. Photo courtesy of Vicki Adams §

,


Artist Candace Waters, a bright-eyed redhead with a flair for color and design, has produced attention-grabbing works of art.The 13-year-old daughter of Robert and Sandy Waters of Park Ridge, Ill., “Candy,” who is non-verbal and has severe autism, has had her artwork featured on the covers of two magazines. She has also been the focus of stories in The Chicago Tribune and Los Angeles Times.

“Even though Candy is unable to communicate through words and has trouble interacting with others, she expresses herself through her paintings,” her father said. “Her art has inspired people and raised autism awareness around the world.”

Bright, happy world

“Most importantly, her paintings give people hope,” Sandy Waters said. “We feel Candy is giving all of us a unique little glimpse into her world.

“Her paintings allow us to see what she sees and feel what she feels. As you can see by her beautiful paintings, it must be a bright happy world.”

Candy has been creating works of art since she was 6. A teacher sent her home with some materials and asked her parents if she could paint.

“We didn’t think she could but she did, and sure enough, one of her first paintings sold for $100 in a local gallery,” Mr. Waters said.

Her radiant style of paintings show an uncommon understanding of how colors can blend and compliment.

“When she paints she becomes very happy and laughs which is priceless,” her father said. “We are so proud that Candace is able to express herself through her art.”

Several of Candy’s prints (the family keeps the originals for sentimental reasons) have sold for $300-$800. Her

work hangs in Park Ridge City Hall, the Chicago office of state Senator Dan Kotowski Chicago office and the office of U.S. Rep. Jan Schakowsky’s, also in Chicago.

Candy’s “Ray of Hope” painting graces the newly constructed Dan Marino Foundation’s campus in downtown Fort Lauderdale, Fla.

Prints of her paintings are for sale through the Kind Tree-Autism Rocks Foundation and We Are Lions. Half of all proceeds from the sales of the prints go to help others on the autism spectrum fulfill their dreams of becoming artists.

The UC Irvine Magazine (University of California) used Candy’s “Mr. Sun” painting for the cover of their summer 2013 issue that highlights the university’s efforts to help those affected by autism.

Fox Chicago News & ABC 7 Chicago News have done special segments on on her and Autism Speaks recently did a blog on her art. Inspired by Candy, Robert and Sandy have created an Autism Awareness Radio Show, “The Candy Store,” on

Blog Talk Radio.

“Our mission is to increase autism awareness and compassion for those with autism and to empower other parents with knowledge,” Candy’s parents said in an email.

“We reach out to other parents who have a child with autism to let them know that they are not alone and to never give up Faith, Love & Hope.They also wrote a song for Candy titled “Faith, Love & Hope.”

UCIrvinem a g a z i n e

sum

mer 2013

Spotlight on autism:Helping families face the journeyTech support for caregiversReaching children through dance

Plus: Campus welcomes new provost

‘When she paints she becomes very happy’

Mr. Sun by Illinois artist Candy Waters graces the cover of UC Irvine Magazine summer 2013 issue. §

Though non-verbal, Candy Waters expresses herself through vivid paintings. § ,


As the weather warms and days get longer, it's the time of year when we all start itching for summertime fun and recreation. It's also a great time to remember that many recreational activities and types of recreational equipment exist or have been adapted for individuals with disabilities to participate. Regardless of disability, we all like to play, so it's great to know that such a wide variety of recreation is possible. It's also been shown that benefits of recreation go far beyond simple enjoyment; those who recreate are more likely to succeed in such other life areas like education and employment. Below are just a few ideas for some disability-friendly recreational fun.

by Chris Clasby

Backyard

Cast a lineWhether it's because so many of us love to fish or because those who do fish want to share the activity, many types of fishing equipment have been adapted to disability. The Van’s EZ cast, for example, is a device that enables someone with the use of only one arm or hand or limited hand function to independently cast a fishing pole and reel the line in. Mounted to the armrest of a wheelchair, lawn chair or other stable surface, this device holds the line in place as the user cocks the rod back and then releases it to cast at the perfect time as the user thrusts the rod forward. The line is thereby launched forward and can be retrieved by turning the reel handle with the same hand. Other

Adaptable tools for a little (or a lot) of summer fun


Access’devices include the Elec-tra-mate motorized reel and others like it or various rod holders and even knot-tying devices for those with limited or no hand strength or function.

View nature through a lensAlmost anyone with any level of function can find equipment to participate in wildlife viewing and/or photography. From autofocus, fixed focus, image-stabilizing binoculars, monoculars, and spotting scopes to a wide variety of mounts, stands, and tripods, viewing equipment is versatile. Those with limited fine motor function can find off-the-shelf or adapted distance viewing devices within their full control. Anyone with limited strength and/or coordination can find some type of mount to hold viewing devices in position for use. Adaptations for photography exist to meet the limitations of many. Controls to take photos with remote, bite, and even sip & puff switches enable people with very limited or no hand or arm function to take photos. Some camera mounts offer motorized pan, tilt, zoom, and shutter release controls to enable their users to aim, focus, and take photos without touching the camera.

Aim for the big oneShooting sports and hunting equipment have been adapted to accommodate nearly any disability. BE Adaptive Equipment makes a variety of shooting devices , including gun and archery mounts that attach to wheelchairs. Some of their products make shooting sports possible for users with limited and even no arm or hand function. Other shooting adaptations enable users with various levels of function to aim, pull triggers, and/or simply support firearms or archery equipment. One device called a scope camera display combines viewing and photography with

shooting sports by connecting a firearm and a 2.5" LCD color monitor to display, video, or take photos of its target. The device can be used with any of the above adapted mounts.

Pedal the passA cycling enthusiast might find that one specific model or style of cycle is more suitable to his or her specific disability than another. A three-wheeled cycle might provide more stability for those with limited balance while a recumbent cycle might be easier to mount and dismount for others. Differing handlebars, brake levers, and other accessories could be optimal for some users with upper extremity limitations. Even bicycle height and weight are factors to consider for strength-limiting disabilities. Various wheelchairs, walkers, crutches, trekking poles, and other mobility devices simply make recreational mobility easier than others for those with disabilities to get around for recreation.

Develop a green thumbFor those with disabilities who enjoy domestic leisure time or simply being outside without doing specific activities, other types of equipment exist. Equipment for yard hobbies like tending to flowers or gardening

is available in various styles or with features to accommodate users with limitations. Some yard tool boxes on wheels can serve as mobile working seats and benches for those who can't stand long or have limited coordination while walking. From a wide lawn shears and trimmers to long-handled rakes and shovels, yard tools to accommodate various disabilities are available from providers like the Gardening with Ease website. Sometimes the same standard tool made by one company offers a specific design that makes it more usable by people with disabilities than others. Whether recreational equipment has been especially adapted to meet the needs of individuals with disabilities or a specific design just happens to work better for users with limitations, something exists to enable us all to play. This is a perfect time to explore those various types of equipment and our own interests to see how we can pursue activities of our choice. Disability should not deter us from joining many others who find summertime months the best time to play, so get out there and have some fun!

Chris Clasby lives in Missoula, Mont. He is an avid hunter and fisherman, and of his work has centered on helping people with disabilities access the outdoors. §

,


Assistive Tools & Devices

Matia Robotics created the Tek Robotic Mobilization Device (TEK RMD) not as a wheelchair alternative but a brand new mobility platform that reimagines the way individuals with paraplegia and other walking disabilities are able to move. The ability to independently and safely sit, stand and navigate environments once inaccessible, is now possible. Since wheelchairs can only be front-mounted, the TEK RMD can be pulled easily by the user and boarded securely from its back. Mounting and dismounting can be done successfully in a much safer way since the user is doing so while in a seated position. The TEK RMD is the world’s smallest motorized standing movement device. It is only 15.6” wide and 29.5” long (39.5 cm X 75 cm). With these dimensions, it covers only one-third the space of a small wheelchair. Users can pass through narrow spaces they cannot pass through with a standard wheelchair. Learn more at MATIArobotics.com.

Tek Robotic Mobilization DeviceFiLIP is an award-winning wearable phone and smart locator for kids. Worn on

the wrist and designed to be colorful, fun and easy to use, FiLIP combines cutting-edge location technology (GPS, Wi-Fi location and cell tower positioning) with cellular voice capability to keep parents and kids

connected on any adventure. FiLIP is controlled from a native mobile

app installed on the parent’s iPhone or Android smartphone. From the app, the parent can

designate five trusted contacts that can communicate with the child, which makes it easy for the child to call a parent, grandparent or friend. It also ensures that your child doesn’t communicate with anyone you don’t approve. Using the app, parents can also view the location of up to five FiLIP watches, send short messages to a FiLIP watch and set virtual SafeZones (a/k/a geo-fences). There’s also an intelligent emergency procedure designed to quickly connect the child to a trusted contact if needed. FiLIP requires service from AT&T and is available online or in AT&T stores nationwide. See MyFiLIP.com for details.

FiLIP

Rest Assured®

Alexicom Tech has created more than 15 augmentative and alternative communication (AAC) apps for all ages. They are called Elements. Element apps provide a way for people to communicate when they no longer can speak or have difficulty communicating with others. Elements apps are used by beginning communicators to fluent communicators in need of another way to be understood. Elements apps help teach beginning communicators who cannot speak or be understood to learn how to use language to communicate with others. For people who cannot speak or be understood but have language, Elements provide them a way to socialize, to get basic wants and needs and to express themselves. Elements apps contain vocabulary for a variety of ages: ChildHome for children; TeenHome for teens; and AdultHome for adults. Based on research from adults who use AAC, Elements images and vocabulary are designed for the corresponding ages. Elements apps are affordable and easy to customize with vocabulary or phrases that the user wants to say. Alexicom Tech’s mission is to provide as many people as possible with a voice to be heard! Learn more at AlexicomAAC.com.

Elements apps

Rest Assured® is caring for people using remarkable technology to help people:• Improve the quality of

their lives• Increase their

independence and• Maintain their privacy,

health and safety.Rest Assured® is a patented web-based system using

wireless technology to bring trained caregivers into people’s homes virtually. You see and talk to them in real time. If you need them, they respond. They can also check sensors that measure everything from room temperature to carbon monoxide to doors and windows opening. Rest Assured services have been specifically designed to support adults who have cognitive, intellectual and developmental disabilities. Rest Assured links a person in their home to offsite

caregivers who provide support tailored to each individual’s specific needs. Rest Assured “Tele-Caregivers” are trained on each individual’s unique care requirements and can provide supportive prompts, cues and socialization to assure health and safety needs are met in the least restrictive setting. Technology is changing how individuals with disabilities

receive support. It gives them the ability to live the most independent lives possible and lowers the cost of care.

’


MTAP includes:• Equipment available through Amplified (louder) telephones• Captioned telephones • Loud bell ringers• TTYs (text telephones) • Artificial LarynxesMuch, much more!

The Montana Telecommunications Access Program (MTAP) provides FREE assistive telephone equipment to those who qualify, making it easier to use the phone to do business and keep in touch with family and friends.

For more information just mail us this form or call toll-free:1-800-833-8503

If you have difficulty understanding words clearly over the phone,

Just fill out this form!You may qualify for free assistive telephone equipment through theMontana Telecommunications Access Program!

Yes, I want to learn more about MTAP!Name: Address: City: State: Zip: Phone:

Return form to: MTAPP. O. Box 4210, Helena, MT 59604

October 2013 MTAP Ad.indd 1 9/30/2013 10:51:01 AM

Assistive Tools & Devices

Matia Robotics created the Tek Robotic Mobilization Device (TEK RMD) not as a wheelchair alternative but a brand new mobility platform that reimagines the way individuals with paraplegia and other walking disabilities are able to move. The ability to independently and safely sit, stand and navigate environments once inaccessible, is now possible. Since wheelchairs can only be front-mounted, the TEK RMD can be pulled easily by the user and boarded securely from its back. Mounting and dismounting can be done successfully in a much safer way since the user is doing so while in a seated position. The TEK RMD is the world’s smallest motorized standing movement device. It is only 15.6” wide and 29.5” long (39.5 cm X 75 cm). With these dimensions, it covers only one-third the space of a small wheelchair. Users can pass through narrow spaces they cannot pass through with a standard wheelchair. Learn more at MATIArobotics.com.

Tek Robotic Mobilization DeviceFiLIP is an award-winning wearable phone and smart locator for kids. Worn on

the wrist and designed to be colorful, fun and easy to use, FiLIP combines cutting-edge location technology (GPS, Wi-Fi location and cell tower positioning) with cellular voice capability to keep parents and kids

connected on any adventure. FiLIP is controlled from a native mobile

app installed on the parent’s iPhone or Android smartphone. From the app, the parent can

designate five trusted contacts that can communicate with the child, which makes it easy for the child to call a parent, grandparent or friend. It also ensures that your child doesn’t communicate with anyone you don’t approve. Using the app, parents can also view the location of up to five FiLIP watches, send short messages to a FiLIP watch and set virtual SafeZones (a/k/a geo-fences). There’s also an intelligent emergency procedure designed to quickly connect the child to a trusted contact if needed. FiLIP requires service from AT&T and is available online or in AT&T stores nationwide. See MyFiLIP.com for details.

FiLIP

Rest Assured®

Alexicom Tech has created more than 15 augmentative and alternative communication (AAC) apps for all ages. They are called Elements. Element apps provide a way for people to communicate when they no longer can speak or have difficulty communicating with others. Elements apps are used by beginning communicators to fluent communicators in need of another way to be understood. Elements apps help teach beginning communicators who cannot speak or be understood to learn how to use language to communicate with others. For people who cannot speak or be understood but have language, Elements provide them a way to socialize, to get basic wants and needs and to express themselves. Elements apps contain vocabulary for a variety of ages: ChildHome for children; TeenHome for teens; and AdultHome for adults. Based on research from adults who use AAC, Elements images and vocabulary are designed for the corresponding ages. Elements apps are affordable and easy to customize with vocabulary or phrases that the user wants to say. Alexicom Tech’s mission is to provide as many people as possible with a voice to be heard! Learn more at AlexicomAAC.com.

Elements apps

Rest Assured® is caring for people using remarkable technology to help people:• Improve the quality of

their lives• Increase their

independence and• Maintain their privacy,

health and safety.Rest Assured® is a patented web-based system using

wireless technology to bring trained caregivers into people’s homes virtually. You see and talk to them in real time. If you need them, they respond. They can also check sensors that measure everything from room temperature to carbon monoxide to doors and windows opening. Rest Assured services have been specifically designed to support adults who have cognitive, intellectual and developmental disabilities. Rest Assured links a person in their home to offsite

caregivers who provide support tailored to each individual’s specific needs. Rest Assured “Tele-Caregivers” are trained on each individual’s unique care requirements and can provide supportive prompts, cues and socialization to assure health and safety needs are met in the least restrictive setting. Technology is changing how individuals with disabilities

receive support. It gives them the ability to live the most independent lives possible and lowers the cost of care.

’

Providing residential and day services for adults with severe developmental disabilities

w w w. m d s c m t . o r g

with severe developmental disabilitiesw w w. m d s c m t . o r g

M i s s o u l a , M T

Safe Safe Safe Harbors Harbors Harbors


Tess Langston is a fine arts/media arts student at the University of Montana. Her primary interests are comics, animation, mythology and music. Tess now has a webcomic called Anime Asylum at www.some-stories.com/anime-asylum. In January 2012, Apostrophe introduced Jigsaw, a cartoon strip featuring Tess’ characters — Fay and her friends and family.

Jigsaw


Worth Watching’Laser Beak Man10 min. / documentary 2010 / Australia

A child who was never expected to walk or speak overcomes incredible odds to become an accomplished visual artist with his animation series screening around the world.

This is the story of Tim Sharp, an artist on the autism spectrum, who has overcome incredible odds to become an internationally recognized visual artist with his super-hero character Laser Beak Man.

Nominated for the Young Queenslander of the Year Award in 2008 and 2009, Tim works tirelessly for autism groups around the world.The film reveals how a child who was never expected to walk or speak has defied the odds to become an ambassador for people with autism.

Sharp is most famous for his bold and colorful works completed in crayon that all feature his superhero

A film about being different, 46 / 47 suggests a desperately needed change of perspective (whether 46 or 47 chromosomes). The film plays with habitual stereotypes, tries to make “being different” an experience and asks the question “What is normal?” a little differently. §

46 / 478 min. / Narrative 2011 / Germany

Daniel is different. He’s missing something. He only has 46 chro-mosomes where 47 should be. How does it feel to be “different”? People with Down syndrome stand out because of their physical features. 46/47 dares to show the world “from the other side”.

Everyone has Down syndrome. Those with only 46 chromosomes are considered disabled. People like Daniel. He is always immediately seen but rarely recognized.

Everyday situations, like shopping for groceries or riding the bus are torture for him — from the perspec-tive of the so-called “normals.”

Laser Beak Man. Many of these works interpret pop culture icons or current topics. Others represent Sharp’s literal understanding of language, a common trait of autism.

Most of them reflect Sharp’s unique sense of humour and his often irreverent opinion of people and situations. Sharp’s art is in demand from collectors from around the

world. Preferring to exhibit in his home country of Australia, his shows are sellout successes and have attracted the attention of many prominent art collectors from Australia and around the world.

The National Museum of Australia in Canberra exhibited Sharp’s story and his art in its Eternity gallery.

Laser Beak Man is the story of Tim Sharp, an artist on the autism spectrum §

Sproutflix has an ever-growing list of carefully selected films from around the world specifically related to the lives, performances and accomplishments of people with developmental disabilities.Visit sproutflix.org.

ApostropheMagazine.com64ApostropheMagazine.com64

A provider agency for people with developmental disabilities in the Midwest was struggling to find the right support plan that would keep "Jane" safe and help her reach her goals. Jane had bounced around the system with short stays in group homes, her family home and state institutions prior to living with no roommates in her supported living apartment. Supported living was looking like it may not be an option for Jane because providers couldn't keep her safe with the limited support budget she received. Plus, there was frequent staff turnover because of Jane's intense behavioral challenges.

The provider always had two staff in her home because of Jane's history of false accusations, self-injurious behaviors and suicide attempts. Jane was combative and unhappy with the constant staff presence. She wanted more independence and to stay in her apartment with no roommates or staff.

The solution was telecare, web-based system where caregivers provide support using two-way video and audio communication. After a slow and carefully planned implementation, Jane was able to have alone time without staff physically present in her home but with support from her telegiver. Her customized care plan assured Jane's health and safety needs were met while increasing her independence. The provider gradually reduced staffing levels back to one on one, and a few months ago, Jane began spending overnights alone with support only from her telecaregiver. The provider has reported a reduction in cost of $43,431 per year, and an obvious "decrease in the drama."

Please contact us or visit our website for the full list of ways this new service helps support people with disabilities so they can live as independently as possible in their own homes.

Dustin Wright, Executive Director765-420-1432 � 877-338-9193 x 348 (Toll free)765-430-0053 (cell) � [email protected]

Remote Monitoring for Behaviorally Intensive Individuals: A Case Study

RestAssuredSystem.com


Mercantile’

Dog Biscuits Montana Made: Made with wheatberries and � our from � ree Forks, Montana. Choose the 12 oz. pack with all small biscuits or a combination of large and small biscuits for $8.00 + S.H. 12 oz.

Fun to Fix Dog Biscuit Mix: Lissie’s Luv Yums grinds their own wheatberries and soy beans. Includes recipe and a cutter. $7.50 + S.H. 16 oz.

Poochie Snack Pack: A vacuum-sealed pack of 9 small biscuits. Perfect to carry along on your dog outings. Also makes a great Christmas Stocking stu� er. $4.00 + S.H.

Help � ght Fetal Alcohol Syndrome with each purchase of our Montana-made, all natural gourmet dog treats. Lissie’s Luv Yums uses � our and wheatberries exclusively from Wheat Montana Farms in � ree Forks, Montana - NO CHEMICALS ADDED! If it’s not on the label, it’s not in the biscuit! Even you could eat these!

Lissie’s Luv YumsYour pooch will be glad!

www.lissiesluvyums.com

Creative Magnetic Artists is a service of Residential Support Services in Billings, MT – whose mission is to provide and advocate for the quality and choices of life in a home and community environment for adults with developmental disability, resulting in self advocacy and independence in the least restrictive setting.

Creative Magnetic Artists is a project of Residential Support Services day program.All of their jewelry, including bracelets, anklets, necklaces, and more is hand made by adults withdevelopmental disabilities. Prices start at $7. � ey have a wonderful selection and will even work with you

to create your own custom design. All of Creative MagneticArtists’ jewelry comes with a lifetime guarantee. Visit thestudio at 2110 Overland Ave. Suite 116A, Billings, MT 59102. 406-281-0904.

www.magneticoptions.org

With ese Hands By Audra Jewelry Designs was co-founded in 2009by Audra T. Nobles, Jewelry Designer, di� erently-abled self-advocate, and small businessowner. She discovered her special talent for jewelry design through the encouragement andsupport of her mother and co-founder, Lucinda Nobles, and her dad, Du� y Nobles. Audraand her mother design and sell unique, award-winning jewelry using quality semi-precious

stones, beads and globally-inspired jewelry elements — each piece re� ecting Audra’svision of beauty. Together they travel, purchasing quality semi-precious beads andstones from trusted jewelry wholesalers in New Mexico, Arizona, Vermont, California,North Carolina, and bead retailers in the Washington-Metropolitan area. Audra wantsto continue to expand her business while encouraging other young people to considerresearching programs and opportunities that will assist them in starting and growingtheir own businesses.

Learn more about Audra on facebook: With � ese Hands by Audra

With ese Hands By Audra Jewelry Designs

Mercantile pages April 2014.indd 1 4/9/2014 2:08:12 PM

A provider agency for people with developmental disabilities in the Midwest was struggling to find the right support plan that would keep "Jane" safe and help her reach her goals. Jane had bounced around the system with short stays in group homes, her family home and state institutions prior to living with no roommates in her supported living apartment. Supported living was looking like it may not be an option for Jane because providers couldn't keep her safe with the limited support budget she received. Plus, there was frequent staff turnover because of Jane's intense behavioral challenges.

The provider always had two staff in her home because of Jane's history of false accusations, self-injurious behaviors and suicide attempts. Jane was combative and unhappy with the constant staff presence. She wanted more independence and to stay in her apartment with no roommates or staff.

The solution was telecare, web-based system where caregivers provide support using two-way video and audio communication. After a slow and carefully planned implementation, Jane was able to have alone time without staff physically present in her home but with support from her telegiver. Her customized care plan assured Jane's health and safety needs were met while increasing her independence. The provider gradually reduced staffing levels back to one on one, and a few months ago, Jane began spending overnights alone with support only from her telecaregiver. The provider has reported a reduction in cost of $43,431 per year, and an obvious "decrease in the drama."

Please contact us or visit our website for the full list of ways this new service helps support people with disabilities so they can live as independently as possible in their own homes.

Dustin Wright, Executive Director765-420-1432 � 877-338-9193 x 348 (Toll free)765-430-0053 (cell) � [email protected]

Remote Monitoring for Behaviorally Intensive Individuals: A Case Study

RestAssuredSystem.com


CENTEREXCELLENCE

for

AWARE’s new Center for Excellence supports children with complex emotional and developmental needs.

AWARE Inc.406.563.8117www.aware-inc.org

The right servicesto the right peopleat the right time

Please remember:

NorthWestern Energy will never email a

utility bill. We send hard copy bills in the mail.

If you’ve arranged to get statements online, you will receive an email notification that your statement is available.

NorthWestern Energy will never call and

demand payment via a prepaid debit card.

If you are behind on payments, you will receive several written past-due notices in the mail.

NorthWestern Energy will never arrive

unannounced on your doorstep offering a free inspection or evaluation of your home. Appointments must be pre-scheduled.

In the case of an emergency, our employees and contractors carry and show identification.

Consumer Notice: Scam Alert!

Montana

888-467-2699South Dakota/Nebraska

800-245-6977NorthWesternEnergy.com

As a general rule, never respond to unexpected email messages from senders you don’t know. If you’re unsure if an email or notice is legitimate, call NorthWestern Energy. For further questions or concerns, call the Federal Trade Commission at 1-877-FTC-HELP.

Scammers are increasingly posing as utility companies and other “energy savers” to get your money and personal information for fraudulent purposes.

Summer (April) 2014 Apostrophe magazine.

Documents

Transcript of Summer (April) 2014 Apostrophe magazine.