STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda...
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STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda Fuller 1 Scene 1 Scene 2 Scene 3 Image Title Slide Image Image Script Changing the World – One Challenge at a Time By Miranda Fuller Script Like most seven-year old girls, I wanted a little brother or sister. When my beautiful brother with brown hair and eyes was born, I was thrilled! Script But Dalton didn’t develop quite like other kids. Concerned, our mom took him to the doctor. “It’s only an ear infection”, they said. Mom consulted doctor after doctor. Music/Sounds Music/Sounds Music/Sounds
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Transcript of STAR Events Digital Stories for Action Jan 2101 Changing the World, One Challenge at a Time Miranda...
STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
1
Scene 1 Scene 2 Scene 3
Image
Title Slide
Image Image
ScriptChanging the World –
One Challenge at a Time
By Miranda Fuller
Script
Like most seven-year old girls, I wanted a little brother or sister. When my beautiful brother with brown hair and eyes was born, I was
thrilled!
ScriptBut Dalton didn’t develop quite like other kids. Concerned, our mom took him to the doctor. “It’s only an ear infection”, they said. Mom consulted doctor after doctor.
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STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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After a long exhaustive process, Dalton was diagnosed with Fragile X Syndrome.
ScriptFragile X is the most common inherited cause of mental impairment. It occurs in approximately 1 in 3,600 boys and 1 in 5,000 girls.
Script
Although there had been no known family history, my aunt had a baby with Fragile X the year after Dalton’s
birth.
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STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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ScriptI have learned that I also may be a carrier of the Fragile X chromosome. This has caused me to reconsider having children, and my own future.
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You may wonder what it is like to live with Dalton. Physically, he has an enlarged head and ears; he can’t form sentences but repeats words and sounds over and over again. He is hyperactive, bites his own hands and fingers when nervous or upset,
and his feelings are easily hurt.
ScriptHe is also loving, funny, adventurous, curious, independent, and one of the most courageous people I’ve ever known.
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STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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ScriptDalton needs attention around the clock. He wants to be independent but there are many things he can’t do for himself. His needs come first, and it’s hard for other family members not to feel left out.
ScriptSchool is very frustrating for Dalton. He gets bullied a lot, comes home angry, and becomes physical at home.
Script
These are challenges our family never expected, and when Dalton was diagnosed, we literally didn’t know what to do. With the help of doctors and therapists, my family slowly began to find a new “normal” but even now I wonder “Why was my
brother the one to be like this?” Music/Sounds Music/Sounds Music/Sounds
STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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The doctors expect that Dalton will always need the help of an aide, but we hope one day he will be able to live on his own. Teaching him the skills he will need is a big job, and there aren’t a lot of resources for special needs people in our area so Mom took child advocate classes, and she became inspired to help
other families.
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With the support of the Stockton Optimist’s Club, in 2008 she and my aunt formed Challenger’s United, which started with 6 families of disabled children and adults; two
years later 13 families are involved.
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We sponsor Easter Egg Hunts, Bowling Tournaments, picnics in the park, Dodge Ball and Kick Ball tournaments and parties at Christmas and Halloween. Everyone can take part, and families have time to talk
and provide support to each other.
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STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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People with a wide variety of disabilities come to our events -- members have Fragile X Syndrome, Reactive Attachment Disorder, Attention Deficit Disorder and ADHD, Bipolar Disorder and Aspergers
Syndrome.
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Some kids, like Dalton, are physically very strong, but have difficulty communicating. Some are confined to a wheelchair; others are aggressive, hyperactive and easily
frustrated.
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Challenger’s United works to raise awareness that these “invisible” and “different” people are a part of our community too, and to alert others that parents of disabled children need all the help they can get. We distribute brochures, write newspaper articles, and speak to clubs like Optimists, the Agape House, the
VFW, and my FCCLA chapter. Music/Sounds Music/Sounds Music/Sounds
STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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ScriptLiving with a special needs brother is difficult, frustrating and challenging, but it has also been a great experience. Helen Keller said, “We could never learn to be brave and patient, if there were only joys in the world
ScriptBecause of Dalton, I’ve learned something new every day about sharing time, energy, and responsibility.
ScriptMany loving, caring and helping hands are needed to ease the load. The old saying, “it takes a village to raise a child” was never truer than when speaking of a child with disabilities.
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STAR EventsDigital Stories for ActionJan 2101
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Miranda Fuller
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ScriptI am often told that my generation is the future. Special needs children are part of the future too, and deserve to become productive, functioning citizens.
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While my family still has questions about what tomorrow holds for Dalton, we hope the community will change its attitudes towards people with special needs. If we can change our community, we can transform the
world!
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STAR EventsDigital Stories for ActionJan 2101
Changing the World, One Challenge at a Time
Miranda Fuller
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Bibliography 1
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Bibliography 2
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Bibliography 3
ScriptBibliography
Fragile X Syndrome:http://www.fragilex.org/html/summary.htm
Photos:
Taken by Miranda Fuller and Julie Stone, except the following:
Quotations:
http://womenshistory.about.com/od/disabilities/a/qu_helen_keller_3.htm
ScriptMusic:
"Changing the World, One Challenge at a Time" by Miranda Fuller is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License
Script
Created with Microsoft Movie Maker by Miranda Fuller, January 2010
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