Spina Bifida
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Transcript of Spina Bifida
Overview
Who am I? What is Spina Bifida? Past, present, future
Impact on My Life Spina Bifida and I
Take Home Points
Who am I?
Adoption: 5yrs old China to Wisconsin Deliberate assimilation
May 16th, 2015: Psychology Major Spanish Major
Who am I? (continued)
Fun Facts: Left hip socket
sea coral material Dumpster diving
Sustainability reason Passionate person
What is Spina Bifida?
Definition: “baby is in the womb and the
spinal column does not close all of the way”
www.spinabifidaassociation.org
Spina Bifida: “Split Spine”
What is Spina Bifida?(continued)
Levels of severity: Low - unknown to individual Medium - between two worlds
people with & without disabilities High - surgeries, medical supplies,
etc.
Impact on My Life
Past: Surgeries: feet (3x), hip (1x) & lower
back (1x) Leg braces (5x) Wheelchair Infections ER visits Bowel & bladder incontinence
Spina Bifida and I
Past: “Ignorance is bliss.” – child
mind set “Why?” – adolescent mind set
“Hate” relationshipanxiety
Impact on My Life
Present: 3 surgeries:
Multiple hospital/ER visits Learning again Shift in priorities Goal: gain predictability
Impact on my life
Present: “Love – Hate” relationship continual learning stimulate
brain Passion found disability
Spina Bifida and I
Future: Stable health Passion drive my life Interpersonal relationships Get a puppy!
Impact on My Life
Future: Advocator Removal of physical & social
barriers to happier lives “Love” relationship
Spina Bifida and I
Take Home Points
The disconnect between invisible & visible realities
Assumptions made Nonverbal body language awareness
“Where there is a will there is a way”
Focus on the “how(s)” NOT the “what(s)”
Take Home Points(continued)
“I did fun things to make me happy.”
vs. “I do fun things because I’m happy.”