Short Breaks Statement for parents and carers of

disabled children and young people in Surrey

November 2013

CONTENTS

Introduction to the Short Breaks Statement .................................................

Legal Context ...................................................................................................

How was the Statement prepared...................................................................

How will the Statement be publicised............................................................

Who is responsible for the Statement............................................................

What are short breaks.....................................................................................

How were short breaks developed.................................................................

What is the Children’s Disability Register......................................................

How do we know what short breaks are wanted..........................................

How many disabled children and young people are there in Surrey..........

What range of short breaks are available......................................................

Universal services............................................................................................

Targeted Services.............................................................................................

Specialist Services...........................................................................................

How are short breaks services accessed......................................................

How much do short breaks services cost......................................................

What is the Eligibility Criteria for Short Breaks.............................................

What are Direct Payments...............................................................................

How do we help young people with disabilities prepare for adulthood......

How will short breaks improve outcomes.....................................................

How do we consult with Parents and Carers.................................................

How do we consult with children and young people....................................

What’s happening now.....................................................................................

Small revenue grants and capital funding......................................................

How can families find out more about Short Breaks.....................................

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The Children Act 1989 & the Children and Young Persons Act 2008 require local authorities to provide short break services that are designed to assist individuals who provide care for disabled

children to continue to do so, or to do so more effectively by providing them with breaks from caring.

This information is for families living within the Surrey County Council boundary who have a child with a disability aged between 0-18 years. It includes information on the purpose of the Short

Breaks Statement and the current range of short break services available in Surrey.

LEGAL CONTEXT

INTRODUCTION TO THE SHORT BREAK STATEMENT

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The Breaks for Carers of Disabled Children Regulations 2011 provide further details on how local authorities must perform their duty:

The Children and Families Bill 2013 also aims to transform the system for children and young people with special education needs (SEN) and disabilities so that services consistently

support the best outcomes for them.

The bill aims to extend the SEN system from birth to 25, though the introduction of Education, Health and Care Plans, giving children, young people and their parents greater control and

choice in decisions and by ensuring their needs are properly met.

DEFINITION OF DISABILITY

‘A child/young person aged between 0 and 18 years, who has a physical or

mental impairment that has a substantial and long-term adverse effect on

their ability to perform normal day-to-day activities’

Children Act 1989

to ensure that, when making short break provision, they have regard to the needs of different types of carers, not just those who would be unable to continue to provide care without a break;

to provide a range of breaks, as appropriate, during the day, night, at weekends and during the school holidays; and

to provide parents with a short breaks services statement detailing the range of available breaks and any eligibility criteria attached to them.

The statement is reviewed on an on-going basis and updated annually.

Caroline Budden Deputy Director Children, Schools & Families, Surrey County Council

Sheila Jones Head of Countywide Services Children, Schools & Families, Surrey County Council

Sandy ThomasSpecialist Service Manager Children, Schools & Families, Surrey County Council

Amanda HarveyCommissioning & Short Breaks Manager Children, Schools & Families, Surrey County Council.

WHO IS RESPONSIBLE FOR THE STATEMENT

HOW WAS THE STATEMENT PREPARED

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The Short Breaks Statement is published on the Surrey County Council website:

www.surreycc.gov.uk/shortbreaks

HOW WILL THE STATEMENT BE PUBLICISED

Surrey County Council’s first Short Breaks Statement was published in October 2011 and was produced by the Strategic Commissioning team and largely based on information from previous

Aiming High for Disabled Children consultations that took place with parents and disabled children and young people.

In 2012 the Short Breaks team reviewed the statement using a self evaluation tool developed by Impact. This was carried out in partnership with key stakeholders including representatives from; Family Voice Surrey, Link Leisure (now Link Able), Barnardo’s (representing the young people’s

forum ‘One Voice’), Crossroads and the National Autistic Society.

The statement is also available in other languages and formats upon request.

The statement will be publicised to parents and carer’s via the parent forum, the Surrey Children’s Disability Register, the short breaks mailing list and through partners in Health,

Education & Social Care.

Short breaks are intended to have positive benefits for both children and their parents & carers. The provision of short breaks is considered an essential part of the support provided to families of

disabled children and young people.

It can also include the provision of Direct Payments to meet an assessed need which enables parents to manage and organise their own support.

WHAT ARE SHORT BREAKS

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Short break services provide disabled children and young people

the opportunity to:

spend time away from their parents and carers

relax and have fun with their friends

develop their independence.

Short break services give families an opportunity to:

have a break from their caring responsibilities

rest and unwind

spend time with other members of their family.

For more information on Direct Payments see page 17

Short break provision can range from a few hours a week to an allocated number of overnight breaks per year.

Short breaks can include day, evening, overnight and weekend activities and may take place in the child’s own home, the home of an approved short break carer, or a residential or community

setting.

HOW WERE SHORT BREAKS DEVELOPED

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The Short Breaks team was set up in April 2011 in order to meet the above duty and enable the continuation and development of short breaks services in Surrey.

“to improve the quality and range of short break opportunities available in Surrey”

increasing awareness of short break services available in Surrey

ensuring parents and carers are supported as early as possible

continuing to develop and invest in a range of services to offer and promote choice

monitoring and evaluating existing services to ensure they continue to meet the needs of

disabled children

obtaining feedback from parents/carer’s and disabled children about the quality of the service

they receive

identifying gaps in provision and supporting organisations to develop new services

providing advice and information on types of services and support available

ensuring disabled children are supported to take part in and enjoy activities.

The Aiming High for Disabled Children programme and subsequent legislation supported a significant increase in the number and variety of short break play and leisure services across Surrey.

Aiming High was jointly funded by Surrey County Council and NHS Surrey and used to commission and develop over 45 new projects and services, mostly provided by voluntary sector organisations or

through special schools.

WHO ARE THE SHORT BREAKS FOR DISABLED CHILDRENS TEAM

Following the Aiming High Programme, it became a legal duty for local authorities to provide short breaks for disabled children.

The Short Breaks team is responsible for:

The aim of the Short Breaks team is:

For more information and/or to complete a registration form:

Telephone: 020 8541 8792

Email: scdr@surreycc.gov.uk

Visit: www.surreycc.gov.uk

WHAT IS THE DISABILITY REGISTER

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The Surrey Children’s Disability Register is managed within the short breaks team. It was established in partnership with Health and in consultation with parents and children’s charities

working in Surrey to meet the requirements of the Children Act 1989.

The purpose of the register is to enable Surrey Children’s Service together with health services and children’s charities to identify and plan for disabled children and young people and their

parents/carers.

Registration on the Surrey Children’s Disability Register is voluntary and is not required in order to access or receive services. However, the register forms part of the short breaks team mailing list, which is used to inform and consult children and young people and their families about new

and existing services.

Providing us with your contact details means that you will automatically receive a copy of the Surrey Short Breaks Newsletter and regular updates and new developments.

Disabled children and

young people told us…

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Parents and carers of disabled

children told us…

Teenagers would like activities that

enable them to learn specific skills such as using the

gym, making music and model building.

More short breaks need to be

available for children and young people with severe

disabilities.

They would appreciate weekend breaks including

overnight stays, trips out and activity days.

More support is needed in the school holidays

The Short Breaks team regularly consults disabled children and young people and their parents and carers about short break services in Surrey. (To find out more see pages 21 & 22)

HOW DO WE KNOW WHAT SHORT BREAKS ARE WANTED

Their top five favourite activities were computers, cookery, music,

holidays and going out with friends.

The five most important things to them were having fun, spending time with family, playing, making friends and making their own

decisions.

They would like to attend clubs for both disabled

and non disabled children and young people.

The main thing that stops them from having fun is

money.

The Surrey County Council Joint Strategic Needs Assessment (2008) estimates that there are around 8,500 disabled children and young people living in Surrey.

The following information provides a breakdown of the current (2013) needs of disabled children and young people in Surrey:

HOW MANY DISABLED CHILDREN AND YOUNG PEOPLE ARE THERE IN SURREY

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• 43 with complex health and social care needs

• 55 ‘Looked After’ by the local authority

• 785 receiving social care support

• 2037 on the Surrey Children’s Disability Register

• 5591 with a Statement of Education Needs

There are a range of short break services in Surrey that aim to meet the needs of disabled children and young people and their parents and carers. These services are available:

Short breaks in Surrey are mainly provided by voluntary organisations (some of which are subsidised by the local authority). Other services are provided in house or contracted by the

Short Breaks team/Social Care teams for families who meet the eligibility criteria. See page 16

WHAT RANGE OF SHORT BREAKS ARE AVAILABLE

Short Break services can be categorised as follows:

Universal Services

Specialist ServicesTargeted Services

Term time

After school

Weekday

Saturdays/Sundays

School holidays

Overnights

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UNIVERSAL SERVICES

What are they?Universals services are those services that are provided to, or are routinely available to, all

children, young people and their families.

How can I access them?Universal services are accessed by families directly.

What type of services are they?District & borough council play schemes & holiday activities

After school clubs

Sports clubs and activities

Youth services

Beavers and Scouts

Brownies and Guides

Libraries

Playgrounds

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TARGETED SERVICES

What are they?Targeted services are aimed at disabled children and young people that require additional support, or may need groups or services that are specifically designed to meet their needs.

How can I access them?Targeted services are accessed directly by families who meet the criteria outlined by the

provider. Families may also be referred to targeted services by a professional.

What type of services are they?After school clubs and extended days

Saturday clubs

Holiday schemes

Transition & Independence

Sports & Leisure clubs

Youth Activities

Buddying/Befriending

Domiciliary care

Sitting service

Participation activities

Merlin Passes

Family Fun Days

Corporate Theme Park Days

Carers Break Grants

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SPECIALIST SERVICES

What are they?Specialist services are for disabled children and young people and their parents and carer’s

who require more support than is available through universal and targeted services for example overnight breaks.

How can I access them?Specialist services are accessed by families following a statutory social care assessment of need. The Surrey County Council ‘Social Care’ Eligibility Criteria will be used to determine

the type and level of services to be provided.

What type of services are they?

Personal Support (Domiciliary care)

Family based overnight and day care

Residential overnight short breaks

Day care, tea visits and holiday clubs

Residential weekends and holidays

Direct Payments and Carers Break Grants

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HOW ARE SHORT BREAK SERVICES ACCESSED

Disabled children and young people may access a mixture of universal, targeted and specialist services at any one time or move between them according to their age and support

needs.

Are aged between 0 and 18 years

live within the Surrey County Council boundary

Have a disability and/or additional needs that require

support to access social, play and leisure opportunities

Families have a choice in what services they access and although access is not necessarily dependent on a formal assessment of need, each provider may outline their own acceptance

criteria.

Disabled children and young people can access a short break in Surrey if they:

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HOW MUCH DO SHORT BREAK SERVICES COST

Some short breaks service are free and others charge a fee, however costs are always kept

at a reasonable level.

Play schemes generally cost £16-18 per day (10am – 4pm) and £8 for half a day (Parents

and carers should not expect to pay more than a non-disabled child accessing a similar type

of service).

If you have difficulties in accessing services because of the cost please discuss your

situation with the individual provider.

Discounts may be available for families in receipt of benefits or on a low income.

Parents are responsible for transporting their child to short breaks services unless agreed as

part of a statutory care plan.

DO SHORT BREAKS SERVICES PROVIDE TRANSPORT

Children and young people

with disabilities may be

eligible for a free disabled

person’s bus pass and

parents a companion permit

through Surrey County

Council.

For more information about the free disabled person’s bus pass and how to apply online

visit:

Website: www.surreycc.gov.uk

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However, some organisations may provide their own transport – please contact them directly.

WHAT IS THE ELIGIBILITY CRITERIA FOR SHORT BREAKS

For more information, advice and guidance:

Contact Centre Children's Team

Telephone: 0300 200 1006

Visit: www.surreycc.gov.uk

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Not all children and families will need the same level of support.

Some disabled children and young people will be supported to have their individual needs met by their family and will be able to access short break services directly without the need for a social

care referral/assessment. These services are universal and targeted services such as those described on pages 11& 12.

When a child needs extra support, the Common Assessment Framework (CAF) can be used as a simple way of gathering information and recording it in an organised way. The CAF can also be

used if you or someone who works with your child feels that they would benefit from extra support.

In certain circumstances a family may have a statutory social care assessment to ensure that the most appropriate level of support is provided.

Disabled children and young people assessed as being at significant risk, or where development would be impaired without provision or services, are eligible for support through the Children with

Disabilities Team (s).

In this case, Surrey County Council’s Eligibility Criteria is used to determine:

if the child/family are eligible for help

the type and level of services to be provided to the child and family

the level of services that can be offered;

which may include access to a specialist service as described on page 13.

Surrey Independent Living Council

Telephone: 01483 458111

Website: www.surreyilc.org.uk

Email: admin@surreyilc.org.uk

Minicom: 01483 459977

Text: 07904812935

Address: Astolat, Coniers Way, Burpham, Guildford, Surrey GU4 7HL

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WHAT ARE DIRECT PAYMENTS

Disabled Children and Young people who are eligible for social care support can choose to receive some or all of that support by “Direct Payment”.

For further information on any aspect of Direct Payments please contact SILC:

Direct Payments can be used flexibly by the family so long as purchases meet the identified needs of the child. Typically parents use the funds to employ a person to support their child at flexible times during the day, or in some cases overnight in the family home. Direct Payments can also be used to buy a range of services including sitter services, residential short breaks

(provided it is not a local authority provision), additional support from a Hospice, after school or holiday clubs and activities.

This means Surrey County Council transfer money into a suitable account in the name of an adult with Parental responsibility for a disabled child, or in some cases the money can be paid

to disabled young people themselves so long as they are over 16 and have the capacity to manage.

Surrey County Council decides whether a disabled child or young person is eligible for support by carrying out an assessment of needs.

Direct Payments may also be used to purchase or hire specialist disability equipment, providing it meets the child’s assessed needs and has been approved by a Surrey County Council

Occupational Therapist.

All Direct Payment purchases need to be accounted for and so recipients are required to send Surrey County Council evidence of what they have purchased.

Surrey County Council have commissioned the help of Surrey Independent Living Council, known as SILC, to support parents with setting up and managing all aspects of their Direct

Payments.

Surrey County Council acknowledges that supporting young people with a disability through

transition to adult life is key to a successful, fulfilling and meaningful experience in their early

adult life.

Providing young people and their families with the right information, advice, guidance and

support will enable them to reach their full potential.

Surrey County Council has a Transition Team that work with eligible young people from 14 – 25

The team work closely with other professionals such as Children with Disabilities teams,

Pathways Advisors (formally Connexions), Looked After Children’s teams and schools to ensure

planning starts early and both realistic and aspirational opportunities are available for young

people as they move into adult life.

There is now a named link worker in Key Surrey special schools and parent/carer sessions

regularly take part in these schools. This has offered parents and carers the chance to

understand the transition process for their sons and daughters and to hear about some of the

opportunities available once they leave school and college.

These sessions are usually held in partnership with the Pathways Team, Employability

(Employment Support Service) and our Commissioners.

Surrey are now holding sessions for young people and their families who are in Out of County

Special Schools to ensure they hear about Preparing for Adulthood and to also give them an

opportunity to create some plans for the future.

These sessions are usually held during the Easter and Summer Holidays.

From September 2014 children and young people requiring additional support will be offered an

Education, Health and Care Plan as an alternative to a Statement of SEN. These reforms are

currently going through Government but for further information please go to the Department for

Education website:

http://www.education.gov.uk/search/results?q=children+and+families+bill

As part of the SEN reforms each Local Authority needs to produce a local offer to advise

children, young people and their families on all aspects of Special Educational Needs and

Disabilities. Surrey is currently creating theirs and has a holding page:

http://www.surreycc.gov.uk/learning/special-educational-needs/pathfinder/the-local-offer

The transition process will begin with the young persons Year 9 Annual Review . At this review,

transition is discussed and a ‘Transition Plan’ for the young person is created.

HOW DO WE HELP YOUNG PEOPLE WITH DISABILITIES PREPARE FOR ADULTHOOD (TRANSITION)

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HOW DO WE HELP YOUNG PEOPLE WITH DISABILITIES PREPARE FOR ADULTHOOD (TRANSITION) CONTINUED...

New developments

A number of opportunities that include young people of transition age have been developed through Surrey Short Breaks funding. This includes services such as the Barnardo’s Moving

Forward Project and Employability.

Parents from Family Voice Surrey are now represented on all of the strategic groups that are working on improving transition, including the development of the Education, Health and Care

Plan under the SEND reforms.

With support from Barnardo’s young people’s forum ‘One Voice’, a shadow board has been set up to work alongside the Transition Strategy Group to make sure young people feature .

Surrey continues to listen to disabled young people and their families to strive to improve their preparation for adult life.

If you would like to tell us something that would help us improve please contact:

Julie Pointer, Transition Development Manager: julie.pointer@surreycc.gov.uk

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For more information visit:

www.preparingforadulthood.org.uk

www.surreycc.gov.uk

HOW WILL SHORT BREAKS IMPROVE OUTCOMES

Project Officers from the Short Breaks team routinely monitor, evaluate and review commissioned services by carrying out regular visits, observations and contract meetings at the schemes. As a result the team are confident that services are of good quality and safeguard disabled children.

This information coupled with on-going feedback from parents/carers and disabled children and data collection all contribute to decisions for the future and the planning of services.

HOW WILL WE MEASURE IMPACT

Disabled children and young people

It’s important that short breaks provide positive outcomes for disabled children and young people in order for them

to:

Be Healthy

Stay Safe

Enjoy & Achieve

Make a Positive Contribution

Achieve Economic Well Being

Parents and Carers

Short breaks will give parents and carers opportunities to:

Spend time with other children

Receive regular, planned and reliable breaks from caring

Feel supported to continue to lead a positive family life

Feel happy and relaxed knowing their child’s needs are being met in a safe environment

Prevent family breakdown

Experience less stress

Outcomes are based on identified targets and local priorities.

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Surrey Short Breaks work in partnership with parents and carers of disabled children to ensure their views are considered throughout the planning, development and ongoing consultation regarding

Short Breaks in Surrey.

The Short Breaks team carry out regular engagement visits to short break settings across Surrey consulting with parents and carers about the services they access. During these visits, parents and carers are asked about their experiences of the service and to give their views about the quality of

staff, activities, opportunities and more.

The Short Breaks team also works together with short break providers to encourage regular consultation and engagement activities within their services and continuous development in

response to the views of the parents and carers of disabled children and young people.

Furthermore, the team regularly meet with charity and community groups for parents and carers of disabled children to share information and consult them on their views of short breaks in Surrey.

In addition to regular newsletters and e-bulletins, the Short Breaks team joined ‘Facebook’ in 2013 to increase communication and engagement with parents and carers of disabled children.

For more information or to join Family Voice Surrey:

Telephone: 01372 705708 or visit: www.familyvoicesurrey.org

HOW DO WE CONSULT WITH PARENTS AND CARERS

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Parents and carers of disabled children and young people have told us:

“The services in existence are brilliant and provide a lifeline to all who use them however we need more!.”

“Children develop skills and become more independent as a result of these breaks”

“our lives would be smaller, duller and more difficult without these opportunities”

“It is so beneficial, he gets to be with children of all ages and develop friendships.”

“My son absolutely loves the opportunity to be away from home with friends and people of his own age and to take

part in activities that would not normally be available to him.”

In addition to consulting directly with parents and carers, the Short Breaks Team also work in partnership with Family Voice (the official parent-carer forum for Surrey) to engage and consult on

wider short break projects.

HOW DO WE CONSULT WITH CHILDREN AND YOUNG PEOPLE

For more information and if you would like to join the One Voice Forum or Young Assessors Scheme, please contact Gareth Lewington, Participation Officer:

Telephone: 01372 844773

Email: gareth.lewington@barnardos.org.uk

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Surrey Short Breaks work closely with disabled children and young people to ensure their views are considered throughout the planning, development and ongoing consultation regarding short

breaks in Surrey.

The Short Breaks team carry out regular engagement visits to short break settings across Surrey consulting with disabled children and young people about the services they access. During these visits, the children and young people are asked about their experiences of the service and to give

their views about the quality of staff, activities, opportunities and more.

Furthermore, the team works together with short break providers to encourage regular consultation and engagement activities within their services and continuous development in

response to the views of disabled children and young people.

In addition to the above, The One Voice Forum; part of the Barnardo’s ‘Moving Forward’ service, receives Short Break funding to provide children and young people with disabilities the

opportunity to express their views and opinions about the services they receive throughout Surrey. It aims to ensure that children and young people with disabilities have their voices heard and the opportunity to implement and improve the delivery of services in Surrey to ensure better

outcomes for children themselves, young people, organisations and the wider community.

Disabled children and young people tell us:

“The scheme is great, really great; you get to do loads and loads of different things like cooking, swimming, going out,

computers, loads of fun stuff.”

It is one of my favourite times. I wish it was every week. I look forward to it. I don’t like going home.”

“I really like coming and I really like the things we get to do. I would like to come more in the summer but it gets booked up a lot.

I like swimming when I come.”

“I take part in the fortnightly youth club and I really enjoy it. I have great fun. I like the helpers and the activities are good. I wish

it was every week.”

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Surrey County Council is now in its 5th successful year of raising the participation of disabled children and young people in rewarding activities and is now looking to re-commission a range of

services that offer choice and accessibility in order to meet the on-going needs of disabled children, young people and their families from April 2014 and beyond.

WHATS HAPPENING NOW

For more information about current services view the Surrey Short Breaks Directory by visiting www.surreycc.gov.uk/shortbreaks.

DID YOU

KNOW?

In 2012-2013 2,200 disabled children

and young people accessed short break

services in Surrey.

In 2012-2013 over 350 disabled

children and young people were provided with residential short

break services.

In 2012-2013 over 240,000 hours of

short break hours were provided to disabled children and young

people.

CAPITAL FUNDING

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SMALL (10K) REVENUE GRANTSIn 2012-2013 Surrey Short Breaks for Disabled Children awarded £358,929.77 in small

grants to Surrey organisations and projects in the following categories:

In 2012-2013 Surrey Short Breaks for Disabled Children provided £739,037 of funding towards the following projects:

After School Clubs

Leisure

Residential trips

Parent/family support

Performing arts

Small equipment

Saturday Clubs

School Holiday clubs

School residential trips

Sports

Training

Transition development

The redevelopment of two short break centres

A facelift to an outdoor play area

A new car for a buddy service

Specialist seating for a nursery

A minibus for a short break provision

Accessible pathways and upgrade of nature trail

Specialist bicycle and storage.

HOW CAN FAMILIES FIND OUT MORE ABOUT SHORT BREAKS

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Family Information Service (FIS)

FIS is a free, impartial information service for families with children aged between 0 – 19 (up to 25 for young

people with disability or special educational needs).

For information, help or advice you can contact us online in the following ways:

Website: www.surreycc.gov.uk/fis

Email: surrey.fis@surreycc.gov.uk

Telephone: 0300 200 1004

Social Information on Disability – (SID)

SID is a free information service which covers all Surrey and is for all age group including children

with disabilities.

For more information:

Telephone: 0800 0439395

Website: http://www.asksid.org/fab

Surrey Short Breaks for Disabled Children

To find out more information about short breaks in Surrey and to access our other publications contact the Surrey Short Breaks for Disabled Children team:

Telephone: 01372 833 073 / 833 638

Email: shortbreaks@surreycc.gov.uk

Website: www.surreycc.gov.uk/shortbreaks

Social Media: www.facebook.com/surreyshortbreaks

SURREY SHORT BREAKS AND THE LOCAL OFFER

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By September 2014, Surrey County Council will publish a local offer putting all information about health and social services, education, leisure activities and support groups available in the area

for children and young people aged 0–25, with special educational needs and disabilities (SEND) in one place. It will also explains the additional or different provision provided for children who

have SEND. The Surrey Short Breaks statement and directory of services will form a substantial core of the local offer.

Who is it for?

The local offer will enable parents, carers, children, young people and practitioners/professionals to see clearly which service(s) and support across education, health and social care, are

available locally for all children and young people from birth to 25 years with SEND, and how and when they can be accessed.

What must it include?

The local offer must include:

education, health and care provision

arrangements for identifying and assessing children and young people’s SEND

training provision including apprenticeships

travel arrangements to/from early years settings, schools and post 16 providers

support to help children and young people’s transitions between phases and for adulthood

sources of information, advice and support about SEND in the area

arrangements for making complaints, mediation and rights of appeal to the tribunal.

What is Surrey doing to prepare?

Surrey County Council has been working as part of the ‘SE7’ (Brighton and Hove, Hampshire, Kent, Medway, Surrey, East Sussex and West Sussex) with representatives from local parent carer forums to plan what should be included in the local offer and the best way to present the

information.

SE7 has developed a local offer framework which all seven authorities will follow. We are planning, with children and young people, parents and carers, schools, colleges, health services

and the voluntary and community sector, how best to collate and present this information including IT solutions and we have trialled it with education settings.

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