Self Directed Support for All Kate Fulton Avivo Nov 16
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Transcript of Self Directed Support for All Kate Fulton Avivo Nov 16
Self Directed Support for All Kate Fulton
Self Directed Support for All 2
•Explore Self Directed Support internationally
•Demonstrate how Self Directed Support can be beneficial to all Citizens
•Consider elements that help
Today
The world according to me – Kate Fulton
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• Self-directed support is about people being in control of the support they need to live the life they choose.
In Control 2011
What is Self Directed Support?
Individual funding has been growing for 50 years
Many different words, many models
A significant shift in thinking
•What are your needs?
•How do you want your life to be and what is going to work?
Our Jenny
• Jenny’s own home• Team that shared our vision (not a
Providers vision) • Exploration of what a good life
could look like • Flexibility in approach and use of
budget• Within budget and we could bank
money to reward and recognise the team
Supporting Citizenship
• You are the expert of your life
• You are in control of your life and your supports
• Your life is part of a community of friends and family
• Resources need to be transparent and best used for you
Your contextYour solutions
Institution Care Citizenship
The context of Human Services
Service Land
WorkColleague
sMoney
HomeNeighbours
Pets
FriendsHobbies
Parties
Being ME!
LoveMarriage
College
Special Bus
Special Swimmin
g
Special College Courses
Special homes
Special Schools
Day Centres
Service Land• The systems offer can isolate people from their peers, families and community connections
• Services may be in the community, but don’t draw on it’s resources
• People’s ‘label’ or deficit becomes the most important thing, not their capacities and resources (their real wealth)
• Power and autonomy - There is a tendency for staff to take over decision-making and to make the rules
• People’s needs are seen through the service ‘frame’ and service solutions become the only solutions.
Building centred, system centred, service centred NOT person centred
Service solutions become the solutions
• Placements – Young people• Care Homes – Older people• Day Centers – People with a disability or mental ill health • Groups homes – people with intellectual disabilities• Programs not entitlements
Needs V Outcomes
Our starting point makes a difference
Citizenship
Solutions to achieve the outcomes
Needs
Human Services / Supports
What if we focused on…• You as a citizen not a service user or system recipient • Your expertise on your own life in your context of
community and relationships • Your idea of what a good life could look like is the one that
matters • You know all of your resources to make the best use of• Your vision of a what a good life looks like determines the
support network • You have active partnerships with people / organisations
who can support you on your journey
How do we focus on the right stuff…• You as a citizen not a service user or system recipient - Respected
Expert • Your expertise on your own life in your context of community and relationships
- Real wealth• Your idea of what a good life could look like is the one that matters –
Planning and exploration• You know all of your resources to make the best use of – Individual
allocation alongside all other resources • Your vision of a what a good life looks like determines the support network –
Good design and in your community• You have active partnerships with people / organisations who can support you
on your journey – A partner of your choosing
Self Directed Support for all Citizens
• People with disabilities • People who experience mental ill health • Young people and families• Early intervention • Children in the looked after system• People with significant health issues• People who experience homelessness • Older People who are frail • Families• Women who are victims of domestic violence
Worry less about the mechanism
It will change
Mechanisms can constrict our thinking
UK Model
Western Australia – HACC SDS
National Disability Insurance Scheme Australia
Line Item $$
Agreed Plan• Outcomes• Strategies
= Budget
Planning
Sho
ppin
g
Reasonable & necessary
Features of other models
• Individual plans – Independent Facilitators / Brokers (independent of the system – long term connection / problem solving)
• Support Providers individualizing block contracts - good planning and individual design
• Focus on building connection and individual capacity • Individualize existing system - using existing costs as the benchmark
and planning with families best use of it
Homelessness and SDS
• People who had been sleeping rough for between 4 and 45 years. • Supports and a personal budget of up to £3000 / $6000• Chosen Broker to hold your budget • Good planning – what makes sense for you• Trusted to make decisions on how to use the money responsibly • Outcomes included contact with family, caravan, visits to
accommodation before taking up a tenancy , mobile phone to reconnect
Children in the looked after system
• Amy and Mum long term contact with Child Protection
• Amy maintained contact with Mum• Regular breakdown of placements • Incidents in residential accommodation
• What would it take to support Amy and Mum to have a good life and what would good support look like? (Good Design)
• Outcomes – money to pay bond on decent flat, support for Mum with parenting (Mum’s choice of worker), Amy taking control of her travel (and money)
• Cost £120k to £11,960k
• Support provided by kids critical • Supporting the kids essential
• Flight for Daughter every month • Support for others to attend retreat centre
• Mr Mandel and his family are the experts and designed a solution that works for them
Click icon to add picture
Mr Mandel and his family
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• Eamon was living in a group home • Family desperate for a different future• Family wanted more control but scared of
responsibility • Saw other people and were inspired but
didn’t want to go it alone• Looking for a partner • Shared Management partnership -
designed support, built team, supported Mum to manage what she could over time
• Active partnership
Eamon and his family
Context
OVERVIEW
Money to Agency
Employer / Purchaser
All management responsibilities
Contractual relationship is with the
Agency
Money to approved Partner
Person manage day to day support
Responsibility is shared Contractual
relationship with partner – based on a
partnership agreement
Money to Person
Employer or Purchaser
All management responsibilities
Contractual relationship is with the
person
A partnership
• Design• Set Up & Establish • Management • Development• Monitoring • Acquittal & Accountability
• Share Manages with Avivo to direct and manage most aspects of his wife's support
‘shared management works for us because we are not controlled but we are not alone’
• Avivo supports over 1000 older people to direct their supports. Third of this population share manage
Robert
Robert
‘
NDIS NDIA SUPPORT
CATALOGUE
Incentives
• UK Management Options- Choice & Control - Economic benefits – individual and Government level
• WA Management Options- Choice & Control- Economic benefits – addition / negotiation
• Early data suggests a reduction in overall costs over time – more control & better outcomes
Human Services
NDIA SUPPORT
CATALOGUE
Building capacity
Personal Capital
Knowledge Capital
Material Capital
Social Capital $$$
Worth remembering
• People can and do direct their supports outside of human services
• If it’s easy to navigate • If the assistance makes sense – timely • If we expect and treat people like they can • If it’s based on real choice and control
What people and families want will shape the future of human services
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