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Transcript of Road To Success...Within Our Reach MCHB funded National Centers Achieving Community-Based System of...
Road To Success...Within Our Reach
MCHB funded National CentersAchieving Community-Based System of Services
for Children and Youth with Special Health Care Needs
Family Voices Conference
Moving Forward: The Future of Health Care
for Children and Youth
Washington, DC
May 26, 2007
Addressing Federal Goals
Amended Legislation for Title V of the Social Security Act (OBRA 1989):
“Facilitate the development of community-based systems of services”
Healthy People 2010 Objective 16.23 “Increase the proportion of States and territories that
have service systems for children and youth with special health care needs (CYSHCN)”
President’s New Freedom Initiative (NFI) Responsibility given to HRSA for developing and implementing a plan to reduce barriers to community services and independent living for CYSHCN and their
families
The MCHB Mission
The mission of the Maternal and Child Health Bureau
(MCHB) is to provide national leadership, in
partnership with key stakeholders, to improve the
physical and mental health, safety and well-being
of the maternal and child health (MCH)
population which includes all of the nation’s
women, infants, children, adolescents, and their
families, including fathers and children with
special health care needs.
The MCHB Vision/Principles (excerpts)
There is equal access for all to comprehensive,
quality health care provided in a supportive,
culturally competent environment, which is
family-centered and community-based.
All women and children, especially children with
special health care needs, are linked to a
comprehensive, community-based service
system through a medical home.
The MCHB Vision/Principles (excerpts)
Family and community participation and
engagement are key to the development
of effective, quality health systems and
services.
What Is A Community System?
Graphic: Champions For Progress National Center/EIRI
Building A Community System: 6 Core Outcomes
Strategies for Success: Grants
State Level- State Implementation D-70/NFI- F2F HIC’s- TBI, etc.
National• National Centers & Cooperative Agreements
• Monitoring and Measuring
- National Surveys for CSHCN - Performance Measures
• Partnerships
Road To Success...Within Our Reach
MCHB funded National Centers
What we do ……..
How we can help YOU!
National Center forFamily & Professional Partnerships
• National Network of Family Leaders - Expertise in health care policy & practices - Family Leaders in every state - Funded family-run F2F HICs, plus volunteers
• Families as Partners - Promoting partnerships at all levels of care to ensure family centered care (individual child to the program and policy level)
Who We Are ………..
National Center forFamily & Professional Partnerships
• Information & Resources: Info for families to help other families Materials: Website, hard copy materials
• Technical Assistance - Topical Calls - eNews - Onsite Training (state, regional, national)
• Legislative Action Center - learn about current issues, updates and how to participate in policy issues
How We Can Help YOU ………..
National Center forFamily & Professional Partnerships
• State Activities: Connections with FV activities within your state
• Youth Leadership: KASA - National Network for youth/young adult self advocacy
• Evidenced Based: Committed to develop information to document the value of family partnership and family centered care
National Center
for Cultural Competence (NCCC)
Who We Are ………..
The NCCC receives Federal funds to support family
organizations, and state Title V programs
concerned with CYSHCN and their families to plan
for, implement and evaluate the services and
supports that they provide for all families.
National Center
for Cultural Competence (NCCC)
Who We Are ………..
Special emphasis is placed on helping
polices, services and supports to meet the
unique needs of families from diverse
cultural, linguistic, geographic, gender,
religious, and racial backgrounds.
National Center
for Cultural Competence
Who We Are ………..
Mission ………. is to increase the capacity of
health and mental health programs to design,
implement, and evaluate culturally and
linguistically competent service delivery systems.
National Center
for Cultural Competence
Foundations of Cultural & Linguistic Competence
- Definitions - Compelling Need - Policies to Advance and Sustain
• Conceptual Frameworks/Models
• Guiding Values & Principles
• Tools and Processes for Self-Assessment
National Center
for Cultural Competence
How we can help You ………..
• Provide training, TA and consultation
• Conduct virtual meetings
• Facilitate community of learner activities
• Link individuals and organizations
• Family & Youth Perspectives
National Center
for Cultural Competence
How we can help You ………..
• Resources, Guides & Tools
- Guide for Advancing Family-Centered and
Culturally and Linguistically Competent Care
- Cultural and Linguistic Competence Policy
Assessment (CLCPA)
• Topical Conference Calls
• Consultant Pool
National Center of Medical Home Initiatives
INSERT LOGO HERE
Who We Are…
• Mission: to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau to ensure that CYSHCN have access to a medical home
• A Medical Home is not a building,house, or hospital, but rather an approach to providing comprehensive primary care.
Elements of Medical Home
Care that is:• Accessible• Family-centered• Comprehensive• Continuous• Coordinated• Compassionate• Culturally-effective
and for which the primary care provider shares
responsibility with the family.
National Center of Medical Home Initiatives
National Center of Medical Home Initiatives
How We Can Help YOU ………..
• Finding local, state, & national resources
• Strategies to support medical homes
• Tools - screening and surveillance
• Training manuals, marketing materials, power pointslides, and resources
• Monthly Listserv
June 29 to July 1, 2007Orlando, FL
www.medicalhomeinfo.org
www.medicalhomeinfo.org/FOP%20Brochure_1.pdf
www.hdwg.org/catalyst/index.php
State-at-a-Glance Chartbook on Coverage and Financing of Care for Children and Youth with Special Needs
Catalyst Center for Improving Financing of Care for CYSHCN
We provide support to the efforts of
stakeholders at the federal, state and local
levels in assuring adequate health
insurance coverage and financing to meet
the diverse needs of children and youth
with special health care needs and their
families.
Who We Are ………..
Catalyst Center for Improving Financing of Care for CYSHCN
The goals of the Catalyst Center include
empowering families and other
stakeholders to share a common language
and knowledge base around financing
issues.
Catalyst Center for Improving Financing of Care for CYSHCN
Our work is organized around four central domains:
- reducing uninsurance
- reducing underinsurance
- increasing financing strategies for wrap-around supports
- increasing strategies that promote the infrastructure of care.
Catalyst Center for Improving Financing of Care for CYSHCN
How We Can Help YOU ………..
Short-term TA via phone or e-mail:
- Questions/health care financing policy
- Locating data sources
- Connecting to solve complex financing
Catalyst Center for Improving Financing of Care for CYSHCN
How We Can Help YOU ………..
- Monthly topical conference calls
- Financing Toolkit of publications
- Expand financing knowledge base
National Resource Center for Early Hearing Detection and Intervention
Every day, 33 babies (or 12,000 each year)
are born in the United States with
permanent hearing loss.
With 3 of every 1,000 newborns having a
hearing loss, it is the most frequently
occurring birth defect.
National Resource Center for Early Hearing Detection and Intervention
Mission ………..
To ensure that all infants and toddlers with
hearing loss are identified as early as
possible and provided with timely and
appropriate audiological, educational, and
medical intervention, an early hearing
detection and intervention
National Resource Center for Early Hearing Detection and Intervention
Three basic components
- Newborn screening
- Audiological diagnosis
- Early intervention
National Resource Center for Early Hearing Detection and Intervention
How We Can Help YOU ………..
- TA
- Resource /promising practice development
- Dissemination
- Public awareness activities
- Education and training
- Policy and financing initiatives
- Evidence-based data for quality assurance.
Champions for Inclusive CommunitiesChampions for Progress
Who We Are…..
Champions for Inclusive Communities is
the National Center responsible for
Performance Measure #4
“Services are organized so families can
use them easily and are satisfied with
the services they receive.”
Champions for Inclusive CommunitiesChampions for Progress
How We Can Help YOU ………..
• Provide models of team building, coalitions and family-professional partnerships that are empirically tested
• Highlight community efforts across the country that have proven, replicable models
• Help State-Community teams connect with ongoing initiatives for funding and support
Healthy & Ready to Work National Resource Center
Health Impacts All Aspects of Life
• To stay healthy, young people need an understanding of their health and to participate in their health care decisions.
• We provide information and connections to health and transition expertise nationwide – from those in the know, doing the work and living it!
The Ultimate Outcome: Transition to Adulthood
Healthy & Ready to Work National Resource Center
Four cornerstones of our work
• Youth Involvement
• Title V Leadership
• Medical Home & Transition
• Interagency Partnerships
The Ultimate Outcome: Transition to Adulthood
Healthy & Ready to Work National Resource Center
Health Care Transition Takes Time & Skills
• Increasing Youth Involvement
• Health & Wellness Baseline
• Maintaining Health Insurance
• Documenting Disability
Info & TA …for Leaders, Title V & Providers
The Ultimate Outcome: Transition to Adulthood
Healthy & Ready to Work National Resource Center
• Web-based Tips & Tools (use and adapt)
• Provide templates, text, materials
• TA: Topical Calls, Email, Phone, On-site
• Review drafts
• Transition Data: Block Grant NMP6 & SSI
How We Can Help You…….
The Ultimate Outcome: Transition to Adulthood
How YOU can help US!
• Contact us: Tell us what you need (see check off forms on your tables)
• Keep us updated: Help us understand the challenges you & the families face
• Share your skill areas: Offer to review drafts, test tools with families, identify resources for Centers’ materials, newsletters and websites.
How YOU can help US!
• Share your stories and experiences
• Identify programs and organizations
that are doing good things (promising
practices) that reflect an understanding of
and honor different cultural beliefs and
practices.
How YOU can help US!
• Get involved in Centers’ activities - Participate in questionnaires and surveys - Join Topical calls – provide feedback - Join list servs to learn and later to share ideas - Offer to join our activities, trainings as family faculty, serve on Advisory Councils
• Speak up for what you know is rightPoint out what is not correct …AND…provide solutions and resources to address the issue.
Every change begins with the actions of one