Richard Male and Associates - VORvor.net › ~vornet › images › 2012MemberNeedsSurvey.pdf · 24...
Transcript of Richard Male and Associates - VORvor.net › ~vornet › images › 2012MemberNeedsSurvey.pdf · 24...
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Richard Male and Associates
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24 questions – identical in electronic and print
form
Questions developed by RMA
with VOR staff input and approval
TOTAL RESPONDENTS – 414
65% used electronic version
35% used paper version
Timing was February-March
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Why a summary presentation?
• Electronic responses are a 155-page PDF
• Paper responses have been entered into a
32-page spreadsheet with click-to-read windows
for all open-ended answers
• VERY VIEWABLE as long as you’re viewing it electronically
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“A man’s feet must be
planted, but his must
survey the world.”
–G. Santayana
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PART ONE:
-- Prompted questions (i.e., multiple choice)
-- All responses reflected here
PART TWO:
-- Open-ended questions
-- You will see a sampling of responses
CLOSING:
-- Themes and concerns
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How long have you been a member of VOR?
• 1 – 5 years 27%
• 6 – 10 years 23%
• 11 – 15 years 20%
• 16 – 20 years 13%
• More than 20 years 17%
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You have a very balanced
“arc” and loyal members
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What is your interest in VOR?
• Family member 40%
• Court-appointed guardian 5%
or conservator
• Both family member 50%
and legal guardian
• Professional in ID/DD field 6%
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Half of your members serve
in the dual role of family
member and guardian
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If you are a family member of someone with
ID/DD, what is your relationship?
• Parent 64%
• Sibling 32%
• Aunt/Uncle 1%
• Cousin 2%
• Grandparent 1%
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Where does the person with ID/DD reside?
• We live together 2%
• We live in the same community 18%
• We live in the same state 63%
• We live in different states 18%
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If not with you, in what setting does the person
with ID/DD reside?
• Public ICF/MR 71%
• Private ICF/MR 11%
• Community Home 17%
• Nursing home 1%
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82% live in
public or private ICF/MRs
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Overall, how do you feel about the progress of
the organization today?
• Very good 74%
• Just OK 22%
• Not good 5%
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The membership at large is
not completely comfortable
with VOR at board level
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How confident are you that VOR is positioned
and prepared to succeed in the next 1-5
years?
• Very confident 26%
• Confident 44%
• Somewhat confident 22%
• Not confident 9%
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Do you participate in any lobbying on a local, state, or federal level?
• I wrote letters and/or emails 65%
• Personal visits with elected officials 37%
• Attended Town Hall or other
public meetings 29%
• Participated in a rally 12%
• I did not do any lobbying 14%
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How would you describe the amount of
communications you receive from VOR in
any form (email updates, action alerts, newsletter,
etc.)?
• Not adequate 7%
• Adequate amount 90%
• Too much 3%
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How useful is the communication you receive?
Very useful 37%
Useful 41%
Somewhat useful 19%
Not particularly useful 3%
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How often do you visit the VOR website?
• Several times a week 3%
• Once a week 11%
• About twice a month 11%
• Monthly 12%
• Less often than monthly 63%
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Either improve web site or it
doesn’t warrant future
time/money
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Do you find the website useful?
• Very useful 37%
• Somewhat useful 47%
• Not often useful 10%
• Not at all useful 6%
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Useful, but not frequently
visited … why? Not current
info?
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What do you believe are the organizational strengths of VOR?
• “Washington DC conference”
• “Advocacy”
• “You exist to speak for the voiceless”
• “Strong, unified voice for intellectually disabled”
• “Emphasis on action, not political correctness”
• “VOR stands for CHOICE of services”
• “It is driven by parents, not by professionals”
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These are samples from
hundreds of responses
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What are its weaknesses?
• “Funding—always on a shoestring”
• “Lack of transparency from board”
• “The old acronym VOR prevents some alliances and hurts credibility”
• “No local meetings”
• “Leadership turmoil”
• “Not enough young people involved”
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Are there threats on the horizon, in your opinion? Is there a risk to maintaining the status quo?
• “Need to bust the myth that every DD person is happier in the community”
• “There is too much emphasis in the world on a community setting for everyone”
• “Advocacy message is well thought out and well spoken, but not sure how effective VOR is in delivering the message on impact”
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Do you feel that VOR’s activities and priorities are adequately
focused on your greatest concerns for people with ID/DD?
• “Yes”
• “They are focused, but not forceful enough”
• “Yes, but our opponents have way more money, power,
influence and headway”
• “I see mixed signs that the board is struggling with the
focus and probably has disagreements
that may lessen VOR effectiveness”
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Do you believe there are high priority threats that VOR is not
addressing, or not addressing adequately?
• “Could VOR mount an intense, national effort to make legislators understand what ‘profound’ means—and how those people are not what is seen out bagging groceries or working in greenhouses?”
• “Community care is primarily aimed at higher functioning clients to the detriment of more severely disabled clients”
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How comfortable or confident are you that the
governing board is running VOR effectively?
• “They don’t listen to member concerns”
• “Very comfortable”
• “Only a small circle is allowed to be a board
member”
• “Lack of adequate board vision”
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How comfortable are you that the VOR staff
meets your needs?
• “Very”
• “Not sure”
• “It tries”
• “Responsive and helpful”
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Sympathetic . . . but
frustrated that VOR is not
growing
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We hope that you have made a recent donation to
VOR in addition to annual dues. If not, why not?
• “Income low”
• “Cannot afford”
• “Not confident where VOR is heading”
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Income levels are a factor,
but realize that there may be
more to it
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What actions could VOR take to increase your support?
• “Host regional meetings”
• “Case statement needs to be more compelling”
• “Narrow the focus to work more directly through state and local family associations, and less through Washington lobbyists”
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The local presence and
activity is clearly an unmet
wish of members
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Do you have any other observations you would like to offer at this time?
• “You are the only organization that truly listens”
• “We have an amazing organization”
• “VOR could be so much bigger but without vision and planning and with a continuation of secrecy, it cannot grow”
• “Message and philosophy is great but management is poorly done”
• “Just keep up the good work, we need you!”
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Open-ended comments tend
to range from very
complimentary to critical