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FINDING YOURRHYTHM

CRE ATING NEW POSSIBILIT IES IN P E D IATRIC ONCOLOGY SOCIAL WORK

AU STIN, TEXAS • APRIL 11 TH-13 TH, 2018THE WESTIN AUSTIN DOWNTOWN

SUNSET OVER DOWNTOWN AUSTIN SKYLINECOURTESY OF GEOFF DUNCAN OF VISIT AUSTIN

42 ND ANNUAL APOSW CONFERENCE

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The Board of Directors cordially invites you to join us in Austin, Texas, where you will be Finding Your Rhythm: Creating New Possibilities in Pediatric Oncology Social Work. The conference is a time to learn, connect with colleagues and return to your centers rejuvenated. The Board, the local site committee and the abstract review committee have been working hard all year to ensure that the 42nd Annual APOSW Conference is a memorable one.

The Keynote, Intensives and Ethics speakers are experts in their fields and enthusiastically accepted the opportunity to speak at this year’s conference. Their presentations are certain to be educational, inspirational and thought-provoking. The Pre-Institutes are geared to those social workers who are new to pediatric oncology and those hoping to use nature as a source of self-care. The Seminars will focus on a range of timely topics including immigration, social work leadership and creative expressions. The breakout and poster sessions will reveal the boundless knowledge, creativity and commitment of our membership.

The abstract committee this year worked especially hard due to the sheer number of abstracts submitted. A special thank you to our abstract reviewers: Valerie Dorsainvil, LSW, OSW-C, Karen Jensen, MSW/LICSW Heather Lanfranchi, MSSA, Amanda Musser, MSW, LSW, and Rebecca Ruck, MSSW, LSW. Their dedication to the field, thorough evaluations and willingness to volunteer and take on this challenging task is greatly appreciated. We look forward to seeing you in Austin!!

Cordially,

S T E P H A N I E L . F O O K S -PA R K E R , M S W, L S W, O S W- CA P O S W P R E S I D E N T- E L E C T

W E L C O M E T O T H E 4 2 N D A N N U A L A P O S W C O N F E R E N C E !

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FINDING YOURRHYTHM

CREATING NEW POSSIBILIT IES IN PEDIAT RIC ONCOLOGY SOCIAL WORK

AUST IN, TEXAS • APRIL 11 TH-13 TH, 201842 ND ANNUAL CONFERENCE

T E X A S S TAT E C A P I T O L , A U S T I N 27 ( J O H N C U M M I N G S V I A W I K I M E D I A C O M M O N S )

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Welcome to Austin, a town that prides itself on keeping things weird. Austin was named the Live Music Capitol of the World and offers over 250 music venues. The city lies along the shores of Lady Bird Lake and has a bustling downtown area with shopping, dining and fun adventures - all within walking distance. In addition to the live music scene, there are a host of fabulous venues for art, dancing, outdoor sports, and dining.

The Westin Austin Downtown sits in the heart of the city and offers easy access to many local and state treasures. Museum buffs can choose from historical sites like The Texas State Capitol Building, The LBJ Museum, The Bullock Museum or art museums such as the Blanton, The Contemporary or the Umlauf Sculpture Garden. Springtime in Austin provides options to hike and bike along the 10 miles of Ladybird Lake, swim in Barton Creek Springs, kayak, paddle-board, or take a sunset & bat-watching boat cruise. A trip to Austin would not be complete without a sampling of our local cuisine or visit to one of many of the town’s food truck trailer parks.

We hope you will join us for a fabulous conference and the chance to sample all the weird and wonderful opportunities Austin has to offer.

W E L C O M E T O

A U S T I N , T E X A S !

A U S T I N S K Y L I N E W I T H K AYA K E R ( V I S I T A U S T I N )

“ A M A Z I N G E N E R G Y A N D C A M A R A D E R I E W I T H I N T H E G R O U P, G R E A T R E S O U R C E S A N D T A K E A W A Y S T H A T A R E D I R E C T L Y A P P L I C A B L E T O M Y W O R K , E X C E L L E N T S P E A K E R S ! ”

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C O N F E R E N C E G O A LTo provide a collaborative learning opportunity for oncology social workers to address the needs of families impacted by childhood cancer.

L E A R N I N G O B J E C T I V E SAt the conclusion of this conference, participants will be able to:

• Explain and apply social work theory, evidence-based practice, interventions, and techniques to address psychosocial care, barriers to care, and programmatic needs of pediatric patients and family members from diagnosis through survivorship, and into the bereavement process.

• Describe evidence based practice to support pediatric cancer patients and their families through discussions of research studies, outcomes, and recommendations in the field of pediatric oncology social work.

• Identify and discuss the psychosocial needs of children diagnosed with cancer and their families toward compassionate end of life care, healing and future positive growth.

• Evaluate methods for professional development through leadership in the field of pediatric hematology/oncology and blood and marrow transplantation.

The University of Texas at AustinBarbara Jones, PhD, MSW, FNAP, CO-CHAIR

Farya Phillips, PhD, CCLSJen Currin-McCulloch, LMSW, OSW-C

Dell Children’s Medical CenterSarah Mendoza, LCSW, CO-CHAIR

Stephanie Newsome, LMSW Katie Tripp, LMSW

Baylor Scott and White HealthcareSerena Harkins, LCSW

T H E P I C N I C AT B A R T O N S P R I N G S ( L A R S F R A Z E R )A U S T I N S K Y L I N E W I T H K AYA K E R ( V I S I T A U S T I N )

A U S T I N C O N F E R E N C E 2 0 1 8 S I T E C O M M I T T E E

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B A N D E R ’ S S A U S A G E H O U S E B E E R G A R D E N ( T Y L E R M A L O N E )

“ I L O V E D T H E E N T I R E E X P E R I E N C E ! ! I W A S N ’ T S U R E I W O U L D A T T E N D T H E C O M E D Y C L U B O R T H E B A N Q U E T , B U T I S U R P R I S E D M Y S E L F A N D W E N T T O E V E R Y T H I N G ! E V E R Y O N E W A S F R I E N D L Y A N D W E L C O M I N G - T H E C O N F E R E N C E W A S A W O N D E R F U L E X P E R I E N C E . B E I N G S U R R O U N D E D B Y A G R O U P O F P E O P L E W H O B E L I E V E I N P E D S O N C T H E W A Y I D O I S T H E N U M B E R O N E R E A S O N F O R A T T E N D I N G A G A I N ! ”

“ I L O V E D T H I S C O N F E R E N C E ! I T W A S A M A Z I N G T O S E E T H A T T H E R E A R E P E O P L E A L L O V E R T H E C O U N T R Y A N D W O R L D W H O S H A R E T H E S A M E P A S S I O N A S I D O . I N E V E R R E A L I Z E D H O W U N I Q U E T H I S W O R K W A S U N T I L A T T E N D I N G T H I S C O N F E R E N C E . I T H A S O P E N E D M Y E Y E S T O S E E W H A T O T H E R S A R E D O I N G I N O R D E R T O B E T T E R S E R V E A N D S U P P O R T O U R P A T I E N T S A N D F A M I L I E S . I C A M E H O M E W I T H A W E A L T H O F K N O W L E D G E . I ’ M E X C I T E D T O C O N T I N U E T O G R O W P R O F E S S I O N A L L Y A N D L E A R N M O R E N E X T Y E A R ! ”

2 0 1 8 I M P O R TA N T D AT E SFebruary 14

Houston Tyler Rothschild Scholarship application deadline

March 7Deadline for securing early registration discounts

March 20Conference hotel rate deadline

March 28Cancellations must be submitted in writing by this date

to receive a refund less a $100 processing fee

D O W N T O W N A U S T I N AT N I G H T ( V I S I T A U S T I N )

T E X A S S TAT E C A P I T O L B U I L D I N G ( T E X A S S TAT E C A P I T O L B U I L D I N G )

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QUESTIONSPlease direct your questions to the following individuals:

R E G I S T R AT I O NTreasurer – Jeanette Lavecchia, MSW, LCSW St. Jude Children’s Research Hospital Phone: (901) 595-7522 Fax: (901) 595-7523 jeanette.lavecchia@stjude.org

O N - L I N E R E G I S T R AT I O NSecure on-line registration with credit card payment (immediate processing and confirmation).

C O N T I N U I N G E D U C AT I O NApplication for conference program CE contact hours has been made by APOSW (Provider #886400741) through the National Association of Social Workers (national office). Attendees are responsible for reviewing whether their state accepts these CE contact hours. APOSW is also recognized by the New York State Education Department’s State Board for Social Work as an approved provider of continuing education for licensed social workers (#SW-0441). Social workers will receive up to 18 clinical CE contact hours for this activity. Upon completion of this program and submission of the CE activity evaluation, a certificate of completion will be issued to attendees via email within 30 days. Contact APOSW Education and Professional Development Chair Kristin Frazier, LCSW, OSW-C at kristin.frazier@choa.org with questions.

T H E H O U S T O N T Y L E R R O T H S C H I L D S C H O L A R S H I P F U N DApplications due February 14, 2018 (3 weeks prior to Early Bird deadline) The Houston Tyler Rothschild Scholarship Fund is intended to supplement other funding in order to enable selected members to attend the conference. The scholarship may be applied to travel, conference registration, and/or accommodation expenses. Application forms are available online. If you have questions please contact APOSW Immediate Past-President Anne Kosem, LCSW, OSW-C at anne.kosem@duke.edu

S I L E N T A U C T I O N – S H A R E S O M E T H I N G S P E C I A L A silent auction is held each year to support the Houston Tyler Rothschild Scholarship Fund. We welcome contributions from APOSW members – this is a great way to share a bit of yourself and your home region. Please be mindful that winners will need to travel home with their items. Contact Stephanie Newsome at snewsome1@ascension.org or 512-628-1894 with questions.

T E X A S S TAT E C A P I T O L B U I L D I N G ( T E X A S S TAT E C A P I T O L B U I L D I N G )

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C E /A U D I O -V I S U A L / C O N F E R E N C E P R E S E N TAT I O N SEducation and Professional Development Chair – Kristin Frazier, LCSW, OSW-C Children’s Healthcare of Atlanta Phone: (404) 785-1986 Fax: (404) 785-6282 kristin.frazier@choa.org

E X H I B I T O R S ’ F A I R / H O T E L I N F O R M AT I O N / S P E C I A L M E A L S /C E L E B R AT I O NProfessional Conference Chair – Valerie Kennedy Lang, MSW, LCSW, OSW-C St. Louis Children’s Hospital Phone: (314) 454-4635 Fax: (314) 454-2473 valerie.kennedy@bjc.org

S P E A K E R SPresident Elect – Stephanie Fooks-Parker, MSW, LSW, OSW-C Children’s Hospital of Philadelphia Phone: (215) 590-3445 Fax: (215) 590-2066 fooks@email.chop.edu

A U S T I N T R AV E L I N F O R M AT I O NSite Committee Co-Chairs Barbara Jones, PhD, MSW, FNAP, co-chair Phone: (512) 475-9367   barbarajones@mail.utexas.edu

Sarah Mendoza, LCSW, co-chair Phone: (512) 628-1886 slmendoza@ascension.org

M E M B E R S H I P / R O O M M AT E L O C AT O RMembership Chair – Wendy Shama, MSW, RSW Hospital for Sick Children Phone: (416) 813-8920 Fax: (416) 813-6746 wendy.shama@sickkids.ca

APOSW TAX ID/EIN#: 25-1428562

APOSW does not discriminate on the basis of sex, gender or gender identity, sexual orientation, age, ethnicity, religion or national origin.

For more information, questions or assistance for people with disabilities, grievances, please email info@aposw.org.

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310 East 5th Street Austin, TX, 78701 P: 512-391-2333 F: 512-320-0333

R E S E R VA T I O N S :Online Booking Link: https://aws.passkey.com/e/49565216 Phone reservations: 800-937-8461 or 888-625-4988

H O T E L & B O O K I N G I N F O :A block of rooms has been reserved from April 10-15, 2018 as well as three days prior and three days post (depending on availability).

Single/Double Room Rate: $229.00 USD/nightly (Additional person charge is $10.00 USD per room/per night)

Cut-off date for block rooms: 3/20/18 or until the group block is sold-out, whichever comes first.

Check-in time: 3pmCheck-out time: 12pm

A D D I T I O N A L R O O M T A X E S :15.604% State & Occupancy Tax

H A N D I C A P A C C E S S I B I L I T YPlease notify The Westin at the time your reservation is made if a handicap accessible room is needed.

PA R K I N G The Westin Austin Downtown offers valet parking only; prices range from $42-47 per day, depending on vehicle size.

B U S I N E S S C E N T E R Several desktop computers with internet are located in the lobby and can be accessed 24/7. Black and white documents can be printed from these computers at no charge; if color copies or large print jobs are necessary, a FedEx/Kinkos is conveniently located approximately 2 blocks from the hotel.

PA C K A G E S H I P M E N T I N F O R M A T I O N Packages can be received up to a month in advance of the conference; guests are encouraged to inform the hotel staff of their arrival date. Please add the following information to the package:

Name of the person the package is forAPOSW Conference, April 11-13, 2018

Attention: Barbara Jones, APOSW Conference Co-ChairBox X of Y

The Westin Austin Downtown310 East 5th StreetAustin, TX, 78701              

Hotel will hold up to 10 boxes complimentary. Boxes must weigh less than 25 lbs. each. The following shipping and package handling charges will apply for any additional materials that are sent to the Westin Austin Downtown and require storage and/or delivery. (1) Boxes under 50lbs - $5.00 per box, (2) Boxes over 50lbs - $10.00 per box, (3) Poster or Tube - $5.00,(4) Display Case - $35.00, (5) Pallet - $75.00, (6) Crate - $150.00. Please contact the hotel for more details.

Photos (right) courtesy of Westin Austin Downtown.

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TRAVEL INFORMATIONTRAVEL WEBSITESAustin Area:

Visit Austin: https://www.austintexas.org/visit/plan-your-trip/visitors-guide/Austin 360: http://www.austin360.comFrommer’s Austin: https://www.frommers.com/destinations/austin

Texas Tourism:

Tour Texas: https://www.tourtexas.comTravel Texas: https://www.traveltexas.com/#/

AIR TRANSPORTATIONAustin Bergstrom International Airport (AUS) offers flights via Southwest, Delta, United, JetBlue, Frontier, Virgin, and more, allowing direct access from major cities across the country.

GROUND TRANSPORTATIONWhile the Westin Austin Downtown does NOT offer an airport shuttle, there are several options for transportation to and from the airport.

A U S T I N C O N G R E S S B R I D G E W I T H B AT S ( V I S I T A U S T I N )

“ I W A N T T O C O N T I N U E T O B U I L D R E L A T I O N S H I P S , A N D B E C H A L L E N G E D B Y T H E P R E S E N T A T I O N S . I A L S O P L A N O N S U B M I T T I N G A N A B S T R A C T T O P R E S E N T A T N E X T Y E A R ’ S C O N F E R E N C E . ”

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Public transportation is available via the Capital Metro Airport bus, which costs $1.75 per person for a one-way trip. Travel time is approximately 20-30 minutes.

Taxi services are available from the following companies (prices will vary depending on the time of day and traffic conditions): ATX Co-op: 512-333-5555Austin Cab: 512-478-2222Lonestar Cab: 512-836-4900Yellow Cab: 512-452-9999

Austin also offers ride-sharing options through the Uber, Fasten and Lyft apps.

Supershuttle provides transportation to and from the airport, ranging in price from $16 for a shared van ride to $101 for ExecuCar Meet and Greet Service, per person, one-way.

* Prices are subject to change

TIME ZONECentral Standard Time (CST)

CLIMATE AND ATTIREWith warm temperatures and plenty of sunshine, April is historically a beautiful time to visit Austin. In most years, Austin averages a daily maximum temperature for April that’s between 77 and 83 degrees Fahrenheit (25 to 28 degrees Celsius). The minimum temperature usually falls between 56 and 62 °F (13 to 16 °C). Humidity tends to peak in the morning and drop in half by the afternoon.

A U S T I N C O N G R E S S B R I D G E W I T H B AT S ( V I S I T A U S T I N )

R AY C I T Y M O N U M E N T ( P X H E R E )

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REGISTRATION - APOSW CONFERENCE 2018APOSW encourages the convenience of on-line registration at www.aposw.org with credit card payment.

You may elect to print this registration form to be sent by mail with your payment check to:

Jeanette Lavecchia, c/o St. Jude Children’s Research Hospital262 Danny Thomas Place, Mailstop 141, Social Work Department

Memphis, Tennessee 38105

Last Name: ___________________________________________ First Name: _______________________________________ Credentials: ________

Affiliation: _____________________________________________________________________________________________________________________

Department: ___________________________________________________________________________________________________________________

Mailing Address: _______________________________________________________________________________________________________________

City: _____________________________________ State/Province: _________ Zip Code: ______________Country: _________________________

Work Number: __________________________ Fax Number: __________________________ Email: _______________________________________

First Time Attendee APOSW Past Board Member

CONFERENCE REGISTRATIONConference registration does not include APOSW membership fee. If you would like to become a member or renew your

membership, please visit our website: www.aposw.org for the membership form and details. *Registration is not complete until payment is received in full. All Conference Registration Fees includes the cost of Continuing Education (CEs) credits.

Total Conference Registration Enclosed: $___________

FULL CONFERENCE REGISTRATION: Includes Celebration/Dinner

2018 FULL MEMBER 2018 ASSOCIATE MEMBER2018 STUDENT MEMBER (ENROLLED IN UNDERGRADUATE OR GRADUATE SOCIAL WORK PROGRAM)

2018 STUDENT NON-MEMBER OF APOSW RETIRED MEMBER2018 NON-MEMBER OF APOSW

2018 APOSW MEMBER2018 NON-MEMBER OF APOSWPRE-INSTITUTE 2: KAYAKING FEE

$380$450$160$210$190$575

$150$200$20

$480$550$260$310$240$675

$250$300$20

ONE DAY CONFERENCE REGISTRATION: Wednesday - April 11 or Thursday - April 12 or Friday - April 13

*Until 3/07/18 Early Bird

*Until 3/07/18 Early Bird

After 3/07/18

After3/07/18

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REGISTRATION - APOSW CONFERENCE 2018ROOMMATE LOCATOR I would like assistance locating a

Male Roommate Female Roommate

SPECIAL DIETARY REQUIREMENT

Vegan Vegetarian Gluten-Free Kosher None

PRE-INSTITUTE

Tuesday April 10th 1:30 PM – 5:00 PM Pre-Institute 1: An Intro to Pediatric Hematology Oncology Social Work Tuesday April 10th 2:00 PM – 5:00 PM Pre-Institute 2: Finding Your Rhythm: Creating Pathways to SW Wellness

$20 Kayaking Fee

SEMINARSPlease select one seminar.

Wednesday April 11th 10:15 AM – 12:15 PMSeminar 1: Immigration Panel

Seminar 2: Expressive Arts in Social Work Practice Seminar 3: Becoming a Leader in Peds Onc Social Work

BREAKOUTSPlease select one session per breakout.

NETWORKING LUNCHEON / BUSINESS MEETING

Thursday April 12th 12:00 PM – 1:30 PM Will attend Will not attend

SPECIAL INTEREST GROUPPlease select one SIG to attend.

Thursday April 12th 3:15 PM – 4:45 PMAYA Brain Tumors BMT End of Life / Palliative Care Survivorship

Interested in being a SIG facilitator

INTERACTIVE EDUCATIONAL SESSIONSPlease select one session to attend.

Friday April 13th 12:00 PM – 1:15 PMCommunication and Social Media Research and Publication Quality of Life

Wednesday April 11thThursday April 12thThursday April 12th

Friday April 13th

1:30 PM – 2:45 PM10:30 AM – 11:45 PM1:45 PM – 3:00 PM

10:30 AM – 11:45 AM

Breakout 1Breakout 2Breakout 3Breakout 4

A B C D A B C D E

A B C D A B C D

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CELEBRATION/DINNERRegistration for the celebration/dinner is not available after March 28th, 2018

Will attend Will not attend

Will bring a guest (additional cost of $80/person) Number of Guests Total

Special Dietary Requirements Of Guest(s) (Check any that apply):Vegan Vegetarian Gluten-Free Kosher None

MORNING MEDITATION

Thursday April 12th 6:15 AM – 7:15AM Friday April 13th 6:30 AM – 7:30 AM

YOGA

Friday April 13th 6:30 AM – 7:30 AM

PHOTOGRAPHY RELEASE

APOSW reserves the right to use videos, audio and photographs of conference attendees, exhibitors, sponsors, and speakers taken during the conference for future educational and marketing purposes.

SUBMITTING REGISTRATION

Visit www.aposw.org to register online. To submit by mail, send forms and registration fees to

Jeanette Lavecchia, c/o St. Jude Children’s Research Hospital262 Danny Thomas Place, Mailstop 141, Social Work Dept

Memphis, TN 38105

All conference fees must be paid in advance of the conference. Mailed registrations must be postmarked by 3/08/2018 to qualify for the earlybird rate. We request that all payments be paid in US dollars – Visa** or MasterCard**, US checks, US traveler’s checks, or US money orders. Please make checks

payable to APOSW. **Credit card payments are only available through on-line registration.

CANCELLATION POLICY

In order to accommodate unexpected emergencies, we will accept notification of cancellations up to 10 business days prior to the start of the conference (March 28th, 2018). Cancellations must be sent in

writing via email to info@aposw.org. Refunds will be issued less a $100 processing fee.

APOSW TAX ID/EIN#

25-1428562

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TUESDAY, APRIL 10, 20181:30 PM – 5:00 PM PRE-INSTITUTE 1 (3.5 CEs)

An Introduction to Pediatric Hematology Oncology Social Work (Lunch Included)

Anne Kosem, LCSW, OSW-CDuke University Medical CenterDurham, NC

Alistair Robertson, MSWValley Children’s HospitalMadera, CA

Regardless of how long you have been a social worker, there are aspects unique to the role of a Pediatric Oncology Social Worker. This session is designed for social workers new to the field of pediatric oncology. Evidence-informed practice topics reviewed will include: the role of social work within an interdisciplinary team, relapse related issues, palliative care/end of life, ethical issues, as well as topics and case examples raised by participants in the session. Participants will have opportunities to network, share their personal experiences and engage in dynamic small group discussions. Participants will also learn exciting opportunities to engage and get involved with APOSW that will build professional and leadership skills within the field of pediatric oncology social work. This is a great opportunity to interact and network with others new to APOSW and new to pediatric oncology social work. 

Learning Objectives:

1. Describe the unique aspects of providing clinical social work to pediatric oncology patients and their families.

2. Discuss the challenges social workers face when working on an interdisciplinary medical team.

3. Explain the ethical and other challenges faced when providing care to families at the end of life.

4. Articulate the benefits of ongoing involvement with APOSW as it relates to building professional and leadership skills.

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2:00 PM – 5:00 PM PRE-INSTITUTE 2 (1.5 CEs)

Finding Your Rhythm: Creating Pathways to Social Work WellnessAnita Graham, MSW, LCSW WVU Medicine Children’s HospitalMorgantown, WV

Maggie Warner, MSN, RNDayton, OH

Participants will engage in group learning and discussion about the importance of self-care and the role it plays in our personal and professional lives. The impact of the natural world, in conjunction with self-care, will be explored during a one-hour group course followed by a one-hour outdoor kayaking experience. Participants will be encouraged to debrief following the kayaking experience relating the positive effects of nature immersion with self-care strategies to bolster personal resiliency.

There will be an approximately 15 minute walk to and from the Westin Hotel to Congress Avenue Kayaks. Beginner to advanced kayakers welcomed. Additional cost: $20 for single kayaks at Congress Avenue Kayaks. Liability waivers will be signed the day of the Pre-Institute. Limited to the first 30 registrants.

Learning Objectives:

1. Evaluate current self-care practices and their effectiveness at increasing personal resiliency through group discussion.

2. Develop and integrate a personal self-care action plan to promote individual wellness.

3. Discuss correlations between personal self-care deficits as it relates to professional potential and the influence on leadership capabilities in the field of pediatric hematology oncology social work.

K AYA K I N G O N L A D Y B I R D L A K E I N A U S T I N ( V I S I T A U S T I N )

“ T H E R E I S N O T H I N G E L S E C O M P A R A B L E F O R L E A R N I N G I N O U R F I E L D T H A N A T T H E A N N U A L A P O S W C O N F E R E N C E . ”

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K AYA K I N G O N L A D Y B I R D L A K E I N A U S T I N ( V I S I T A U S T I N )

7:30 PM – 8:30 PM EARLY REGISTRATION and MEET AND GREET

Hosted by the APOSW Board of Directors and the Austin Site Committee, the Meet and Greet is an opportunity for conference attendees to meet and network. If you are coming solo to the conference, you may appreciate the opportunity to find others with whom you can connect, not only during the conference but also in the months to follow. Retrieve your schedule, name badge, and conference goodies and join us at the Meet and Greet!

S TAT E C A P I T O L A N D S TAT E F L A G ( T E X A S S TAT E L I B R A R Y A N D A R C H I V E S C O M M I S S I O N )

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WEDNESDAY, APRIL 11, 20187:00 AM – 8:00 AM REGISTRATION and BREAKFAST

8:00 AM – 8:30 AM OPENING REMARKS

Anita Graham, MSW, LCSW2016-2018 APOSW PresidentWVU Medicine Children’s HospitalMorgantown, WV

8:30 AM – 10:00 AM KEYNOTE (1.5 CEs)

Behind the Beat

Nancy Barbach, LCSWCohen Children’s Medical CenterNew Hyde Park, NY

“Finding Our Rhythm”, the theme of this year’s conference, will be the focus of this kick-off session. We will review the movement of our APOSW organization over the years. The history of APOSW represents, in large part, the history of Pediatric Oncology Social Work and the necessity of our work. We will note the ever-changing tempo of our daily social work practice as we offer balance and an achievable rhythm to our families, as well as our team members. Finally, we will listen for our own personal cadence or rhythm of living as we seek to harmonize our personal growth, our family and our professional practice all in a crescendo toward fulfillment

Learning Objectives:

1. Evaluate the historical direction of APOSW, its mission and vision and thereby engage in formulating the direction for future training and education.

2. Examine the integral role Social Workers perform with patients and families in modulating their adaption to the treatment protocols as they navigate the cancer experience.

3. Assess the unique position of Social Workers on the medical team in taking the pulse of the team members as they are challenged by their own roles in working with their patients and families.

4. Identify the unique function of Social Workers in determining the lifestyle balance so necessary to prevent compassion fatigue and burnout.

5. Identify one’s own response to critical incidents encountered and apply specific skills to be utilized in response which are necessary to sustain oneself and promote the highest level of functioning.

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10:15 AM - 12:15 PM (2 CEs)

Seminar 1: Undocumented Immigrants in Pediatric Oncology: An Exploration of Legal Issues, Challenges to Providing Care and the Patient/Family Experience

Jorge Fernandez, MSW, LICSWDana-Farber Cancer InstituteBoston, MA

Elizabeth Hardesty, MSWChildren’s National Medical CenterWashington, DC

Jennifer Taussig, MSW, LCSWArkansas Children’s Hospital Little Rock, AR

A child with cancer from an undocumented immigrant family faces social and emotional stressors that go beyond those of most other patients and families. Issues related to immigration status, language, culture, poverty and history of individual, family and societal trauma all play an important part in how a patient may understand, adhere to and experience treatment and illness. Additionally, there are a growing number of families who are experiencing anxiety about changes to immigration law and its enforcement.  This presentation will focus on immigration concerns in the pediatric oncology setting, incorporating cultural sensitivity issues into practice and offering programmatic tools to reduce stress for these vulnerable families.

Learning Objectives:

1. Define relevant concepts and legal terms related to immigration. 2. Identify policies created by medical centers and state & federal agencies and

their potential impact on patients and families.3. Identify the unique challenges facing undocumented immigrants with cancer.4. Understand factors beyond the cancer/treatment experience, including family

and societal trauma. 5. Discuss and articulate social work interventions to address the needs of this

unique population. 

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10:15 AM - 12:15 PM (2 CEs)

Seminar 2: Innovative Interventions Using Expressive Arts in Social Work Practice: Childhood Cancer as a Paradigm

Lori Wiener, PhD, DCSW National Institutes of HealthBethesda, MD

Nancy Cincotta, MSW, LCSW, MPhil, ACSW Camp Sunshine at Sebago LakeCasco, ME

This session will include a brief overview of expressive arts interventions such as art-based tools, creative writing, quilting, and other activities to support children, adolescents, and families impacted by childhood cancer and in the bereavement community. Topics covered will involve child- and adolescent-focused interventions, relaxation, and mindfulness-based strategies, and interventions for parents. Strategies will be discussed that can be helpful to enhance coping and adjustment throughout the cancer trajectory (on an individual, family, and group/community basis), to assist with procedural related distress, and improve communication and legacy building at end-of-life. Learning Objectives:

1. Describe interventions aimed at identifying distress and enhancing expression and processing of information.

2. Identify developmentally appropriate interventions for children and adolescents living with cancer and experiencing procedure-related distress.

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3. Become familiar with approaches to enhance coping and adjustment of children, adolescents, and caregivers.

4. Understand the importance of end-of-life communication and identify tools, interventions, and resources to facilitate conversations.

5. Identify creative avenues of expression for work within one’s own practice.

10:15 AM - 12:15 PM (2 CEs)

Seminar 3: Becoming a Leader in Pediatric Oncology Social Work: Possibilities and Opportunities

Stacy Stickney Ferguson, MSW, LICSWNational Marrow Donor Program® /Be The Match®Minneapolis, MN

Elyse Levin-Russman, LICSW, OSW-CMassachusetts General HospitalBoston, MA

Wendy Shama, MSW, RSWHospital for Sick ChildrenToronto, Canada

Wade Iwata, LMSW, OSW-C (Moderator)Children’s Brain Tumor FoundationNew York, NY

Pediatric oncology social workers have opportunities within their clinical practices, institutions and communities to engage in leadership experiences and professional development. Utilizing data collected from the 2017 APOSW Quality of Life Committee roundtable discussions, we will review literature on the value of leadership development, examine barriers in career and leadership growth, outline ways to become involved in activities that promote leadership and interact with clinical social work panelists from novice to expert.

Learning Objectives:

1. Identify models for leadership development.2. Summarize literature on the value of leadership development in pediatric

oncology social work.3. Analyze findings from the 2017 Association of Pediatric Oncology Social Workers

(APOSW) Quality of Life Committee roundtable discussions.4. Examine career and leadership development opportunities for pediatric

oncology social workers.

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1:30 PM – 2:45 PM BREAKOUT SESSION 1 (1.25 CEs)

1A: Perspectives on the Well-Sibling/Ill-Sibling Relationship in Life and Death

Mary Jane Gandour, PhDUnity Healthcare, LLCLafayette, IN

Molly Gandour, MFA CandidateNew York UniversityBrooklyn, NY

Childhood sibling bonds are intense and varied. How does a well-sibling adjust to having an ill-sibling? How does chronic illness play out within a family? A mother (Clinical Psychologist) / daughter (Emmy-winning Filmmaker) team uses clips from the daughter’s documentary film, Peanut Gallery, and excerpts from the mother’s memoir, Heart Work, to illustrate some of their experiences and to stimulate discussion of family coping strategies and the complications of serious illness for sibling relationships.Learning Objectives:

1. To describe how serious illness impacts sibling role and how families adjust to chronic and life-threatening illness using coping strategies such as compartmentalization and normalization.

2. To recognize the characteristics of family communication around death. 3. To formulate preliminary ideas on family and sibling care protocols that could

address issues raised in this presentation.

1B: An Advance Care Planning Intervention for Adolescents and Young Adults Undergoing Bone Marrow Transplant

Janet Ziegler, MSW, LICSWGabe Gebremicael, MSW, LICSWMarie Rodier, MSW, LICSWUniversity of Minnesota Masonic Children’s HospitalMinneapolis, MN

AYA’s who undergo hematopoietic stem cell transplant are at risk for disease progression or treatment-related complications resulting in the need for surrogates and medical providers to make decisions about life-sustaining treatments on their

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behalf. This presentation will describe the history & current state of advance care planning (ACP), including myths about adolescent ACP. Results from the FACE-BMT study, exploring the feasibility & impact of an AYA ACP intervention, will be described. The social work role in the study & implications for clinical practice will be reviewed.

Learning Objectives:

1. Describe the history and current state of advance care planning2. Recognize misconceptions and myths about adolescent advance care planning3. Describe preliminary results from FACE-BMT study

1C: Support Group? Wait, No One Said It Would Look Like This

Stacia Wagner, MSW, MEdChildren’s Brain Tumor FoundationNew York, NY

Beth Jones, BACamp Mak-A-DreamMissoula, MT

Elaine Pottenger, MS, RN, CPNP, PMHSMemorial Sloan Kettering HospitalNew York, NY

Alexandra WilliamsSimmons CollegeLakeview, MA

Adolescent survivors of central nervous system (CNS) cancer frequently lack information about transitioning medical care, career, healthy lifestyles, and coping with the emotional impact of cancer. Providing appropriate clinical interventions that appeal to adolescents is challenging. We utilized a camp setting to provide a multitude of interdisciplinary interventions. The information provided is transferable to many other settings outside of camp. Discussion regarding a variety of outcome measurements will be provided.

Learning Objectives:

1. Build non-traditional support groups2. Implement outcome measurements for support groups3. Form interdisciplinary collaborations

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1D: Use of Mind-Body Interventions to Address Patient and Caregiver Distress in Pediatric Oncology Settings

Sue Stephens, MSW, LCSW, ACSWRutgers Cancer Institute of New JerseyNorth Plainfield, NJ

Evidence based mind-body interventions such as relaxation, guided imagery, and mindfulness have made their way into popular culture with an emphasis on stress relief. However, the use of these interventions with pediatric cancer patients and family members to reduce cancer-related distress is more complex, requiring thorough assessment. This presentation will provide an overview of relaxation, guided imagery, and meditation, incorporating assessment and practice considerations to facilitate successful implementation with pediatric cancer patients and caregivers.

Learning Objectives:

1. Explain the difference between popular use of mind-body stress relief strategies and the specialized application of mind-body interventions in pediatric oncology settings.

2. Apply assessment data to select appropriate mind-body interventions for use with pediatric cancer patients and caregivers.

3. Employ a basic form of evidence-based relaxation, guided imagery, and mindfulness-based meditation with pediatric cancer patients and caregivers to address cancer-related distress.

L B J L I B R A R Y ( L A U R E N G E R S O N )

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R O O F T O P P O O L AT N I G H T ( W E S T I N A U S T I N D O W N T O W N )

L B J L I B R A R Y ( L A U R E N G E R S O N )

CONFERENCE EXPO3:00 PM – 6:30 PM EXHIBITOR’S FAIR AND SILENT AUCTIONMeet with exhibitors from regional, national and international organizations to learn about programs and resources for pediatric oncology patients and families, network with conference attendees and raise money for the Houston Tyler Rothschild Scholarship Fund via the silent auction.

4:30 PM – 6:00 PM HORS D’OEUVRES, RAFFLE and DOOR PRIZESThere will be tasty appetizers starting at 4:30 PM and conference announcements. Beverages will be available for purchase. Must be present to win.

3:00 PM – 5:00 PM POSTER PRESENTATIONSPoster Presenters will be available to answer questions and discuss their posters.

“ T H E E X H I B I T O R F A I R I S A L W A Y S M Y F A V O R I T E P A R T .I L O V E L E A R N I N G A B O U T N E W O R G A N I Z A T I O N S T H A T I C A N B R I N G B A C K T O F A M I L I E S I W O R K W I T H . ”

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P1: Creating New Possibilities: Social Work’s Unique Ability to Fill the Void

Beth Gomez, MSW, LCSW, OSW-CNorthwestern Medicine Central DuPage HospitalLombard, IL

Being a solo pediatric oncology social worker can be lonely and challenging; even more so when a patient is at end of life. Add in the absence of hospital-based supports such as palliative care and an ethics consult service, and it can be downright daunting. However, as social workers, our profession challenges us to ask questions and provide new possibilities for hope in the midst of despair. This case study aims to illustrate how a clinical social worker is uniquely prepared to address the issues of a dying child and grieving family, in absence of additional hospital-based supports.

Learning Objectives:

1. Strengthen knowledge of core values and standards of social work practice (i.e. medical model, bio- psychosocial -spiritual model)

2. Identify the assessment and interventions social workers provide in the absence of other formalized hospital resources

3. Develop knowledge of supports available to solo practitioners

A U S T I N B A R T O N S P R I N G S ( V I S I T A U S T I N )

“ I R E A L L Y E N J O Y E D B E I N G A R O U N D S O M A N Y L I K E -M I N D E D I N D I V I D U A L S . I L E F T F E E L I N G I N V I G O R A T E D T O I M P L E M E N T S O M E O F T H E I N T E R V E N T I O N S A N D P R O G R A M S I H E A R D A B O U T A T M Y O W N I N S T I T U T I O N . ”

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P2: Social Network Analysis: How to Get Young Adults to Participate in Programs

Michelle Fritsch, LMSW-ACPDanielle Coleman, MS, CCLSHeidi Russell, MDTexas Children’s HospitalHouston, TX

Teens present unique challenges to the health care team. Research demonstrates that camps for teens and young adults with cancer and other life-threatening illnesses provide a sense of connection and belonging. How do health care professionals convince these patients that camps and teen groups will be worthwhile? Findings from a GEPHI analysis will be presented along with ideas on how to promote programming to this special population.

Learning Objectives:

1. Analyze how the teens find out about the programs2. Classify and categorize strategies for targeting this population with

advertisements and promotional materials3. Identify ways to develop programs that the teens will engage in. 

P3: Creating a Shared Vision: Transforming the Pediatric Oncology Psychosocial Experience

Jennifer St. Clair, MSW, LCSWFrancesca Ferretti, MSW, RCSWIUF Health/Shands HospitalGainesville, FL

Over the last year, the pediatric oncology social work team at UF Health/Shands Hospital has systematically worked to enhance and improve the delivery of psychosocial services to our patients and their families. Ultimately, we hope these efforts will increase productivity, improve consistency, expand access to resources, and utilize empirical data to support our efforts to improve the delivery of psychosocial services to pediatric oncology patients at our facility.

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Learning Objectives:

1. Recognize the importance of clarifying the roles and availability of supportive resources to the pediatric oncology population

2. Identify avenues to grow and support psychosocial program development for pediatric oncology patients and their families

3. Utilize empirical data to advocate and implement change efforts at their own facilities

P4: Experiencing Life through a Different Lens: A Photography Project with Caregivers of Children Undergoing a Bone Marrow Transplant

Krista Ann Mann, LSW, MSSWCaroline Morrison, PhD, RNLisa M. Vaughn, PhDCarrie Breitwieser, MSW, LISW-SCincinnati Children’s Hospital Medical CenterCincinnati, OH

Through a modified photovoice methodology caregivers of inpatient pediatric BMT patients shared their perceptions of their own social and emotional health. Caregivers identified five themes experienced as caregivers of a child undergoing a BMT: identity crisis, need for self-care and positive coping, dealing with annoyances of living in the hospital, seeing the physical impact of treatment on their child, and allowing their child the freedom to be a kid.Learning Objectives:

1. Identify impact of being a caregiver of a pediatric BMT recipient 2. Gain knowledge of BMT admission from caregiver perspectives.3. Identify areas for future research and intervention

P5: Dissonance during Futile Care: The Impact of Moral Distress on the Individual, Team and Family

Michelle Sanford, LCSW-RJuliana Yiu, LCSW-RMemorial Sloan Kettering Cancer CenterNew York, NY

How does the phenomenon of moral distress add to the clinical lens of pediatric oncology social work when interfacing with complicated patient issues surrounding end of life care, including both the professional effects for the individual and

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interdisciplinary team, as well as the relational impacts between staff and the patient and family? This poster examines literature to define moral distress, reviews complicating factors, considers individual and team-based effects, and explores possible interventions to improve dialogue.

Learning Objectives:

1. Demonstrate an understanding of moral distress and its effects in a pediatric oncology setting.

2. Recognize the implications and cumulative effects of moral distress within oneself, the team, and the institution and between the team and the patient/family.

3. Develop strategies and interventions to address moral distress.

P6: Breaking the Ice: Establishing Effective AYA Psychosocial Support in a Unique Care Environment

Heather K. Oakley, LCSW, OSW-CKimberly E. Todd, CCLSUniversity of Florida Health Proton Therapy InstituteJacksonville, FL

The Breaking the Ice questionnaire is a voluntary document designed to elicit psychosocial information about an AYA and provide an opportunity for them to ask questions about upcoming treatment in Jacksonville. Social Work collects the questionnaire from each patient prior to their arrival in Jacksonville. Personal, voluntary and unfiltered, this tool allows our multidisciplinary team to hear directly from patients and proactively address psychosocial barriers through a customized psychosocial support program.

Learning Objectives:

1. Identify challenges faced by the AYA population undergoing extended medical care away from home support systems.

2. Create a tool to proactively assess psychosocial barriers.3. Develop personal support plan which corresponds to identified needs.

A L L E N ’ S B O O T S ( A L L E N ’ S B O O T S )

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P7: Building and Rebuilding: Strategies and Challenges of Promoting Staff Resiliency amongst a Multidisciplinary Oncology Psychosocial Team

Jessica King, LSWRich Jentzen, LCSWAnna P. Nannicelli, MPH, LSWKaty Howe, LCSWAnn & Robert H. Lurie Children’s Hospital of ChicagoChicago, IL

This presentation aims to review challenges and identify strategies to promoting staff resiliency and balancing the multifaceted roles of a pediatric oncology social worker within a larger multidisciplinary psychosocial team.

Learning Objectives:

1. Identify challenges of working with a large multidisciplinary psychosocial team.2. Review strategies to promote staff resiliency and team cohesion.

A U S T I N B L U E B O N N E T T S ( P X H E R E )

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D A L E W AT S O N AT L O N G H O R N S A L O O N ( V I S I T A U S T I N )

P8: Awareness of Legal Needs and Rights of Patients 18+ in a Pediatric Setting

Jennifer Maness, LMSWRyan Campbell, MTS, BCCChildren’s Medical CenterDallas, TX

Pediatric hospitals continue to serve an increasing number of adult patients. Staff knowledge of advance directives and other legal rights of adult patients is becoming increasingly important in order to honor patients’ wishes. Ongoing staff education is necessary to provide the appropriate level of care to adult patients within a pediatric setting.

Learning Objectives:

1. Define the legal rights of adult patients treated in a pediatric medical setting.2. Discuss the importance of staff education to ensure patients’ rights to privacy

and medical decision-making.

“ M E E T I N G O T H E R S O C I A L W O R K E R S W H O A R E N E W T O T H E F I E L D O F P E D I A T R I C O N C O L O G Y , A N D L E A R N I N G F R O M T H O S E W H O H A V E Y E A R S O F E X P E R I E N C E W H O A R E W I L L I N G A N D A B L E T O S H A R E T H E I R K N O W L E D G E A N D O F F E R S U P P O R T ! ”

A U S T I N , T E X A S ( P R I N D 1 M )A U S T I N B L U E B O N N E T T S ( P X H E R E )

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L A K E A N D L A N D S C A P E A N D A U S T I N S K Y L I N E , T E X A S ( R W E L B O R N )

P9: Mindful Self-Compassion – A Therapeutic Tool for Pediatric Oncology Social Workers

Lisl M. Schweers, LCSW, OSW-CChildren’s Hospital Los AngelesLos Angeles, CA

Mindful Self-Compassion (MSC) is especially useful in supporting adolescent and young adult cancer survivors who experience depression, anxiety, low self-esteem, and low self-efficacy as a result of their cancer experience. This presentation will include an introduction to the Mindful Self-Compassion program, with strategies on employing this practice with patients, caregivers, self, and staff.

Learning Objectives:

1. Describe the key components of the Mindful Self-Compassion program.2. Identify 2 ways to integrate Mindful Self-Compassion into pediatric oncology

social work practice.

T E X A S C A P I T O L C O W ( P X H E R E )

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6:30 PM EVENING SOCO DISTRICT TOUR AND LIVE MUSIC

What better way to feel the authentic Austin experience than an evening of live music under the oaks at Guero’s Taco Bar. We will meet in the hotel lobby at 6:30pm and stroll 4 blocks to ride the city bus ($1.50 each way) along South Congress Avenue over the Bat Bridge and into the heart of South Congress district, one of Austin’s hip and funky neighborhoods. We will end at Guero’s Taco Bar for some live music. The music is free and they typically have nachos and tacos for a small donation. They also have lovely margaritas and other adult beverages for a fee. For more information, contact Jen Currin-McCulloch, jcurrin-mcculloch@utexas.edu.

G U E R O ’ S D A N C I N G ( A N D Y M A H R C O U R T E S Y O F V I S I T A U S T I N )

“ P A R T I C I P A N T S W E R EF R I E N D L Y , S U P P O R T I V E ,A N D E N C O U R A G I N G . T H EE N V I R O N M E N T M A K E S M EW A N T T O C O N T I N U E T ON E T W O R K A N D F O S T E RR E L A T I O N S H I P S W I T H P E E R S S O T H A T I C A N C O N T I N U E T OI M P R O V E U P O N M Y C L I N I C A LS K I L L S A N D K N O W L E D G EB A S E . T H E C O N F E R E N C EW A S A C T U A L L Y F U N - A N D I N E V E R T H O U G H T I ’ D S A Y T H A T A B O U T A N Y C O N F E R E N C E ! T H A N K Y O UF O R M A K I N G T H I S H A P P E N ! ”

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THURSDAY, APRIL 12, 20186:15 AM – 7:15 AM MORNING MEDITATION Led by Leah Forster Gauvin and Kelsey Hamstead

7:15 AM – 8:15 AM REGISTRATION AND BREAKFAST

7:15 AM – 8:15 AM GATHERING OF SOLO PRACTITIONERS

This gathering is a networking opportunity for those who are the sole pediatric oncology social worker in their work setting. Discussion topics may include this unique care delivery model, challenges and program models that can be implemented by solo practitioners. Elyse Levin-Russman, LICSW, OSW-C and Carolyn Wills-Barberi, MSW, LCSW, OSW-C, solo practitioners will facilitate.

8:15 AM – 10:15 AM Ethics Intensive (2 Ethics CEs)

The Dimensions of Human Suffering

Craig Hurwitz, MDDell Medical School - University of TexasAustin, Texas

The charge of health care professionals has always been the relief of human suffering.  Yet, medicine in the 21st century seems fixated not on the relief of suffering as much as on the cure of disease.  While students of medicine may expect to become experts in the diagnosis and relief of human suffering, the reality is that little to no attention is paid to that aspect of illness.  To really appreciate, understand, and bear witness to the true nature of human suffering, one must turn to the arts and the humanities. This lecture aims to describe and illuminate the nature of the illness experience through the arts and to help answer the question of what suffering actually means.  

Learning Objectives:

1. Recognize the nature of human suffering and how it differs from pain.2. Validate and mange uncertainty and doubt in medicine.3. Explain the relationship of technology and science to human suffering in

medicine.

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10:30 AM – 11:45 AM BREAKOUT SESSION 2 (1.25 CEs)

2A: Through Our Eyes - A Photovoice Group for Teens on Cancer Treatment. Issues, Experiences, and Influencing Change

Sonia Lucchetta, MSW, RSWWendy Shama, MSW, RSWHospital for Sick ChildrenToronto, Canada

A cancer diagnosis results in a marked disruption in the “normal” journey through adolescence. Photovoice empowers participants by promoting dialogue, encouraging action, and influencing policy. It is engaging, builds capacity, self-efficacy, and self-esteem through the use of photography and the profound impact that the images evoke. Teens met to record, reflect, and critique issues in a seven-week Photovoice group. Review of the literature, program development, photographs/narratives, and analysis of prominent themes will be presented.

Learning Objectives:

1. Identify salient issues for teens on active cancer treatment.2. Examine Photovoice as a methodology to record, reflect and critique issues

teens face during their cancer journey.3. Explore ways to identify and influence change in interfacing with teens.

S TA R S S T R I P E S F L A G T E X A S ( P U B L I C D O M A I N P I C T U R E S )

“ I L O V E B E I N G S U R R O U N D E D B Y “ M Y P E O P L E ” W H O A U T O M A T I C A L L Y G E T O U R P R O F E S S I O N A L E X P E R I E N C E S . W E A R E I N T H E T R E N C H E S T O G E T H E R A N D S O I T I S I N C R E D I B L Y V A L I D A T I N G T O B E S U R R O U N D I N G B Y O T H E R S I N T H E S A M E F I E L D . I A L W A Y S C O M E A W A Y F E E L I N G E N E R G I Z E D A N D E N C O U R A G E D T O T R Y T O R E B O O T M Y P R A C T I C E E V E N M O R E . ”

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2B: How Cultural Awareness Positively Impacts Family-Centered Care for International Caregivers of Children with Pediatric Malignancies

Dawn Corneau-Dia, LCSWMarc Friedman, MA, CMI, CHIJacqueline Matthews, MSW Candidate, May 2018St Jude Children’s Research HospitalMemphis, TN

Linguistic and cultural barriers can negatively impact the care experience of limited-English proficient (LEP) patients and families if not addressed. Culturally competent social workers can help LEP families navigate these barriers. Social workers can pair with medical interpreters to discover the beliefs, values, perspectives, and needs of LEP families and appreciate the intersection of the two cultures in the medical environment.

Learning Objectives:

1. Describe the additional stress international caregivers experience.2. Identify the behaviors that demonstrate cultural competence.3. Identify ways to work with medical interpreters to enhance psychosocial care.

A U S T I N E V E N I N G ( W I K I M E D I A C O M M O N S )

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2C: Enhancing the Rhythm of Your Team: Key Steps for the Clinical Social Worker

Marion Enzerra Kalbacker, MSSW, LCSW (Retired)Lindsay Gallo, MSW, LCSWDuke University Medical CenterDurham, NC

Communication challenges among multi-disciplinary team members can create a sense of frustration and exclusion on the part of the pediatric oncology/BMT social worker. A seasoned BMT clinical social worker and one newer to the field discuss ways to build team alliances, while enhancing the professional role of the clinical social worker. Positive approaches, case examples and literature review will be provided with the goal of building stronger teams and improving services for patients.

Learning Objectives:

1. Compare interdisciplinary team functioning to transdisciplinary team functioning.

2. Plan more purposeful interactions with multidisciplinary team members.3. Employ positive strategies to promote the skills and role of social work within

multidisciplinary teams.

T E X A S S TAT E C A P I T O L B U I L D I N G ( W E S T I N A U S T I N D O W N T O W N )

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2D: A Bereavement Camp for Caregivers and Siblings: Creating Models for Programming and Implementation

Jackson Huynh, LMSW, MDIV, OSW-CTexas Children’s Hospital Cancer and Hematology CentersHouston, TX

Bereaved caregivers and siblings can develop symptoms of acute stress, clinical depression and anxiety, and other social complexities. Bereavement programming is crucial to achieve successful outcomes for bereaved families and can decrease symptoms of depression, encourage family discussion, and lead to overall improved quality of life. Texas Children’s Hospital Cancer and Hematology Centers hosts an annual weekend bereavement camp. A team of healthcare providers identify six to eight families to participate in each camp. Physical and psychosocial activities are carefully selected. This session will include analysis and discussion about programming opportunities and challenges.

Learning Objectives:

1. Identify models for planning and implementing a bereavement camp for caregivers and siblings

2. Discuss selection criteria and methodology for participant families3. Describe the importance of providing physical, psychosocial, and creative

program activities

2E: Precise Delivery of Education to Newly Diagnosed Pediatric Oncology Patients & Families: A Quality Improvement Initiative

Michelle Fritsch, LMSW-ACPHeidi Russell, MD, PhDQuinn Franklin, MS, CCLSErnest Fruge, PhDTexas Children’s Hospital Cancer & Hematology CentersHouston, TX

At Texas Children’s Hospital a quality initiative was launched to improve the educational experience for newly diagnosed families. Familial education targets were chosen by a team of multi-disciplinary providers. A review of all existing educational materials for content and reading level was instituted. As a result, streamlined materials and checklists for delivery were developed. This presentation will demonstrate the effectiveness of the education provided upon diagnosis.

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Learning Objectives:

1. Demonstrate knowledge of important education topics for newly diagnosed oncology families.

2. Identify ways to evaluate educational efforts for new families.3. Understand parents’ need for anticipatory guidance during the new diagnosis

period.

12:00 PM – 1:30 PM NETWORKING LUNCHEON AND BUSINESS MEETING

Meet conference attendees and exchange contact information. The APOSW Business Meeting will follow lunch and is open to all APOSW members. We will reveal the location of the 2019 APOSW Annual Conference.

1:45 PM – 3:00 PM BREAKOUT SESSION 3 (1.25 CEs)

3A: Siblings as Clients, Family Members, Teachers, Mentors and Advocates

Nancy Cincotta, MSW, LCSW, MPhil, ACSW Camp Sunshine at Sebago LakeCasco, ME

Rhonda Ryan, LMSWFriends of KarenNorth Salem, NY

The presenters will discuss two unique models of practice. They have provided decades of psychosocial services to siblings of children with cancer on an individual basis, within the context of the family, and in a group work setting. A variety of modalities have been used, including verbal and expressive/creative arts techniques. Themes from the work with siblings, work with parents around sibling issues, and work with patients and their siblings together, will form the framework for this dialogue.

Learning Objectives:

1. Help parents identify needs of well-children in a family in which a child has been diagnosed with cancer.

2. Utilize specific interventions to improve communication among family members.3. Engage in work with children/sibling of varying ages.

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3B: PedsScreen: Tablet-Based Technology for Identification of Biopsychosocial Concerns

Renee Ortiz, MSW, LCSW, ACHP-SWMatthew Loscalzo, MSW, LCSW, APOS FellowKaren Clark, MSAlejandra Muro, MSWChristina Cabanillas, MSW, LCSW, ACHP-SWCity of HopeDuarte, CA

PedsScreen is an innovative program utilizing tablet-based technology to meet individualized needs of pediatric hematology/oncology patients and caregivers. Four bilingual (English/Spanish) screening tools for patients and caregivers were built based on age and developmental levels. PedsScreen generates early identification of biopsychosocial problems enabling the interdisciplinary team to target their interventions based on the patient and caregiver’s independently completed reports.

Learning Objectives:

1. Describe PedsScreen program components.2. Discuss the impact of independently screening patients and caregivers on care

provided. 3. Discuss a program development model and leadership skills used to create and

implement PedsScreen.

3C: Factors of Successful School Re-entry for Children Diagnosed with Cancer: Using Ecological System Framework

Jesmin Akter, MScJaehee Yi, PhD, MSWCollege of Social Work, University of UtahSalt Lake City, UT

The presenters conducted a study on using an ecological system framework to provide in-depth understanding of the factors of successful school re-entry for children during or after cancer treatment. Participants (n=13) were between the ages of 10 - 17 years old. Semi-structured, in-person interviews were conducted to understand their experiences of successful return to school. Preliminary data analysis used a narrative analysis approach. Future directions for research to improve school re-entry services have been identified.

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Learning Objectives:

1. Describe the ecological system theory2. Identify the factors that could affect a child’s school return during/after

treatment of cancer3. Critique the challenges for conducting a research study with childhood cancer

survivors and discuss possible ways to resolve the challenges

3D: Clinical Challenges and Ethical Considerations in Allocating Financial Resources to Pediatric Oncology Families

Elyse Levin-Russman, LICSW, OSW-CLaura Dickman, LICSWMassachusetts General HospitalBoston, MA

Families often experience significant financial insecurities related to their child’s cancer diagnosis and treatment. Social Workers are in the position of both understanding family’s financial concerns and then providing assistance or linking them with community programs for support. This interactive session will use case presentations to discuss the ethical considerations and clinical challenges that arise for the pediatric oncology social worker who is addressing financial issues with families and allocating resources.

Learning Objectives:

1. Articulate the importance of acknowledging and responding to the financial toxicities for pediatric oncology families.

2. Describe the ethical considerations of assessing the financial needs of families when a child is diagnosed with cancer.

3. Explain the clinical challenges in allocating limited resources amongst families in need.

T E X A S S TAT E C A P I TA L G R O U N D S ( W E S T I N A U S T I N D O W N T O W N )

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A U S T I N C O N G R E S S B R I D G E W I T H B AT S ( V I S I T A U S T I N )

3:15 PM – 4:45 PM SPECIAL INTEREST GROUP MEETINGS

Special Interest Groups (SIGs) provide an opportunity for social workers to meet in smaller groups to discuss specific topics of interest.

• Adolescent/Young Adult• Blood and Marrow Transplant• Brain Tumors• End of Life/Palliative Care• Survivorship

B E N T O N AT B L A N T O N M U S E U M O F A R T ( B L A N T O N M U S E U M O F A R T )

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5:00 PM – 6:00 PM SOCIAL HOUR AT THE WESTIN

Network and mingle with conference attendees. Beverages and snacks are available for purchase at Stella San Jac located on the 1st floor of the Hotel.

5:45 PM – 6:30 PM PAST BOARD MEMBERS’ RECEPTION

The current APOSW Board of Directors cordially invites past APOSW board members to a reception honoring their contributions to our organization. It is an occasion for these visionary leaders in pediatric oncology social work to re-connect.

6:30 PM APOSW CELEBRATION AT THE SOUTH CONGRESS HOTEL

South Congress Hotel1603 S. Congress AveAustin, Texas 78704512-920-6405www.southcongresshotel.com

G R E E T I N G S F R O M A U S T I N M U R A L ( V I S I T A U S T I N )

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APOSW 42ND CELEBRATION Join us for a fantastic evening of entertainment, networking and celebration at the South Congress Hotel. Rookie of the Year and the Social Worker of the Year awards will be presented. There will be a cash bar and a seated dinner.

THE SOUTH CONGRESS HOTEL

South Congress Hotel1603 S. Congress AveAustin, Texas 78704

512-920-6405www.southcongresshotel.com

P H O T O S C O U R T E S Y O F S O U T H C O N G R E S S H O T E L

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FRIDAY, APRIL 13, 20186:15 AM – 7:15 AM MORNING MEDITATION Led by Leah Forster Gauvin and Kelsey Hamstead

6:30 AM – 7:30 AM YOGA Led by Greg Hedler

7:30 AM – 8:30 AM BREAKFAST

8:30 AM – 8:45 AM PRESIDENT’S REMARKS

Anita Graham, MSW, LCSW2016-2018 APOSW PresidentWVU Medicine Children’s HospitalMorgantown, WV

Stephanie Fooks-Parker, MSW, LSW, OSW-C2018-2020 APOSW PresidentChildren’s Hospital of PhiladelphiaPhiladelphia, PA

8:45 AM -10:15 AM INTENSIVE 2 (1.5 CEs)

Transformative Social Work Leadership: Changing the Culture of Caring

Shirley Otis-Green, MSW, ACSW, LCSW, OSW-CCoalition for Compassionate Care of CaliforniaSacramento, CA

In this time of dynamic healthcare reform, organizations are embracing calls to provide person-centered, family-focused and culturally-congruent care in a more cost-effective manner. Pediatric oncology social workers are well positioned to lead these efforts, but may lack confidence in their competence. There is an urgent ethical (and pragmatic) need for social workers to grasp this opportunity to expand our leadership and clinical role to create a transformation in the culture of care provided. Our fragmented health delivery system is poorly designed to provide the quality of care patients’ and their families’ deserve.  Lack of access, gaps in service and poor training all contribute to worsening disparities in care. These are magnified when patients face end of life and result in moral distress for all involved. In this

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interactive presentation, we will explore the call for transformative leadership and invite you to identify opportunities to change the culture of caring within your area of influence. Resources and evidence-informed best practice models will be shared as you create a leadership mission statement to guide your change efforts.

Learning Objectives:

1. Identify opportunities for social work leadership in the provision of person-centered, family-focused and culturally-congruent care.

2. Create a leadership mission statement that captures the culture of care you are seeking to create.

3. Identify two concepts that you can begin to implement upon your return.4. Commit to taking steps to bring your leadership statement to life!

10:30 AM – 11:45 AM BREAKOUT SESSION 4 (1.25 CEs)

4A: Seasons of Grief: The Creation and Implementation of a Day-Long Retreat for Bereaved Oncology Parents and Caregivers

Susan Pultman, LSW, MEdAbbien Crowley, MA, ATR-BC, ATCS, LPCSusanna Baldwin, LCSWLaura Palmer, MDivKatie David, LCSWChildren’s Hospital of PhiladelphiaPhiladelphia, PA

Seasons of Grief is a one-day program for families of deceased oncology patients that aims to reduce isolation and feelings of abandonment following their child’s death. Parents and caregivers are invited to spend the day connecting with other families, sharing about their child, and taking care of themselves. During this session, conference participants will learn about the development of this unique retreat, challenges encountered along the way, and some of our most successful activities and conversations.

Learning Objectives:

1. Describe the importance of social support for bereaved parents and caregivers.2. Describe the goals and method of Seasons of Grief, a retreat for bereaved

parents and caregivers of oncology patients.3. Evaluate whether such a program would be feasible/desirable for your own

institutions.

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4B: A Podcast Story: Meeting the Unmet Needs of Adolescents and Young Adults with Cancer through Patient-Directed Recordings

Beth Skala, MSW, LCSWChildren’s Hospital of PhiladelphiaPhiladelphia, PA

Adolescents and young adults with cancer (AYA) describe a range of unmet needs. Particular areas of challenge and opportunity are identity development, regaining a sense of normality and maintaining social connection. Initiated by and in partnership with the Children’s Hospital of Philadelphia Cancer Center AYA Patient Steering Committee, we developed a series of podcasts created by AYA’s for AYA’s to address information needs, promote connection to and camaraderie with their peers, and facilitate resilience in cancer survivorship.

Learning Objectives:

1. Assess identified needs of AYA patients.2. Recognize barriers to providing care to AYA patients.3. Implement components of podcast program at home institution

4C: Micro Self-Care Strategies for Patients, Parents and Practitioners Leah Forster Gauvin, MSW, LCSW, OSW-CKelsey Hamstead, BS, MSW CandidatePrimary Children’s HospitalSalt Lake City, UT

Pediatric oncology is a fast-paced, intense setting for patients, parents, and practitioners. We must care for ourselves - and time is short. We’re all familiar with good self-care practices like rest, good nutrition, and exercise. Based on work by Ashley Davis Bush, as well as mindfulness principles, we will introduce you to micro self-care practices that can be implemented during the work day to ground, energize, or relax. These strategies can also be used with patients and parents.

Learning Objectives:

1. Describe macro and micro self-care and the importance of each.2. Describe how micro self-care techniques provide grounding, energy or

relaxation.3. Implement several different self-care techniques for oneself, colleagues,

patients, and families.

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4D: Can We Put This Behind Us? Helping the Childhood Survivor Family Communicate and Share the Healing Together

Margery Davis, MSW, LCSW-RMemorial Sloan Kettering Cancer CenterNew York, NY

When treatment ends and families move farther away from the oncology team they are faced with the challenge of how best to integrate the cancer experience. This presentation will discuss assessment and intervention strategies that promote developmentally appropriate family communication about how a childhood cancer survivor’s feelings endure with maturation. Drawing upon theories of family therapy, this presentation will discuss how the oncology social worker can promote open communication as families launch into survivorship.

Learning Objectives:

1. Describe current literature about long-term effects and psychological sequelae of the childhood cancer experience and the importance of family communication around illness.

2. Identify the elements that may lead to closed communication around the childhood cancer experience

3. Understand the need to prepare families for and assist them with open communication before they transition into the survivorship phase.

11:45 AM – 12:00 PM BREAK

12:00 PM – 1:15 PM INTERACTIVE EDUCATIONAL SESSIONS (1.0 CEs)Box Lunch Provided for Registered Attendees

Come learn together, share lunch and discuss topics relevant to our profession in these interactive educational sessions.

IES-1 COMMUNICATION AND SOCIAL MEDIAAdvocating for the Role of Social Work on the Interprofessional Team

Rachel Rogovin, LICSW, OSW-CCommunication and Social Media ChairHasbro Children’s HospitalProvidence, RI

Farya Phillips, PhD, CCLSThe University of Texas at AustinAustin, TX

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The Psychosocial Standards of Care for Children with Cancer and their Families (Blood & Cancer, 2015) clearly states that open, respectful communication among providers and families along with trained psychosocial providers is essential in pediatric oncology care. Good interprofessional communication has been shown to improve patient satisfaction, quality of care and health outcomes and reduce medical errors. What is a social worker to do when the team minimizes, misunderstands or disregards the social work role? Join us to discuss the skills critical to developing and maintaining collaborative working relationships and learn strategies to better advocate for the role of social work on the interprofessional team.

Learning Objectives:

1. Define interprofessional communication.2. Discuss areas of challenge when communicating with an interprofessional team.3. Identify and implement strategies to advocate for the social work role on the

interprofessional team.

IES-2 RESEARCH AND PUBLICATION

How to Design your First Research StudyLori Wiener, PhD, DCSW Research and Publication Liaison National Institutes of HealthBethesda, MD

During this interactive session, participants will learn about different research designs that can be applied to their specific research questions. Each person will have the opportunity to create a mock design of their own study. The session will illustrate how social workers have the opportunity to provide continual integration of their clinical work with research-generated projects.

Learning Objectives:

1. Strengthen knowledge on different research designs.2. Discuss how to address challenges associated with being both a clinician and

researcher.3. Participate in designing a research study based on each participants’ own

interest.

D O W N T O W N A U S T I N T E X A S ( W I K I M E D I A C O M M O N S )

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IES-3 QUALITY OF LIFE

Find Your Flow

Wade Iwata, LMSW, OSW-CQuality of Life ChairChildren’s Brain Tumor FoundationNew York, NY

Greg Hedler, MSW, LCSWChildren’s Hospital of PhiladelphiaPhiladelphia, PA

The feeling of being “in the zone,” is referred to in the field of positive psychology as “the flow.” In yoga, the term “flow” is used to describe continuous movement with effortless ease from one posture to the next. During these states of being, retrospectively, we acknowledge that what was experienced was “incredible”, or “enjoyable”. Wouldn’t we want more moments of “flow” in our day to day life as we balance the reality of pediatric oncology? The aim of this experientially based workshop is to explore the five elements of positive psychology (positive emotion, engagement, meaning, accomplishment and relationship) and how application in these areas can lead to the ability to flourish and flow. Discussion will also include the implementation of the Yoga@CHOP Integrative Health modality at CHOP.

Learning Objectives:

1. Strengthen knowledge on how to establish innovative clinically based program that offers benefit for patients, families, and staff.

2. Discuss areas of challenge and problem solving that arise when developing innovative clinical programming.

3. Participate in yoga based activities that will highlight areas of personal passion and explore how those areas can be translated into hospital based programming.

L A D Y B I R D J O H N S O N W I L D F L O W E R C E N T E R ( L A D Y B I R D J O H N S O N W I L D F L O W E R C E N T E R )

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1:30 PM – 3:00 PM INTENSIVE 3 (1.5 CEs)

Building a Model of Care for Adolescents and Young AdultsGail Eckhart, MD FASCODell Medical School LIVESTRONG Cancer InstitutesAustin, Texas

Despite the general decline of cancer mortality rates overall, cancer rates in young adults with colorectal cancer (CRC) have increased compared to someone of the same age born in 1950.  In addition, despite advances in prevention, detection, and treatment over the past 25 years, survival rates and quality-of-life outcomes for AYA cancer patients have not seen improvement like those for populations of younger children (Zebrack et al, 2010). While scientists struggle to identify the biological basis of this trend in CRC, the fact is that there continue to be profound gaps in the care and support of AYAs due to substandard existence of specialized care, inconsistent referral practices, lack of evidence-based guidelines, limited access to and participation in clinical trials, inconsistency in treatment and follow-up care, and limited psychosocial resources and services (Zebrack et al, 2010). We have been interested in the development of outpatient facilities and programs that actively engage and target the older AYA patient (18-39) since data suggests that this cohort may be less motivated to seek services in a conventional pediatric facility and feel out of place in a traditional facility serving older adult patients. Likewise, many AYA programs target patients that have completed therapy whereas older AYAs may have cancer diagnoses that require long-term palliative therapy. Our vision is to co-create a comprehensive program for young adults in Central Texas with young adult patients and survivors guiding design across the entire spectrum of cancer care: at diagnosis, in active treatment, post-treatment, and in the longer- term survivorship phase.

Learning Objectives:

1. Understand the unique physical, emotional, social, and practical challenges that young adult patients with cancer face.

2. Identify innovative approaches and current cutting-edge strategies to ensure that this vulnerable patient population remains engaged and supported throughout the continuum of their cancer journey.

3. Discuss lessons learned in providing comprehensive support to young adults and strategize about opportunities for improvement and collaboration among institutions.

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3:00 PM – 3:15 PM CLOSING REMARKS

Stephanie Fooks-Parker, MSW, LSW, OSW-C2018-2020 APOSW PresidentChildren’s Hospital of PhiladelphiaPhiladelphia, PA

S I X T H S T R E E T M U R A L ( W E S T I N A U S T I N D O W N T O W N )

R O W I N G D O C K ( W E S T I N A U S T I N D O W N T O W N )

Anita Graham, MSW, LCSWPresident

WVU Medicine Children’s HospitalMorgantown, WV

Stephanie Fooks-Parker, MSW, LSW, OSW-CPresident-Elect

Children’s Hospital of PhiladelphiaPhiladelphia, PA

Jeanette Lavecchia, MSW, LCSWTreasurer

St. Jude Children’s Research HospitalMemphis, TN

Amy Gross, LICSWSecretary

Dana-Farber Cancer InstituteBoston, MA

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S I X T H S T R E E T M U R A L ( W E S T I N A U S T I N D O W N T O W N )

R O W I N G D O C K ( W E S T I N A U S T I N D O W N T O W N )

B O A R D O F D I R E C T O R S ( 2 0 1 6 - 2 0 1 8 )

W W W . A P O S W . O R G

Anne Kosem, LCSW, OSW-CImmediate Past-President

Duke University Medical CenterDurham, NC

Kristin Frazier, LCSW, OSW-CChair – Education & Professional Development

Children’s Healthcare of AtlantaAtlanta, GA

Constance Connor, MSW, LCSWChair – Legal and Advocacy

Fairfax Station, VA

Wendy Shama, MSW, RSWChair – Membership

Hospital for Sick ChildrenToronto, Ontario, Canada

Anita Graham, MSW, LCSWPresident

WVU Medicine Children’s HospitalMorgantown, WV

Stephanie Fooks-Parker, MSW, LSW, OSW-CPresident-Elect

Children’s Hospital of PhiladelphiaPhiladelphia, PA

Jeanette Lavecchia, MSW, LCSWTreasurer

St. Jude Children’s Research HospitalMemphis, TN

Amy Gross, LICSWSecretary

Dana-Farber Cancer InstituteBoston, MA

Rachel Rogovin, LICSW, OSW-CChair – Communication and Social Media

Hasbro Children’s HospitalProvidence, RI

Wade Iwata, LMSW, OSW-CChair –Quality of Life

Children’s Brain Tumor FoundationNew York, NY

Lori Wiener, PhD, DCSWLiaison – Research and Publication

National Institutes of HealthBethesda, MD

Valerie Kennedy Lang, MSW, LCSW, OSW-CChair – Professional Conference

St. Louis Children’s HospitalSt. Louis, MO