RAISE AWARENESS FOR PARKINSON'S DISEASE …...2020/07/22 · •Parkinson’s disease paents...
Transcript of RAISE AWARENESS FOR PARKINSON'S DISEASE …...2020/07/22 · •Parkinson’s disease paents...
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Rehabilita)onNeurologyDivisionMaugeriClinicalScien*ficIns*tutes
RAISE AWARENESS FOR PARKINSON'S DISEASE AND TELEREHABILITATION: A TREATMENT OFFER
TO FACE UP PANDEMIC
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
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THE INVOLVEMENT OF THE PSYCHOLOGIST IN THE TELEREHABILITATION PROGRAMMES
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
Jessica Bellosta, Psychologist
Psychology-NeuropsychologyServiceMaugeriClinicalScien*ficIns*tutesVerunoIns)tute
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STATE – OF – ART OF THE PSYCHOLOGIST IN TELEHEALTH
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
Remotepsychologicalinterven)onsare
efficient
Involvement of the psychologist in telehealth -telerehabilita)onof:• Chronicpainpa)ents(Cranenetal.,2011)• Heartfailurepa)ents(Piotrowiczetal.,2016)
• Parkinson’sdiseasepa)ents(Pretzer-Aboffetal,2015;Swallwelletal.,2018)
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PARKINSON’S DISEASE (PD)
Motorsymptoms
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
Non-motorsymptoms
• Magnifydisability• Increasetheneedforsupervision• Affect emo)onal aspects of the
rela)onshipwithacaregiver(Mosleyetal.,2017)
NEUROPSYCHIATRICSYMPTOMS
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NON-MOTOR SYMPTOMS
(Grover et al., 2015; Pfeiffer, 2016; Mosley et al., 2017)
NEUROPSYCHIATRICSYMPTOMS
Cogni)vedecline
Depression,Apathy
Anxiety
PsychosisImpulsedyscontrol
Sleepdisturbances
Sexualbehaviourimpairments
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PD PSYCHOLOGICAL INTERVENTION
Emo)onalsupport
Encourageacceptanceandadapta)on
Containsymptoms
Facilitatecompliance
Changeriskybehaviors
Cogni)ves)mula)on
ImproveQUALITYOFLIFE
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
EVALUATION
INTERVENTIONS
OUTCOME
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CAREGIVER “Theunpaidpersonwhoprimarilycaresforthepa)entbecauseofemo)onal)esregardlessof
anyfamilyrela)onship”
It’snotpossibletoconsiderthepa)entwithouther/hiscaregiver
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
(Rossietal.,2001;VidoOoetal.,2010)
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Personalcareassistance
Medica)onadministra)on
Mobilityassistance
Socialandemo)onalsupport
Financialsupport
Dailylivingassistance
• Lessleisureorsocialac)vi)es
• Physicalandmentalfa)gue• LowerQUALITYOFLIFE
PD CAREGIVER RESPONSABILITIES
(Mosleyetal.,2017;Smithetal.,2019)
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(Happe et al., 2002; Graham et al. 2006; Schrag et al., 2006; Martinez-Martin et al., 2012)
PDCAREGIVERS
Depression
Stress
Socialproblems Socialisola)on,Loneliness
Healthproblems Psycho-physicaldisturbances
Sleepdisturbances
Economicproblems Lossofincome
PD CAREGIVER CONSEQUENCES
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CAREGIVERBURDEN
• “The extent to which caregiversperceive that caregiving has had anadverse effect on their emo)onal,social, financial, physical and spiritualfunc)oning”(Zarit&Zarit,1986)
Lesseffec)venessofcaregiving
• Frequenthospitaliza)ons• LowerQualityofLife(Kuzuyaetal.,2011;Mohamedetal.,2010)
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WHY TAKE CARE OF THE CAREGIVER?
Reasonsdirectlyrelatedtothepa)ent
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
Influenceonpa)ent’s
acceptanceofthedisease
Influenceonpa)ent's
compliance
Compensa)onforeconomicandstructuraldeficiencies
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THE PSYCHOLOGIST FOR PD CAREGIVER
Emo)onalsupport
Reducesubjec)veburden/strain
Increasediseaseknowledge
Underlineimportanceofsocialsupport
Encouragehealthcare
ImproveQUALITYOFLIFE
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
EVALUATION
INTERVENTIONS
OUTCOME
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TELESUPPORT FOR THE CAREGIVER
ü Reviewoftelehealthtoolsandinterven)onstosupport family caregivers: sa)sfac)on andimprovementsincaregivers’outcomes(Chi&Demigris,2014)
ü PD caregiver telesupport group: posi)vefeedback(Shahetal.,2015)
ü Telehealth interven)on: reduced demen)acaregiving-burden(Lindaueretal.,2019)
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
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TELEMEDICINE
Ac)vi)esinICSMaugeri(Veruno):
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
VAMP*–Diseasemanagement*
TELEPARK
REPORT
5x1000
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VAMP: THE ROLE OF THE PSYCHOLOGIST
360°professionalassistancefordiseasemanagemento Psychologicalandcogni)veassessmentinterviewso Supportinterviews
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TELEPARK: THE ROLE OF THE PSYCHOLOGIST
o Psychologicalandcogni)veassessmentinterviewso Con)nuing thepsychological interven)onstartedassoon as enrolled to deal with the emo)onaldiscomfortandproblemsrelatedtotheacceptance/management of the disease (for pa)ent andcaregiver)
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REPORT: THE ROLE OF THE PSYCHOLOGIST
o Assessing the presence of emo)onal disorders, thequality of life and the cogni)ve func)oning of thepa)ents
o Assessingcaregiving-relatedstrainincaregiverso Suppor)ng by telephone the caregivers of pa)entsthatfollowthehomerehabilita)onprogram
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5X1000 PROJECT
A s s e s sme n t o f c a r e g i v e r ’ s r o l e d u r i n gtelerehabilita)onofpa)entwithParkinsonDiseaseandsleepdisorders.Tostudytheimpactonthecaregiverintermsofstress,frustra)on, sleepdisorders, anxietyordepressionandillnessdenial-dispercep)on.
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Pa)entsarerandomizedintotwogroups:Ø Group T: caregivers of pa)ents who wil l fol low
telerehabilita)on.Ø Group C: caregivers of pa)ents who will undergo normal
rehabilita)ontraining.
Eachpa)entandcaregiverwillbeassessedatT0andT1:
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5X1000: THE ROLE OF THE PSYCHOLOGIST
• Pa)ent’sassessment:
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
MOCA• Cogni)vescreening
AD-R• Anxietyanddepressivesymptoms
PDQ-8• Qualityoflife
IDQ-R• Illnessdenial
ISI• Insomnia
ESS• Sleepiness
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• Telesupportforthecaregivereverytwoweeksbytelephone
AD-R• Anxietyanddepressivesymptoms
FSQ-SF• Caregiverburden/strain
IDQ-R• Illnessdenial
ISI• Insomnia
ESS• Sleepiness
• Caregiver’sassessment:
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5X1000: SLEEP DISTURBANCES IMPACT
Themotor impairment in PD is associated with sleepfragmenta)on,earlyawakening,nocturnalcrampsandnightmares.
SleepdisturbancesareprevalentinPDcaregivers.
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Thepooreristhequalityofsleepandthepooreristhequalityoflifeperceivedbythecaregivers.
(Happeetal.,2002;Cupidietal.,2012)
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PATIENT’S COMMENT
“EsserepartediunprogeOoditeleriabilitazione,mifasen*re
accoltoeseguito”
Theinvolvementofthepsychologistinthetelerehabilita5onprogrammes
v Moreac)veroleinself-management(Kenealyetal.,2015)v Pa)entsa)sfac)on(Wilkinsonetal.,2016;Kruseetal.,2017)
v PD pa)ents benefit greatly frommul)disciplinary -interdisciplinarymedicalcare(Pretzer-Aboffetal.,2015;Ben-Pazietal.,2018)
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Maugeri Clinical Scientific Institutes, Veruno Institute,
Psychology-Neuropsychology Service
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