Published by the European Federation of Hard of · 2017-08-28 · a little box called “...
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NEWSLETTER
INTERNATIONAL DIASABILITY ALLIANCEThefullstoryatpage9
PRESS CONFERENCE OF PRESENTATION OF THE “INTERNATIONAL ORGANIZATION ON RESPEAKING “ONA.I.R.”
Readthestorypage10
Published by the European Federation of Hard of Hearing People
Edited by Marcel Bo-beldijk and Niels-Henrik M. Hansen.
Deadline for the next newsletter is November 15.th /2012.
OCT
OBE
R
2012
EFHOH PRESIDENT LETTERSeepage2
EFHOH
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2 EFHOHNEWSLETTER| OCTOBER2012
EFHOHPresidentletterThesummerof2012wasaveryspecialperiodforEFHOHandIFHOH.
Atfirstweheldthe9thIFHOHworldcongressinBergen/Norway.Thiscongresswasveryinterestingandsuccess-ful.ThankstoKnutMagneEllingsenandLillianVicanekandtheirwonderfulteamofsupervolunteers,whomakesuretheparticipantscantelltheirhomefronttheyhadexperi-encedagreattime.
WendelinaTimmerman(theNetherlands)wroteinherarticleaboutthe9eIFHOHworldcongress:“Icantellyoustraightfrommyheart,thatthiscongresswaspureempowermentforme,andithasimprovedthequalityofmylifewithhearingimpairmentandasacoachonhearingloss”.YoucanreadherandOry’sarticleabouttheworldcongressinthisEFHOHnewsletter.
TheEFHOHboardsendstheircongratulationstothenewlyelectedIFHOHboardmembersandwishesthemaverysuccessful2012-2014termofofficeandwelookforwardtocontinueourwarmandcloseco-operation.
LidiaBest,EFHOHboardmemberandIworkedforEFHOHinBrusselsforoneday,onJuly18th.InthearticlewrittenbyLidia,youcanreadwehadasuccessfulmeetingattheEuropeanPlatform.Andwewillnoworganizeaseminaronthe15ofNovemberwiththetheme‘MindtheDataGap!LackofstatisticseffectiveforanEUinclusionstrategy?’ThisseminarwillbeheldattheRepresentativeofBavariainBrussels,neartheEuropeanUnionParliamentbuildings.
The1stEuropeanConferenceofSpeech-To-Text-Report-erswasheldinErmelo,alovelysmallplaceinthemiddleoftheNetherlands.LidiaBestandIweregiventhehonorsof
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EFHOHNEWSLETTER|OCTOBER2012�
givingapresentationabouttheEFHOHandtheconditionsforhardofhearingpeople,whentheyworkwithaSpeechtoTextReporter(STTR).Thiswasheldonaugust24th.OneofthesuccessesofthisconferenceisthatwehavenowaEuropeanOrganizationofSTTR’s.
We,astheEFHOHboard,areveryhappywiththisnewor-ganizationandwewishthemallthegoodluckintheirwork.InthisEFHOHnewsletteryoucanreadanarticlewrittenbyHannieHuigsloot(theNetherlands)aboutthis1stEuro-peanConferenceofSpeechtoTextReporters.
AtthefirstweekendofNewYorkRuthWarick(IFHOHPresi-dent)andIrepresentedIFHOHattheIDA(InternationalDisabilityAlliance)governingbodymeeting.FormewasitthefirsttimethatIparticipatedinsuchameeting.Itwasinterestingformeanditwasalsoanimportantlearningexperience.EDF(EuropeanDisabilityForum)isnowthepresidentofIDAforaperiodoftwoyears.ItwasalsonicetomeetsomeEuropeanfriends/colleagues.
EFHOHcongratulatesDrs.Lásxló,Gábor,Lovászy(Hungary)andheisalsomemberofSINOSZ-ourHungarianmembers’organization,asthefirstHardofHearingpersontobeelectedtotheUnitedNationsCRPDcommittee(CRPD=ConventionoftheRightsofPeoplewithDisabilities)from1January201�to�1December2016.WeastheEFHOHboardlookforwardtoworkingwithhiminthecomingyears.
InournextEFHOHnewsletterwewillinformyouofthedetailsaboutthenextEFHOHAnnualGeneralMeeting201�(InPrague).PleasemakeanoteinyourprogramforthedateoftheEFHOHAGM201�inPrague.Thiswillbeheldbetween5and6April201�.
EFHOHNewsletterCall:
ItwouldbeniceifyouareabletowriteanarticleforoneoftheEFHOHnewslettersof2012.Also,thisyearwetrytomake5EFHOHnewslettersforyouandallofyourmembers.Yes,wemaketheEFHOHnewsletteralsoforthevolunteersandhardofhearingpeopleinyournationalandlocalorganisations.Youcansendyourarticletoouremailaddressefhoh@hrf.se
WarmRegards,
MarcelBobeldijkEFHOHpresident.
View of Bergen city.
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4 EFHOHNEWSLETTER| OCTOBER2012
OurjointPlatformmeetingtookplaceon18July2012attheEUDofficesinBrussels.
Wehadreallypositivefeedbackfrommanyrepresenta-tivesofEuropeanDisabilityForumAGAinCopenhagenwhowitnessedthehistoricdayofsigningtheagreement.Thisshowedhowimportantistofindcommongoalsandlanguagetoachievegoodadvocacy.Duringthemeetingwehaveworkedonthenextphaseofco-operationwhichisourfirstevereventon15thNovember2012attheBavarianRepresentativetoEuropeanParliamentinBrussels.
Thethemeis“MindtheDataGap”andtheeventwillexploretheimportanceofdatagatheringnationallyandacrossEuropeanUnion.Wehaveoftentooconflictingdata
presentedinsomecountriesanditisimportanttohavesynchronisedtemplatestomakethedataaccurate.
StatisticsareverymuchconnectedtoEUpoliciesandlob-bying.
TheAgendaisprovisionallysetwithspeakersfromPlat-formandinvitedguestspeakersfromEuropeaninstitu-tionsaswellasMEP’sandotherrepresentativesfromdisabilitysector.
TheeventwillbefullyaccessiblewithSignLanguageinter-preters,speechtotextreportersandhearingloop.Wewillkeepyouupdatedabouttheevent.
LidiaBest,EFHOH
OursubtitlingcampaigntookustotheofficesDigitalCom-missionon18thJuly2012inBrussels.
ThemeetingwasarrangedwithhelpofEuropeanDisabilityForumandparticularlyNadegeRichie.
MarcelBobeldijkandIpresentedourlatestfindingsaspartofupdating“StateofsubtitlinginEU”.
WehavealsodiscusseddifferentwaysofdatagatheringandhowdifferentMembersStatesreportaccessibilitytoTV
TheCommissionwasveryinterestedinourfindingsandislookingforapossibilitytofundindependentmonitoringofsubtitlingaccess.TherewillbemoreexchangesbetweenCommissionandEFHOHbutthisisfantasticopportunitytoworktogetheronsubtitlingincreaseinEU.Watchthisspace!
LidiaBestEFHOH
ReportfromJointPlatformMeeting
EFHOHsubtitlingcampaign
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EFHOHNEWSLETTER|OCTOBER20125
Don’t say What? But say HAE?
Afteralittlesiestaontheplane,Orywokeupsuddenlyandhelookedoutofthewindow,Ohhowwonderful:snow,lotsofsnowonthemountains.Andfjords!HerealizedthatNorwaywasnotsofarawayafterall.
ComingfromthesouthofFrance,hewaspleasedtoseethattheweatherwassunnybutoutsideheshivered;itwassocold!
Mondayeveningwouldbeaspecialtime,hewouldmeetotherHOHs.Hedecidednottotakehisdictionaryandtowaitandsee.
HefollowedtheotherHOHsgoingupthestairs.Therewasalotofnoise.Hedidn’tknowanybodyandwasfeelinglonely.Butthenhesaw40smilingfaceslookingathim,hewassurprised,why?JapaneseHOHs!Orytriedtotalktothem,buthislanguagewasn’ttheirs.Tocommunicatehehadtofindsomethingnew,hetriedtosmiletoo,thatwasthekey!Theysmiledalltogether,whatanicestartofthecongress!
Thatfirstevening,OrymetveryyoungHOH,withcapsandshorttrousers,makingfunbutalsososeriousabouttheirworkintheHOHyoungorganization.IntheNorwegianlan-guage,yousayHae?whenyoudon’tunderstandsomething.
DuringthreedaysOry,cameintouchwithNorwegians,Swedish,Danish,German,British,Canadian,DutchHOHs.Everybodyspokealanguagehedidn’tstudybefore,aspecialHOH-language.Hehadtolistenwithspecialnecklace;withalittleboxcalled“Minilink”andtoreadonthescreenatthesametime.TheJapaneseHOHshadtheirscreeninJapaneseandtheNorwegiantheirs.Orytriedtounderstandhowitworked.Twoverytallmen,yesthe“JötunnsofBergen”,hewassure,playedthepianoonakeyboard,butsoquicklythathecouldn’tseetheirfingers.Butwherewasthesound?
“Thefloorisyours”!Suddenlyagiantfacelookedathimandexplainedalotofthingsabouthearingloops,stress,youngandoldHOHs,therightsoftheHOHs.
Orywaspleasedtolearnsomanythings,healwayswantedtoknow.
Attheendoftheday,alittlebitdizzy,hewalkedtotheharborofBergentoeatsomething.Therewasafishmarketwithshrimpsandcrabandsalmon.Alotofgullswheeledoverandoverthemarket.Orywassittingonawoodenbenchinfrontoftheseawherehesawenormousships.Hewouldliketotakeaphotograph,sohebentdowntopickuphiscamerainhisbag.Whenhelookedtohisplateagain,thegullsweretryingtostealhisshrimps!No,no,goaway,theseshrimpsaremine!
Inhisbed,itwasalmost11o’clockpm,hereadalittlewith-outswitchingonthelight!Andattwoo’clockhewokeup.Ohdear,it’stimetogotothecongress,itissolight.Stupidyou!YouareinNorwayin“midsummer”.Thelasteveninghedressedverywelltogotothe“banquet”(HOHssaidbaaankééé)
Inthebigreceptionroomhundredsoflittlelightswerelikestarsabovethenicelydressedtables.Smokedsalmon!Butnogreedygullstostealthisdelicioussea-food..
AlltheHOHsweresittingtogether,laughingandchattingintheeveningsun.Oryrememberedtwosentencesthathehadheardthatweek:”Ifyouonlydowhatyoucando,youwillnotdosomuch”.“Togetherwecanmakeadifference!“
Hedidn’tfeellonelyanymore!HOH,yesofcourse,butproudtobeamemberoftheIFHOHandEFHOHcommuni-ties.
Bergen29thJune2012AisaCleyet-MarelFrance
Secondepisode:
LittleFrenchOryinHOH-land
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6 EFHOHNEWSLETTER| OCTOBER2012
GreetingsfromIFHOHasthenewlyelectedofficersofourorganizationbegintheir2012-2014termofofficeandlookforwardtoworkingcloselywithyouinachievingprogressonhearingaccessibility,awarenessandhumanrightsforourconstituency.
WearecomingoffofamostengagingandsuccessfulIFHOHCongress,hostedbytheNorwegianFederationofHardofHearingPeopleinlovelyBergen,NorwayJune25-28,2012.TheexecutionoftheeventwasoutstandingandourhatsgotoKnutEllingsen,LillianVicanek,ÅseWraalsenandmanyothersonthecoreteamandtothecountlessvolunteerswhomadethisasuccess.AlsocongratulationsgoestoHaraldRiisnaesofTravelPlannersofScandinaviaLtd.whoensuredforasmooth-runningCongress.
IcameawayfromBergenenergizedandexcitedaboutworkingwithandforyou.OurbiennialmeetingheldonJune25,2012inBergensawapprovalofaplanofactionforthenexttwoyears,theadoptionofseveralmotionsandtheelectionofnewofficersfortheorganization.WealsorecognizedtheworkofretiringboardmembersKatjaVis(Treasurer)andAhiyaKamara(Vice-President)whofirstcameontheIFHOHBoardinDubrovnik,Croatiain2006andwithwhomIpersonallygrewtogetherinourresponsi-bilitieswithIFHOH.Fortunately,theirshoeswillbefilledbyAviBlauofIsraelasVice-PresidentandNiklasWenmanofFinlandasTreasurer.AlsoelectedwereHanhDuongPhuongofVietnamasGeneralSecretaryandUlfOlssonofSwedenasMemberatlarge.Iwasre-electedasPresidentandjoiningusontheboardisMarcelBobeldijkasEFHOH’srepresentative.
New MembersAtourbiennialmeeting,wewerepleasedtowelcomePolskaFundacjaOsóbSłabosłyszących(PFOS),(PolishFoundationforHardofHearing)asageneralmemberandAssociazioneLucaCoscioni,Italyasanassociatemember.
MotionsThefollowingmotionswereadoptedbytheAssembly:
Amotionthattheannualmembershipfeeforindividualassociatemembershipbe20€.AmotionpertainingtotheUNConventionontheRightsofPersonswithDisabilitiesurgingthefollowing:
•TheUNCommitteeontheRightsofPersonswithDis-abilitiestoincludethehardofhearingperspectiveintheirmonitoringandreporting.
•NationalmechanismsmonitoringtheUNConventionontheRightsofPersonswithDisabilitiestoincludethehardofhearingperspectiveintheirmonitoringandreporting.
•GovernmentstousetheCRPDasthepointofdepar-tureintheirdisabilitypoliciesandtoworkactivelyforratificationandimplementationoftheCRPD.
Amotiontoimplementaninternationalhearingawarenessdayallovertheworld(togetherwithEFHOH).
DuringtheCongessattheAGMoftheInternationalFederationofHardofHearingYouth(IFHOHYP)IFHOHandIFHOHYPsignedaletterofagreementbetweenthetwoorganizationswhichcallsforcloserworkingrelations.KarinaChupina,PresidentofIFHOHYP,andmyselfwerethesignatoriestotheagreement.
IFHOHispleasedtoannouncethatthenextIFHOHBGMin2014willbeheldinJerusalem,Israelwiththeactualdatestobefinalized.TheBGMwillbeprecededbyeducationalsessionssodoputthisonyouritinerary.
Iinviteyoutocontactmeifyouhaveanyissues,concernsorwordsofwisdomforus:[email protected].
Withmyverybestwishes
RuthWarickIFHOHPresident
ANew TermforIFHOHBegins
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EFHOHNEWSLETTER|OCTOBER2012�
IenjoyedtheIFHOHcongress2012inBergenNorwayenormously.Thanksfrommetoallwhoorganised,presentedandpar-ticipatedalsopresentersyouallmadeitaveryenjoyableexperience.Thethemewascalled:“Abetterqualityoflife”Icantellyoustraightfrommyheart,thatthiscongresswaspureem-powermentforme,andithasimprovedthequalityofmylifewithhearingimpairmentandasacoachonhearingloss.
AccessibilityInthiscongress,weretopSpeechtoTextReporters,signlanguageinterpreters,solohearingdevices,hearingloopandplentyofpensandpaperhadbeenprovidedincludinganaturallight.Thisisapowerfulstatementandastrongexampleofthecontributionofthesefacilitiestotheafore-mentionedqualityoflife.
Becauseoftheprovidedsupport,Iwasabletolisten,watch,readandoverallexperienceallalongthiscongresswithoutanystress.Thisuniquechancetoseeandmeetsomanyhardofhearinganddeafparticipantsfrom40differentcountries,andtobeabletomakeenquiriesaboutthemaftertheirlivesandwork,hasleftaveryspecialandinextinguishableimpressionontome.
InbetweenIspoketoseveralhardofhearingprofession-alsandworkers,suchasanarchitect,anEarNoseThroatspecialistwhowearsacochlearimplant,aphysiotherapistwhoalsowearsaCI,severalscientistswithseverehearinglosses,abusinessmanager,socialworkerandmanyotherpreciousexperiences..
Formetheyarepreciousrole-modelsandtheyimprovemypassionandworktocontributetotheexpandingofopportunities,chancesandtalentsinthefieldofhearingimpairmentanddeafness.Atthesametimethesepeopleareimpressivecolleagues.
Theenormousdriveofparticipantsandspeakers:Thisisaworldwidegroupofpeoplewhostandupeverydaytoimproveknowledgeandopportunitiesinallfieldsofwork.Beingableandallowedtoshareofallknowledge,ideasandskillswas‘abetterqualityoflife’allonitsown!
Thankstothiscongressandallintroductionsandmeetingswehavereceived,andgothandedalotofideasandexperi-ences.Toomanytomentionthemall.
Some examples*Learntousesocialmedia.AfterthetsunamiinJapantwitter
wasoneofthefewwaystoreceiveinformation.*Iheard:WithmyCIIhavecouragetostartnewadventures,to
travel,Iamlesstired,andIhavemuchmoreselfconfidence.*Makesureyoufindwhichrightsyouhaveinyourcountry,esp.
withrespectto(keeping)workandhearingloss.*Balanceexercisesmakeyoustronger,yougetlessstressand
ithasapositiveinfluenceoncommunication.*Playorlistentomusic!Don’tkeepawaybecauseofyourhear-
ingloss!Findouthowyoucansingandplayaninstrument,orlistenandfeel.
*Indifficultsituationsmakesuretouseextratechnicalequip-mentotherthanjustyourhearingaids:hearingloops,solodevicesanddigitalcommunicationsystems.
*Ifweworktogetheronrulesforcommunicationatworkrelat-ingtohearingloss,communicationwillimproveforeveryoneintheteam.
*Startyourowncompany:youcansetupyourownagendaandcreateyourownconditionsforworkinglesscomplicated.
*Makesurethatyousleepsufficiently.
IamcuriouswhichtopicsandexperiencestouchedyouasaparticipantmostofallatthisEFHOH,IFHOHcongressinBergen,Norway(Europe)2012.Willyoupleaseletmeknow?info@hooridee.nlIamlookingforwardtoallreactions.
RegardsWendelinaTimmermans
IFHOHWORLD CONGRESS 2012BergenNorway
By Wendelina Timmerman, Coach and trainer for individuals and groups with hearing loss www.hooridee.nl, the Netherlands.
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8 EFHOHNEWSLETTER| OCTOBER2012
Upuntilrecentlydeafandhardofhearingpeoplehadtorelyonsigninterpreters.Ifyoudidnotknowsignlanguage,youwouldneedpencilandpaper.
InthemeantimetheVeyboardwasdeveloped.Nowinter-pretershavetheopportunitytotypethespokenwordsandconversationextremelyfastontoakeyboard,calledtheVeyboard.Thisisconnectedtoalaptop,sothatthetextcanbereadatascreenalmostsimultaneously,realtime.Anewjob,ofvelotypist,wasborn.
Saturday25augustaninformationdaywasheld,forbothinterpretersandpressandthegeneralpublic.MsGeaDu-ister,chairoftheinterpretersmeeting,announcedaworldpremierdiscovery.Thiscontainsinshowingatechnicalequipmenttoprovideapowerpointpresentationofsub-titlesandcaptions,whicharetypedveryfast.Thisimpliesthatdeafpeoplecanreadthetextatthesamescreenasthepresentation,andyoudon’thavetoswitchfromonescreentotheother.Theinterpretersandinsidersareverysatisfied.
Thetwoinventors,SanderPasveerandWimGerbecksareveryproud.Thisinventionshowsimmediatelythatthemoderntechnicshasdevelopedtheprofessionofinterpreterintoastrongacceleration.GeaDuisterfromNijkerk,whohasbeenanexperiencedvelotypistformanyyears:“Manypeopleareremindedofthemorningtvnewsprogramwhichissubtitled,butthatisacompletelydiffer-enttrade.Thereadifferentpersonthanthenewsreaderwillreadthesametextwithamouthfilter.Acomputerwhichcanrecognisethevoiceofthisperson,cangeneratesubtitlesbymeansofspeechrecognition.
Weasinterpretersusuallyassistanindividualdeaforhardofhearingperson.Forinstanceintheirhomeenvironment.Theywishtovisitatheatre,orthespecialist.Sometimestheinterpreterassistsforunderstandingthespeechesatafuneralandifthedeafpersonhasnovelotypistorinter-preter,hewillnotbeabletohearanypartoftheservice.
Speechrecognitionisnottheproperequipmentinsuchasituation.Ifavelotypistwilljointhedeafperson,thisinterpreterwillsitinthebackoftheroomandtypeallspo-kentextandconversation,andthedeaforhardofhearingpersoncanreaditataniPad”.
AnnemiekeSolleveld,aninterpreter,saysthatitrepre-sentsthecompleteprofessionofavelotypist.“Typingisjustaskillthatyouneed.Oneismainlyoccupiedtoassistthedeaforhardofhearingpersonindailylife.Thiscouldbeatschoolorjob”.Shehasalifelongexperience,butshedecidedafewyearsagotochangeherjobcompletely.“ÏmetGeaDuisteratacreativecourse,wherealsoadeafparticipantwasdoingthishobby.(workingwithlacepatterns).Sheimpressedmesomuch,thateventuallyIdecidedtofollowthetwoyearcourseforhighereducation.NowIworkindependently,justlikeallotherinterpreters.Itisveryexcitingwork,becauseyouarenotpartofaconver-sation,butyouareaninterpretingstationfromthedeafpersontowardshisconversationpartner.Itisaveryspecialandespeciallyrewardingjob”.
Interpretingisstillunknown,GeaDuisterremarks.“Morethan�0,000deafandhardofhearingpeopleareenti-tledto�0hoursofinterpretingsupportperyear,calledlifestylehours.Forworkandeducationtheyareallowedmorehours.IntheNetherlands80interpretersareactive.Iamsatisfiedthatpeoplegetmoreinformationaboutthisprofession,butinthesametimealackofexperiencedinterpretersisdeveloping”.
HotelDeHeerlickheijdinErmelowasapleasantenviron-menttogiveandreceiveapresentationaboutspeechtotexttechnicsandinterpreters.Theaudienceareverymuchimpressedbythetypingachievementsofthevelotypists,someofwhommadespeedtestsinthevariouslanguages.
Speechtotext:peoplewhodeservepraiseandtechniqueswhichareveryefficient.
FirstEuropean Congressfor Speech to Textreporting(ECOS)
By Hannie Huigsloot.
InErmelo,theNetherlands22-26august2012
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EFHOHNEWSLETTER|OCTOBER20129
New York, 10 September 2012; The International Disability Alliance (IDA) is the voice of 1 billion persons with disabili-ties in the world.
IFHOHisamemberofIDAasInternationalNGO’sandIF-HOHisalsooneofthetwelvefoundersofIDA.RuthWarick(IFHOHPresident)andMarcelBobeldijk(EFHOHPresi-dent/IFHOHboardmember)representtheHardofHearingmovementatthisIDAmeetinginNewYork.
AlsoEDFisamemberofIDAastheregionalorganizationrepresentingpeoplewithdisabilitiesfromEurope.TheIDAgoverningbodyhasmetonthe8,9and10ofSeptemberinNewYork,aheadtheConferenceofStatesPartiestotheCRPD.ThemeetingwaschairedbyYannisVardakastanis,EDFPresident,whoisthechairpersonofIDAforthenexttwoyears.PekkaTuominen,EDFExecutiveMemberandJavierGüemes,EDFDeputyDirector,representedtheEuropeanDisabilityForumatthisimportantmeeting.
IDAisauniquenetworkoforganizationsofpersonswithdisabilitiesworldwide.Itisthevoiceofpersonswithdis-abilitiesatgloballeveltowardstheUnitedNationssystem,whilealsostrengtheningtheinternationaldisabilitymove-mentthroughcapacitybuildinginitiatives.
IDAiscomposedoftwelveorganizationsanditwasestablishedin1999.Todayitincludesglobalandregionaldisabledpeople’sorganizations(DPOs).Theaimoftheallianceistopromotetheeffectiveandfullimple-
mentationoftheUNConventionontheRightsofPersonswithDisabilities(CRPD)worldwide,throughtheactiveandcoordinatedinvolvementofDPOsatnational,regionalandinternationallevels.WHYWASITANIMPORTANTMEETINGFORTHEDISABILITYMOVEMENT?Peoplewithdisabilitiesarefrequentlyanoverlookedminoritygroup.Thankstoitsuniquecompositionasanetworkoftheforemostinternationaldisabilityrightsorganizations,IDAisthemostauthoritativerepresentativevoiceofpersonswithdisabilitiesworldwide.Itisacknowl-edgedassuchbytheUnitedNationssystembothinNewYorkandGeneva.
TheIDAGoverningBodymeetingisacrucialeventinwhichglobalandregionalorganizationscoordinatetheirinter-nationalstrategiesanddecideonthepoliticalprioritiesofpersonswithdisabilities.
TheGoverningBodyworkstowardsamoreunifiedvoiceinthehumanrightsarenawithinthediversityofthemove-ment.Inthelastmeeting,IDAadvancedinthedefinitionofitsfuturestrategy,adoptedpositionstowardsimportantpoliticalinitiativesandeventsin201�andfoundwaysforastrongerandmorecoordinatedvoice.
INTERNATIONALDISABILITYALLIANCE:TOWARDSASTRONGERDISABILITYMOVEMENTWORLDWIDE
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10 EFHOHNEWSLETTER| OCTOBER2012
OnWednesday,12September2012,theno-profitinter-nationalorganizationonrespeakingonA.I.R.organizedapressconferenceinPalazzoMarini,oneofthebuildingsoftheItalianChamberofDeputies.onA.I.R.’smainaimistopromotesocial,educational,cultural,andrecreationalactivitiesbymeansofsubtitlingforDeafandHard-of-Hearingpeoplethroughrespeaking.Formoreinfo,pleasevisittheirwebsiteatwww.respeakingonair.org
Manypeopleattendedtheconference.Amongthemrep-resentativesofthepolitical,associational,professional,technological,andacademicworld.MPMarcoBeltrandi,whocontributedtoorganizingtheconference,andMEPMarioMaurowerescheduledtoparticipateattheconfer-encebecauseoftheirgreatinterestindisabilityquestionsandonsubtitlingfortheDeafandtheHard-of-Hearinginparticular.Theycouldnotattendbecauseoftheirparlia-mentaryactivitiesinRomeandinStrasbourg,respectively.Intheiraddressesbothpoliticiansunderlinedtheimpor-tanceofonA.I.R.objectivesinsocialandinevolutionaltermsandencouragedandsupportedallonA.I.R.’sinitia-tives.
Afterabriefreminderonwhatrespeakingis(namelyatechniquebywhichaprofessionalrespeakerlistentoanorallyproducedtextandsimultaneouslydictatesarepetition,asummaryoratranslationofthissametexttoaspeech-to-textsoftwareprogramwhichtranscribesphonemesintographemeswhichcanbeusedasTVorconferencereal-timesubtitlesorasarapidlyproducedtext),onA.I.R.PresidentFrancescaMarchionnemadeanoverviewoftheassociationwhichiscomposedofmorethan50membersfromalloverEuropewhoareinterestedinrespeakingasprofessionals(subtitlers,reporters,tran-scribers),developers(softwarehouses,engineers),users(deafandHard-of-Hearingpeople,foreigners,students),andsupporters(well-trainedyoungunemployedpeople,friends,associations,companies).
Then,Ms.TizianaTrapani,unemployedprofessionalTVliveeditor,tookthefloorasvice-presidentoftheassociationandtalkedaboutthedifferentprojectsandideasonA.I.R.isworkingon.Ph.D.CarloEugeni,teachingsubtitlingforthedeafandtheHard-of-HearingattheUniversi-tiesofParmaandRomeandHRmanageratonA.I.R.wentintomoredetailsabouttheOltreSuoniProjectaimedat
Pressconferenceofpresentationofthe“InternationalOrganizationonrespeaking“onA.I.R.”
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EFHOHNEWSLETTER|OCTOBER201211
WELCOME TO THE NEXT EFHOH GENERAL ASSEMBLY IN PRAGUE
„The Heart of Europe“
CZECH REPUBLIC 2013 April 5th – 7th
We invite all EFHOH-members and delegates to Prague.
From November 2012 you can make a mailing list registration and programm at the website www.snncr.cz
developingthebestpracticesforarevolutionaryformofcommunication:subtitlingwebradiosforDeaf,HoHandforeignpeoplethroughdistantrespeaking.Mr.FrancescoCellini,along-experiencedcourtreportertalkedabouthowsomepeoplefromthereportingworldarestartingapproachingrespeaking,whilemanyothercontinuefearingthatrespeakingasatechnologywillreplacethem,whoaremainlystenotypists.
Mr.GiovanniPolidoro,expertinaccessibilitylegislation,talkedaboutlegalaspectsofTVsubtitlingforthedeafandtheHard-of-Hearing.Mr.GiacomoPirelli,onA.I.R.directorofcommunicationwithassociations,presentedareportontheaccessibilityneedsDeafandHard-of-Hearingpeoplehaveandthatrespeakingcanfulfill,namelysubtitlinguniversityclassesandotherdailyevents.
ProfessorFrancaOrletti,byRomaTreUniversity,talkedaboutherexperienceasdirectorofauniversityMasteronmultimediawritingforTV,Cinema,andtheWebandoftheimportanceonA.I.R.hasintrainingmasterstudentsinprerecordedandlivesubtitling.Then,onA.I.R.bestoweditshonorarypresidencytoMr.GiulianoPirelliforhavinginventedlivesubtitlingthroughrespeakinginthe1990sintheframeworkoftheECVOICEprojectheleaded.Mr.GiulianoPirellihasthentalkedofthedevelopmentsofhisVOICEprojectandoftheworkheiscontinuingdoingwithintheAssociationtoguaranteethattheVOICEprojectwillsurvivehim.
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12 EFHOHNEWSLETTER| OCTOBER2012
1. When did you get in contact with EFHOH for the first time?
ThefirsttimeIgotintocontactwithIFHOHwasmorethan�0yearsago,whenIwassecretaryofICHOHYP,theyounghardofhearingorganization.Thefirstinternationalmeet-ingIattendedwasinSwitzerland.SincethenIattendedmostlyallmeetingsandinternationalcongresses.Iremem-berthestartofEFHOHinGarderen,theNetherlands.Iwasintheteamtoorganizethismeeting.
2. Can you tell something about yourself and your work at local and national level in your country?
Iamhardofhearingsincebirth.Myoldertwinbrotherisnothardofhearing.Iamnow60yearsoldand‘betweenjobs’!IamactiveintheDutchhardofhearingclubondifferentlevels.TheHardofHearingorganizationmeansalottome.ThereImeetmostofmyfriendswhosupportmetoliveinahearingworld.Myimportantactivityisorganizingweek-endsandmeetingsforhardofhearingwherethecanlearnfromeachotherand,ofcourse,havealotoffun!
3. When did you join the board of EFHOH and why? Who were in the board? What have you done within EFHOH?
IwasneverintheboardofEFHOH.DuringtheyearsIwasactivefortheNVVSoninternationallevel,Iremember2personswhowereveryimportant.LauriendeWinter.ShewasaverygoodrepresentativefortheDutchHardof
HearingOrganizationandDickKleinBussinkalsofromtheNetherlandswasveryimportanttoIFHOHandEFHOH.Hewassecretaryofbothorganizations.Heisover80now!IstillwanttosupporttheboardofEFHOHbecausetheinternationalworkisverydifficultandtakesalotoftime.Thereforeitisgoodtohavemodernwaysofcommunica-tion.IntheyearsIwassecretaryofICHOHYPIhadtosendallpapersinenvelopswithstamps!Ittakesalotoftimeanditwasveryexpensive!IthinkitisveryimportantfortheboardofEFHOHtofocusonthepossibilitiesofinternet.
4. What is your opinion about the role/tasks of EFHOH as a European NGO for HOH people?
EFHOHhastheroletoshowthedifferencebetweenhardofhearingandprofoundlydeaf.Bothgroupshavealotincommon,buttherearealsoalotofdifferences!Ithinkweshouldclosecooperatewiththeorganizationsfordeafpeople!Ithinkitisalsoimportanttoexplainthathardofhearingalsomeans:hearingproblems!WealsohavethetasktoexplainthattherearemorehearingproblemslikeTinnitus,Meniere,HyperacusisandSuddenDeafness.Maybetherearemorespecialgroupswithhearingprob-lems,whichalsoneedtobeactiveoninternationallevel!Besidesthatwehavetoexplaintotheinternationalcom-munitythatweneedspecialequipmentslikesubtitlingontelevision,specialtelephonesandthepossibilitytocall112incaseofdanger!
InterviewwithKeesTwilt
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EFHOHNEWSLETTER|OCTOBER20121�
5. Can you tell something about your experiences in EFHOH?
EFHOHisahardworkingorganization.TheproblemisthatthenationalorganizationsdonothavemuchcontactwitheachotheroutsideEFHOH.TheScandinavianorganizationshavetheircontacts.Ithinkitwillbegoodwhen,forexam-ple,theGerman,Dutch,BelgianandFrenchhardofhearingorganizations,alsohaveaclosercontact.ThiswillbegoodtoEFHOHbecause,thepreparationtotheAnnualGeneralMeetingswillbebetter.
6. Can you tell something about the co-operation between EFHOH with IFHOH and IFHOHYP?
Agoodcooperationisalwaysimportant!Togetherweareabiggroupofhardofhearingpeopleandwecanlearnfromeachother!CooperationwithIFHOHYPisimportantbecausetheyarethefutureofIFHOHandEFHOH.
7. What was the most important subject/moment/topic in your period for you personally?
Therearealotofimportantmoments!Oneofthesemo-mentswasthefirstinternationalcongressinHamburgin1980.ThiscongresswasorganizedbyHanneloreHartmannfromGermany.AtthatmomentIFHOHgotaface!Han-nelorewasthefirstsecretaryofIFHOHandoneofthepersonswhowasresponsibleforthiscongress.Itwasahellofajob,buttheydiditanditwasthebeginningofagoodtraditioninIFHOHandEFHOH!
9. How do you see the future of EFHOH?
Ireallydon’tknow!Themostimportantistofindboardmemberswhoarewillingtodothejob.Theproblemisthatmostoftheboardmembersareveryactiveintheirnationalorganizationanddonothavemuchtimeleft.Ontheothersite,internationalworkisveryexpensiveandthereisaneconomicalcrisis!Thatmeanswehavetofindsponsorstocontinueourimportantwork!Andthatisalsoahellofajob!
10. Congresses like Vancouver and the loop system confer-ences are very important. What do you think about their role in future?
AsIsaidbeforethefinanceswillbeabigproblemtoallor-ganizationsinfuture!OntheothersideinternetandSkypewillbethefuture!Ithinkthatinternetconferenceswillbethefuture.Ontheotherhandwehavetothinkaboutourhandicap!Ithink,within20yearsitwillnotbeahandicapanymore!Technicaldevelopmentstillgoeson.NowwehaveCIfordeafpeople,maybewehaveperfectCIforhardofhearingpeopleinthenearfuture.Theproblemisreducedtosomethinglikewearingglasses!
11. What are you going to do in your free time when you had left the IFHOH/EFHOH board?
Iamstillactiveforthehardofhearingandtomeitisakindofhobby!OfcourseIhaveotherhobbies.IliketogoonholidaytoSenegaltomeetAfricanfriends,Ihavemyaviaryinthegarden,andlastbutnotleast,IhavemybigoldhousewhereIcanmeetfriends.
12. Any other remarks
IalsomadelotoffriendsinEFHOHandIFHOH,andofcourseICHOHYP/IFHOHYP.IwasveryhappytoseealotoftheminBergen,Norwaylastsummer!Itwasagoodcon-gress,thanks!
Kees Twilt
Therearealotof important moments!OneofthesemomentswasthefirstinternationalcongressinHamburgin1980.ThiscongresswasorganizedbyHanneloreHartmannfromGermany.AtthatmomentIFHOHgotaface!Hannelorewasthefirstsec-retaryofIFHOHandoneofthepersonswhowasresponsibleforthiscongress.Itwasahellofajob,butthey did it..
“
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14 EFHOHNEWSLETTER| OCTOBER2012
Ho Chi Minh City, Feb 19th, 2012 Dear Sir or Madam, People with hearing impairments are comprised about 2.5 million (or 3.2 percent of total population) in Vietnam. As they have got low educational attainment and cannot find jobs as easily as others, most of them are very poor. The most important reason of all is that many cannot access hearing aids which are considered “supportive ears” for the Hearing Impaired in their early intervention. Established in 2011, the Center for Research and Education of the Deaf and Hard of Hearing (CED) has been considered the pioneer in serving the Hearing Impaired in Vietnam. Its mission is to promote the full integration of the Hearing Impaired into the society through education. Being aware that the inaccessibility of hearing aids much prevent children with hearing loss to maximize their potential abilities and possibility, CED has recently tried to create the Hearing Aids Fund. The Fund mainly aims at providing used hearing aids and early intervention to poor children with hearing loss. CED offered free 40 second hand hearing aids for 20 poor students in Hochiminh City and Dong Thap Province http://trungtamkhiemthinh.org/index.php?option=com_content&view=article&id=563:quy-may-tro-thinh-cho-tre-em-ngheo&catid=157:tang-may-tro-thinh&Itemid=771 CED would like to request individuals, companies and organizations to donate any new or used hearing aids or little financial support for the continuing operation and development of the Fund. CED do commit to use all kind supports on Hearing Aids Fund to help the Hearing Impaired better study and communicate with others for their more confidence and social integration. For further information, please do not hesitate to contact CED at email [email protected] Warmest regards, Duong Phuong Hanh CED Director
Center for Research and Education of the Deaf and Hard of Hearing (CED)
Address: 4 Nguyen Thi Huynh, Ward 8, Phu Nhuan District, HCMC Tel: 84-8 6683 7494
Email: [email protected] Website: www.trungtamkhiemthinh.org
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EFHOHNEWSLETTER|OCTOBER201215
EFHOH MEETINGS 2012 & 2013: 2012 2012 2012 2012 1 October Warsaw/Poland International Congress
on Inclusion of People with hearing loss
Lidia
19 & 20 October Stockholm /
Sweden IFHOH board meeting Marcel
2 and 3 November
Prague / CZ Republic
EFHOH board meeting All the board members
15 November Brussels /
Belgium European Platform for Deaf and Hard of Hearing Seminar
Lidia, Jan and Marcel
21 November Brussels /
Belgium Digital EU Commission event
Lidia and Marcel
3-5 December Brussels /
Belgium European Disability Day Jan
2013 2013 2013 2013 2 February Stockholm /
Sweden EFHOH board meeting All the board
members 5-7 April Prague Board meeting and
AGM All the board members
May ? EDF AGM One of the board
members June Dubrovnik/
Croatia 5e Media for all Conference
One of the board members
5-7 October UK 3e International
Loops Conference All the board members
3-5 December Brussels /
Belgium European Disability Day One of the board
members Version: 03 October 2012
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16 EFHOHNEWSLETTER| OCTOBER2012
RESULTSOFTHEELECTIONSOFMEM-BERSOFTHECOMMITTEEONTHERIGHTSOFPERSONSWITHDISABILITIES
12September2012///ThefifthsessionoftheConfer-enceofStatesPartiestotheConventionontheRightsofPersonswithDisabilities(COSP5)istakingplacefrom12to14September2012attheUNHeadquartersgatheringtheattentionofthedisabilitymovementworldwide.YannisVardakastanis,PresidentofEDF,hasparticipatedattheopeningasChairoftheInternationalDisabilityAlliance(IDA).DuringtheConference,9ofthe18positionsintheCommitteeontheRightsofPersonswithDisabilitieshavebeenrenewedthroughanelection.
AttheopeningoftheConference,YannisVardakastanis,asChairofIDA,hasenumeratedthefuturechallengesontheimplementationoftheUNCRPD.Theyweresum-marizedinfourpoints:TheUNshouldleadbyexampletheimplementationoftheUNCRPD,theneedtoinvolvetheorganizationsofpersonswithdisabilities,therequirementtoprovideevenmoretimetotheCRPDcommittee,thene-cessitytoensurethattheConventionisadrivingforceforthepostMillenniumDevelopmentGoalsandfortheHighLevelMeetingonDevelopmentandDisability.
WHO ARE THE ELECTED EUROPEAN MEMBERS?
EDFPresident,YannisVardakastanis,congratulatesMs.AnaPeláezNarváez(Spain)forherre-electionasmemberintheCRPDCommittee,aswellasMs.DianeMulligan(UK)andMr.LászlóGáborLovászy(Hungary)forbeingelectedforthefirsttimeasmembersoftheCRPDCommittee:“WiththeirdeepunderstandingoftheUNConventionandtheircommitmenttothepromotionoftherightsofper-sonswithdisabilities,theEuropeanDisabilityForumknowsthattheywillactivelycontributetotheworkoftheCRPDCommittee”.
ThenewmembersarenottheonlyEuropeanmembersoftheCRPDCommittee.TheyaregoingtoworktogetherwithMs.TheresiaDegener(Germany)andMr.StigLangvad(Denmark),alreadyelecteduntil2014.
IS THE CRPD COMMITTEE USEFUL?
TheCRPDCommitteeplaysasignificantroleasamonitor-ingtooloftheimplementationoftheCRPD.Itiscomposedof18independentexperts,whomonitorimplementationoftheConventionbytheStatesParties.AllStatespartieshavetosubmitregularreportstotheCommitteeonhowtherightsofpersonswithdisabilitiesarebeingimplement-edintheircountry.
StatesmustreportinitiallywithintwoyearsafterratifyingtheConventionandtheneveryfouryears.TheCommitteeexamineseachreportandmakessuggestionsandgeneralrecommendationsonthereportasitmayconsiderappro-priateandforwardsthesetotheStatePartyconcerned.Eventhoughtherecommendationsarenotlegallybinding,itisaconvenienttoolforthedisabilitymovementtomoni-tortheconcreteimprovementsofitscountryorregionalorganization.
EDFadvocates,togetherwiththeInternationalDisabilityAlliance,forallowingmoretimetotheCRPDCommitteeeveryyearinordertoensurethatitcanfulfillitsfunction.SofartheCRPDCommitteeisaccumulatingadelayintheexaminationofreportsduetolackofenoughtimeannually.
NEXT MEETING OF THE COMMITTEE: EXAMINATION OF HUNGARY’S REPORT
TheCommitteeontheRightsofPersonswithDisabilitiesconvenestwiceayearforsessionsofoneweek,normallyinspringandautumnattheUNOfficeinGeneva.Assaid,thereisalreadymuchdelayintheexaminationofthereports,evenifthesessionsarefromnowonheldfortwoweeks.Itsnextmeetingwilltakeplaceon1�-28Septem-ber2012.Duringthismeeting,theCommitteeisgoingtoexaminethereportofHungary.HungaryisthesecondEUcountrybeingexaminedbytheCommitteeafterSpain.
TheCommittee’srecommendationsonthereportofHungarywillbeausefultoolnotonlyfortheHungarianor-ganisationsofpersonswithdisabilities,butforthewholedisabilitymovementinEurope,inordertostressMemberStatestowardstheimplementationoftheCRPD.
EDFNEWS
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EFHOHNEWSLETTER|OCTOBER20121�
3rd International Loops Conference
Hearing Link is delighted to announce that the 3rd International Loop Conference will be held in Eastbourne in the autumn of 2013.
A rapidly growing town on England’s south east coast, Eastbourne is the home of Hearing Link’s Headquarters. Already well-supported with hearing loops giving good access for people living with hearing loss, Eastbourne’s Let’s Loop Group is working with local businesses, disability groups and the local authority to increase loop provision in the town to ensure a warm welcome for delegates to the Conference.
Loops are relatively inexpensive and simple to install and yet they can make a vast amount of difference to someone using a hearing aid – which makes the International Loop Conference such an important event in the world of hearing loss and Hearing Link proud to have been selected to host the 2013 event. See you there!
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18 EFHOHNEWSLETTER| OCTOBER2012
The European Federation of Hard of Hearing People consists of National Associations of/for Hard of Hear-ing and Late-Deafened People, Parents’ Organisations and Professional Organisations.
EFHOH comprises the European members of the International Federation of Hard of Hearing People (IFHOH) and was established in 1993. It has its own board and secretariat. The federation has non-profitable and benevolent aims and it is a non-political and non-sectarian organisation. EFHOH is a general member of the European Disability Forum (EDF). We also work in good co-operation with IFHOH and our official lan-guage is English.
The Board members of the EFHOH carry out their work on an honorary basis.
EFHOH - European Federation of Hard of Hearing People
Hearing Link 27-28 The Waterfront, Eastbourne East Sussex BN23 5UZ Tel/Text: 0300 111 1113 Fax: 01323 471260 SMS: 07526 123255 [email protected]
Royal Patron HRH The Princess Royal Reg Charity No: 264 809 Scotland Charity No: SCO37688
3rd International Hearing Loop Conference
To be held in Eastbourne in the south east of England on 6th & 7th October 2013. Hosted by Hearing Link, the UK hearing loss organisation. An event for everyone interested in Loop Systems & related technology.
Attend Sponsor Exhibit Speak FIND OUT MORE: [email protected]
Eastbourne: a beautiful English coastal town easily accessible by road, rail & air
www.hearinglink.org
Join Us October 2013