Project Management Update

NCI Steering Committee MeetingJuly 30, 2003

Minneapolis, MN

Participating NCI States (FY03)

NDAK

HI

WA

OR

ID

MT

WY

ND

SD

NE

CAUT

NV

AZ

CO

NM

KS

OK

TX

MN

IA

WI

IL IN

MO

AR

MI

OH

KY

TN

MS

LA

AL GA

FL

SC

NC

VAWV

PA

NY

MEVTNH

MD

DC

DE

NJCT

MA

RI

PR

Orange County

Interested Participants…

NCI participation proposed in three Real Choices System Change grants Montana North Dakota Washington D.C.

State of California plans to join after one-year ramp up period

Status of Phase V (FY2003)Data SubmissionType of Data # states in by

6/30/2003% of expected data (FY03)

% of expected data (FY02)

Consumer Survey 17 94% (17/18) 100% (15/15)

Family Survey 13 93% (13/14) 93% (13/14)

Family Guardian Survey 9 90% (9/10) 86% (6/7)

Children Family Survey 5 100% (5/5) 83% (5/6)

Employment Data 8 89% (8/9) 100% (10/10)

Staff Stability Data 4 67% (4/6) 83% (5/6)

Board Representation 4 57% (4/7) 86% (6/7)

Crimes 3 50% (3/6) 100% (4/4)

Restraints 3 43% (3/7) 33% (2/6)

Injuries 2 33% (2/6) 43% (3/7)

Deaths 5 63% (5/8) 71% (5/7)

New Website: www.hsri.org/nci

Highlights…

New “Join NCI” page has updated introductory materials

Reports page re-organized

Presentations posted on separate page

“NCI Tools” State contact info, web links, state reports Separate section on interviewer training Separate section for meeting minutes

Consumer Survey

New survey forms, codebooks, Access file have been posted to websiteOnly minor technical revisions madeSubcommittee will convene over next few months to address more substantial revisionsGoal is to release new forms beginning of calendar year 2004Preliminary report – draft to be distributed this week

Proposal for Data Access

Review proposal from Rebecca Tucker-Smith

Summary of State Profile Responses

How is NCI data used?

Setting goals & strategic planningSetting priorities for quality improvement, incorporate into Quality Management plansBudget requests to Governor and legislatorsHelps shape data reporting systems (e.g., incidents, mortality)Stakeholder advisory committees (Quality Councils) being formed to review results and make recommendations to state agencies

How are results disseminated?

Many states compile reports of state results vs. national results and post on websitesSome states beginning to look at provider level results & share with providersSummaries shared with families who filled out surveys (AZ)Simplified version of Consumer Survey report for self-advocates (VT)

What have other states added?

Family survey questions: Fair hearing/complaint process (RCOC) Service coordinator turnover (RCOC) Early start (0-3) survey (RCOC) Support needs and future planning (CT)

Consumer survey questions: Assistive technology (DE) Case management supplement (WA, HI, MA, IN, WY) Person-centered planning, additional health data (HI) Modified for people with chronic mental illness (IA) Health status supplement (NC)

What areas are states interested in expanding or developing?

Additional health and safety indicatorsQuestions about self-directed servicesInvolvement of self-advocatesRisk managementProvider capacityProvider performance measuresModifications to adapt survey for people with different communication stylesDirect support worker salaries, benefits, credentialingCrisis services

Trend Analysis – Selected Results

Trend Analysis

Beginning to look at trends over past three yearsFive states collected Consumer Survey data annually for three years Connecticut Kentucky North Carolina Pennsylvania Rhode Island

CM helps get what person needs…

90% 88%83% 83%

78% 78%

0%10%20%30%40%50%60%70%80%90%

100%

5 state average All state average

FY00 FY01 FY02

92.8%

93.6%

94.4%

92%

93%

94%

95%

FY00 FY01 FY02

Person is satisfied with home…

0%

20%

40%

60%FY00 FY01 FY02

Roommate Home staff Case manager

Person had input in choosing…

Next Steps

Goals for this year

Develop Core Health Status Supplement Awarded grant from WV DD Council Applied for CDC grant Will incorporate work done by North Carolina

Quarterly e-newsletters for NASDDDS membership

Prepare .ppt templates for states to present results

Finalize revised set of Core Indicators

Summary of State Profiles

Coming soon…

New “Trainer’s Guide” for Consumer Survey, with Powerpoint slides

Indicators and system data protocols will be updated following meeting and posted to website

Data Submission Forms for FY04…please fill out and return!

Hot topics

NCI vs. PES Crosswalk distributed and will be posted Waiting for formal statement from CMS

Using Consumer & Family Survey data to look at outcomes by provider Cautions around sample size and comparisons

among providers (especially small providers) Quality improvement vs. sanctions