Renee OtterWP5 leader

Health Strategies in Europe. Lisbon, 12-13 July 2006. Coleman M.

Health Strategies in Europe. Lisbon, 12-13 July 2006. Coleman M.

EUROCHIP 3 WP5In 2008 no cancer registry in GreeceAim of EUROCHIP: Support Greece polically and scientifically in

starting the CR mainly by exchanging expertise through meetings, phone and mails

Steps undertaken (1)2006 :1st collaboration between EUROCHIP-

2 and KEELPNO13th of june 2008: Central Health Committee

recognized the relevance of a Cancer registry

March 2009: meeting EUROCHIP-3 WP5 & KEELPNO to contribute to the ongoing development of het national CR

Meeting 2009: points discussedThe need for a Document describing all the

issues concerning the CRSources and items to be collectedTraining of CR personnelPilot registry

Update Document:

No official document available on the PB CRBut a national cancer plan has been developed

with 5 main issues and 1 of these is the CR (KEELPNO newsletter March 2011)

Training personnelSeptember 2009: one week training at the

IKNL focussing on the different topicsAttendance to the EUROCOURSE meeting

Pilot registry has never been undertaken

HoweverHCR develop a mission and a purpose:To develop, operate and constantly improve the

national population-based mechanism for registering

all new and metastatic cancer cases throughout

Greece, reported by primary and  secondary sources

of the public and private networks.

To develop, operate and constantly improve the

mechanisms for evaluation, assessment and proper

dissemination of collected data and related results

With the aim of complete cancer case registration and reliable

population-based results, data will be collected by all public

and private hospitals in Greece (140 in total), as instructed by

the recent ministerial decisions (numbers 136216/9-12-2011

and 1010/12-2011).

Data collection will be carried out by health officials, in

particular health visitors, already employed as permanent

hospital (and private clinics) staff that have already been

nominated as ‘cancer registrars’.

Cancer registrars will work closely with the members of

the oncology committees of the public hospitals and

private clinics.

Cancer registrars will be connected directly to and liaise

with the HCR in KEELPNO for continuous training,

education and support.

For the first 2 years, the registrars will be trained on a

regular basis and educational seminars will run for each

health region, roughly every 6 months.

Cancer registration will be made online with strict ground-rules to

secure the privacy and safety of personal and health-sensitive

data;

The necessary tools for registration:

the ‘registration form of malignant or marginally malignant

neoplasm’ available (on EUROCHIP website)

The corresponding software for online data registration

have been developed in co-operation with the KEELPNO experts

committee for HCR.

The aforementioned tools will be tested during the first phase of

the system’s application and improvements made as necessary.

The program officially commenced on February 1st, 2012 where a congress took place in Athens and 80% of the registrars attended.

A workshop was organized to present the notification form and the web-based software. A manual with details for the registration and a manual for the use of the software were handed out to the registrars.

ICD-O-3 has been translated in Greek and is about to be published.

Funding for the first 2 years has been obtained by the National Strategic Reference Network (NSRF) 2007–2013 program.

Proposals to HCRQuality checks next year by IACRKeep in contact with ENCR and IACR

concerning the consultancy requirementsHelpdesk on coding problems available at the

IKNL