Privacy and control
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Transcript of Privacy and control
![Page 1: Privacy and control](https://reader036.fdocuments.us/reader036/viewer/2022062420/55caa768bb61eb35398b4589/html5/thumbnails/1.jpg)
Privacy and Control: Social Media and Medicine
Dr. Anne Marie Cunningham@amcunningham
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Some things are definitely private
http://www.flickr.com/photos/kaptainkobold/4180172507/
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A different degree
http://www.flickr.com/photos/48089670@N00/188815585/sizes/z/in/photostream/
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We want privacy in public too
http://www.flickr.com/photos/ol1/4789711784/ http://www.flickr.com/photos/bernardomayer/5046335091/
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http://www.flickr.com/photos/bepster/120018144/
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Not unreasonable social expectation of privacy- civil inattention
http://www.flickr.com/photos/loungerie/3023085176/
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Seeking publicity
http://www.flickr.com/photos/libaer2002/4529678428/
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Sometimes we are more than happy to be publichttp://www.flickr.com/photos/publiccitizen/5161858599/
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http://www.flickr.com/photos/fallsroad/13240207/
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http://www.flickr.com/photos/buriednexttoyou/5095255302/
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“you are your information”
http://www.flickr.com/photos/verbeeldingskr8/4324902924/
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Digital identity
http://en.wikipedia.org/wiki/File:Internet_dog.jpg
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Is privacy dying?
http://www.flickr.com/photos/alancleaver/4105726930/
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“ Default set to increase social awareness..” Shirky
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http://www.flickr.com/photos/mushon/215270738/
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Surveillance
http://www.flickr.com/photos/pickard/31220953/
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Threats to informational privacy
Gathering
Mining
Exchanging
Matching
Merging
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http://www.flickr.com/photos/21782644@N04/3191535692/
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Digital footprints
http://www.flickr.com/photos/vinothchandar/4282241642/
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Something much more permanent
http://www.flickr.com/photos/oberazzi/974939987/
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Control + Context= PRIVACY danah boyd
http://www.flickr.com/photos/joi/1394510691/
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Harvard health expert calls Facebook 'Wild West‘
http://news.cnet.com/8301-27083_3-20021519-247.html
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New Frontier
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What are the rules?
http://www.flickr.com/photos/litherland/2614531003/
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Confidentiality
“You should not share identifiable information about patients where you can be overheard, for example in a public place or in an internet chat forum.”
http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality_12_16_protecting_information.asp
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Offline
http://www.flickr.com/photos/naiadsspring/143114085/
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Not so easy online.
http://www.flickr.com/photos/sidelong/305305214/
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Social media?
“You must not make recordings for use in publicly accessible media without written permission, whether or not you consider the patient to be identifiable”
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Privacy is dead. Long live privacy!
How can we help patients control privacy?
http://www.flickr.com/photos/horizon/176177318/