Principal Investigators: Anthony P.Macmillan Coxon, PhD

33
January 2004 Sociology, University of Edinburgh 1 Project SIGMA Principal Investigators: Anthony P.Macmillan Coxon, PhD Hon. Professorial Fellow, Graduate School of SPS, University of Edinburgh Thomas J. McManus, FRCOG Consultant, Royal London Hospital Project SIGMA, Edinburgh and Sigma Research (London) together constitute PROJECT SIGMA Researching and Serving the Gay and Bisexual Community for 18 years

description

Principal Investigators: Anthony P.Macmillan Coxon, PhD Hon. Professorial Fellow, Graduate School of SPS, University of Edinburgh Thomas J. McManus, FRCOG Consultant, Royal London Hospital Project SIGMA, Edinburgh and Sigma Research (London) together constitute PROJECT SIGMA. - PowerPoint PPT Presentation

Transcript of Principal Investigators: Anthony P.Macmillan Coxon, PhD

Page 1: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

1

Project SIGMA

Principal Investigators:Anthony P.Macmillan Coxon, PhD

Hon. Professorial Fellow, Graduate School of SPS, University of Edinburgh

Thomas J. McManus, FRCOGConsultant, Royal London Hospital

Project SIGMA, Edinburgh and Sigma Research (London) together constitute

PROJECT SIGMA

Researching and Serving the Gay and Bisexual Community for 18 years

Page 2: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

2

Project SIGMA

What’s

UNIQUE

about……. Sexual Diaries?

byProfessor Tony Macmillan CoxonSSPS, University of Edinburgh, Project Sigma

PARTICULARSPECIAL

Page 3: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

3

Project SIGMA

DIARIES

Only good girls keep diaries. Bad girls don’t have the time.

Tallulah Bankhead (1903 – 1968) US Actress

What is a diary as a rule? A document useful to the person who keeps it, dull to the contemporary who reads it, invaluable to the student, centuries afterwards, who treasures it!

Ellen Terry (1847–1928) British actress,The Story of

My Life, Ch. 14

Page 4: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

4

Project SIGMA

I never travel without my diary. One should always have something sensational to read in the train  Oscar Wilde (1895) The Importance of Being

Earnest

Page 5: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

5

Project SIGMA

0: BACKGROUND From earliest SIGMA pre-tests in 1982, estimates and self-

reports of frequency of sexual behaviours were shown to be [1988b]:

unreliable (test-retest;repeat questions in interview)

retrospection- biased

detail and accuracy of reports dependent (inversely) on elapse time

1-week retrospective “work-back from today” showed even 3-day lapse distorted detail and only gross properties survived

“chunked” (suspicious rounding of numbers and “grossing up”

Page 6: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

6

Project SIGMA

... This led to basic re-thinking & development:

development of a schema/model of “structure of sexual behaviour” [1992] (which determined both form of Sexual Behaviour Inventory used in

interview schedule AND format for sexual diary method)

Page 7: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

7

Project SIGMA

method of sexual diaries (Self-administered; month-long) to make possible ....

reliable, valid, accurate measurement of

detailed sexual behaviour and sequences of behaviour

in a contextual and relational setting.

Reduce retrospection bias; S.D.s are a non (interviewer)-reactive method (cf interpretation of “the condom broke”)

Page 8: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

8

Project SIGMA

COLLECT / elicit (sexual diaries) (Qualitative) Transcribe

ENCODE Tag

SELECT

ANALYSE (Integrate) Analyze(SDA Programs) (Atlas/ti &c)

HOW? Sequence of Using Sexual Diary Methodology

Page 9: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

9

Project SIGMA

Abbreviated example of a one-week of a sexual diary

Page 10: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

10

Project SIGMA

ANALYSIS

By means of a SCHEMASCHEMA common to Project SIGMA Sexual Inventory and Sexual Diaries [JSR 1992]

• The Schema has linguistic analogies:

Sexual Session = SentenceSentenceSexual Act = WordWordSexual Behaviour = Word-stemWord-stem

• Schema puts eliciting format and encoding structure for sexual scripts into 1:1 correspondence

Page 11: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

11

Project SIGMA

SIGMA schema of sexual behaviour

(relevant to sexual transmission of HIV)

Page 12: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

12

Project SIGMA

The SCHEMASCHEMA has a well-defined grammar

…..usually shielded from the enquirers’ eyes…

Formal Grammar of Revised Sexual Diary Code

<session> ::= <act> <act> ' ' < session>

<act> ::= '(' <act> ')' '/' <accomps> <act> '/' <accomps> <partner_label> <session> <act> '&' <act> <modality> <behaviour> <modality> <behaviour> ',' <outcomes>…………/cont.

Page 13: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

13

Project SIGMA

OUTCOME (risk order)Code Destination

N No ejaculation

X Ejaculation `elsewhere'

I On Me (ie: on EGO)

O On Him (ie: on ALTER)

C into a Condom

H In Him (ie: in ALTER)

M In Me (ie: in EGO)

Page 14: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

14

Project SIGMA

PROGRAMNAME

FULL NAME & DESCRIPTION SDA(pp)

BAPN Both-Active-Passive-Neither: Modality (Sexual Role) Analysis by sexual act

5,35

COLLECT

Sexual Session length distribution and Mean length

36

CONDOM Percentage of sessions in which a condom was used

36

COOCUR Co-occurrence of sexual acts in a session. (Different definitions of co-occurrence: act-specific and session specific)

7-8;37

CPSANAL

Co-occurrence (similarity, symmetric), Precedence (asymmetric: how often a precedes b); Successor (asymmetric: how often a succeeds b). Output matrix to Scaling and Clustering programs.

7-8;39

EVER Prevalence (How often a sexual act has ever been done)

39

Page 15: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

15

Project SIGMA

FREQACT Frequency of (sexual) act by modality 40-41

GINI / LORENZ

Frequency (and cumulative) frequency of Individuals who do exactly n acts and of Acts (basis for Lorenz distribution, qv) and Gini Coefficient

Suppl.

KWIC Key-word-in-context: Instances of specified modality/act in context of session, centred and referenced

43

MARKER Analysis of sexual acts that start and end sessions, and of the “destination” of the ejaculate/s, if it/they occur

44-5

MEDPOL Median Polish Tukey Means analysis of 2-way table, defined by SIGMA types

Suppl.

RISK Frequency of type and destination of outcome (ejaculation) by sexual act ( Anal Intercourse, Fellatio or Masturbation; denominator can be N Acts or N Individuals

8, 45-46

SESSTYPE

Session-Type: typology of sessions in terms of: Solo-Quick(1-act) - Role (preponderance of Active or Passive role) - Reciprocated - Other

9, 47

Page 16: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

16

Project SIGMA

WHAT FOR? Applications

Primarily...

Counts of incidence and prevalence of sexual practices & variants, on both {Individual/month} and {Acts/month} bases

In contextual / sequential / vocational environment

Within/Across subgroups (HIV+, condom usage, age, relationship-type ...)

Page 17: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

17

Project SIGMA

For example: Role-separation (“gendering” ( [1993]) Concentration of potential and actual risk

behaviour[1999] Inferring the contextual “rules” of risk [1994b, 1995b] Factors influencing risk behaviour (e.g. substance use;

alcohol) [1994a] Partner-specific sexual behaviour [1988] Differential: location/arenas – home; club; saunas,

Public Sex Environments (cottaging, tea-room) [1996] times – weekends, holidays, at parents

Different subgroups: SM/Leather [1996], Minority Ethnic groups; Young gay men

Page 18: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

18

Project SIGMA

BRIEF EXAMPLE ... Concentration

• Example which combines Individual with Acts data derived from diaries.

• Concentration is akin to Property/Income distribution: What Percent of Individuals “own” what Percent of Risk Activity?

• Inter-relating two distributions cumulatively

• Useful Equality baseline ... where n% of individuals own n% of risk activity ... allows us to see how far actual concentration departs from equal shares ... Gini Coefficient.

Page 19: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

19

Project SIGMA

BRIEF EXAMPLE ... Concentration/cont.

• This needs two cumulative distributions

• ... cross-related to each other

• to produce Lorenz diagram and

• measure of departure from “equal shares”

• and then go on to examine characteristics of the distribution and who the “risk-rich” are

Page 20: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

20

Project SIGMA

(i) No of acts of anal inter-course (to ejaculation)

per/month

(ii)N of men (diary/m) 

(Iii)Percent of men

(iv)Cumulative % of men

(v) N of acts ofanal in-tercourse

(vi)Percentof acts

(vii)Cumulative % acts

1 244 38.9 38.9% 244 9.8% 9.8%

2 136 21.7 60.5 272 11.0 20.8

3 62 9.9 70.4 186 7.5 28.3

4 49 7.8 78.2 196 7.9 36.2

5 34 5.4 83.6 170 6.9 43.1

6 20 3.2 86.8 120 4.8 47.9

7 11 1.8 88.5 77 3.1 51.0

8 13 2.1 90.6 104 4.2 55.2

9 7 1.1 91.7 63 2.5 57.7

10-19 36 5.7 97.5 466 18.8 76.5

20-49 14 2.2 99.7 405 16.3 92.8

50-104 2 (=628)

0.3 100.0 178=2481

7.2 100.0

Distributions of acts of anal intercourse to ejaculation (AIE) per month

Mean = 3.8, Md = 2 acts of AI/month. IQR = 3

Page 21: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

21

Project SIGMA

% of Total Acts of AI per month

(SIGMA diary data)

No. of acts of AI/month

Pe

rc

en

ta

ge

0

10

20

30

40

5 10 15 20 25 30 35 40 45 50 55 60 65 70 75 80

Percentage of acts of AI accounted for by those who do exactly x acts a month

Constituent Distributions of anal intercourse

Page 22: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

22

Project SIGMA

% of Individuals who have exactly X acts of AI/month

(SIGMA diary data)

No. of acts of AI/month

Percen

tag

e

0

5

10

15

20

25

30

35

40

5 10 15 20 25 30 35 40 45 50 55 60 65 70 75 80

Percentage of individuals who do exactly x acts of AI a month

Page 23: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

23

Project SIGMA

Lorenz curve of all acts of Anal Intercourse/month

Page 24: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

24

Project SIGMA

  TYPE OF AIE[1]

  UNPROTECTED WITH CONDOM

SummaryCharacteristics:

ACTIVE 

PASSIVE

ACTIVE 

PASSIVE

NUMBERS INVOLVED:No. of fuck-acts/month  No. of individuals

434 

188 

 

 442 

154 

 

 362 

163 

 

 380 

172 

SUMMARY INFO:Average no. acts/month Dispersion (IQR)

 2.31, Md=1 1

 2.87, Md=1 2

 2.22, Md=1 1

 2.21, Md=1 1

LOW-END CONCENTRATION:% of individuals who do exactly 1 act/month% who do 1 or 2 acts/month

54%

75%

51% 

73%

55%

75%

 

60%  

75%HIGH-END CONC.Top 1/10th individuals account for: (%acts)

  

34%

  

46%

  

32%

  

34%OVERALL CONCENTRATION: (Gini) 

 

0.42 

0.51 

0.42 

0.43

Characteristics of four types of AIE

Page 25: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

25

Project SIGMA

Use & Development of Sexual Diaries in Project SIGMA

Largest

Most extensive (in time, location, age, etc)

Well-documented data set of sexual diaries

With associated special-purpose software

Enabling session-based, act-based or individual-based analysis

Page 26: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

26

Project SIGMA

• 1,661 individuals from

• 25 sites in the UK produced

• 1,963 month-long diaries

consisting of

• 32,142 sexual sessions

Page 27: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

27

Project SIGMA

ARCHIVING : SEXUAL DIARY DATA……Exist in two forms:Natural-language (anonymised)

originals • hard-copy diaries have been anonymised,

indexed, documented and reduced to micro-fiche form;

• now archived and lodged in Wellcome Contemporary Medical Archives Centre, London;

• accessible to any bona fide researcher. • http://www.wellcome.ac.uk/en/library/homlib/

HOMlibCOLspeCMCaccGENmtr.html#P

Page 28: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

28

Project SIGMA

ARCHIVING : SEXUAL DIARY DATA……Machine-readable (flat) database of

diary records • SIGMA Panel members’ (and additional

groups’) diary data in pre-database format (.dmp files) for entry into other database and special purpose analytic software;

• To be lodged at Data Archive, Essex (http://dawww.essex.ac.uk/);

• Plans for dissemination of these data, and wider SIGMA data in NESSTAR environment:

• http://www.nesstar.org/

Page 29: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

29

Project SIGMA

ARCHIVING : SEXUAL DIARY DATA……Cross-linking index

• In preparation to enable original diary, machine readable version and interview data to be cross-accessed;

Special-purpose software• Written to store and analyse these

data (SDA: Sexual Diary Analysis) • These data & programs also available

from Data Archive / Project SIGMA Essex

Page 30: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

30

Project SIGMA

WEBSITE

Contains Documentation, Programs, Sample Data, Diary Form, Publications, Conference OHP’s:

http://www.sigmadiaries.com/

Page 31: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

31

Project SIGMA

CONCLUSIONS

Sexual Diaries….. At the humblest level, offer a markedly

different, non-reactive contrast to SAQ/interview data on sexual behaviour

data are more like a “trace” than an account; the significant data are “read-off” the sexual accounts, not estimated by the respondent

relate both acts and individuals and allow their integration ( e.g. concentration)

Page 32: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

32

Project SIGMA

CONCLUSIONSSexual Diaries…..

can be interpreted not only as scripts, but linguistically as a simple code (language) and as free text, thus making semantic and grammatical analysis possible ( e.g. KWIC, co-occurr)

allow development and definition of higher-level categories (risk; “oriented risk”, power session...)

allow definition of rules, patterns sequences of any complexity, which can be defined, retrieved, & tested

Page 33: Principal Investigators: Anthony P.Macmillan Coxon, PhD

January 2004 Sociology, University of Edinburgh

33

Project SIGMA

WEBSITE

Contains Documentation, Programs, Sample Data, Diary Form, Publications, Conference OHP’s:

http://www.sigmadiaries.com/