Poverty & Social Poverty & Social InclusionInclusion

A CommunityA Community--University Research University Research Alliance (CURA)Alliance (CURA)

AgendaAgenda

9:00am 9:00am ––

WelcomeWelcome9:15am 9:15am ––

Overview of ProjectOverview of Project

9:45am 9:45am ––

A History of PartnershipsA History of Partnerships10:00am 10:00am ––

Your Place in this PlanYour Place in this Plan

10:15am 10:15am ––

BreakBreak10:30am 10:30am ––

Conversational CafConversational Caféé

11:00am 11:00am ––

Book PresentationsBook Presentations11:10am 11:10am ––

Cake cutting celebrationCake cutting celebration

Research TeamResearch Team••

Dr. Cheryl Dr. Cheryl ForchukForchuk

(UWO, LHRI)(UWO, LHRI)

••

Susan Susan OuseleyOuseley

(Can(Can--Voice)Voice)••

Betty Edwards (CanBetty Edwards (Can--Voice)Voice)

••

Stewart Perry (Canadian Centre for Community Renewal)Stewart Perry (Canadian Centre for Community Renewal)••

Mike Mike GodinGodin

(CMHA(CMHA--London)London)

••

SheelaSheela

Subramanian (CMHASubramanian (CMHA--Ontario)Ontario)••

Mo Mo JengJeng

(City of London)(City of London)

••

Richard Richard CsiernikCsiernik

(King(King’’s University College)s University College)••

Peter Hall (Simon Fraser University)Peter Hall (Simon Fraser University)

••

Michael Michael BuzzelliBuzzelli

(UWO)(UWO)••

Abraham Rudnick (UWO)Abraham Rudnick (UWO)

••

Mark Mark SpeechleySpeechley

(UWO)(UWO)••

Benita Cohen (University of Manitoba)Benita Cohen (University of Manitoba)

••

Jeffrey Hoch (University of Toronto)Jeffrey Hoch (University of Toronto)

Background: Poverty and Mental Background: Poverty and Mental HealthHealth

••

In Canada, 27% of psychiatric survivors live in poverty, In Canada, 27% of psychiatric survivors live in poverty, compared to 12.6% of noncompared to 12.6% of non--disabled personsdisabled persons

••

A single person living on ODSP receives less than A single person living on ODSP receives less than $12,000 per year (63% of poverty line)$12,000 per year (63% of poverty line)

••

3 relational patterns between poverty and MH:3 relational patterns between poverty and MH:––

‘‘AdditiveAdditive’’

relationship (povertyrelationship (poverty’’s adverse effects contribute to s adverse effects contribute to

the poor functioning caused by illness)the poor functioning caused by illness)––

‘‘InteractiveInteractive’’

relationship (povertyrelationship (poverty’’s potentially negative s potentially negative

effects are intensified by presence of other illness factors)effects are intensified by presence of other illness factors)––

‘‘TransformingTransforming’’

relationship (poverty and illnessrelationship (poverty and illness’’

interrelation interrelation

can result in each being different than when occurring can result in each being different than when occurring separately)separately)

Background: Social InclusionBackground: Social Inclusion

••

Individuals with psychiatric disorders experience Individuals with psychiatric disorders experience discrimination in the housing market, employment and discrimination in the housing market, employment and social relationshipssocial relationships

••

Loss of connections and housing are more related to Loss of connections and housing are more related to societal responses to psychiatric illness than the illness societal responses to psychiatric illness than the illness itselfitself

••

Social exclusion and discrimination for this population Social exclusion and discrimination for this population exacerbates the problems of povertyexacerbates the problems of poverty

••

Greater impetus on social inclusion for psychiatric Greater impetus on social inclusion for psychiatric survivors is still required to overcome the exclusionary survivors is still required to overcome the exclusionary nature of current social policiesnature of current social policies

Current Project: Purpose and GoalsCurrent Project: Purpose and Goals

••

Overall purpose:Overall purpose:––

To better understand the interTo better understand the inter--relationships between poverty relationships between poverty and social inclusion for psychiatric survivorsand social inclusion for psychiatric survivors

––

To engender communityTo engender community--based initiatives to promote their based initiatives to promote their effectseffects

––

To identify and explore how psychiatric survivors can To identify and explore how psychiatric survivors can overcome existing marginalization and social disadvantageovercome existing marginalization and social disadvantage

––

To develop concrete data with community partners in order To develop concrete data with community partners in order to increase our capacity to evaluate successful policiesto increase our capacity to evaluate successful policies

••

Timeline: We have received a 5Timeline: We have received a 5--year grant from SSHRC year grant from SSHRC (March 2011 (March 2011 ––

February 2016)February 2016)

Components to ProjectComponents to Project

••

This CURA will consist of 3 components:This CURA will consist of 3 components:1. Research 1. Research 2. Training (e.g. in the context of research 2. Training (e.g. in the context of research

projects, activities credited as part of projects, activities credited as part of coursework, etc.)coursework, etc.)

3. Community Capacity Development (e.g. 3. Community Capacity Development (e.g. workshops, seminars, publications, public workshops, seminars, publications, public lectures, etc.)lectures, etc.)

Research: Research: Quantitative ComponentQuantitative Component

••

380 individual interviews (190 men, 190 women)380 individual interviews (190 men, 190 women)––

Individuals will be contacted annually to complete a total of 4 Individuals will be contacted annually to complete a total of 4 interviewsinterviews

––

Final expected (hoped for?) sample: 300 (Interviewing 380 in Final expected (hoped for?) sample: 300 (Interviewing 380 in first year to account for potential drop out rates)first year to account for potential drop out rates)

••

Representative of housing types (homeless/shelter, Representative of housing types (homeless/shelter, group home, independent living) and employment group home, independent living) and employment status as a proxy for a variety of economic situationsstatus as a proxy for a variety of economic situations

••

22--hour structured interview: quality of life, housing hour structured interview: quality of life, housing history and preferences, community integration, social history and preferences, community integration, social support, experience of stigma, wellsupport, experience of stigma, well--being, service usebeing, service use

Research:Research: Qualitative ComponentQualitative Component

••

OpenOpen--ended questions in individual interviews ended questions in individual interviews (experience of poverty, experience of stigma, (experience of poverty, experience of stigma, fairness of system)fairness of system)

••

Focus groups with key stakeholders:Focus groups with key stakeholders:––

Psychiatric survivorsPsychiatric survivors

––

Family membersFamily members––

Social service providersSocial service providers

––

EmployersEmployers––

Policy decisionPolicy decision--makersmakers

Research:Research: Policy and Ethical AnalysisPolicy and Ethical Analysis

••

Policy analysis will address policy implications that Policy analysis will address policy implications that arise from the issues identified in the interviewsarise from the issues identified in the interviews

••

Policy documents related to income, employment Policy documents related to income, employment and income support will be collectedand income support will be collected

••

The projectThe project’’s empirical findings will be compared to s empirical findings will be compared to ethical standards derived from welfare theory and ethical standards derived from welfare theory and accepted ethical principles of service providersaccepted ethical principles of service providers

Training ComponentTraining Component

••

Multiple opportunities for university students of all Multiple opportunities for university students of all levels to participate in CURAlevels to participate in CURA

••

Represented disciplines: Planning, Law, Nursing, Social Represented disciplines: Planning, Law, Nursing, Social Work, Philosophy, Psychology and PsychiatryWork, Philosophy, Psychology and Psychiatry––

Research assistant positions and practice placements will be Research assistant positions and practice placements will be made available to students from all of these disciplinesmade available to students from all of these disciplines

••

A new graduate level interdisciplinary course will be A new graduate level interdisciplinary course will be developeddeveloped

••

Employment for students to assist in data collection Employment for students to assist in data collection will be made available every summer of the project (6 will be made available every summer of the project (6 employed currently)employed currently)

••

Opportunities for community engagementOpportunities for community engagement

Pulling it TogetherPulling it Together

••

Community projects Community projects ––

specific needs and specific needs and solutionssolutions

••

Annual community forums Annual community forums ––

help identify help identify emerging issues, feedback on research in emerging issues, feedback on research in process, community capacity building, engaging process, community capacity building, engaging publicpublic

Expected OutcomesExpected Outcomes

••

Increased understanding of poverty as experienced by Increased understanding of poverty as experienced by psychiatric survivors and the role played by inclusion psychiatric survivors and the role played by inclusion and exclusionand exclusion

••

New universityNew university--level curricula and positions for level curricula and positions for studentsstudents

••

CommunityCommunity--based projects addressing poverty and based projects addressing poverty and social inclusion on individual, community and societal social inclusion on individual, community and societal levelslevels

••

Critical assessment of current policies and Critical assessment of current policies and recommendations for social inclusion strategiesrecommendations for social inclusion strategies

ContactContact••

Academic Director: Cheryl Academic Director: Cheryl ForchukForchuk––

UWO/LHRIUWO/LHRI

––

Phone: (519) 679Phone: (519) 679--2111 ext. 865912111 ext. 86591––

EE--mail: mail: cforchuk@uwo.cacforchuk@uwo.ca

••

Community CoCommunity Co--Directors: Susan Directors: Susan OuseleyOuseley

and and Betty EdwardsBetty Edwards––

CanCan--VoiceVoice

––

Phone: (519) 434Phone: (519) 434--83038303––

EE--mail: mail: canvoice@gtn.netcanvoice@gtn.net

ContactContact

••

Project webpage:Project webpage:––

http://publish.uwo.ca/~cforchuk/cura2/http://publish.uwo.ca/~cforchuk/cura2/

••

CURA office:CURA office:––

London Health Sciences London Health Sciences ––

ResearchResearch

––

South Street Hospital, Room E208 NRSouth Street Hospital, Room E208 NR––

Phone: (519) 685Phone: (519) 685--8500 ext. 758968500 ext. 75896

––

Project Coordinator: Amanda Kurtz Project Coordinator: Amanda Kurtz (email: (email: Amanda.Kurtz@lhsc.on.caAmanda.Kurtz@lhsc.on.ca))

A History of PartnershipsA History of Partnerships

Partners from Previous CURAPartners from Previous CURA

••

Alcohol and Drug Services of Thames ValleyAlcohol and Drug Services of Thames Valley••

At^LohsaAt^Lohsa

Native Family Healing ServicesNative Family Healing Services

••

CanCan--VoiceVoice••

City of London City of London

••

CMHACMHA--LondonLondon••

Concordia UniversityConcordia University

••

Crouch Centre Community ResourcesCrouch Centre Community Resources••

KingKing’’s University Colleges University College

••

Lawson Health Research Institute Lawson Health Research Institute

Partners from Previous CURAPartners from Previous CURA

••

London & Middlesex Housing CorporationLondon & Middlesex Housing Corporation••

London London InterCommunityInterCommunity

Health CentreHealth Centre

••

London Mental Health Crisis ServicesLondon Mental Health Crisis Services••

London Police ServicesLondon Police Services

••

MargaretMargaret’’s Haven Nons Haven Non--Profit HousingProfit Housing••

Ministry of Health and Long Term CareMinistry of Health and Long Term Care

••

Mission Services of LondonMission Services of London••

Ontario WorksOntario Works

Partners from Previous CURAPartners from Previous CURA

••

St. JosephSt. Joseph’’s Health Cares Health Care••

Street ConnectionStreet Connection

••

The Salvation ArmyThe Salvation Army--

Centre of HopeCentre of Hope••

The Salvation Army The Salvation Army ––

MenMen’’s Hostels Hostel

••

University of WaterlooUniversity of Waterloo••

University of Western OntarioUniversity of Western Ontario

••

WOTCH (Western Ontario Therapeutic Community WOTCH (Western Ontario Therapeutic Community Hostel)Hostel)

••

Wilfred Laurier UniversityWilfred Laurier University••

WomenWomen’’s Community Houses Community House

PartnershipPartnership

••

We can do a lot more together than separately!We can do a lot more together than separately!••

Our partnerships are a precious resource that we Our partnerships are a precious resource that we need to treasure and continue to build uponneed to treasure and continue to build upon

Partners for Current CURAPartners for Current CURA••

Partners Involved in this GrantPartners Involved in this Grant––

CMHA (Canadian Mental Health Association) LondonCMHA (Canadian Mental Health Association) London

––

CMHACMHA--OntarioOntario––

CMHACMHA--SudburySudbury

––

CanCan--VoiceVoice––

Centre for Research and Education on Violence against Women Centre for Research and Education on Violence against Women and Childrenand Children

––

City of London, Community Services DepartmentCity of London, Community Services Department––

Lawson Health Research InstituteLawson Health Research Institute

––

London London InterCommunityInterCommunity

Health CentreHealth Centre––

MerryMountMerryMount

ChildrenChildren’’s Centres Centre

––

Mission Services of LondonMission Services of London

Partners for Current CURAPartners for Current CURA••

Partners Involved in this GrantPartners Involved in this Grant––

Neighborhood Legal ServicesNeighborhood Legal Services

––

Raising the RoofRaising the Roof––

Regional Mental Health CentreRegional Mental Health Centre

––

The Salvation ArmyThe Salvation Army––

University of Manitoba University of Manitoba ––

NursingNursing

––

WesternWestern––

WOTCH (Western ON Therapeutic Community Hostel)WOTCH (Western ON Therapeutic Community Hostel)

––

WomenWomen’’s Community Houses Community House––

Youth Opportunities UnlimitedYouth Opportunities Unlimited

Spotlight on: CanSpotlight on: Can--VoiceVoice

An example of one agency An example of one agency demonstrating a rich history of demonstrating a rich history of

research leadership & participatory research leadership & participatory rolesroles

Research History: CanResearch History: Can--VoiceVoice

••

Mid 1990sMid 1990s: Can: Can--Voice began relationship with Voice began relationship with Dr. Dr. ForchukForchuk

when they were invited to when they were invited to

participate in discussion for the next stages of Dr. participate in discussion for the next stages of Dr. ForchukForchuk’’ss

““BridgesBridges””

pilot projectpilot project

––

This involved meeting with other consumerThis involved meeting with other consumer--survivor survivor groupsgroups

••

19981998: 3: 3--year grant for year grant for ““Therapeutic Relationships Therapeutic Relationships from Hospital to Communityfrom Hospital to Community””––

CanCan--Voice had lead role for London peer supportVoice had lead role for London peer support

Research History: CanResearch History: Can--VoiceVoice

••

19991999: United Way of London and Middlesex : United Way of London and Middlesex funded a seed grant to explore a Connections funded a seed grant to explore a Connections program with Dr. program with Dr. ForchukForchuk

••

April 2000April 2000--20032003: : ““ConnectionsConnections””––

Trillium Grant for $655,000Trillium Grant for $655,000

––

CanCan--Voice was the lead agency for this project & Sue Voice was the lead agency for this project & Sue OuseleyOuseley

ED was the PIED was the PI

––

Buddies were provided for individuals being Buddies were provided for individuals being discharged from the hospital into the communitydischarged from the hospital into the community

––

Involved 11 Involved 11 CSIsCSIs

from Windsor to Lindseyfrom Windsor to Lindsey

Research History: CanResearch History: Can--VoiceVoice••

20002000--20062006: CURA1: Mental Health and Housing: CURA1: Mental Health and Housing––

MargaretMargaret’’s Haven started as the lead community s Haven started as the lead community agency for this project agency for this project

––

CanCan--Voice became the lead for the final 2 years of Voice became the lead for the final 2 years of project (2005project (2005--2006) (S. 2006) (S. OuseleyOuseley

& B. Edwards co & B. Edwards co

community directors)community directors)••

20032003--20062006: Can: Can--Voice Executive Director Sue Voice Executive Director Sue OuseleyOuseley

was cowas co--investigator on CIHR grant investigator on CIHR grant

focusing on knowledge transfer related to focusing on knowledge transfer related to transitional dischargetransitional discharge––

40 hospital wards throughout Ontario and 26 40 hospital wards throughout Ontario and 26 consumer groups involvedconsumer groups involved

Research History: CanResearch History: Can--VoiceVoice

••

20032003--20042004: CIHR Travel Grant: CIHR Travel Grant––

CanCan--Voice ED Sue Voice ED Sue OuseleyOuseley

was part of research team that was part of research team that

traveled to Europe to assist in international development of traveled to Europe to assist in international development of transitional discharge model (Finland, Estonia, Scotland)transitional discharge model (Finland, Estonia, Scotland)

••

20062006--20082008: : ““CIPHERCIPHER--MH: Creating MH: Creating InterprofessionalInterprofessional Collaborative Teams for Comprehensive Mental Health Collaborative Teams for Comprehensive Mental Health

ServicesServices””––

Helped 15 professions learn to work collaboratively with Helped 15 professions learn to work collaboratively with individuals with mental health challengesindividuals with mental health challenges

––

Workshops were main teaching methodWorkshops were main teaching method––

--Betty Edwards, Walter Betty Edwards, Walter OsokaOsoka

participated on steering participated on steering

committee and several subcommittees, 12 Cancommittee and several subcommittees, 12 Can--Voice Voice members were regular participantsmembers were regular participants

Research History: CanResearch History: Can--VoiceVoice

••

20112011--20162016: CURA2: Poverty & Social Inclusion: CURA2: Poverty & Social Inclusion––

CanCan--Voice is the community coVoice is the community co--chair for this projectchair for this project

••

CanCan--Voice has also participated in many other Voice has also participated in many other studies with Dr. studies with Dr. ForchukForchuk. Over the last 14 years . Over the last 14 years these have included (to name a few):these have included (to name a few):––

Preventing Discharge to No Fixed Address (pilot, Preventing Discharge to No Fixed Address (pilot, acute care, tertiary care and ER phases)acute care, tertiary care and ER phases)

––

Youth Matters in LondonYouth Matters in London––

Poverty and Mental HealthPoverty and Mental Health

A History of PartnershipA History of Partnership

••

CanCan--Voice provides one community example of the Voice provides one community example of the growth that can occur with longgrowth that can occur with long--standing relationshipsstanding relationships

••

Example demonstrates the greater potential by working Example demonstrates the greater potential by working longitudinally on linked projectslongitudinally on linked projects

••

We have many other strong examples in our We have many other strong examples in our community community ––

the continuity between CURA1 & the continuity between CURA1 &

CURA2 is a testament to thisCURA2 is a testament to this••

We are all interested in meaningful partnership & We are all interested in meaningful partnership & involvement involvement ––

not tokenism or simply endorsementnot tokenism or simply endorsement

Your Place in this PlanYour Place in this Plan

Your Place in this Plan: Your Place in this Plan: Subcommittee OpportunitiesSubcommittee Opportunities

Break & Conversational Break & Conversational CafCaféé

Feedback from Feedback from Conversational CafConversational Caféé

Book PresentationBook Presentation

••

Hot off the pressHot off the press••

Collection of articles Collection of articles from our previous from our previous CURACURA