Positive Interest October 2012

Supporting people living with HIV or Hepatitis C in Scotland

October 2012

Waverley Care, 3 Mansfield Place, Edinburgh EH3 6NB Telephone: 0131 556 9710 Email: [email protected]

www.waverleycare.org

Scottish Charity No. SC036500 Company Limited by Guarantee No. 253043

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In this issue…

3 New Glasgow Office

3 Did you know? Facts & Figures

4 International AIDS Conference

5 Meet Mike Redgrave our Community Outreach Manager

6 Focus on: Hepatitis C Support

7 Meet Jim Wastle We introduce you to one of our dedicated volunteers

8 Festival Roundup

9 Famous Faces Paul Merton & Sandi Toksvig support us at the Fringe

11 Christmas Cards Order by post or online

Welcome

Sponsored Swim

Scottish Charity No. SC036500

From 5.30pm at Drumbrae Leisure Centre, EdinburghFor more information, call Jane on 0131 556 9710, or email [email protected]

Sunday 18th November 2012

event in support of

For tickets contact Waverley Care on 0131 556 9710 or [email protected]

Broughton St, EdinburghThursday 29th November7.30pm

Full ticket price goes toWaverley Care

Enjoy a sumptuous authentic Italian 3-course meal, including a glass of prosecco ~ £24.50

Front cover image: Hilary Clinton at the International AIDS Conference © IAS/Ryan Rayburn – Commercialimage.net

When I last wrote we were looking forward to London 2012, and what an Olympics and Paralympics it was! New household names were created every day, with athletes such as Greg Rutherford, Nicola Adams and Ellie Simmonds, whilst more established names such as Sir Chris Hoy didn’t let us down! Who’d have thought, as well, that our very own Andy Murray would win gold? A fantastic achievement by Team GB.

But there was another British team that was outstanding: the Games Makers. International praise was poured onto this team of volunteers who were instrumental in making the Games the success they were.

The dedication, cheerfulness and enthusiasm that they exhibited is something we see on a daily basis from our own volunteers here at Waverley Care. Without our volunteers, we simply could not offer the vast array of services that we do.

For the 23 years of Waverley Care providing support, people have donated their time, passion and skills to make a huge difference to the lives of those living with HIV or Hepatitis C in Scotland. I’d like to extend the praise poured onto the Olympic volunteers to our many volunteers who make tartan ribbons, shake collecting buckets, carry out complementary therapies, and answer the phones, amongst the many tasks undertaken. Thank you for helping to make Waverley Care the success it is.

You can get to know more about one of our many volunteers, Jim, on page 7.

I hope you enjoy Positive Interest.

With warmest wishes

Grant Sugden, Director

Welcome

Sunday 26th May 2013Raise money for people living with HIV or Hep C in Scotland. Half, full and team relay places available now. Help us make this the best year yet!

For more information, call 0131 556 9710 or [email protected]

Positive Interest October 20122

News

New Glasgow OfficeWe’re wishing ‘Happy New Home’ to our staff, volunteers and service users in Glasgow as they settle into new premises.

The services based in our new office are:• African Health Project – Glasgow and

Lanarkshire

• Argyll & Bute HIV Support and Sexual Health Promotion

• Hepatitis C Education and Support – Greater Glasgow and Clyde

The move to the new premises is a very exciting one as it offers more space for support groups, training courses and one-to-one support. Twelve members of staff will use the office as a base for their support, outreach and education work.

Pop by to say ‘hello’ if you’re in the area, and thanks to the Robertson Trust for making this move possible.

Find us at 12 Queens Crescent, G4 9AS. Tel: 0141 332 2520 [email protected]

1% of the Scottish population is

living with HIV or Hepatitis C (1)

Approximately 25% of people

diagnosed with HIV in 2011 were aged 45 or over (2)

It is estimated that 30% of people living with

Hepatitis C in Scotland are undiagnosed (3)Sources

One in 10 UK adults incorrectly

believe that HIV can be transmitted through spitting (4)

Did you know?

1,2 3-Health Protection Scotland4 – National AIDS Trust HIV Public Knowledge & Attitudes 2011

October 2012 Positive Interest 3

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Service User InvolvementPeople who are living with HIV or Hepatitis C and use our services have always had a say in changes at Waverley Care but we are currently reviewing and formalising how we involve our service users. We want to ensure they have a clear voice in the organisation and its direction.

Led by our Director, Grant Sugden, a forum of staff and service users are developing a service user engagement policy. A launch event was held at Waverley Care Milestone in the summer and, following this, new initiatives are already being established, such as a once-a-month cafe run by service users for their peers at Milestone.

It is anticipated that the policy will be completed and in place by the end of the year.

International AIDS ConferenceThe 14th International AIDS Conference was held in Washington DC from July 22 – 27, 2012. Held every two years, it is the world’s largest and most highly attended conference on HIV and AIDS.

This biennial conference gathers all those working in the HIV sector, people living with HIV and policy makers together. Scientific knowledge and developments are shared alongside hearing about best practice in prevention campaigns, and support models.

Speakers included Elton John, founder of the Elton John AIDS Foundation, and Margaret Chan, Director-General of the World Health Organisation. On the opening day the US Secretary of State, Hilary Clinton, addressed the conference. In a speech that received a standing ovation, she welcomed delegates back to the US as this was the first conference since President Obama overturned the 22 year ban on anyone living with HIV entering the states.

Waverley Care’s Director, Grant Sugden attended the conference alongside Waverley Care Trustee, Brian West.

Key topics discussed that were relevant to Scotland, were:

• HIV and ageing – the implications for people living with HIV as more and more people move into their 50s, 60s and 70s;

• Treatment as prevention – new research indicates that getting more people on to HIV treatment earlier will help to prevent new infections;

• Developing a cure for HIV – despite being more than 10 years away from a cure, scientific research is ongoing and making steps towards what would be a world-changing event.

Visit www.waverleycare.org/news for more from Grant and Brian at the conference.


Q: Why did you choose to work for Waverley Care? A: I have personal experience of HIV and have seen the way it has been stigmatised and wanted to be part of an organisation that fights this stigma and support people to live a fuller life. I also knew someone who had used Waverley Care.

Q: What did you do before you worked at Waverley Care?A: After leaving school I started working in engineering and did that for 28 years as a draughtsman and a design engineer. I worked in Scotland and then in South Africa for 12 years. I was made redundant and so decided to change my career. I went to college to study social care. My job before Waverley Care was as a Senior Support Worker working with young people between the ages of 16 and 19. The young people had various issues and high emotional and development needs.

Introducing… Mike Redgrave

Mike is our Community Outreach and Support Team Leader. His team encourages people to engage

in life in their community by offering individual support and involving people in group activities.

Q: When not working, what do you spend your time doing?A: Most of my time is taken up by the family; I have a son, Sean (12), and a daughter, Gemma (9), who want to do everything. I spend more time at football training than in the house. I enjoy cooking and this relaxes me. We try to get away at the weekend as a family for a walk and a picnic – anything to get the kids away from the TV.

Q: What is your favourite food & drink?A: That’s an easy one – curry and a Guinness, but not together. I like to buy curry now and then, but prefer to make my own. My wife keeps asking me to stop buying cook books.

Q: What are you currently reading?A: ‘All Quiet on the Western Front’ by Erich Maria Remarque; it is the classic anti-war book. I think this is the fourth time I have read it and

still find new things in it to make me think.

Q: Where was your last holiday?A: Sharm el-Sheikh, in Eygpt, with the family. It was our first family holiday abroad, and it was fantastic!

Q: Who inspires you?A: Anyone who overcomes adversity and succeeds, recently this has been the Paralympic athletes. I am also inspired by Nelson Mandela, who has been true to his beliefs all his life. I was fortunate enough to be in South Africa when he was released and became President.

Q: Where do you see yourself in 10 years time?A: Always a tricky question, but I will be nearly 64 and I am sure I will be planning my retirement. I hope still to be working in a care environment and trying to help make a positive difference in people’s lives.

Staff Profile

Ensure your support lives on…

Please remember Waverley Care in your will

Visit www.waverleycare.org/legacies for more information or contact Karen on 0131 556 9710

World AIDS Day Events Guide

Find out what’s happening in Scotland this World AIDS Day

Visit www.hivscotland.com or scan this QR code

Waverley CarePositive Help

Gay Men’s Health

HIV ScotlandChurch of Scotland HIV Programme

THT

Impact AIDS

Students Stop AIDS


DanielDaniel grew up in poverty and fell into drug use as a teenager, spending much of his youth in and out of prison. It was in his 30s that he was diagnosed with Hepatitis C.

Daniel was referred to Waverley Care by a care worker. In recent years his health had deteriorated so he needed assistance with day to day living, only leaving his flat for hospital appointments. When our Befriending Coordinator, Annette, met Daniel, he had very poor mental health, was unable to make eye contact and felt very isolated. His mum had recently died and her bereavement was the catalyst for him to seek help. He remembered her being disappointed in him and wanted to make her proud by getting his life back on track.

Annette introduced Daniel to volunteer befriender, Richard, to help him get out more and cope with his forthcoming Hepatitis C treatment. Daniel’s treatment took a year to complete and he had to deal with difficult side effects but Annette and Richard were there for him. He completed his treatment, and is now free from the Hep C virus.

Since then, Richard has continued to spend time with Daniel, both socialising and helping Daniel to learn new skills. The change in Daniel has been amazing. He is spending time with family again and has made new friends through his new hobbies of going to the gym and cycling. His next aim is to become a befriender himself to help other people in the same way that Richard has helped him.

Focus on Hepatitis C SupportAfter years of supporting people who were living with both HIV and Hepatitis C, Waverley Care now has a wide range of Hepatitis C specific services. It was in 2009 that we launched our first Hepatitis C specific service in the Lothians: Hepatitis C Befriending.As a result of their 2006 Hepatitis C Action Plan, the Scottish Government was keen to encourage more people to begin Hepatitis C treatment. Unlike HIV, Hepatitis C treatments can clear the virus from people’s systems. With funding in place, our new service launched working to firstly help people begin treatment clean of drugs or alcohol. Secondly, it worked to support them through what was a tough 6 month or 1 year treatment, which had a 20% chance of being unsuccessful.

Now, 3 years on, the service is supporting 40 people and more and more people across Scotland living with Hepatitis C are accessing our other support services, such as the Children and Families Project, our Self Management Programme and the Advice and Information Service.

July this year saw us develop our support further by launching dedicated Hepatitis C services into the Greater Glasgow and Clyde NHS region. Focusing on education, prevention and support, our services in the west work with ‘at risk’ communities to help prevent Hepatitis C infections and encourage testing. The services also support those already diagnosed to start treatment, and get through it. Through Befriending, Life Coaching Programmes, Peer Support and One-to-One Support the services meet a wide range of needs. The benefits for those using the services include:

• the confidence to go for a Hepatitis C test and knowledge of where to go

• improved physical and emotional health

• being able to consider starting and sustaining Hepatitis C treatment

• completing Hepatitis C treatment and being free from the virus.

For more information on our Hepatitis C services, visit www.waverleycare.org.

Focus on...

Training for health professionals is part of our new Hep C services in the west.


Volunteer Profile

Volunteer ProfileVolunteer Jim Wastle is a regular volunteer with Waverley Care, helping out on the reception at our Mansfield Place office in Edinburgh and also doing odd jobs at our Milestone respite unit. He

kindly answered a few of our questions.

Q: When and why did you first become involved with Waverley Care?

A: I’m quite a new recruit to Waverley Care – this is just my second year. I’d retired and was enjoying the freedom but I’d always intended volunteering at some point. I checked out a few organisations I had reasons to be particularly interested in – Waverley Care, because of knowing people with, or affected by, HIV. I approached Waverley Care because they seemed absolutely clear about what they stood for and what they were aiming to achieve.

Q: What motivates you to volunteer for Waverley Care?A: I find it very rewarding to be playing a small part in the work of such a great organisation. I like the fact that the focus is always exactly where it should be – on the people who use the services. I enjoy meeting such a wide range of interesting people, with different ages, backgrounds and life experiences; and I’ve found everyone – service users, staff and other volunteers – so friendly.

Q: Why might you encourage other people to support Waverley Care?

A: Firstly, because it provides services and support not available elsewhere, and it does so efficiently and in a

caring and non-judgmental way, encouraging the active participation of service users themselves. And secondly, because it’s fun! Volunteers are welcomed, supported and valued. There are so many interesting opportunities available that you find you have to limit yourself.

Q: What are you currently reading?A: I’m re-reading a couple of books I first enjoyed many years ago – ‘A Landing on the Sun’ by Michael Frayn is beautifully written – witty, funny and moving; and the complete ‘Mapp and Lucia’ stories by E F Benson, which I’ve read many times and never tire of ... I suspect that everyone has some Mapps and Lucias in their circle of acquaintances!

Q:What is your favourite film?A: ‘Casablanca’, ‘The Maltese Falcon’, ‘Double Indemnity’, ‘Swing Time’… you get the picture. I went to a cinema screening of Casablanca recently, afraid that it would be so familiar that it would be risible… but I needn’t have worried – it still packed the same emotional punch.

Q: Who inspires you?A: I wish I could just name a politician (Labour, of course) who had a clear vision for society and the determination and charisma to carry it through, in spite of the PR people and the opinion-polls. Until one comes along, though – and I’m not giving up hope – I find real inspiration nearer to home: people like a long-time friend and ex-colleague who has always stuck by her principles and has always shown unfailing loyalty to, and care for, her friends; (I won’t name her and, if she were ever to read this, I doubt that she’d think it referred to her!).

Can you help replenish our stocks?Contact Jane on 0131 556 9710 or [email protected] for a starter pack

Ribbon Makers NeededOur tartan ribbons help raise awareness and much needed funds for our services.

Online bookings open Monday 10th December at www.waverleycare.org

Saturday 23rd February 2013

Come & SingCarl Orff’s

Saturday 23rd February 2013

Conducted by Stephen Doughty

Online bookings open Monday 10th December at www.waverleycare.org

St Cuthbert’s Church, Lothian Rd, Edinburgh


The Edinburgh Festival has always been a time for inclusivity and expression; a message that resonates with our work nurturing a Scottish society free from stigma and prejudice. For 21 years we have rallied support at the world’s biggest arts festival.

£34,331.23 was collected by our green T-shirt wearing bucket collectors in the Pleasance Courtyard. In our 21st birthday year, we’re delighted that this year’s income takes the total raised over the 21 years to over £¼million. Fantastic!

Fabulous benefit shows were performed by David O’Docherty, Austentatious, Savage Theatre Company and Grassroots Theatre Company whilst Rhod Gilbert kindly asked us to collect donations after his shows.

Wonderful regular festival highlights, the Tartan Ribbon Comedy Benefit at the Pleasance and the Off the Kerb Comedy Gala at the Festival Theatre, played to sold out audiences. If you didn’t see the Comedy Gala, catch it on BBC3 as Edinburgh Comedy Fest Live!

Performing their fifth show on the Fringe for Waverley Care, the wonderful Loud & Proud Choir played to a sold out audience at Stockbridge Parish Church. Performers galore took to the stage every Friday and Sunday during August at the fantastic New Town Bar FUNdraisers. Again they played to packed out audiences.

Finally, Edinburgh University student radio Fresh Fringe, with the help of Pure Gym, challenged themselves to a 24 hour broadcast and succeeded. The picture above proves they were still standing at the end. A fantastic achievement!

Thanks to Arran Whisky, Belhaven, Barrs, Borders Biscuits, Drambuie, Highland Park, Innis & Gunn, Patersons, Stoats, T&G Woodware, and Walkers for sponsoring our Comedy Gala goodie bags.

Thank you to everyone who helped organise events, attended events, sponsored and donated. We’re so very very grateful for all your support.

What an August it was in Edinburgh! Over £100,000 was raised in one delightfully busy month.

Fundraising

Edinburgh Festival Fringe(above) Christian Illingworth, Lily Higham & Finlay Niven from Fresh Air Radio looking remarkably fresh after their 24hr show.


2012 marks the 21st year of the fabulous relationship between the Pleasance Theatre Trust and Waverley Care.

laffoffstigma.com Highlights

(top) Sandi Toksvig and one of those spurtles; (middle) Tim Vine talks about starting out in comedy 21 years ago!;

(bottom) Paul Merton facing the ‘Just a Minute’ challenge.

Paul Merton, Sandi Toksvig and Tim Vine were among the many famous faces who supported us at the Fringe this year.

Helping us celebrate our 21 years of working with The Pleasance theatre and comedy venue, performers looked back and told us what they were doing at 21. Visit www.laffoffstigma.com to find out what they had to say. Also see how a donation to us by T&G Woodware of (very Scottish) spurtles also added another element to the humour, and how Alex Salmond got in on the action.

Famous Faces

Bishop’s Lent AppealWorld AIDS Day 2012Events are being held across Scotland on Saturday 1st December to mark World AIDS Day.

It is a day that is internationally recognised to help increase awareness, fight prejudice, raise money and improve education.

Go to www.waverleycare.org for more details.

Fundraising

We were delighted that the Bishop of Glasgow and Galloway, The Right Reverend Dr Gregor Duncan selected Waverley Care as the charity for his 2012 Lent Appeal. £10,522 was raised to help support our work.

Thank you to all who donated.

Thank you to...Lloyds Banking Group for their dress down day and ongoing support. CC Blooms for their donation of £500 following Pride weekend.

St John The Evangelist Church, Edinburgh for £420 donated following a congregational collection.

Intergr8 Construction Ltd and Heriot-Watt University LGBT Society for their donations.

The Henry Smith Charity, The Mainhouse Charitable Trust, The Martin Connell Charitable Trust, The Monument Trust and The Sir James Miller Edinburgh Trust for their grants to support our work.

Edinburgh Gay Men’s Chorus for allowing us to collect after their summer concert where we raised £229.41.


Supporting Our Work

Title Forename(s)

Surname

Address

Postcode

Email*

I would like to:

give a single gift of £25 £50 £100 other £

(please make cheques payable to ‘Waverley Care’ or to donate by credit / debit

card go to www.waverleycare.org and click ‘donate now’)

( tick here if you do not want to receive an acknowledgement of your donation.)

give a regular donation

To the manager of (bank) Address

Postcode

Bank Sort Code / / Account No.

Please pay Waverley Care, Royal Bank of Scotland, 61 Forrest Road,

Edinburgh EH1 1QP (Sort Code 83-19-09, Account No. 00286995) the sum of

£ monthly starting on / / 20 until further notice.

With Gift Aid for every £1 you give Waverley Care can get an

extra 25p from HM Revenue & Customs at no cost to you ‡

I wish to treat all donations I make to Waverley Care as Gift Aid donations

until I notify you otherwise.

Signature Date / / 20

Please return this form to:

Waverley Care, FREEPOST RSBX-RZUK-EBRZ, 1 Mansfield Place, Edinburgh EH3 6NB

Please consider making a donation towards our work.

*ByprovidingyouremailaddressyouagreetoWaverleyCarecontactingyoubyemail.WaverleyCarewillprocessyourpersonalinformationforadministrationpurposes,tofurtherourcharitableaimsandtokeepyouupdatedwithourwork.Wewillnotshareyourinformationwithanyotheragenciesororganisations.

‡WaverleyCarewillclaimGiftAidtaxreliefof25ponevery£1yougive.YoumustpayanamountofUKIncomeTax,and/orCapitalGainstax,atleastequaltothetaxthatwewillreclaimonyourdonations.

Donate in celebration:Birthday... Retirement... Wedding... Civil Partnership...

Make your special occasion extra special by asking

friends and family to donate to Waverley Care instead of

giving presents.

Call Karen on 0131 556 9710 for more information.

Events Diary Saturday 27th October 2012Potted Pirates and Mini MikadoA Come & Sing performanceSt Cuthbert’s Church, Lothian Rd, EdinburghTickets £10 (£8 conc)Tel: 0131 556 9710

Sunday 18th November 2012Sponsored SwimDrumbrae Leisure Centre, EdinburghRaising funds for Waverley CareTel: 0131 556 9710 for details

Thursday 29th November 2012Locanda De Gusti Restaurant Evening, EdinburghTickets £24.50 for 3-course meal with Prosecco – Full ticket price goes to Waverley Care.Tel: 0131 556 9710 for tickets

Saturday 1st December 2012World AIDS Day Community GatheringsDundee: 4.30pmSt Paul’s Cathedral, High St, DundeeEdinburgh: 4.30pmSt John’s Church, Princes St, EdinburghGlasgow: 4.30pmSt Mary’s Cathedral, Great Western Rd, GlasgowInverness: 3.30pmSt Andrew’s Cathedral, 15 Ardross St, InvernessFree entryVisit www.waverleycare.org for more details

Saturday 23rd February 2013Come & Sing ‘Carmina Burana’ with Stephen DoughtySt Cuthbert’s Church, Lothian Rd, EdinburghSave the date – Online bookings open Monday 10th December.

Sunday 26th May 2013Edinburgh MarathonRaise funds for Waverley Care. Full & half marathon, and team relay places available.Tel: 0131 556 9710 for more details

For more details go to: www.waverleycare.org

Alternatively, call 0131 556 9710 or email [email protected]

Card Title Sale Price (per pack of 10 cards)

Qty Cost

1 Panda 126mm x 126mm £3.50

2 Red Dove 126mm x 126mm £3.50

3 Christmas Puds 121mm x 121mm £3.50

4 Bobbin’ Robin 121mm x 121mm £3.50

5 Everlasting Light 120mm x 120mm £3.50

6 Owls 120mm x 120mm £3.50

7 Tartan Coo 120mm x 120mm £3.50

8 Kings Following the Star 150mm x 150mm £3.75

9 Rudolf 126mm x 172mm

£3.75

10 Midnight Mass 172mm x 126mm

£3.50

11 The Virgin & Child 178mm x 83mm £3.75

CD Cadenza ‘Bright Star’ £10

Cards Total

Post/Packaging*

Donation [optional]†

Total

Please make cheques payable to ‘Waverley Care’.

To pay by credit/debit card please order your cards online at www.waverleycare.org/xmas

Thank you for your order!

Scottish Charity No. SC036500

Christmas Card: Mail Order FormPlease return completed form to:Waverley Care, FREEPOST RSBX-RZUK-EBRZ, 1 Mansfield Place, Edinburgh EH3 6NB

Your name and address: Delivery Address [if different]:

* Order Value £11.50 or under: £2.75 Order Value over £11.50: £3.75

† With Gift Aid for every £1 you donate Waverley Care can get an extra 25p

from HM Revenue & Customs at no cost to you ‡

I wish to treat all donations I make to Waverley Care as Gift Aid donations

until I notify you otherwise.

Signature Date / / 20

‡ Waverley Care will claim Gift Aid tax relief of 25p on every £1 you give. You must pay an amount of UK Income Tax, and/or Capital Gains tax, at least equal to the tax that we will reclaim on your donations.

Christmas Cards

4 Bobbin Robin121mm x 121mm A

8 Kings Following a Star150mm x 150mm B

3 Christmas Puds121mm x 121mm A

2 Red Dove126mm x 126mm A

6 Owls120mm x 120mm A

10 Midnight Mass172mm x 126mm B

1 Panda126mm x 126mm A

5 Everlasting Light120mm x 120mm B

7 Tartan Coo120mm x 120mm A

9 Rudolf126mm x 172mm A

11 Virgin and Child83mm x 178mm B

Greetings:

A – Season’s Greetings

B – With Best Wishes for Christmas and the New Year

Order Cadenza’s new CD

Order online atwww.waverleycare.org/xmas

CD ‘Bright Star’ – Cadenza at ChristmasA recording of Christmas music from Scotland and beyond.

Includes 4 of the finalists from Waverley Care’s ‘Sing a New Song’ Carol Competition. £4 from each CD goes to Waverley Care.

Positive Interest October 2012

Documents

Transcript of Positive Interest October 2012