Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my...
-
Upload
barrie-wood -
Category
Documents
-
view
215 -
download
2
Transcript of Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my...
![Page 1: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/1.jpg)
Portia Woodman
Development of a conceptual model of participation post stroke
Diana Marsh
Sharing my story
Faculty of Health and Social Care SciencesSt George’s: University of London3 May 2012
The things that stop people doing what they want to do post stroke
![Page 2: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/2.jpg)
Development of a conceptual model of participation after stroke
InterviewsInterviews
Qualitative synthesis
Qualitative synthesis
Conceptual model of
participation post stroke
Creating a tool using a group of
items which capture issues
relating to participation post
stroke
Creating a tool using a group of
items which capture issues
relating to participation post
stroke
Advisory Panel
Exploring tool with
participants
Exploring tool with
participants
![Page 3: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/3.jpg)
Purpose of this study
![Page 4: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/4.jpg)
Background People with stroke need to be enabled and empowered to live a full autonomous life in the community. (Life after stroke commissioning Guide 2010)
In order to accomplish this, people with stroke need assistance to overcome barriers to engage and participate in community activities. (Stroke Strategy 2007)
![Page 5: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/5.jpg)
How is participation experienced by people with stroke?
Haggstrom & Lund 2007 Barclay-Goddard, Ripat and Mayo 2011
‘the engagement in self selected activities that served to promote a sense of inclusion, accomplishment and as a means to stay mentally physically and socially active’
![Page 6: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/6.jpg)
How is the experience of participation post stroke captured?
Do we capture this experience?• Stroke survivors measure recovery by participation in activities
that brought meaning to their lives pre-stroke (Burton, 2000)
How can we capture this?• The best way of capturing the complexity of participation is
unknown • According to Noreau et al. (2005) person perceived
participation is a more recent concept • As a result there is a paucity of instruments that
comprehensively addresses this concept
![Page 7: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/7.jpg)
Why should we capture person perceived participation?
• Information on person perceived participation could help stroke services to develop:
better understanding of the person as well as necessary treatments or support and could provide information unobtainable by
other measures Noreau et al. (2005)
![Page 8: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/8.jpg)
Reasons for undertaking this study
• Few examples of the active involvement of people with stroke in the conceptualization and construction of participation instruments.
Further research is needed:
• To define and capture the experience of participation from the perspective of the person with stroke
• To help understand this complex construct
![Page 9: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/9.jpg)
Semi structured interviews using a Grounded theory approach
Inclusion Criteria:At least 18 years oldClinically definite diagnosis of strokeTime since diagnosis at least 6 monthsFour community rehabilitation teams:•Sutton and Merton•Wandsworth•Richmond•Hounslow
![Page 10: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/10.jpg)
Summary of Results 12 ParticipantsGender: 8 Males and 4 FemalesAphasia: 6 PeopleEthnicity: 3 People of Asian ethnicityAge: 27 to 75 years old Mobility: 7 People walked unaidedLiving situation: 3 People lived alone Time since stroke: 9 months to 13 years Working: 3 People
The things I want to do The things I want to do
Personal Meaning of doing things
Personal Meaning of doing things
Things that help me
Things that help me
Things that stop me
Things that stop me
Changes to me and my life Changes to me and my life
![Page 11: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/11.jpg)
Personal Meaning of doing things
![Page 12: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/12.jpg)
Things that stop me
![Page 13: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/13.jpg)
Things that help me
![Page 14: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/14.jpg)
Changes to me and my life
![Page 15: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/15.jpg)
Thanks for listeningContact Details:
Portia [email protected]
Supervision Team
Dr Fiona JonesDr Afsane Riazi
Professor Ann Mackenzie
![Page 16: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/16.jpg)
Sharing my story Diana Marsh
![Page 17: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/17.jpg)
Things I wanted to do
Work: Manager of a Betting shopTheatre
HolidaysBaking
![Page 18: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/18.jpg)
What does work mean to me?
![Page 19: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/19.jpg)
Things that made work difficult
![Page 20: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/20.jpg)
Tiredness
Things that made it difficult Going to bed at 9.30 pmNeeding a nap in the
afternoon Activities with friends fell away Doing something new makes
me tired
Things that helped Changing my routineBuilding up hours Building up days Structured routinePlanning and organisingSupport from work colleagues
and managers
![Page 21: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/21.jpg)
Doing things with one hand
• Putting my uniform on• Counting the money• Putting up large newspapers on the wall• Sorting paperwork• Stapling and hole punching paper• Using the computer
![Page 22: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/22.jpg)
Difficulty concentrating
• Computer work • Concentration makes me tired • Learning new information• Thinking about something I have not done for
a while• Reading • Meetings
![Page 23: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/23.jpg)
Transport difficulties
• Bad experience with people on the bus• It doesn't look like I need to sit down so
people don't offer me a seat• I don't like all the questions from people• Pity off people• Doing it by myself• Walking makes me tired• Busy trains
![Page 24: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/24.jpg)
Things that helped me
![Page 25: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/25.jpg)
My Progress with work:Achieving the impossible
![Page 26: Portia Woodman Development of a conceptual model of participation post stroke Diana Marsh Sharing my story Faculty of Health and Social Care Sciences St.](https://reader030.fdocuments.us/reader030/viewer/2022032801/56649dde5503460f94ad738f/html5/thumbnails/26.jpg)
Thanks for listening